Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 Hi Dave and , You have found a great group for information and resources, welcome. Charlyne Mom to Zeb 11 DS/OCD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 In a message dated 12/29/2003 11:17:37 PM Eastern Standard Time, dave@... writes: <<I know is young to be diagnosed with Autistic Spectrum disorder but he does display many of the symptoms.>> Welcome Dave and . I am Donna, mom to Maddie (10, DS and autism). Maddie is the youngest of five. Maddie wasn't dx'd with autism until she was five years old, even though the onset was very apparent to us at the age of 2. We ran the gammut of physical testing first, to rule out health issues. We found some along the way (GERD, hypothyroidism), but the autism was still blatant. Then of course, there's always that cushy denial phase.....;-) You came to the right place. Go to the web site for this list and you will find loads of information at your fingertips. Feel free to question us about anything at all.....from behaviors to therapies, approaches and treatments, to meds, to effects on the whole family. We ALL know and you will learn that this list is made up of the most non-judgmental, caring, helpful and loving individuals you will ever *meet*. Welcome again, and we're looking forward to hearing more about your family!! Donna in Philadelphia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Hi Dave and , A huge welcome. Glad you've noticed that there are other issues going on in a way at his age while he is young. Continue to follow your heart so that everyone could adapt to 's needs. Have y'all had a chance to read the Disability Solutions Newsletter written by our group moderator,(Joan Medlen). Thanks to her she has open many doors for my son and I and has brought many Dear cyberfriends together whom I am very grateful who have given me strength and energy towards the challenges needed in many ways. So welcome to this group and hope y'all will feel the same way. Irma,15,ds/asd > Hi, > This is Dave and . We came across this group in a web > search and would like to be part of it. Our son, is 3+ > years old, has Downs Syndrome and according to the therapists and > neurologist, displays many of the symptoms of Autistic Spectrum > Disorder. We have 6 Children Amy(13), (11), Josh(8), Gretchen > (6), (4) and (3). has plenty of playmates. > > is in OK health but is very susceptible to colds and has had > heart surgery and has a pace maker. He also started having seizures > about six months ago and is undergoing different treatments to try > and get it under control. He has about Twelve 1-2 second seizures a > day which has caused him to get a lot of bumps and bruises. He has > been involved in a state early childhood development program since > he was 2 months and received several 1 on 1 therapy sessions a > week. When he turned three, started school at the local school > district where he goes 3 hours a day. He receives some 1 on 1 > therapy sessions at the school, but not near as many as before. > > Physically, can walk, climb up and downs stairs and gets around > well. is non-verbal, makes many clicking and duck sounding > noises and spends most of his time doing repetitive things such as > dangling beads in front of his face or trying to put things in our > air conditioning vents. rarely responds to his name but will > take our hand and lead us to a swing or high chair if he is hungry. > We are working with the Pecs pictures but thus far have had little > success. > > I know is young to be diagnosed with Autistic Spectrum disorder > but he does display many of the symptoms. > > We have had great support from our family, friends and church > members. This has helped us through some difficult times. We have > not found a lot of information about Downs with Autistic Spectrum > Disorder so we would like to join this group to learn from your > experiences. We appreciate the opportunity to get to know you. > > Dave and > St. Louis, Missouri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 Hi Dave and , Welcome to our group. My son, Brook is 13 now, but your letter reminded me a lot of him. He has a seizure disorder that developed when he was 1 yr. That and GERD caused him a lot of problems. But he is doing much better now. What kind of seizures are you dealing with? Brook had myoclonic and petit mal seizures. He was on Depakote for years and is now on Lamictal. He also takes Risperdal which is helping him a lot with his water obsession and behavior. He had a lot of sensory problems, that have improved and was a terrible eater for a long time. He loved to twirl and spin things when he was little, but doesn't anymore. He loves music and plays mostly with toys that play music. He also is nonverbal, but he has been doing well with PECS, picture exchange communication system, but still takes our hands to lead us to what he wants when it is easier. He mostly uses PECS for his food preferences. Let me know if you have any questions I can help you with. Marisa Quote Link to comment Share on other sites More sharing options...
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