Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Joanne, With DDD in Washington there is no such thing as qualified for life. I was told that by my DDD case worker when was reevaluated in elem. School, only to find out later that was kicked out of the system because we did not reapply at the three year interval. They sent one letter that was apparently lost and that was it. Because we have never received services, I had no other notice. I just got her back into the system and so now, even though has lived in the Socialist State of Washington all her life, she is at the bottom of the waiting list for services. (No. 2783! at last check) It is doubtful that she will receive any services whatsoever from this State until she turns 18. I have appealed but haven¹t heard anything on it. Don¹t believe them when they say your child is qualified for life. Make sure to always check that your son¹s DDD case no. is active and know exactly when he is due for a reevaluation. Therese > Hi Louise, thanks for the information. The ICAP sounds like it meets about > the same needs I understand. I was told what the acronym stood for here, but > just can't quite remember, it could be what you said it was. I know it gets > me the hours I require to have a Provider to help me at home with - it > is such a blessing. I had the hours assigned to me years before I was ever > able to find someone to take the job! I had a look a the website you sent - > thank you, very informative! I live in the State of Washington, so I'm not > sure if all the same things apply here. But, by receiving the dx of Autism, > is now qualified for life in this State - whatever that means!! I will > ask my DDD (Division of Developmental Disabilities) case worker again next > time I see him. > > By the way, it is wonderfully inspiring to read your posts, to think that your > son is 41 and you were able to get the diagnosis after all these years - good > for you! > > Joanne > (13), (9 1/2),ds,asd,das & (7) > Re: intro > > > In a message dated 4/2/2004 12:14:25 AM Central Standard Time, > joanne_hiebert@... writes: > has to requalify every two years for the ICAP program through the DDD > Joanne is the ICAP the Inventory for Client and Agency Planning? That is > what I know the ICAP to be. It is completed yearly on our son to continue > to > qualify him for the CILA (Community Integrated Living Arrangement) through > our > DHS (Department of Human Services) in IL. This is an important review as > the > score that results is what determines how much supervision and services the > person needs. This site explains all the scores > http://www.isd.net/bhill/support.htm > Louise, Mom to 41 DS, HI, ASD/psychologist and independent consultant, > but not his MD's at this point. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Hi Therese, thank for the warning, I'm so sorry to hear that was kicked out of the system, it's one of my worst fears. I was saying " qualified for life " tongue in cheek - I don't trust my case worker for all the tea in China. I had to ride him hard recently, has to qualify every year for his Medicaid services and in my book that was due last August. He was adamant it wasn't until October and I couldn't get him out here until last month. I had to threaten to call his supervisor to have him call me back and book the appointment. Then he assured me we would get all the paperwork signed before the end of March to keep on the old Waiver program. The day before the end of the month, I panicked when I realized he had done it again. I made him come out with the paperwork after he had finished his work day on the 31st... can't trust them as far as you can throw them!! Thanks again, I appreciate your taking the time to warn me. Joanne Mom to (9 1/2), ds,asd,das Re: intro > > > In a message dated 4/2/2004 12:14:25 AM Central Standard Time, > joanne_hiebert@... writes: > has to requalify every two years for the ICAP program through the DDD > Joanne is the ICAP the Inventory for Client and Agency Planning? That is > what I know the ICAP to be. It is completed yearly on our son to continue > to > qualify him for the CILA (Community Integrated Living Arrangement) through > our > DHS (Department of Human Services) in IL. This is an important review as > the > score that results is what determines how much supervision and services the > person needs. This site explains all the scores > http://www.isd.net/bhill/support.htm > Louise, Mom to 41 DS, HI, ASD/psychologist and independent consultant, > but not his MD's at this point. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 In a message dated 4/5/2004 8:35:19 PM Eastern Standard Time, home@... writes: School, only to find out later that was kicked out of the system because we did not reapply at the three year interval. They sent one letter that was apparently lost and that was it. Yes Therese...same thing happened to us for medical assistance. I was at the beach and was sent a notice to come for an appt. to be re-evaluated for MA. When I didn't make the meeting, I was immediately dropped....I said to the woman, " EXCUSE ME, but how can I come to an appt I don't know about because I'm away and Maddie's card be cancelled before I even get home? " (I was gone one lousy week BTW...they sure can be quick when they want to). I too, have to re-instate her, which is just a nightmare in a big city like Philly. BUT I will do it. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 Hi Donna, That waiver is a big pain in Ct too. I apparently didn't fill out the paperwork properly even though the DMR worker did most of it. I was sent a registered letter that I was being investigated for fraud. Zeb did qualify but after spending time on the phone and copying paperwork to justify everything so I wouldn't be arrested or whatever they do I told them to keep it. I didn't need anyone reminding me that I was the legally liable relative like I didn't support this child. I say no thankyou to anything that is offered. It's not worth it to me. Charlyne Mom to Zeb 11 DS/OCD Quote Link to comment Share on other sites More sharing options...
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