Re: Chronic Myofascial Pain Syndromes

[Guest guest]

Jill,

Thanks for posting this article about myofascial pain

syndrome. One of the doctors at NIH told me that I had

chronic myofascial pain syndrome (though he didn't say

which one) and explained it a bit, but this was interesting.

Dr. Shah at NIH (in Rehab medicine) has been studying

myofascial pain for years, and has repeatedly tried to

convince Dr. Levi that some of the chronic pain seen in EDS

patients is due to myofacial pain. He tried IMS (a form

of acupuncture described in the article) with me, and while

it did work in reducing pain and muscle spasms, it really

isn't something i would want to do on a regular basis. I

have such a phobia of needles that I could hardly stand the

treatment. Dr. Shah also said that a lot of the

hypersensitivity to touch that he sees in those of us with

EDS, especially me:), is probably do to myofascial pain.

Just thought I'd share.... has anyone else who goes to NIH

run into Dr. Shah or anyone else studying myofascial pain?

-beth

--

Sellers, Beth

sellerjb@...

" Life is like a puzzle: it only makes sense

when you look at the BIG picture! "