Guest guest Posted October 23, 2003 Report Share Posted October 23, 2003 I don't have any issues dealing with Maggie's school system. I am beginning to realize this is a unique situation. Not only does Maggie get everything she needs, her sister, Sara also gets speech as does Teddy who is turning 3 next week and just has begun to talk. I don't know if it is a function of living in a small town or Ma. Massachusettes is known for being very progressive with special needs education and issues. When I lived in Az. I heard horror stories of IEP meetings and such. People would even bring lawyers to the meeting! I can't even imagine. So, , feel free to move on down here to us and you can get hooked up! -----Original Message-----From: Sent: Thursday, October 23, 2003 2:23 PMTo: Multiples-DS Subject: thanks Sorry its taken me so long to thank everyone for their suggestions and comments. Life has been crazy, does anyhow else feel like they are constantly fighting for their child with ds? It seems to never end. In fact not only have I been fighting for lately, its been too (trying to get her some much needed ST) Judy, thanks for the link to the website....it had some very helpful ideas, I liked the bib idea they had too. Pam, thanks for the updated guidelines re thyroid. Joyce, loves the trampoline too...we have one in the backyard. I get $900 CNS/yr for diapering costs, that just started this year. It doesn't cover what I spend but I guess its better then nothing. That's funny what you said about going shopping with .....here I am thinking its a bad thing that screams....I should be using it like your daughter to clear the isles...LOL. I will try and keep it touch seeing as our two boys sound an awful lot alike! , thanks for your e-mail and thinking of me! Tamara...I have already gone out and bought some good nights.....thanks for the suggestion. Post your free ad now! Yahoo! Canada Personalshttp://DSyndrome.com/Multiples Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 Thanks for the invite , however I believe that if I ever attempted to move to the US I would not be allowed. A few years ago there was a big case that the Canadian down syndrome society ended up making statements about, etc. and trying to help out the family. I believe the father was someone of importance that wanted to move his family to the US (I think he was being transferred with his job or something) and they were refused because his son has down syndrome (they claimed that the son would only be a strain on the system). I think eventually they were allowed to make the move but it was only because of all the media coverage, etc that took place. I remember at that time thinking, wow I guess I will never be able to move to the US. Stauffer wrote: I don't have any issues dealing with Maggie's school system. I am beginning to realize this is a unique situation. Not only does Maggie get everything she needs, her sister, Sara also gets speech as does Teddy who is turning 3 next week and just has begun to talk. I don't know if it is a function of living in a small town or Ma. Massachusettes is known for being very progressive with special needs education and issues. When I lived in Az. I heard horror stories of IEP meetings and such. People would even bring lawyers to the meeting! I can't even imagine. So, , feel free to move on down here to us and you can get hooked up! -----Original Message-----From: Sent: Thursday, October 23, 2003 2:23 PMTo: Multiples-DS Subject: thanks Sorry its taken me so long to thank everyone for their suggestions and comments. Life has been crazy, does anyhow else feel like they are constantly fighting for their child with ds? It seems to never end. In fact not only have I been fighting for lately, its been too (trying to get her some much needed ST) Judy, thanks for the link to the website....it had some very helpful ideas, I liked the bib idea they had too. Pam, thanks for the updated guidelines re thyroid. Joyce, loves the trampoline too...we have one in the backyard. I get $900 CNS/yr for diapering costs, that just started this year. It doesn't cover what I spend but I guess its better then nothing. That's funny what you said about going shopping with .....here I am thinking its a bad thing that screams....I should be using it like your daughter to clear the isles...LOL. I will try and keep it touch seeing as our two boys sound an awful lot alike! , thanks for your e-mail and thinking of me! Tamara...I have already gone out and bought some good nights.....thanks for the suggestion. Post your free ad now! Yahoo! Canada Personalshttp://DSyndrome.com/Multiples Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 I can't imagine such a thing! That doesn't even sound like it is legal! But, how would I know? I haven't ever tried to move to another country! -----Original Message-----From: Sent: Friday, October 24, 2003 10:55 AMTo: Multiples-DS Subject: RE: thanks Thanks for the invite , however I believe that if I ever attempted to move to the US I would not be allowed. A few years ago there was a big case that the Canadian down syndrome society ended up making statements about, etc. and trying to help out the family. I believe the father was someone of importance that wanted to move his family to the US (I think he was being transferred with his job or something) and they were refused because his son has down syndrome (they claimed that the son would only be a strain on the system). I think eventually they were allowed to make the move but it was only because of all the media coverage, etc that took place. I remember at that time thinking, wow I guess I will never be able to move to the US. Stauffer wrote: I don't have any issues dealing with Maggie's school system. I am beginning to realize this is a unique situation. Not only does Maggie get everything she needs, her sister, Sara also gets speech as does Teddy who is turning 3 next week and just has begun to talk. I don't know if it is a function of living in a small town or Ma. Massachusettes is known for being very progressive with special needs education and issues. When I lived in Az. I heard horror stories of IEP meetings and such. People would even bring lawyers to the meeting! I can't even imagine. So, , feel free to move on down here to us and you can get hooked up! -----Original Message-----From: Sent: Thursday, October 23, 2003 2:23 PMTo: Multiples-DS Subject: thanks Sorry its taken me so long to thank everyone for their suggestions and comments. Life has been crazy, does anyhow else feel like they are constantly fighting for their child with ds? It seems to never end. In fact not only have I been fighting for lately, its been too (trying to get her some much needed ST) Judy, thanks for the link to the website....it had some very helpful ideas, I liked the bib idea they had too. Pam, thanks for the updated guidelines re thyroid. Joyce, loves the trampoline too...we have one in the backyard. I get $900 CNS/yr for diapering costs, that just started this year. It doesn't cover what I spend but I guess its better then nothing. That's funny what you said about going shopping with .....here I am thinking its a bad thing that screams....I should be using it like your daughter to clear the isles...LOL. I will try and keep it touch seeing as our two boys sound an awful lot alike! , thanks for your e-mail and thinking of me! Tamara...I have already gone out and bought some good nights.....thanks for the suggestion. Post your free ad now! Yahoo! Canada Personalshttp://DSyndrome.com/Multiples Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 thanks for the responses. i appreciate it. patsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 No not too much. She doesn’t dislike Elmo but he’s okay. From: Halstead Sent: Monday, November 15, 2004 7:12 PM To: Multiples-DS Subject: Thanks Thank you for the feedback. That is very reassuring to hear! Is Maggie still into Elmo? - Question on Autism For those of you with who have a twin child with DS and also Autism diagnosis, can you tell me what were the main indicators that your DS child also had Autism? My son is going to be 3 in January and he is being evaluated again in December by the school system here. He is in a weekly therapy playgroup, plus an independent preschool three days a week. He does however, exhibit behavior that I have not seen in other children with DS and am wondering if he might be " mildly autistic " also (if there is such a term). For example, he obsesses on Elmo. I allow him to watch an Elmo video every day, but when the TV is not on all he wants to do is hover around the TV. He does not want to engage or play with his twin brother Beckett or his older sister Oakley. When they play rough or start running around he just sits there and cries. He does not speak at all. He has shown only one or two 'signs' and we've been working on signing for over a year now. He rarely makes eye contact. He seems to prefer to wander around by himself and gets upset when other adults try to engage him. If I engage him he usually starts making a staccato like sound which is very angry in it's focus. He has also taken to 'hitting' me when I am moving around the house or busy with something. As you can imagine with three children under 5 it is very difficult for one-to-one time. I do make an effort to spend singular time with each of them every day, and we do try to get out to the parks and such when it's not raining. But even that he does not like. When we go out in public he either cries or grabs whatever he can and throws it. I am totally at a loss. I somedays feel like I'm at my 'wits end.' Beckett and Oakley are such cuddle-bugs and so engaging that it is doubly hard to find at the other end of the spectrum. Any advice? Any thoughts? Just hang in there? Will it get better? Do any of you have similar reactions from your kids? Feeling helpless, (in Oregon) Multiples-DS http://groups.yahoo.com/group/Multiples-DS Multiples-DS http://groups.yahoo.com/group/Multiples-DS Multiples-DS http://groups.yahoo.com/group/Multiples-DS Quote Link to comment Share on other sites More sharing options...
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