Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 Hi Laurie, Our children are gifts to our lives and enrich us in ways no other parent could ever imagine. Understand you are going through one of the toughest times in this journey and have all this emotional stuff to deal with. Focus on the things you are doing for Mic. Don't be to hard on yourself. Don't allow this to steal your joy or bring you down. It is extra work when having a child with special needs. Absolutely! Not only do we have to deal with everything that crosses our path like we have to know all there is to know about Down syndrome, autism, the medical and educational arena, laws, family issues, etc. Including to deal with the prejudices of others and educate those people – a not so easy task. Our eyes have been opened to people and issues we would never have been exposed to otherwise. We have been exposed to a whole new world of people whom we never would have known if not for our child, so yes it is overwhelming but true love for our kids. On the cross eye issue, since you've mentioned that he has been examined I would suggest that you contact his eye doc and report this. Sometimes glasses can fix crossed eyes or wearing a patch. What can be done to fix this problem? The goal of treatment is to make the weak or wandering eye do more work. Sometimes this means the child has to wear glasses. Or the child might wear a patch on the " good " eye or have drops put in it. Your child may not like to have these treatments, because the weak eye doesn't see as well as the other eye. Even if your child doesn't want to wear glasses or an eye patch, this treatment is very important. It can help your child see better. The earlier the treatment is started, the better. Visual problems such as crossed eyes and far-or nearsightedness are higher in those with Down syndrome, as are mild to moderate hearing loss and speech difficulty. was probably about 3 y/o when I had noticed this the Ped-Opthamologist had prescribed glasses and this had done the trick. What memories when trying to get him to wear the glasses for the first time. This is now he will only wear them only during outings and removed them once home, part of his many daily routines. Hiding or breaking them has decreased alot. There could be a possibility once Mic is seen and treatment is applied if anything found when examed by the GI doc there could be some changes. I remember someone mentioning can't remember if it was this group or another one but once there child was taking a certain supplement to help with the brain and eye function it had helped their child's eyes. Do try to enjoy spending time with hubby. You deserve a break to re- energize, plus hubby would love your attention, even its for a weekend. Just follow your heart. Prayers that all will fall into place for you and your family. Many hugs and hope you have an enjoyable Happy New Year! Irma,15,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 Hi Laurie, My Hannah's eyes had always crossed so I took her to the eye doctor at our Children's Hospital. He told me " Mrs. Black, that's not a problem, that's a talent! " He just wrote it off as something Hannah liked to do. Well, later I took her to a different doc and she (bless her heart) prescribed glasses. I gave myself a year for her to be wearing them faithfully. It took one day! Turns out she could see better. Imagine that! If Mic does need glasses what we tried was having her wear them when her hands were busy with other things - for her it was meal time (with Mc's food). Now I know that meal time isn't Mics favorite time but maybe while he's distracted with a video or something. You've got to remember that Rome wasn't conquered in a day. Mics problems aren't going to be conquered in a day either. Don't beat yourself up - what good does that do for anyone? (I have to keep telling myself this too). You walk in the light that you've been given and do the best that you can and keep praying for more light. Take some time to allow yourself to enjoy this time with the rest of your family. Happy 2004 Everyone! a (Drew 12, Tourette's Syndrome, OCD/ Marissa 8, MCS {Middle Child Sydrome}/ Hannah 6, DS/Aut) Quote Link to comment Share on other sites More sharing options...
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