Guest guest Posted January 5, 1980 Report Share Posted January 5, 1980 i dont know if this is hlepful but when nathan was little around 5 he tried risperdal and ofcaourse gain tons of weight and we took him off it. but we have battled the weight up until this year he is 12, and a fairly slim looking tall boy, built looking but not fat and not skin and bones like little brother. Anyways the trick that worked for us, is we eliminated many carbos from his diet, being his main source of nutrition it wasnt easy, but now he rarely asks for toast or pband j, its his sausages,lol. and he maintained his weight, even lost a kilo for his yearly check up at the down clinic. the staff was ecstatic. i continue to puree vegies for him and encourage him to eat them and have found ways to make meat or protien items such as eggs etc so he can eat them easier, without choking. shawna. Update on this end > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Hey Gang, As I've said, it's been busy with the holidays. Busy with other stuff as well. Both my boys have just been dx'd with ADHD (one without the H part). It's rather late in the game, as one is turning 18 tomorrow and the other is 22 (sometimes I HATE those compensatory skills...hides too well). I have to say that with my 18 year old, it comes as no surprise, although he was tested years ago through the school who said he did not have it (WRONG). Anyway, since he's extremely bright, it was easily overlooked. With the 22 year old, we were told years ago that he had a minor anxiety disorder and was taught various techniques to help him through his stress. Well, just felt something wasn't right and we took him to be tested privately. He just always felt that he couldn't grasp things....now he feels very validated, soemthing all of us can relate to when we hear any dx!!! So as you can see, it's been busy around here. As for Miss Maddie, she is just getting over a cold (hey, I'm grateful it wasn't worse, since her sister fought the flu for a week). We have all the doc line ups in the next two months (UGH, I SO hate doc visits), including our bi-annual to Dr. Capone. She is still doing well on the risperdal, but the weight continues to escalate. Dr. Capone is NOT happy about it and I imagine that will be the majority of our discussion with him when we meet in mid-January. Sorry I've been remiss in responding to posts. I've read them all however, and wish you all a very healthy and happy new year!!! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Hi Donna, Happy New Year! I hope you were able to enjoy the Holidays with so much going on. Brook is a lot hungrier on Risperdal than he was before, but his weight gain isn't too bad. He gained at first, but now has leveled off. He is still picky and has no patience to sit down while he eats, so his meals are over quickly. Maybe that helps keep his weight down. Has Maddie gained a lot of weight? We take Brook to the psychopharm clinic Friday. We are coming up on 2 years on Risperdal soon. How much does Maddie take a day? We have a lot of appointments coming up too, oral surgery and then probably ear tubes. I've been asked to work fulltime or as much as I can, so I don't know how this is all going to work, but I'm lucky that I can take the time off that I need to. Marisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 Donna, I found it really interesting that your sons were diagnosed with ADD/ADHD. ¹s 19 yo sister, , was diagnosed ten years ago. I¹ve noticed there are a lot of kids on this group with siblings with ADHD or with the ADD/ADHD diagnosis themselves. It seems too common to be coincidental. was also a great compensator because she is very bright. In addition to ADHD she was diagnosed with dyslexia. She was on meds for two years but the side effects became so severe that we had to take her off them and work on behavioral mod. We found that coffee and colas helped her concentrate nearly as well as the meds. We worked with Dr. Theodore Mandelkorn and the Puget Sound Behavior Medicine group. Their website is psbmed.com and is a great resource, especially for older teens and adults. Dr. Mandelkorn and his son both have ADHD so he can really relate to these kids. I credit him with showing her that she couldn¹t use ADHD as an excuse not to succeed. The clinic gave us practical ideas which really worked. With Dr. M¹s suggestions, her grades and behavior improved dramatically. For example, he told us most kids with ADHD can¹t really do two things at once so they have problems taking notes in class, so we bought her voice recorders. Now she uses an Ipod with a digital voice recorder for lectures and saves them in her computer. Over the years, the skills built upon skills and this last semester, as a college sophomore, she took 18 credits and pulled a 4.0 GPA, the first set of straight A¹s in her life. It¹s the best Christmas gift she could have given us. Ten years ago, when I had a 4th grader who couldn¹t read, I would never have believed she could come this far. As for , she had a nice Christmas break. Much to my irritation, her sisters spent three straight days teaching her how to play Nintendo. I¹ve had to take it away because now it is all she wants to do, both day and night and screams and head bangs when it¹s time to stop. Her bus comes at 6:40 am so it¹s been tough getting back into the school routine but I find if I stick to a robotic visual schedule and don¹t deter a nanosecond from it, we can get her out the door. She loves school so that helps a lot. I bought her a new communication device called a Go Talk (Mayer has it) and it¹s great because it is really light, but still sturdy. She carries it around more than her Tech Speak and it takes the regular size Boardmaker symbols. I highly recommend it for all the nonverbal kids out there. Also, instead of recording my voice in there or her teacher recording, we have a 13 yo girl do it. seems to like having an age appropriate voice when she presses those buttons. Happy New Year to everyone. Therese Mom to DS-Pdd > Hey Gang, > As I've said, it's been busy with the holidays. Busy with other stuff as > well. Both my boys have just been dx'd with ADHD (one without the H part). > It's rather late in the game, as one is turning 18 tomorrow and the other > is 22 (sometimes I HATE those compensatory skills...hides too well). I have > to say that with my 18 year old, it comes as no surprise, although he was > tested years ago through the school who said he did not have it (WRONG). > Anyway, > since he's extremely bright, it was easily overlooked. With the 22 year old, > we were told years ago that he had a minor anxiety disorder and was taught > various techniques to help him through his stress. Well, just felt > something wasn't right and we took him to be tested privately. He just > always > felt that he couldn't grasp things....now he feels very validated, soemthing > all > of us can relate to when we hear any dx!!! So as you can see, it's been busy > around here. > As for Miss Maddie, she is just getting over a cold (hey, I'm grateful it > wasn't worse, since her sister fought the flu for a week). We have all the > doc line ups in the next two months (UGH, I SO hate doc visits), including our > bi-annual to Dr. Capone. She is still doing well on the risperdal, but the > weight continues to escalate. Dr. Capone is NOT happy about it and I > imagine that will be the majority of our discussion with him when we meet in > mid-January. > Sorry I've been remiss in responding to posts. I've read them all > however, and wish you all a very healthy and happy new year!!! > Donna > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 In a message dated 1/10/2004 11:22:32 PM Eastern Standard Time, home@... writes: <<Now she uses an Ipod with a digital voice recorder for lectures and saves them in her computer. Over the years, the skills built upon skills and this last semester, as a college sophomore, she took 18 credits and pulled a 4.0 GPA,>> WOW Therese!!!!!! That's awesome!!!! n has always done well in school, but not to his potential. He goes to a very challenging private school and they at least allow kids with ADHD extra time for tests and exams (that's where he has the problem because his mind wanders instead of doing the task at hand). The adderall is helping so much, I can't get over it!!!! He sits at the table and pounds out his work.....before I'd find him making paper airplanes or doodling on his paper (yes, even at 17). Thanks for that website....I am going to go check it out. Even though he is on meds, you are right....they need behavioral techniques to help them deal with this lifelong condition. Donna Quote Link to comment Share on other sites More sharing options...
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