Re: Mic surgery

[Guest guest]

Gosh Laurie,

Sorry you got such bad news. Good thing is that it is a *fixable* huh?

Can't wait to read your posts after he is a fixed up. Good luck and we'll keep

you in our prayers. Any idea when they will do the surgery?

Gail :-)

Hi all well we are back and not with any good news it seems Mic has severe

reflux requiring surgery I have to make an apt with the surgeon which is the

doctor we met in the ER and I liked him alot.Plus the Gi dr wants Mic to have a

deep rectal biop done to check for hirshsprungs and told me he could easily

have both.I dont know why he keeps pushing this hirshsprungs since I have

decided

we just dont have room for HD too.Plus while they were looking at the xrays

they came back and did more well Mics left hip the ball on the end attaching to

the hip is half as big on one than the other the othro surgeon came down

looked at the xrays for us and that will require surgery to fix.I feel like

throwing up myself.Gotta go now will be back later Thanks everyone I am so

greatful to have all of you in our lives. Laurie

[Guest guest]

Laurie thoughts and prayers are with you and Mic. You sure are getting a lot

presented to you at one time. Louise (IL)

[Guest guest]

In a message dated 1/21/2004 11:55:21 AM Eastern Standard Time,

mick8_7@... writes:

Plus while they were looking at the xrays they came back and did more well

Mics left hip the ball on the end attaching to the hip is half as big on one

than the other the othro surgeon came down looked at the xrays for us and that

will require surgery to fix.I feel like throwing up myself.Gotta

Laurie, Wow, I'm sorry dear. 's right; when it rains it pours.

Maddie's reflux was never severe enough to warrant a fundoplication, but many on

the DS listserv and on this list have had it done for their kids. No fun

for sure, but you can console yourself with knowing that once done, Mic won't be

in pain (GERD IS painful as well as life-threatening if not treated). I

also have a friend whose daughter had the hip surgery...again, no fun, but once

over, she was much better off. As says, you are up to snuff...You'll

get through it. And we'll be here with the prayers and support and hold

your hand (cyberly) through it all.

Donna

[Guest guest]

Laurie,

When it rains it pours!!! For reflux they would do a fundplication.

Lay terms--they turn the stomach, take a loop in it. The reflux should

be completely gone. And at the same time they place a g-tube unless he

already has one. This procedure saved Tim's life. It is not a forever

thing in everyone. Tim had his for 9 years. It took him a few years

to get to eating babyfood, the continued to regular food. '

HD I know nothing about. BUT things at this point seem overwhelming to

you. I am sure DS did at first also. Give yourself time to make the

adjustment. I know that you will be researching and have been to

educate yourself. I always try to remember that what I read is usually

the worst case, things probably will not be that bad.

We have all been there with one thing or other. We know that you and

Mic can do it.

>

& Garry Parents to Sam 13 (DS), Tim 12(DS), JJ 10(Autism, DS,

Celiac Disease), 9(DS, ADHD, Celiac Disease, Hearing Impaired),

Esther 6 (DS) All Adopted

[Guest guest]

Sending comfort & prayers your way. Hang in there & keep us updated.

HUGS...Colleen

> Hi all well we are back and not with any good news it seems Mic has

severe reflux requiring surgery I have to make an apt with the

surgeon which is the doctor we met in the ER and I liked him

alot.Plus the Gi dr wants Mic to have a deep rectal biop done to

check for hirshsprungs and told me he could easily have both.I dont

know why he keeps pushing this hirshsprungs since I have decided we

just dont have room for HD too.Plus while they were looking at the

xrays they came back and did more well Mics left hip the ball on the

end attaching to the hip is half as big on one than the other the

othro surgeon came down looked at the xrays for us and that will

require surgery to fix.I feel like throwing up myself.Gotta go now

will be back later Thanks everyone I am so greatful to have all of

you in our lives. Laurie

[Guest guest]

> Hi all well we are back and not with any good news it seems Mic has

severe reflux requiring surgery I have to make an apt with

the .....Mics left hip the ball on the end attaching to the hip is

half as big on one ....that will require surgery to fix.I feel like

throwing up myself.

Hi Laurie,

had a fundoplication [Nissen] when he was about 4. It was

one of the easiest procedures he has had and it made a HUGE

difference in his [and our] life! He is not constantly in pain from

the refuxing and he isn't aspirating. Before the procedure, he was

taking asthma meds, after the procedure he didn't need them anymore.

No more aspiration pneumonias either!! He had a g-tube prior to the

procedure so that wasn't new. I have known kids who had a

fundoplication that didn't have a g-tube. Personnally, I would

prefer it because they can't vomit [in theory] after the procedure so

if they need to, without a g-tube you have a problem. With a g-tube,

you just open the tube and empty the stomach. You can also relieve

gastric pressure by " venting " the g-tube. had the

Hirshsprung's biopsy before he was two. It was negative. He also

had surgery for hip dysplasia a couple of years ago. The Ortho doc

also rebuilt the hip ball/socket using donor bone grafts. Margaret's

doc used a different procedure on Gareth. If you can go that route,

it definitely sounds like a winner. The spica cast is no fun and if

Mic needs that, there are some tricks that will make your [and his]

life easier if you know them ahead of time. A spica cast is a full

body cast. was in one for several months. I can definitely

see a difference in 's walking now. He isn't speedy, but he

doesn't limp the way he used to. The bad news for him is that the

doc said at some point his other hip will need to be done as well.

If I had it to do over, I would've asked them to do both at the same

time.

My thoughts and prayers are with you.

Terry

Mom to , 17 yrs.

[Guest guest]

Hi Laurie,

I apologize for not checking my e-mail sooner. I have a few Zeb school issues

and am trying to finish my quarterly taxes. The news isn't very good for Mic

but it could always be worse. At least you have answers and all these problems

can be corrected with surgery. I still find it hard to believe that the

pediatrician didn't see any of this. I suppose better late than never. I hope

the

next set of testing will be negative for Mic's sake. Life will get better.

((((((HUGS)))))))

Charlyne

Mom to Zeb 11 DS/OCD

[Guest guest]

Hi Laurie,

Brook had the Nissen fundoplication right after his 4th birthday. We took

advantage of the temporary feeding tube and had his tonsils removed the next

month too. The Nissen helped Brook tremendously. His behavior improved a lot

since he wasn't in pain all the time from the reflux, which had led to

self-injurious behaviors. That was a really hard time for us, but things are

much better now. Good Luck.

Marisa

[Guest guest]

In a message dated 1/22/2004 7:26:54 AM Eastern Standard Time,

mick8_7@... writes:

> Usually I am

> flipping out when I get bad news.I was expecting hirshsprungs so thats so

> much worse Iguess thats why I am sane until a few days before surgery than it

> will hit me.

Hi Laurie,

I would be too. Mic is going to feel sooo much better. I agree, this is a

great group.

Charlyne

Mom to Zeb 11 DS/OCD