newly diagnosed

[Guest guest]

our son noah, who is almost 4, was just diagnosed with PDD. he also has Down

syndrome. i'm interested in talking to any parents in the New York City or

Princeton, NJ area who has a child with a similar diagnosis. if you would like

to get in touch, please e-mail me your phone number. my e-mail address is

PatsyMic2@....

thanks.

[Guest guest]

Hello Patsy,

my little man is a Noah also, he is 3 years old. He was dx'ed in August last

year with moderate autism. He also has sensory integration dysfunction. Last

week his labs came back positive for celiac disease. Noah has always shown

signs of autism even as an infant. I know what you mean as far as

heartwrenching!!!!!!! He tries hard to verbalize but just can't however he does

use sign language and has 20 sign words he uses. He sometimes needs a verbal

prompt to get him to use them for what he wants but he will use them. What

state are you in? How are the schools and what supports does your Noah get?

(Noah 3, ds/asd)

newly diagnosed

hi. my son noah is 4 and has ds/asd. sadly, he has lost a lot of his verbal

skills. he was never a great communicator per se, but had an excellent

vocabulary for labeling objects in books, life, etc. and answering questions.

also, his articulation has worsened. but, it's not that he no longer knows

the

words because on a good day he'll say them, it's just that some days he just

can't seem to get them out. of course, it's very frustrating and

heartbreaking

to see the loss of skills. in our case, that's part of the diagnosis. one of

the most difficult things for me though with this whole autism thing is that

it's not predictable and it seems to evolve, both for better and for worse.

best of luck, patsy