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Hi Everyone,

Hannah had surgery today to remove her g-tube for which we are so

grateful. There was a time there where we weren't sure if she would ever learn

to

drink but alas, she has become the " heavy drinker " we've been praying for. At

the

same time while she was under Dental clinic came in to do a full set of x-rays

and do any dental work that needed to be done, and then Radiology came in to

do the cervical spine x-rays to screen for atlantal-axial instability.

The g-tube surgery went great but the dental surgery unfortunately was

quite extensive. After surgery went on for an extra hour and a half I was

figuring that she was going to come out with braces! : ) Instead she came out

with 5

permanent and 2 baby teeth pulled! : ( Top 6 year molars had HUGE cavities,

bottom ones had to come out since they would hitting on gum, other molars they

tried to fill and the tooth just started to crumble in the middle, 1 baby tooth

was fused and another baby tooth was wiggly so they just went and pulled it.

I feel so bad, guilty and helpless and my little kid hurts. She is so

orally defensive, it is very difficult to get in there and brush her top teeth

especially. I can do the bottom ones ok but not the top ones. My kids mouth

looks

like that of a toddler with holes everywhere. The dentist says that when the

rest of her permanent teeth do come in that there won't be any holes. But I

feel like such a bad, neglectful mom.

I asked the dentist if he had any resources to help us get over this oral

defensiveness stuff and he didn't have any ideas. We use a dog toothbrush to

help me get in there and toothpaste with a musical cap that serves as a timer.

Have you seen those? They're new by Colgate but you flip open the lid and it

plays Yankee Doodle for 70 seconds. So we do it once all the way through for

the bottom teeth and then again for the top teeth, but that one's more of a

wrestling match.

Well, I'm signing off. It has been a day. Thanks in advance for your ideas.

a (Drew 12 Tourette's,OCD/ Marissa 8 MCS Middle Child Syndrome/ Hannah 6

DS/Aut)

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Hi a,

I hope Hannah will feel better in a few days. Zeb's baby teeth were horrible

too. He had the dental surgery for extractions. He now has many of his

permanent teeth and they look great.

Mom to Zeb 11 DS/OCD

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Hi Charlene,

Hannah is doing better today and I was able to get pain meds in applesauce

down her and she even requested a lunchmeat sandwich with her PECS card. Then

she slept most of the afternoon.

The thing is that 5 of the 7 teeth they extracted were permanent teeth. Of

the 2 baby teeth they took out one was a fused tooth and the other was

already wiggly so they thought they'd speed up the situation. But that's what

bums

me out so much is that we lost mostly permanent ones.

I did have one hopeful thought I must admit and that was that perhaps now

she wouldn't have enough teeth to grind! But she proved me wrong today.

Somehow in that sore little holey mouth of hers she found two teeth that would

grind! Wouldn't you know it!

a

Hannah 6 DS/Aut

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Hi a,

We use the Collis curve toothbrush, which works very well for Brook. Friday

we took Brook to University of Ca San Francisco to their pediatric dental

clinic, because Brook needs to be put under for his dental care. The pediatric

dentist said that Brook's teeth looked to be in very good shape considering how

difficult it is to brush, etc. I showed him the colliscurve toothbrush and he

said it looked very good to him. My dh uses the colliscurve toothbrush on his

teeth every night. You can order the toothbrush online at www.colliscurve.com.

We sing to him usually while brushing his teeth. Last January Brook had general

anesthesia and had X-rays, teeth cleaned and sealants appplied to the tops of

his molars. That helps protect the teeth not only from cavities but from the

damage from grinding.

We are going to take him in again next year for his routine exam and

cleaning under general anesthesia and at the same time he will have 2 teeth

extracted that haven't descended. They can develop cysts if they don't come

down. We would not have known they were even there if we hadn't put him under

and done the x-rays.

--

Miles 16, Brook 13, Genevieve 6

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Hi a,

Poor Hannah, kids are so resilient though. I know Zeb's baby teeth came in in

points. He would bite me all the time to the point that I would pin shoulder

pads on my shoulders and down my arms, ouch. His teeth had cavities inbetween

the teeth so they capped most of them. I was furious after the surgery when I

saw him with a metal mouth. I thought they were going to cap the teeth with

natural looking crowns. They said that those crowns don't hold up for children.

What exactly is the plan for teeth for Hannah? I was told that many of our

kids have such a small oral cavity that many need permanent teeth removed to

ease

the crowding. I hope this is the case with Hannah.

Charlyne

Mom to Zeb 11 DS/OCD

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