Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 I don't know about the next person but I wondered why they kept giving me all these different pain pills instead of trying to find out WHY I had pain in the first place. One jerk even went as far as to tell me I was " a drug seeking junkie just like all the rest " to which I took out the big ziploc bag with many, many mostly full bottles of narcotic pain relievers and slung it across the room and said " I don't want more narcotic drugs, I want to know why I am in pain and how I can cure it without being high. I have children to raise. " He apologized but by then the damage was done. It took me 7 years to get my diagnosis, 7 years of not being believed, 7 years of being told I was malingering, 7 years of being told " It's all in your head " , 7 years of actually being told to my face " You're crazy, go get some psychiatric help " . Yeah, even went to one of those who politely sent me back about a month later with his card complete with his different phone numbers including home and said " give this to the jerk that sent you here. " I got the diagnosis in 1998 and placed on Lyrica in 2007 so that was another 9 years of suffering. There are many Fibro groups out there and I have seen people ridiculed for their ideas. I've heard of people being sensored for their opinions. My post was sent out March 6th but did not appear until the 10th which incidently I reattached to my request to be removed off the group yet it does not appear with the request but appears as a separate post. Everyone has a Fibro story and different things work for different people. I've been dealing with this since 1991 and there is very little out there left that I haven't already tried. Meds, herbs & vitamins, massage therapy, hot water therapy, guafenesin therapy, TENS machines, and the list goes on. I joined this group to see what other people are trying because there might come a time when the Lyrica does not work or is no longer covered by my insurance or something. I had heard about Lyrica before I was placed on it for the neuropathy. I heard horror stories and was afraid of it. One person had positive results and because of that post I tried Lyrica. I had nothing to lose at that point. I never expected to be able to have a life again. I can walk! I can go to the store! I can drive a car! I can go on a date! I can function again. I have days where I can pass up the handicap space! I was only 25 when this nightmare started and missed out on a significant portion of my children's lives because I was always " sick " in bed. I'm living again guys all because of one person's post I seen somewhere in late 2006. Hugs to everyone and take care. JBaby --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 JBaby, I totally empathies with you. The two big differences are that I got it at an older age and I have no children. Everything else sounds about the same. It was awful thinking that I was going nuts or something, though I didn't really think that but my doctor couldn't find any reasons for my odd symptoms and began to think I was a hypochondriac. It took 7 years total to get diagnosed and it was me who instigated this since I was told by another Fibro sufferer that I probably had it. Sure enough I did. I was just getting into the daily painful part of Fibro by then. I had so many bizarre symptoms. The clincher, though not common, were my seizures after my mom passed away. I had taken care of her for 16 years. I'd had so many migraines that it scarred my brain tissue. Anyway, I'm so happy the Lyrica works for you. I've had a lot of problems with different drugs that I try to be super careful about starting another one. Of course, I don't have much of a life these days. But I do take Neurontin which helps a lot with my seizures. I'm not so sure if I can take both. I am working with a holistic doctor but have only seen her one time and am looking forward to my next visit which is next week. I think I'm hoping for a miracle and may talk to her about Lyrica again. I just don't want to be one of those who gets the bad side affects. That happened with Ambien and it was really scary. Big hugs to you. I'm personally glad you are still here. Jane _____ From: fibromyalgiacured [mailto:fibromyalgiacured ] On Behalf Of JBaby Sent: Tuesday, March 11, 2008 11:28 PM To: fibromyalgiacured Subject: Re:Group questions I don't know about the next person but I wondered why they kept giving me all these different pain pills instead of trying to find out WHY I had pain in the first place. One jerk even went as far as to tell me I was " a drug seeking junkie just like all the rest " to which I took out the big ziploc bag with many, many mostly full bottles of narcotic pain relievers and slung it across the room and said " I don't want more narcotic drugs, I want to know why I am in pain and how I can cure it without being high. I have children to raise. " He apologized but by then the damage was done. It took me 7 years to get my diagnosis, 7 years of not being believed, 7 years of being told I was malingering, 7 years of being told " It's all in your head " , 7 years of actually being told to my face " You're crazy, go get some psychiatric help " . Yeah, even went to one of those who politely sent me back about a month later with his card complete with his different phone numbers including home and said " give this to the jerk that sent you here. " I got the diagnosis in 1998 and placed on Lyrica in 2007 so that was another 9 years of suffering. There are many Fibro groups out there and I have seen people ridiculed for their ideas. I've heard of people being sensored for their opinions. My post was sent out March 6th but did not appear until the 10th which incidently I reattached to my request to be removed off the group yet it does not appear with the request but appears as a separate post. Everyone has a Fibro story and different things work for different people. I've been dealing with this since 1991 and there is very little out there left that I haven't already tried. Meds, herbs & vitamins, massage therapy, hot water therapy, guafenesin therapy, TENS machines, and the list goes on. I joined this group to see what other people are trying because there might come a time when the Lyrica does not work or is no longer covered by my insurance or something. I had heard about Lyrica before I was placed on it for the neuropathy. I heard horror stories and was afraid of it. One person had positive results and because of that post I tried Lyrica. I had nothing to lose at that point. I never expected to be able to have a life again. I can walk! I can go to the store! I can drive a car! I can go on a date! I can function again. I have days where I can pass up the handicap space! I was only 25 when this nightmare started and missed out on a significant portion of my children's lives because I was always " sick " in bed. I'm living again guys all because of one person's post I seen somewhere in late 2006. Hugs to everyone and take care. JBaby --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 Oh you sweetheart! I am so glad you stuck in there with being so determined! I dont have that much strength as you talked about, and I just dont know why. I am 34, and like you said, loosing out on my children, and am very sad. I am too sick to go to the doctors anymore. I am too sick to fight anymore. I am loosing the battle to say the least and it makes me cry just laying here typing to you. Mine all started the moment I gave birth to my son, who was born then suddenly lost his heartbeat. They thought they lost him for 5 minutes, but recovered THANK GOD!!!! But, Iam so sad, because I feel like I never recovered since he was born. At the time my other son was two years old. Now he is 10 and my youngest is 8. Its been 8 years for me dealing with all of this. The first time I was mentioned fibro was about 3 years ago, so all that past time I had no clue what the heck was wrong with me. I thought I had lupus, by all the symptoms. Still not sure on that..... according to one doctor, h e said he believes its all the same, just in a difference strength. I dont know. Anyway, thanks for your post, it gave me some hope. I have tried so many different antipressents, but they make me soooooo sick. So much MORE sick than just the normal. And with the fibro I cannot handle anymore sickness. Thanks though, maybe... just maybe I will give it another try. My doctor has me on a pain patch now, and I think it makes it so much more worse. The replace my fentenyl patch every two days, it seems on day one, I am feeling better, can get out of bed alittle. But still not enough. (can cook alittle soup or something) but, on day two, I cannot do anything........ not even get my children off to school. ARGH. Does anyone else on here take the fentenyl patch? Its so sad too, because I am such a herbal/naturalist wanna be!!! I take all kind of natural products, etc, daily... try to eat right. BUT, I have this stupid drug going into my body and dont know how Iam going to get off of it. S ome days I cant tell which is which, is it the patch or Fibro. I dont know anymore! Someone, got any ideas for me? -- **************************************** Blessings from ~a Proud Mommy ~ to ~ Nickolas 10 (2/4/98) Brenden 8 (1/12/00) http://www.simpliessential.com **************************************** -------------- Original message ---------------------- > I don't know about the next person but I wondered why they kept giving me all > these different pain pills instead of trying to find out WHY I had pain in the > first place. One jerk even went as far as to tell me I was " a drug seeking > junkie just like all the rest " to which I took out the big ziploc bag with many, > many mostly full bottles of narcotic pain relievers and slung it across the room > and said " I don't want more narcotic drugs, I want to know why I am in pain and > how I can cure it without being high. I have children to raise. " He apologized > but by then the damage was done. It took me 7 years to get my diagnosis, 7 years > of not being believed, 7 years of being told I was malingering, 7 years of being > told " It's all in your head " , 7 years of actually being told to my face " You're > crazy, go get some psychiatric help " . Yeah, even went to one of those who > politely sent me back about a month later with his card complete with his > different phone numbers including home and > said " give this to the jerk that sent you here. " I got the diagnosis in 1998 > and placed on Lyrica in 2007 so that was another 9 years of suffering. There are > many Fibro groups out there and I have seen people ridiculed for their ideas. > I've heard of people being sensored for their opinions. My post was sent out > March 6th but did not appear until the 10th which incidently I reattached to my > request to be removed off the group yet it does not appear with the request but > appears as a separate post. Everyone has a Fibro story and different things work > for different people. I've been dealing with this since 1991 and there is very > little out there left that I haven't already tried. Meds, herbs & vitamins, > massage therapy, hot water therapy, guafenesin therapy, TENS machines, and the > list goes on. I joined this group to see what other people are trying because > there might come a time when the Lyrica does not work or is no longer covered by > my insurance or something. I had heard > about Lyrica before I was placed on it for the neuropathy. I heard horror > stories and was afraid of it. One person had positive results and because of > that post I tried Lyrica. I had nothing to lose at that point. I never expected > to be able to have a life again. I can walk! I can go to the store! I can drive > a car! I can go on a date! I can function again. I have days where I can pass up > the handicap space! I was only 25 when this nightmare started and missed out on > a significant portion of my children's lives because I was always " sick " in bed. > I'm living again guys all because of one person's post I seen somewhere in late > 2006. Hugs to everyone and take care. > JBaby > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 The good thing about treatment that actually works is you don't have to give up the benefit of the pain meds. You just won't hurt, so you won't want them. Annie Re: Re:Group questions Oh you sweetheart! I am so glad you stuck in there with being so determined! I dont have that much strength as you talked about, and I just dont know why. I am 34, and like you said, loosing out on my children, and am very sad. I am too sick to go to the doctors anymore. I am too sick to fight anymore. I am loosing the battle to say the least and it makes me cry just laying here typing to you. Mine all started the moment I gave birth to my son, who was born then suddenly lost his heartbeat. They thought they lost him for 5 minutes, but recovered THANK GOD!!!! But, Iam so sad, because I feel like I never recovered since he was born. At the time my other son was two years old. Now he is 10 and my youngest is 8. Its been 8 years for me dealing with all of this. The first time I was mentioned fibro was about 3 years ago, so all that past time I had no clue what the heck was wrong with me. I thought I had lupus, by all the symptoms. Still not sure on that..... according to one doctor, h e said he believes its all the same, just in a difference strength. I dont know. Anyway, thanks for your post, it gave me some hope. I have tried so many different antipressents, but they make me soooooo sick. So much MORE sick than just the normal. And with the fibro I cannot handle anymore sickness. Thanks though, maybe... just maybe I will give it another try. My doctor has me on a pain patch now, and I think it makes it so much more worse. The replace my fentenyl patch every two days, it seems on day one, I am feeling better, can get out of bed alittle. But still not enough. (can cook alittle soup or something) but, on day two, I cannot do anything........ not even get my children off to school. ARGH. Does anyone else on here take the fentenyl patch? Its so sad too, because I am such a herbal/naturalist wanna be!!! I take all kind of natural products, etc, daily... try to eat right. BUT, I have this stupid drug going into my body and dont know how Iam going to get off of it. S ome days I cant tell which is which, is it the patch or Fibro. I dont know anymore! Someone, got any ideas for me? -- **************************************** Blessings from ~a Proud Mommy ~ to ~ Nickolas 10 (2/4/98) Brenden 8 (1/12/00) http://www.simpliessential.com **************************************** -------------- Original message ---------------------- > I don't know about the next person but I wondered why they kept giving me all > these different pain pills instead of trying to find out WHY I had pain in the > first place. One jerk even went as far as to tell me I was " a drug seeking > junkie just like all the rest " to which I took out the big ziploc bag with many, > many mostly full bottles of narcotic pain relievers and slung it across the room > and said " I don't want more narcotic drugs, I want to know why I am in pain and > how I can cure it without being high. I have children to raise. " He apologized > but by then the damage was done. It took me 7 years to get my diagnosis, 7 years > of not being believed, 7 years of being told I was malingering, 7 years of being > told " It's all in your head " , 7 years of actually being told to my face " You're > crazy, go get some psychiatric help " . Yeah, even went to one of those who > politely sent me back about a month later with his card complete with his > different phone numbers including home and > said " give this to the jerk that sent you here. " I got the diagnosis in 1998 > and placed on Lyrica in 2007 so that was another 9 years of suffering. There are > many Fibro groups out there and I have seen people ridiculed for their ideas. > I've heard of people being sensored for their opinions. My post was sent out > March 6th but did not appear until the 10th which incidently I reattached to my > request to be removed off the group yet it does not appear with the request but > appears as a separate post. Everyone has a Fibro story and different things work > for different people. I've been dealing with this since 1991 and there is very > little out there left that I haven't already tried. Meds, herbs & vitamins, > massage therapy, hot water therapy, guafenesin therapy, TENS machines, and the > list goes on. I joined this group to see what other people are trying because > there might come a time when the Lyrica does not work or is no longer covered by > my insurance or something. I had heard > about Lyrica before I was placed on it for the neuropathy. I heard horror > stories and was afraid of it. One person had positive results and because of > that post I tried Lyrica. I had nothing to lose at that point. I never expected > to be able to have a life again. I can walk! I can go to the store! I can drive > a car! I can go on a date! I can function again. I have days where I can pass up > the handicap space! I was only 25 when this nightmare started and missed out on > a significant portion of my children's lives because I was always " sick " in bed. > I'm living again guys all because of one person's post I seen somewhere in late > 2006. Hugs to everyone and take care. > JBaby > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 Oh GOD, I cant wait for that day to happen! LOL. -- **************************************** Blessings from ~a Proud Mommy ~ to ~ Nickolas 10 (2/4/98) Brenden 8 (1/12/00) http://www.simpliessential.com **************************************** --------- Re: Re:Group questions > > > Oh you sweetheart! I am so glad you stuck in there with being so determined! I > dont have that much strength as you talked about, and I just dont know why. I am > 34, and like you said, loosing out on my children, and am very sad. I am too > sick to go to the doctors anymore. I am too sick to fight anymore. I am loosing > the battle to say the least and it makes me cry just laying here typing to you. > Mine all started the moment I gave birth to my son, who was born then suddenly > lost his heartbeat. They thought they lost him for 5 minutes, but recovered > THANK GOD!!!! But, Iam so sad, because I feel like I never recovered since he > was born. At the time my other son was two years old. Now he is 10 and my > youngest is 8. Its been 8 years for me dealing with all of this. The first time > I was mentioned fibro was about 3 years ago, so all that past time I had no clue > what the heck was wrong with me. I thought I had lupus, by all the symptoms. > Still not sure on that..... according to one doctor, h > e said he believes its all the same, just in a difference strength. I dont > know. Anyway, thanks for your post, it gave me some hope. I have tried so many > different antipressents, but they make me soooooo sick. So much MORE sick than > just the normal. And with the fibro I cannot handle anymore sickness. Thanks > though, maybe... just maybe I will give it another try. My doctor has me on a > pain patch now, and I think it makes it so much more worse. The replace my > fentenyl patch every two days, it seems on day one, I am feeling better, can get > out of bed alittle. But still not enough. (can cook alittle soup or something) > but, on day two, I cannot do anything........ not even get my children off to > school. ARGH. Does anyone else on here take the fentenyl patch? Its so sad too, > because I am such a herbal/naturalist wanna be!!! I take all kind of natural > products, etc, daily... try to eat right. BUT, I have this stupid drug going > into my body and dont know how Iam going to get off of it. S > ome days I cant tell which is which, is it the patch or Fibro. I dont know > anymore! Someone, got any ideas for me? > > -- > **************************************** > Blessings from ~a > Proud Mommy ~ to ~ > Nickolas 10 (2/4/98) > Brenden 8 (1/12/00) > http://www.simpliessential.com > **************************************** > > -------------- Original message ---------------------- > > > I don't know about the next person but I wondered why they kept giving me > all > > these different pain pills instead of trying to find out WHY I had pain in > the > > first place. One jerk even went as far as to tell me I was " a drug seeking > > junkie just like all the rest " to which I took out the big ziploc bag with > many, > > many mostly full bottles of narcotic pain relievers and slung it across the > room > > and said " I don't want more narcotic drugs, I want to know why I am in pain > and > > how I can cure it without being high. I have children to raise. " He > apologized > > but by then the damage was done. It took me 7 years to get my diagnosis, 7 > years > > of not being believed, 7 years of being told I was malingering, 7 years of > being > > told " It's all in your head " , 7 years of actually being told to my face > " You're > > crazy, go get some psychiatric help " . Yeah, even went to one of those who > > politely sent me back about a month later with his card complete with his > > different phone numbers including home and > > said " give this to the jerk that sent you here. " I got the diagnosis in 1998 > > and placed on Lyrica in 2007 so that was another 9 years of suffering. There > are > > many Fibro groups out there and I have seen people ridiculed for their > ideas. > > I've heard of people being sensored for their opinions. My post was sent out > > March 6th but did not appear until the 10th which incidently I reattached to > my > > request to be removed off the group yet it does not appear with the request > but > > appears as a separate post. Everyone has a Fibro story and different things > work > > for different people. I've been dealing with this since 1991 and there is > very > > little out there left that I haven't already tried. Meds, herbs & vitamins, > > massage therapy, hot water therapy, guafenesin therapy, TENS machines, and > the > > list goes on. I joined this group to see what other people are trying > because > > there might come a time when the Lyrica does not work or is no longer > covered by > > my insurance or something. I had heard > > about Lyrica before I was placed on it for the neuropathy. I heard horror > > stories and was afraid of it. One person had positive results and because of > > that post I tried Lyrica. I had nothing to lose at that point. I never > expected > > to be able to have a life again. I can walk! I can go to the store! I can > drive > > a car! I can go on a date! I can function again. I have days where I can > pass up > > the handicap space! I was only 25 when this nightmare started and missed out > on > > a significant portion of my children's lives because I was always " sick " in > bed. > > I'm living again guys all because of one person's post I seen somewhere in > late > > 2006. Hugs to everyone and take care. > > JBaby > > > > > > --------------------------------- > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it > now. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2008 Report Share Posted March 13, 2008 I have a question about Lyrica (I say worried cuz of my experience with Ambien). If you don't feel pain and you do the stuff you used to do, do you crash for over doing it? Also, does it take all pain away? I have both muscular pain and tendon pain, the latter being the worst for the most part. Oh, and does it give you your energy back or are you still a slug. And does it help with sleep. Gee, I guess I could just look it up at this rate. LOL Thank you, Jane _____ ************************* Subject: Re: Re:Group questions Oh GOD, I cant wait for that day to happen! LOL. -- **************************************** Blessings from ~a Proud Mommy ~ to ~ Nickolas 10 (2/4/98) Brenden 8 (1/12/00) http://www.simplies <http://www.simpliessential.com> sential.com **************************************** --------- Re: Re:Group questions > > > Oh you sweetheart! I am so glad you stuck in there with being so determined! I > dont have that much strength as you talked about, and I just dont know why. I am > 34, and like you said, loosing out on my children, and am very sad. I am too > sick to go to the doctors anymore. I am too sick to fight anymore. I am loosing > the battle to say the least and it makes me cry just laying here typing to you. > Mine all started the moment I gave birth to my son, who was born then suddenly > lost his heartbeat. They thought they lost him for 5 minutes, but recovered > THANK GOD!!!! But, Iam so sad, because I feel like I never recovered since he > was born. At the time my other son was two years old. Now he is 10 and my > youngest is 8. Its been 8 years for me dealing with all of this. The first time > I was mentioned fibro was about 3 years ago, so all that past time I had no clue > what the heck was wrong with me. I thought I had lupus, by all the symptoms. > Still not sure on that..... according to one doctor, h > e said he believes its all the same, just in a difference strength. I dont > know. Anyway, thanks for your post, it gave me some hope. I have tried so many > different antipressents, but they make me soooooo sick. So much MORE sick than > just the normal. And with the fibro I cannot handle anymore sickness. Thanks > though, maybe... just maybe I will give it another try. My doctor has me on a > pain patch now, and I think it makes it so much more worse. The replace my > fentenyl patch every two days, it seems on day one, I am feeling better, can get > out of bed alittle. But still not enough. (can cook alittle soup or something) > but, on day two, I cannot do anything........ not even get my children off to > school. ARGH. Does anyone else on here take the fentenyl patch? Its so sad too, > because I am such a herbal/naturalist wanna be!!! I take all kind of natural > products, etc, daily... try to eat right. BUT, I have this stupid drug going > into my body and dont know how Iam going to get off of it. S > ome days I cant tell which is which, is it the patch or Fibro. I dont know > anymore! Someone, got any ideas for me? > > -- > **************************************** > Blessings from ~a > Proud Mommy ~ to ~ > Nickolas 10 (2/4/98) > Brenden 8 (1/12/00) > http://www.simplies <http://www.simpliessential.com> sential.com > **************************************** > > -------------- Original message ---------------------- > From: JBaby <jbabyncville@ <mailto:jbabyncville%40yahoo.com> yahoo.com> > > I don't know about the next person but I wondered why they kept giving me > all > > these different pain pills instead of trying to find out WHY I had pain in > the > > first place. One jerk even went as far as to tell me I was " a drug seeking > > junkie just like all the rest " to which I took out the big ziploc bag with > many, > > many mostly full bottles of narcotic pain relievers and slung it across the > room > > and said " I don't want more narcotic drugs, I want to know why I am in pain > and > > how I can cure it without being high. I have children to raise. " He > apologized > > but by then the damage was done. It took me 7 years to get my diagnosis, 7 > years > > of not being believed, 7 years of being told I was malingering, 7 years of > being > > told " It's all in your head " , 7 years of actually being told to my face > " You're > > crazy, go get some psychiatric help " . Yeah, even went to one of those who > > politely sent me back about a month later with his card complete with his > > different phone numbers including home and > > said " give this to the jerk that sent you here. " I got the diagnosis in 1998 > > and placed on Lyrica in 2007 so that was another 9 years of suffering. There > are > > many Fibro groups out there and I have seen people ridiculed for their > ideas. > > I've heard of people being sensored for their opinions. My post was sent out > > March 6th but did not appear until the 10th which incidently I reattached to > my > > request to be removed off the group yet it does not appear with the request > but > > appears as a separate post. Everyone has a Fibro story and different things > work > > for different people. I've been dealing with this since 1991 and there is > very > > little out there left that I haven't already tried. Meds, herbs & vitamins, > > massage therapy, hot water therapy, guafenesin therapy, TENS machines, and > the > > list goes on. I joined this group to see what other people are trying > because > > there might come a time when the Lyrica does not work or is no longer > covered by > > my insurance or something. I had heard > > about Lyrica before I was placed on it for the neuropathy. I heard horror > > stories and was afraid of it. One person had positive results and because of > > that post I tried Lyrica. I had nothing to lose at that point. I never > expected > > to be able to have a life again. I can walk! I can go to the store! I can > drive > > a car! I can go on a date! I can function again. I have days where I can > pass up > > the handicap space! I was only 25 when this nightmare started and missed out > on > > a significant portion of my children's lives because I was always " sick " in > bed. > > I'm living again guys all because of one person's post I seen somewhere in > late > > 2006. Hugs to everyone and take care. > > JBaby > > > > > > --------------------------------- > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it > now. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2008 Report Share Posted March 13, 2008 My cousin and I both have Fibro and both have very different approaches to it. She is still able to work. I wake up and go through the day thinking, maybe I could work? But after all I've been through and trying to work, I know I can't. That is now a pipe dream. She starts her day out with Tylenol then takes it again at lunch time. Tylenol does nothing for me. I bear the pain during the day for the most part and do very little but as much as I can. At night I take the pain pills and either Valium or Soma in order to get any sleep. I also take Neurontin which helps me to not have seizures. If it gets too bad during the day I'll take Ibuprofen to get by. I just have no energy. Wearing a patch all the time sounds kind of scary to me, especially from what you say. I can't help but wonder if it's not helping. Do you also have chronic fatigue syndrome? I do and would like to be chronically spry. LOL Well, mostly it's really all depressing but I try to make light of it as much as possible. The hardest part in many ways is that all my friends just don't get it and I never see them any more. I moved far away but the never seeing them started before I left. I miss who I was and what I was able to do so much sometimes I can hardly stand it. I even think I can do some things (like getting the laundry and dishes done in one day). But, apparently not. And when I do try to get things done if it's something I actually like to do and push through the pain and fatigue, I crash. Crashing lasts about 3 days, maybe 2 depending on how much pushing I did. Although I wanted children something fierce, I was never blessed in that way. Now, I look at is as a good thing in away. Okay, I still wish I had kids but I don't need to get more depressed. But, it must be hard to not be the mom you are inside. I can see where that would be terribly depressing. I have a hard time with the fact that I'm not the wife I am inside. Mike remembers who I was but still, it's hard on him, too. Big hugs, Jane ************************************ Subject: Re: Re:Group questions Oh you sweetheart! I am so glad you stuck in there with being so determined! I dont have that much strength as you talked about, and I just dont know why. I am 34, and like you said, loosing out on my children, and am very sad. I am too sick to go to the doctors anymore. I am too sick to fight anymore. I am loosing the battle to say the least and it makes me cry just laying here typing to you. Mine all started the moment I gave birth to my son, who was born then suddenly lost his heartbeat. They thought they lost him for 5 minutes, but recovered THANK GOD!!!! But, Iam so sad, because I feel like I never recovered since he was born. At the time my other son was two years old. Now he is 10 and my youngest is 8. Its been 8 years for me dealing with all of this. The first time I was mentioned fibro was about 3 years ago, so all that past time I had no clue what the heck was wrong with me. I thought I had lupus, by all the symptoms. Still not sure on that..... according to one doctor, h e said he believes its all the same, just in a difference strength. I dont know. Anyway, thanks for your post, it gave me some hope. I have tried so many different antipressents, but they make me soooooo sick. So much MORE sick than just the normal. And with the fibro I cannot handle anymore sickness. Thanks though, maybe... just maybe I will give it another try. My doctor has me on a pain patch now, and I think it makes it so much more worse. The replace my fentenyl patch every two days, it seems on day one, I am feeling better, can get out of bed alittle. But still not enough. (can cook alittle soup or something) but, on day two, I cannot do anything........ not even get my children off to school. ARGH. Does anyone else on here take the fentenyl patch? Its so sad too, because I am such a herbal/naturalist wanna be!!! I take all kind of natural products, etc, daily... try to eat right. BUT, I have this stupid drug going into my body and dont know how Iam going to get off of it. S ome days I cant tell which is which, is it the patch or Fibro. I dont know anymore! Someone, got any ideas for me? -- **************************************** Blessings from ~a Proud Mommy ~ to ~ Nickolas 10 (2/4/98) Brenden 8 (1/12/00) http://www.simplies <http://www.simpliessential.com> sential.com **************************************** -------------- Original message ---------------------- From: JBaby <jbabyncville@ <mailto:jbabyncville%40yahoo.com> yahoo.com> > I don't know about the next person but I wondered why they kept giving me all > these different pain pills instead of trying to find out WHY I had pain in the > first place. One jerk even went as far as to tell me I was " a drug seeking > junkie just like all the rest " to which I took out the big ziploc bag with many, > many mostly full bottles of narcotic pain relievers and slung it across the room > and said " I don't want more narcotic drugs, I want to know why I am in pain and > how I can cure it without being high. I have children to raise. " He apologized > but by then the damage was done. It took me 7 years to get my diagnosis, 7 years > of not being believed, 7 years of being told I was malingering, 7 years of being > told " It's all in your head " , 7 years of actually being told to my face " You're > crazy, go get some psychiatric help " . Yeah, even went to one of those who > politely sent me back about a month later with his card complete with his > different phone numbers including home and > said " give this to the jerk that sent you here. " I got the diagnosis in 1998 > and placed on Lyrica in 2007 so that was another 9 years of suffering. There are > many Fibro groups out there and I have seen people ridiculed for their ideas. > I've heard of people being sensored for their opinions. My post was sent out > March 6th but did not appear until the 10th which incidently I reattached to my > request to be removed off the group yet it does not appear with the request but > appears as a separate post. Everyone has a Fibro story and different things work > for different people. I've been dealing with this since 1991 and there is very > little out there left that I haven't already tried. Meds, herbs & vitamins, > massage therapy, hot water therapy, guafenesin therapy, TENS machines, and the > list goes on. I joined this group to see what other people are trying because > there might come a time when the Lyrica does not work or is no longer covered by > my insurance or something. I had heard > about Lyrica before I was placed on it for the neuropathy. I heard horror > stories and was afraid of it. One person had positive results and because of > that post I tried Lyrica. I had nothing to lose at that point. I never expected > to be able to have a life again. I can walk! I can go to the store! I can drive > a car! I can go on a date! I can function again. I have days where I can pass up > the handicap space! I was only 25 when this nightmare started and missed out on > a significant portion of my children's lives because I was always " sick " in bed. > I'm living again guys all because of one person's post I seen somewhere in late > 2006. Hugs to everyone and take care. > JBaby > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 Hello Jane~ How are you today? I am Ok-Medium. Not the worst this week, but not the best either.... Anyway, Thanks for sharing alittle of your story. I am so sorry you havent been able to have children (yet), but like you talked about alittle bit, its actually a ton better that you dont, at this point! I love my children dearly, they are 8 and 10 year old boys, but.... they are not getting the BEST life has to offer to them, because of my health and that TRULY.....TRULY.....TRULY, BREAKS my heart to the worst its ever been broken!!! I can cry on a moment, just thinking about that. They dont have good school habits, they fight with eachother (both boys), they dont have the desire to go out and see the world, like most kids do at this age. My youngest, who has been around me since Ive became sick (as giving birth to him is when this all started) has severe Social Anxiety. Anyway, I just truly dont know what to do anymore..... I want to live in a clean home, but dont have the energy to do it anym ore. And, I am truly a clean person, really I am. But, ...... my house is a terrible mess...... So, thats what its like being a Mommy with Fibromyalgia!!! I WISH I could say mine was cured as well..... I just learned about this Mucinex treatment, for treating Fibro. I am going to give it a try. I just dont know if I have enough energy to read all my labels, to see if there is any of the Sal. Acid in them........ Anyway, again Jane, and everybody else too.... Thank you so much for understanding and listening to everybody's stories, I for one truly respect them and enjoy knowing there are others out there who truly understand. Love you all! HUGS -- **************************************** Blessings from ~a Proud Mommy ~ to ~ Nickolas 10 (2/4/98) Brenden 8 (1/12/00) http://www.simpliessential.com **************************************** --------- Re: Re:Group questions > > Oh you sweetheart! I am so glad you stuck in there with being so determined! > I dont have that much strength as you talked about, and I just dont know > why. I am 34, and like you said, loosing out on my children, and am very > sad. I am too sick to go to the doctors anymore. I am too sick to fight > anymore. I am loosing the battle to say the least and it makes me cry just > laying here typing to you. Mine all started the moment I gave birth to my > son, who was born then suddenly lost his heartbeat. They thought they lost > him for 5 minutes, but recovered THANK GOD!!!! But, Iam so sad, because I > feel like I never recovered since he was born. At the time my other son was > two years old. Now he is 10 and my youngest is 8. Its been 8 years for me > dealing with all of this. The first time I was mentioned fibro was about 3 > years ago, so all that past time I had no clue what the heck was wrong with > me. I thought I had lupus, by all the symptoms. Still not sure on that..... > according to one doctor, h > e said he believes its all the same, just in a difference strength. I dont > know. Anyway, thanks for your post, it gave me some hope. I have tried so > many different antipressents, but they make me soooooo sick. So much MORE > sick than just the normal. And with the fibro I cannot handle anymore > sickness. Thanks though, maybe... just maybe I will give it another try. My > doctor has me on a pain patch now, and I think it makes it so much more > worse. The replace my fentenyl patch every two days, it seems on day one, I > am feeling better, can get out of bed alittle. But still not enough. (can > cook alittle soup or something) but, on day two, I cannot do > anything........ not even get my children off to school. ARGH. Does anyone > else on here take the fentenyl patch? Its so sad too, because I am such a > herbal/naturalist wanna be!!! I take all kind of natural products, etc, > daily... try to eat right. BUT, I have this stupid drug going into my body > and dont know how Iam going to get off of it. S > ome days I cant tell which is which, is it the patch or Fibro. I dont know > anymore! Someone, got any ideas for me? > > -- > **************************************** > Blessings from ~a > Proud Mommy ~ to ~ > Nickolas 10 (2/4/98) > Brenden 8 (1/12/00) > http://www.simplies <http://www.simpliessential.com> sential.com > **************************************** > > -------------- Original message ---------------------- > From: JBaby <jbabyncville@ <mailto:jbabyncville%40yahoo.com> yahoo.com> > > I don't know about the next person but I wondered why they kept giving me > all > > these different pain pills instead of trying to find out WHY I had pain in > the > > first place. One jerk even went as far as to tell me I was " a drug seeking > > > junkie just like all the rest " to which I took out the big ziploc bag with > many, > > many mostly full bottles of narcotic pain relievers and slung it across > the room > > and said " I don't want more narcotic drugs, I want to know why I am in > pain and > > how I can cure it without being high. I have children to raise. " He > apologized > > but by then the damage was done. It took me 7 years to get my diagnosis, 7 > years > > of not being believed, 7 years of being told I was malingering, 7 years of > being > > told " It's all in your head " , 7 years of actually being told to my face > " You're > > crazy, go get some psychiatric help " . Yeah, even went to one of those who > > politely sent me back about a month later with his card complete with his > > different phone numbers including home and > > said " give this to the jerk that sent you here. " I got the diagnosis in > 1998 > > and placed on Lyrica in 2007 so that was another 9 years of suffering. > There are > > many Fibro groups out there and I have seen people ridiculed for their > ideas. > > I've heard of people being sensored for their opinions. My post was sent > out > > March 6th but did not appear until the 10th which incidently I reattached > to my > > request to be removed off the group yet it does not appear with the > request but > > appears as a separate post. Everyone has a Fibro story and different > things work > > for different people. I've been dealing with this since 1991 and there is > very > > little out there left that I haven't already tried. Meds, herbs & > vitamins, > > massage therapy, hot water therapy, guafenesin therapy, TENS machines, and > the > > list goes on. I joined this group to see what other people are trying > because > > there might come a time when the Lyrica does not work or is no longer > covered by > > my insurance or something. I had heard > > about Lyrica before I was placed on it for the neuropathy. I heard horror > > stories and was afraid of it. One person had positive results and because > of > > that post I tried Lyrica. I had nothing to lose at that point. I never > expected > > to be able to have a life again. I can walk! I can go to the store! I can > drive > > a car! I can go on a date! I can function again. I have days where I can > pass up > > the handicap space! I was only 25 when this nightmare started and missed > out on > > a significant portion of my children's lives because I was always " sick " > in bed. > > I'm living again guys all because of one person's post I seen somewhere in > late > > 2006. Hugs to everyone and take care. > > JBaby > > > > > > --------------------------------- > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it > now. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 Re: Re:Group questions > > Oh you sweetheart! I am so glad you stuck in there with being so determined! > I dont have that much strength as you talked about, and I just dont know > why. I am 34, and like you said, loosing out on my children, and am very > sad. I am too sick to go to the doctors anymore. I am too sick to fight > anymore. I am loosing the battle to say the least and it makes me cry just > laying here typing to you. Mine all started the moment I gave birth to my > son, who was born then suddenly lost his heartbeat. They thought they lost > him for 5 minutes, but recovered THANK GOD!!!! But, Iam so sad, because I > feel like I never recovered since he was born. At the time my other son was > two years old. Now he is 10 and my youngest is 8. Its been 8 years for me > dealing with all of this. The first time I was mentioned fibro was about 3 > years ago, so all that past time I had no clue what the heck was wrong with > me. I thought I had lupus, by all the symptoms. Still not sure on that..... > according to one doctor, h > e said he believes its all the same, just in a difference strength. I dont > know. Anyway, thanks for your post, it gave me some hope. I have tried so > many different antipressents, but they make me soooooo sick. So much MORE > sick than just the normal. And with the fibro I cannot handle anymore > sickness. Thanks though, maybe... just maybe I will give it another try. My > doctor has me on a pain patch now, and I think it makes it so much more > worse. The replace my fentenyl patch every two days, it seems on day one, I > am feeling better, can get out of bed alittle. But still not enough. (can > cook alittle soup or something) but, on day two, I cannot do > anything.... .... not even get my children off to school. ARGH. Does anyone > else on here take the fentenyl patch? Its so sad too, because I am such a > herbal/naturalist wanna be!!! I take all kind of natural products, etc, > daily... try to eat right. BUT, I have this stupid drug going into my body > and dont know how Iam going to get off of it. S > ome days I cant tell which is which, is it the patch or Fibro. I dont know > anymore! Someone, got any ideas for me? > > -- > ************ ********* ********* ********* * > Blessings from ~a > Proud Mommy ~ to ~ > Nickolas 10 (2/4/98) > Brenden 8 (1/12/00) > http://www.simplies <http://www.simplies sential.com> sential.com > ************ ********* ********* ********* * > > ------------ -- Original message ------------ --------- - > From: JBaby <jbabyncville@ <mailto:jbabyncvill e%40yahoo. com> yahoo.com> > > I don't know about the next person but I wondered why they kept giving me > all > > these different pain pills instead of trying to find out WHY I had pain in > the > > first place. One jerk even went as far as to tell me I was " a drug seeking > > > junkie just like all the rest " to which I took out the big ziploc bag with > many, > > many mostly full bottles of narcotic pain relievers and slung it across > the room > > and said " I don't want more narcotic drugs, I want to know why I am in > pain and > > how I can cure it without being high. I have children to raise. " He > apologized > > but by then the damage was done. It took me 7 years to get my diagnosis, 7 > years > > of not being believed, 7 years of being told I was malingering, 7 years of > being > > told " It's all in your head " , 7 years of actually being told to my face > " You're > > crazy, go get some psychiatric help " . Yeah, even went to one of those who > > politely sent me back about a month later with his card complete with his > > different phone numbers including home and > > said " give this to the jerk that sent you here. " I got the diagnosis in > 1998 > > and placed on Lyrica in 2007 so that was another 9 years of suffering. > There are > > many Fibro groups out there and I have seen people ridiculed for their > ideas. > > I've heard of people being sensored for their opinions. My post was sent > out > > March 6th but did not appear until the 10th which incidently I reattached > to my > > request to be removed off the group yet it does not appear with the > request but > > appears as a separate post. Everyone has a Fibro story and different > things work > > for different people. I've been dealing with this since 1991 and there is > very > > little out there left that I haven't already tried. Meds, herbs & > vitamins, > > massage therapy, hot water therapy, guafenesin therapy, TENS machines, and > the > > list goes on. I joined this group to see what other people are trying > because > > there might come a time when the Lyrica does not work or is no longer > covered by > > my insurance or something. I had heard > > about Lyrica before I was placed on it for the neuropathy. I heard horror > > stories and was afraid of it. One person had positive results and because > of > > that post I tried Lyrica. I had nothing to lose at that point. I never > expected > > to be able to have a life again. I can walk! I can go to the store! I can > drive > > a car! I can go on a date! I can function again. I have days where I can > pass up > > the handicap space! I was only 25 when this nightmare started and missed > out on > > a significant portion of my children's lives because I was always " sick " > in bed. > > I'm living again guys all because of one person's post I seen somewhere in > late > > 2006. Hugs to everyone and take care. > > JBaby > > > > > > ------------ --------- --------- --- > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it > now. > > > > Quote Link to comment Share on other sites More sharing options...
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