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In a message dated 11/1/03 4:48:05 PM Central Standard Time,

writes:

> Hi Karyn,

> I know a lot of kids only eat things with ketchup. LOL Wish Seth liked it.

>

> I wouldn't care if he ate it on everything, long as he ate! LOL But

> YUKKKKKKKKKKKKK, lemon and lime juice straight out of the bottle????????

> LOL

> Gail :-)

>

has this nasty habit of swearing. He came that way-certainly didn't get

it from us. Anyway, his first grade teacher called me one day and shared an

" option " for addressing the swearing. She wanted to put lemon juice in his

tongue every time he swore. First of all I would never allow anyone to do this

to

esp. with his history of abuse and second, wouldn't that be reinforcing.

LOL!!

Karyn

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Hi Gail! Yes, Halloween has always been my favorite holiday - lots of candy,

getting to dress up, no visiting relatives/planning big dinners. To me, it is

perfect. So, it was a real pick me up to have and I enjoy it

together!

Still no TSS - they are " working on it " . I'm just hanging in there. Meanwhile,

we are trying to compromise and pick up from day care one hour

earlier than normal as a good will gesture (as opposed to the possibility of

him being excluded).

I just dropped off film, and when it gets developed, I'll try to post a picture

of

two of him.

Best wishes,

Ginny

Mom to (6yo/DS/PDD/AML in remission/100% boy)

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  • 3 weeks later...

In a message dated 11/21/2003 5:39:22 PM Eastern Standard Time,

smilinggail@... writes:

> Way to go, AGAIN Char!!!!!!!!!!!!!! LOL An inspiration to us all.

Hi Gail,

I wouldn't say that but as usual it's always something in this school district

Charlyne

Mom to Zeb DS/OCD

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  • 1 month later...

In a message dated 1/7/2004 6:39:47 AM Eastern Standard Time,

smilinggail@... writes:

> They finally got his touch

> screen up and running. Problem is, the program they are using is WAY over

> his head, so he is defeated before he starts.

Hi Gail,

Glad you had a nice trip and the boys survived. Don't give up with the

school. Set up another meeting to discuss the program and the timeout situation

asap. I will drive up if you want me to.

Charlyne

Mom to Zeb 11 DS/OCD

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In a message dated 1/7/2004 10:56:02 AM Eastern Standard Time,

charlyne1121@... writes:

Hi Gail,

Glad you had a nice trip and the boys survived. Don't give up with the

school. Set up another meeting to discuss the program and the timeout

situation

asap. I will drive up if you want me to.

Charlyne

Mom to Zeb 11 DS/OCD

Hey Char, promise? LOL Might take you up on that!

Gail :-)

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In a message dated 1/9/2004 4:41:19 AM Eastern Standard Time,

smilinggail@... writes:

> Hey Char, promise? LOL Might take you up on that!

Hi Gail,

I always keep my promises. I will come with you if you think I could be of

assistance to you in the meeting. I will pack the tape recorder and be ready to

go.Let me know. Pete is still home recovering from the surgerys so he is

available for Zeb. He is not the best caretaker but they will survive.

Charlyne

Mom to Zeb 11 DS/OCD

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Oh Gail,

We are so fortunate to have Charlyne offering her assistant. I know

I'll reserve a flight ticket or two for her to come down to San

when I need her. Charlyne has been very supportive with

info. I might have to come up with an excuse just for the visit.

But, who knows maybe and I should make plans out y'all's way

since your there too and we could all meet.

Gail, that is awful that Seth ended up getting time out for what the

teacher had taught him in the first place. I too, love the thought

he knew the routine to the gym. I understand the turn taking but the

teacher must clearly define so that he knows what is expected. Our

kids do require many trials to learn a task. Definitely needed a

transition, waiting, and turn taking strategies. The time-out was

too long especially for something he must of been confused about.

When I had entered 's classroom the first month of this school

year as I was going to pick him up early. The teacher had mentioned

that he ended up getting time out. I had to remind them to read his

IEP that should not receive time-out because they were only

rewarding him as this is what he would enjoy being by himself and

would make a routine out of it. I did tell them that he needed a

spot to calm down when acting out and do not speak to him or it

would stir up more negative behavior and then redirect him to what

was on his schedule.

Well, just had to have my say. : )

Irma,15,Ds/ASD

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In a message dated 1/19/2004 5:36:57 AM Eastern Standard Time,

smilinggail@... writes:

> I set up

> a meeting with the teacher, therapists and Seth's case worker for this week.

>

Hi Gail,

I was waiting to hear from you. Let me know what goes on at your meeting.

It's taken forever for you to get this meeting scheduled.

Charlyne

Mom to Zeb 11 DS/OCD

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In a message dated 1/19/2004 11:30:05 AM Eastern Standard Time,

charlyne1121@... writes:

Hi Gail,

I was waiting to hear from you. Let me know what goes on at your meeting.

It's taken forever for you to get this meeting scheduled.

Charlyne

Mom to Zeb 11 DS/OCD

Meeting is tomorrow Char....thanks for all the help!

Gail :-)

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In a message dated 1/27/2004 8:33:55 PM Eastern Standard Time,

smilinggail@... writes:

> LOL ARE YOU KIDDING???? YOU can do anything Charlyne! LOL

Hi Gail,

Don't be so sure. The school made a poor chice yesterday of reverting to a

few retailiation tactics with Zeb. If I was that good it would never have

happened again. I have my armour on and am going into war. I need the dog for

myself, with big teeth LOL

Charlyne

Mom to Zeb 11 DS/OCD

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Hi Gail,

I hope I'm not having a cow about 's week. Maybe he is going

through one of those down time. He was doing pretty good and now

this turn around when he starts acting out or just wants to be left

alone, does not have much of an appetite, not as bad just seems like

one of those issues that I'm trying to figure out. I guess I just

have those moments where I figure he is going to regress. I do have

to learn to adjust and remember he is a teenager and he will go

through some moments like some do. He was in a slow mode this

morning. Has not been too compliant at school these past days. Who

knows why?

On another note, this past Wed. evening I went to a parent training

meeting provided by our school district resource center in regards

to the services available for when they reach 18. I've been to too

many but figure won't hurt to listen to it again. I'm one of the few

parents who attends to them from 's class.

Along with several other states, TX is just as bad about the long

waiting list for services but at least some of the Mental Health

Services are starting to speak up about it and would like to battle

like Florida has, which was mentioned. Well, prayers to that, thats

for sure.

There were a few parents with kids from other High school that were

not aware of the programs available and once again the only parent

receiving some services already through the state and he is also on

a waiting list since he was younger so you can imagine that the

other future students will have a longer wait.

I made sure to speak up to the speaker and the Autism Lead

Coordinator, " Ok, since most parents could not attend if they could

provide copies of the handout of the services/resource info to the

Middle school & High School Special Ed teachers so that they could

hand them out to their students parents, if not I would send my copy

to them and they could copy mine, of course it was one of those

reverse psychology moments because then they said " they would have a

teacher staff meeting " . It just ease my mind to know other parents

will get updated information.

I also had the opportunity to discuss about to the Autism

Lead for the school district once the meeting was over if she could

follow up on my request on the IEP that I had requested for all

staff working with to have autism training and I'm aware of

several Autism workshops coming up as has not been doing good

these past days and I would not like for him to regress. Just needed

to follow up with my request and concerns. Glad it was worth my time

out to the parent training meeting.

Wow! That is great news on Seth's dental visit. This too I have to

add back to 's yearly routine. I was doing well with him until

well you know the back surgery and I had not made an effort of

risking the challenge. I believe I'm ready for it. At least he has

come around the brushing of his teeth and then this new step slowly

the flossing. I too remember when he would not allow this.

Take care.

Irma,15,Ds/ASD

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  • 3 weeks later...

Hi Gail,

seems to be feeling better. Attitude well, its so and so with me. I have

to step down from being near him as he wants his space. The sad part about it is

when he is under the weather he loves to take over my bed and when I want to

nap, " mom, leave me alone or get out " . He wins because I guess this gives him

comfort and mom already feels bad for him not feeling well. Yes, he became ill

again and believe or not I was at a different fabric store alone and not too far

from his school " ringggggg " goes my cell phone, you got it! It was the school

calling that it was not an emergency but thought I should know that he had done

alot of poop all over him and his pants. Good thing he had an extra change of

clothes at school and they cleaned him up with a shower. One of the aides who

also enjoys working with came up to me to apologize for throwing away his

underwear. I told her " not to worry, I stock up on them " . I too, toss them out.

I just told them I better take him home to keep any eye out for him especially

when it was pretty running.Just want to be on the safe side. All this was

Thurs., kept him home Fri. still stayed on my bed but finally came around by

yesterday evening.

The lead teacher was out of the classroom and the school coordinator was

attending to who had called me as the PM teacher was able to be there in

the morning and he was busy with another student with Downs (female) who was

giving him a hard time. It was funny recognizing her behavior and I just told

the teacher " that is what you call a Downs day " . I would of told him how to get

her off a couple of chairs as she was laying face down on it and would not

listen or move but Master needed my attention and I just kept my mouth

shut. Then I kinda of felt bad about it. The school coordinator said " she loves

helping out the classroom and especially working with . In my thoughts

" good " . Hmm, this is the person I'll need to work with and kept spinning with

ideas.

Well, once home he had gone straight to my bed, he ended up sleeping the entire

day and then by evening he was pretty warm. No telling what he was going

through as he was just on his last day of taking his antibiotic. It could of

been the meds. Well, even though was not with me at the fabric store,

seems like just can't be at one. ; )

To top it off, I just had one of those attitude towards my dh that I did miss

working and guess this was one of those reality hits again. Hubby told me

everybody would love to be in my shoes on not working. I just stayed quiet and

was actually nice for not barking back. I guess with the school staff being nice

with I was in la la land. Once again no telling what was going through

him. Not worth taking him to the P-doc as I know he would not been able to do

anything for him.

You celebrating this weekend? Heading out to Dallas, about 4 hr. drive from SA.

Hope we make it back on time as tomorrow our minister is to Bless my dh and I on

our Anniversary. Its today, but we normally attend the 10:00 Sunday mass. Chat

later and get Master dressed to hit the road.

B-day Hugs!

Irma,15,Ds/ASD

Irma

Irma, How's ? Came home sick today? Still running fevers?

Gail :-)

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  • 3 weeks later...
Guest guest

Hi Gail,

WHAT? Wiping my eyes did I read right, might be neighbors? What is HGTV? This is

new to hear, what stir this up? Well I'll be, this is news! No Tyler is not

near, but to me its sort of like down the highway sort of say as I drive up to

Dallas to visit my family and friends. Gail you move down here I'll pencil you

in and make a point to visit you, if this is what it means. A New Yorker moving

down to Texas. : )

I've been away from reading newspaper and watching a little TV as I babysit my

grandson along with building a strong supportive letter to conquer the areas

with the school districts to address needs. Plus the upkeep of the house,

we've had beautiful weather these past days, well now its raining. I've

rearrange and Rick's room, they have to share it again as I have my older

son and his fiance & baby in Rick's old room. We are all adapting to the

changes. I was offered 2 jobs with some friends of mine whom I've helped in the

past to open their clinics one at a physical therapy and the other with a Chiro.

The Physical Therapy place I ended up getting my future DIL a job there instead

of me, part time to start of this past week and she is enjoying it alot. It

almost feels like " my daughter " walking in my shoes. My friends feel like having

her there its like still holding on to me, blush. The Chiro I told him to get

educated as a DAN doc or somewhat like the Chiro we've spoken about in the past.

Than " we'll talk " as I told him. I have not heard from him yet, hope I did not

overwhelm him with too much info, but he did ask me to work with him and was

taking my advice the last time he had emailed me. He did leave me his number but

I'm busy to call right now as I need my time and energy towards . School

is near end and I want to make sure I get the ball rolling again. Gosh! The

temptation to go back to the workfield. I must program my mind that I've retired

from the workfield my destiny is to assist my son. : )

I heard a story from up there in NY that some employee had been dead since

Monday and this is a place with lots of employees and everybody is at work in

their cubicles and then along comes Sat. and the cleaning guy saw this employee

and had asked him " What brings you to work on a Saturday? " Well this day happen

to be the discovering of his death. Autopsy had shown that he's been dead since

Mon. This is terrible but somewhat of a lesson, though. First its nice to nodge

and greet fellow employees but the second lesson here is " What good is it to

work so hard and nobody notices it " . This I must remember and concentrate what

I'm doing for . I've been Blessed in many ways though.

Irma,15,Ds/ASD

hey Irma

Irma, I just saw that HGTV is building their new dream home in Tyler Texas.

Anywhere near you? I'm winning it this time, so maybe we'll be neighbors!

LOL

Gail :-)

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