Diane

[Guest guest]

Hi,

I don´t speak English very well, but I understand better. I have a

daughter(Diane, 13 years) with Down-Syndrom. I think she is autistic too.

If anybody of you have the same problem and speak German or Romanian please

contact me.

Thanks,

Mihaela

---------------------------------

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[Guest guest]

Hi Diane,

Well, tomorrow has arrived which will be Monday and back to school so

soon is right. I need to get back into the routine again. Lets see

how it turns out. I'll probably attend during noon hours to see how

he does with the new transition at the Vocational training Ctr. I

still need to know how he is returning home from the Vocational Ctr.

I've met the bus and bus aide for the A.M. from home to school but

the other half of the day to the Vocational Training Center to home

is questionable.

Oh boy, middle school would involve lots of changes but sometimes

could work out better than the elementary days as now you know you

are dealing more with the " Do not waste any valuable more years with

my child " .

How is Rochelle communicating with you? How about at school? Does she

like working with the speech therapist during the school years?

hated it, even with the private speech therapist. During his

middle school years though he was placed aside & near the group

sitting on a bean bag, as he did not want to participate but within

time he would slowly start to yell out single words out loud which

the speech therapist thought was finally a break through after 2

years trying to work with him. Then she involved sensory activities

that he enjoyed doing which involved him to participate and start

speaking up single words on his last year working with her, anything

is good in my book.

All within time, hopefully Rochelle will too. never did talk

besides the only words of " No! " Until his Middle school years and

most people who did not know him thought he was a foreign student.

Back during his elementary years he ended receiving lots of time-outs

due to not cooperating or participating.

Good luck with Rochelle and Danny when they return to school.

WOW! This is news on Danny receiving AIT. That is great that he likes

it and you are noticing some good changes. All worth the cost and

sacrifices. I hear ya, as I have to do the same thing with the ABA/VB

Therapy.

How did you find out about Dr. Layton? He sounds great.

I thought of trying AIT Therapy for as the president of the

local Autism Society Support Group has opened her business with her

dh and have heard some good results from several but with the other

interventions I must take it slowly to make sure which is working

well.

Rochelle may be on a huge waiting list but at least she is on the

list and if there are any funds available wishful thinking but it

shows how many are in need. Plus when she is 18 y/o hopefully the

funds will be available. I've met some parents with young adults with

special needs attending High School who were not aware of services

and finally have their kids on the waiting list, but you can imagine

the wait at an older age. is still on a waiting list for the

Medicaid Waiver, but once he turns 18 y/o will qualify for the SSI &

the Medicaid waiver. Take care and looking forward to hearing more

updates. Thanks!

Irma,16,DS/ASD

> Hey Irma,

> is starting school early. I dread middle school. All the

> changes. Glad to hear the bracelet is working. I hope someday

> Rochelle will be able to speak. We have a couple of weeks till

> school starts. Right after Labor day.

>

> Danny is finished his first week of auditory training. We have two

> weeks to go. He seems to like it. The commute is hectic in the

> morning. The interventions Dr. Layton recommended is working great.

> I have seen changes already. Danny is the guinne pig before I try

it

> with Rochelle. He can tell me what is going on.

>

> Thanks for the info on the GR fund. We don't have that here in

> Virginia. We just have the MR waiver which Rochelle qualifies for

> but is on a long waiting list for services.

>

> Keep us updated on .

> Diane

>

[Guest guest]

Y'all aren't the only ones that start early. Our public schools for McKinney

start tomorrow on Tuesday. Other school have already been in classes for up

to 2 weeks now.

Re: Diane

>

> Hi Diane,

> Well, tomorrow has arrived which will be Monday and back to school so

> soon is right. I need to get back into the routine again. Lets see

> how it turns out. I'll probably attend during noon hours to see how

> he does with the new transition at the Vocational training Ctr. I

> still need to know how he is returning home from the Vocational Ctr.

> I've met the bus and bus aide for the A.M. from home to school but

> the other half of the day to the Vocational Training Center to home

> is questionable.

> Oh boy, middle school would involve lots of changes but sometimes

> could work out better than the elementary days as now you know you

> are dealing more with the " Do not waste any valuable more years with

> my child " .

> How is Rochelle communicating with you? How about at school? Does she

> like working with the speech therapist during the school years?

> hated it, even with the private speech therapist. During his

> middle school years though he was placed aside & near the group

> sitting on a bean bag, as he did not want to participate but within

> time he would slowly start to yell out single words out loud which

> the speech therapist thought was finally a break through after 2

> years trying to work with him. Then she involved sensory activities

> that he enjoyed doing which involved him to participate and start

> speaking up single words on his last year working with her, anything

> is good in my book.

> All within time, hopefully Rochelle will too. never did talk

> besides the only words of " No! " Until his Middle school years and

> most people who did not know him thought he was a foreign student.

> Back during his elementary years he ended receiving lots of time-outs

> due to not cooperating or participating.

> Good luck with Rochelle and Danny when they return to school.

> WOW! This is news on Danny receiving AIT. That is great that he likes

> it and you are noticing some good changes. All worth the cost and

> sacrifices. I hear ya, as I have to do the same thing with the ABA/VB

> Therapy.

> How did you find out about Dr. Layton? He sounds great.

> I thought of trying AIT Therapy for as the president of the

> local Autism Society Support Group has opened her business with her

> dh and have heard some good results from several but with the other

> interventions I must take it slowly to make sure which is working

> well.

> Rochelle may be on a huge waiting list but at least she is on the

> list and if there are any funds available wishful thinking but it

> shows how many are in need. Plus when she is 18 y/o hopefully the

> funds will be available. I've met some parents with young adults with

> special needs attending High School who were not aware of services

> and finally have their kids on the waiting list, but you can imagine

> the wait at an older age. is still on a waiting list for the

> Medicaid Waiver, but once he turns 18 y/o will qualify for the SSI &

> the Medicaid waiver. Take care and looking forward to hearing more

> updates. Thanks!

>

> Irma,16,DS/ASD

>

>

>

> > Hey Irma,

> > is starting school early. I dread middle school. All the

> > changes. Glad to hear the bracelet is working. I hope someday

> > Rochelle will be able to speak. We have a couple of weeks till

> > school starts. Right after Labor day.

> >

> > Danny is finished his first week of auditory training. We have two

> > weeks to go. He seems to like it. The commute is hectic in the

> > morning. The interventions Dr. Layton recommended is working great.

> > I have seen changes already. Danny is the guinne pig before I try

> it

> > with Rochelle. He can tell me what is going on.

> >

> > Thanks for the info on the GR fund. We don't have that here in

> > Virginia. We just have the MR waiver which Rochelle qualifies for

> > but is on a long waiting list for services.

> >

> > Keep us updated on .

> > Diane

> >

>

>

>

>

>

>

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>

[Guest guest]

Hi Irma,

>How is Rochelle communicating with you? How about at school? Does .

>she

>like working with the speech therapist during the school years?>>

Rochelle doesn't communicate much. She will get the PECS or give me

a video if she is extremely motivated. Most of the pictures are

food. We are increasing the picture vocabulary. She uses words

occassionally. When we were on vacation she kept

saying " hot " " hot " " hot " because it was hot! No air conditioning on

the Island. She was saying it at 11:30 at night. What could I do?

There was only one fan for four families. Oh well.

She works with the speech therapist fine. She had a male speech

therapist for ESY and apparently loved him! I do hope the therapists

are using pictures.

It is good to know that started talking in the later years

because I can still have some hope. I think it is funny that kids

thought he was a foreign exchange student. I don't think there is

any question Rochelle has down syndrome.

>How did you find out about Dr. Layton? He sounds great.>>

Dr. Layton is a pediatric allergist. He is pretty well known around

here but I didn't know he worked with cutting edge methods. A friend

of mine told me about him. We think he is great. I think he likes to

find out what makes our kids tick like a scientist. He does not do

auditory training but he is curious to see the outcome as well as

our ENT.

I think the auditory training (tomatis) would be great for anyone

but it is costly. There are other listening interventions which are

less expensive but rely on the parent to implement. I just knew I

didn't have the patience. I have not been a parent that paid for a

lot of therapy through the years. I just simply didn't have the time

with Rochelle needing early intervention. I was not willing to

change our lifestyle and stress ourselves out. (Stress me out). The

auditory training is something we can do right now and I will let

everyone know what I think of it in six months or so.

I would consider ABA/VB in the future for Rochelle. Keep us posted

on that. Thanks.

Irma, why don't you call the bus people before school starts to find

out about the schedule. You will have a hard time if you wait till

school starts. The phone lines will be very busy. My experience with

buses is that they change in the beginning of the year alot.

Diane

>

[Guest guest]

> Hi Irma,

Rochelle doesn't communicate much. She will get the PECS or give me

a video if she is extremely motivated. Most of the pictures are

> food. We are increasing the picture vocabulary. She uses words

> occassionally. When we were on vacation she kept

> saying " hot " " hot " " hot " because it was hot! No air conditioning

on the Island. She was saying it at 11:30 at night. What could I do?

> There was only one fan for four families. Oh well.

still does this too, not on handing the PECS but can point to

identifying to whatever asked depending on the pictures. He will not

say anything unless its something that he finds an interest on.

Poor baby, she can totally relate to what " hot " means. I think thats

a good start.

>

> She works with the speech therapist fine. She had a male speech

> therapist for ESY and apparently loved him! I do hope the

therapists are using pictures.

That is nice when there is a postive and motivated person who is

willing to work with her and she looks forward to it.

> It is good to know that started talking in the later years

> because I can still have some hope. I think it is funny that kids

> thought he was a foreign exchange student. I don't think there is

> any question Rochelle has down syndrome.

What a Neuro-typical kid. I guess for being the other side of the

Downs whom has passed the DS Growth Chart at the Down syndrome

clinic in Cincinnati is a compliment in a way which was confirmed

probably triggers to fit in with the crowd. : )

When he wears his glasses, most people only see the autism and not

the Downs feature.

Today on the road returning from visiting my mom which is about 2

1/2 hrs. away he was pretty quiet. Only responded to " W " questions,

which to me is another awesome step. Only when he wants to. So he

does listen well and when he can find a way to express, its loud and

clear.

I believe he is trying to recover from his first week back to

school. He did great the entire week. Knock on wood.

I've been working on the removal of him not carrying his favorite

toy/object to stim with to take to school and so far its been

working.

He does not want his Med-Id bracelet off, loves it!

The Vocational Instructor who I have not meant but have stayed in

touch with a communication book and via phone and now have her email

address turned out to be great she has 33 yrs. of experience.

Even the AM and PM transportation were also wonderful. I had some

educational professionals buddies from the HS and at the Vocational

Ctr. email me about checking up on him and he was cooperating well.

I did not ask them to do this but they know how I get supposdely

because they were shocked to see or hear from me all calm. I was a

happy camper because he was. We shall see for week 2.

>

> >How did you find out about Dr. Layton? He sounds great.>>

>

> Dr. Layton is a pediatric allergist. He is pretty well known

around here but I didn't know he worked with cutting edge methods.

A friend of mine told me about him. We think he is great. I think he

likes to find out what makes our kids tick like a scientist. He does

not do auditory training but he is curious to see the outcome as

well as our ENT.

>

> I think the auditory training (tomatis) would be great for anyone

> but it is costly. There are other listening interventions which

are less expensive but rely on the parent to implement. I just knew

I didn't have the patience. I have not been a parent that paid for a

> lot of therapy through the years. I just simply didn't have the

time with Rochelle needing early intervention. I was not willing to

> change our lifestyle and stress ourselves out. (Stress me out).

The auditory training is something we can do right now and I will

let everyone know what I think of it in six months or so.

Looking forward to hearing more. This sounds wonderful, this is what

I need here in town. I'm so glad that you found a doctor that is

open-minded and willing to find some answers.

>

> I would consider ABA/VB in the future for Rochelle. Keep us posted

> on that. Thanks.

Have you read anything on the ABA/VB Therapy?

Well, one thing at a time is correct and the AIT for Danny could be

time-consuming and stressful. I hear ya.

Take care.

Irma,16,DS/ASD