Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 Hi June I felt for you when you wrote about your fear of an asthma attack and the bronchoscope - I had a endoscope and know where you are coming from. The Dr said it was because I was over anxious. The fact you cant breath AND you cant tell anyone because yr sedated would make anyone anxious. When my resp spec mentioned bronchoscopy i headed for the hills. Of course it is very sensible for you to have one but as a terrible coward myself you will have my complete admiration, thoughts and prayers. Judy ps oddly enough it is cool here in Sth Aust, but about to warm up to 39C by Fri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 In a bronchoscopy, they go into your lungs with a suction tube and a camera -so they can see where they are going. They get as far down as they can and suction some of the mucous out. I really don't like them at all - but like I said - if you aren't getting well - it may be your only option. They just found moraxella catarrhalis in my lungs. What a name. I was having a horrible time breathing, I lost my voice and I just couldn't function. Thank God they finally found it and I'm feeling like I want to live again. The best of luck to you and don't rule that bronchoscopy out!a BellingUNMC Department of Surgery983280 Nebraska Medical CenterOmaha, NE 68198-3280(402)559-6784 (phone) (402)559-6749 (fax) June Fraser 12/13/2004 09:54 PM GMT Please respond to bronchiectasis To bronchiectasis cc bcc Subject Re: The elusive bug Thanks a, I'm sure you are right the bugs are deep in the lung andno I don't want a Bronchoscophy but this latest test I went 6 weekswithout anti b's and was so ill. Took a first thing in the morningsample to the Brompton, London's leading lung hospital and still theycould not find anything but I know if anti b's work it has to be inthere somewhere! Will ask for another test, I know next time they aregoing to look for tropical bugs as I have travelled extensively overthe Far East, Africa, S America and many other places. I don;t evenknow what they do with a Bronchoscophy is it terrible? I' m the biggestcoward in the world and claustrophobic. Last time they took blood frommy ear lobe by slicing it and I had a horrendous asthma attack fromsheer terror!Regards June>>>>> I've had this happen and it is very frustrating. When they can't> find what> you have and don't use the right antibiotic to get rid of it. When> they> did my bronchoscopy, it did help because they can get the stuff that> is way> down in your lungs and get a culture from that. If you can avoid it,> I> would. I'm very claustrophobic so when I had mine done, they gave me> enough medicine to knock out a guy 3 times my size and I was still> fighting. You get a really sore throat too - but if the ends justify> the> means - maybe it is your best bet! Hope all gets better for you!>> a Belling> UNMC Department of Surgery> 983280 Nebraska Medical Center> Omaha, NE 68198-3280> (402)559-6784 (phone) (402)559-6749 (fax)>>>>>>>> "junefraser2002">> > om> To>> bronchiectasis > 12/13/2004> 03:24 cc>> PM>> Subject> The elusive> bug> Please respond> to>> bronchiectasis@ya>> hoogroups.com>>>>>>>>>>>>>>> Hi everyone, need a bit of input from you all re my 8th negative> sputum> test!> Feel so despondant they haven't found a bug again, Cheryl you> mentioned> you had this happen to you, how did they find something eventually.> Been> feeling like death the last few days, not only bad Bronch, bad> asthma, now> I've> strained my back coughing and can't stand upright. Just want to crawl> under> a> nice warm duvet and die, I'm sure you all know what i mean? Anyway> when I> go on antibiotics I do improve, no doubt. Today i'm running a fever> again> so> to hell with what they say ,I'm taking Tetracycline because I do not> want> to be> crook for Xmas. Has anyone else had all this and then had lung wash> (Broncoscophy, is that right????) and got a result, not that I want> to go> through that but I'm getting desperate.> On a different note, Tina, my heart goes out to you over your> adoption,> don't> give up, there is a child in need of your wonderful care, when the> time is> right> it will happen. Just believe in yourself, I'm surprised the powers> that be> are not> queuing up for you to take a child there must be so many in need. I> will> pray to> God tonight to find that special baby for you .> It is very cold in London today so I haven't ventured out as I wheeze> badly> in> cold air, put my tree up yesterday and my kitten tried to demolish> it, he> is the> number one thing that cheers me up at the moment. Five minutes after> we put>> the real tree up he promptly decided he would water it for me, we> were all> in> stitches. Never a dull moment here. Love from London June>>>>>>> Yahoo! Groups> Sponsor>>>>>>>>>>> ADVERTISEMENT> (Embedded image moved to file: pic00491.gif)click> here>>>>>>> (Embedded image moved to file:> pic02995.gif)>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 Thanks a, at least now I know the worst! Don't fancy that at all, has to be the last resort. Why doesn't the bug show up in the sputum sample but does in Bronchoscopy I wonder. Anyway I know those little devils are there because the anti b's I started yesterday are already on the go, just had my first night's full sleep for some time! June > In a bronchoscopy, they go into your lungs with a suction tube and a > camera -so they can see where they are going. They get as far down as > they can and suction some of the mucous out. I really don't like them > at all - but like I said - if you aren't getting well - it may be your > only option. They just found moraxella catarrhalis in my lungs. What > a name. I was having a horrible time breathing, I lost my voice and I > just couldn't function. Thank God they finally found it and I'm > feeling like I want to live again. The best of luck to you and don't > rule that bronchoscopy out! > > a Belling > UNMC Department of Surgery > 983280 Nebraska Medical Center > Omaha, NE 68198-3280 > (402)559-6784 (phone) (402)559-6749 (fax) > > <image.tiff> > > June Fraser > > 12/13/2004 09:54 PM GMT > Please respond to bronchiectasis > <image.tiff> > > To > <image.tiff> > bronchiectasis > > <image.tiff> > > cc > <image.tiff> > > <image.tiff> > > bcc > <image.tiff> > > <image.tiff> > > Subject > <image.tiff> > Re: The elusive bug > > <image.tiff><image.tiff> > > Thanks a, I'm sure you are right the bugs are deep in the lung and > no I don't want a Bronchoscophy but this latest test I went 6 weeks > without anti b's and was so ill. Took a first thing in the morning > sample to the Brompton, London's leading lung hospital and still they > could not find anything but I know if anti b's work it has to be in > there somewhere! Will ask for another test, I know next time they are > going to look for tropical bugs as I have travelled extensively over > the Far East, Africa, S America and many other places. I don;t even > know what they do with a Bronchoscophy is it terrible? I' m the biggest > coward in the world and claustrophobic. Last time they took blood from > my ear lobe by slicing it and I had a horrendous asthma attack from > sheer terror! > Regards June > > > > > > > > > > > > I've had this happen and it is very frustrating. When they can't > > find what > > you have and don't use the right antibiotic to get rid of it. When > > they > > did my bronchoscopy, it did help because they can get the stuff that > > is way > > down in your lungs and get a culture from that. If you can avoid > it, > > I > > would. I'm very claustrophobic so when I had mine done, they gave > me > > enough medicine to knock out a guy 3 times my size and I was still > > fighting. You get a really sore throat too - but if the ends > justify > > the > > means - maybe it is your best bet! Hope all gets better for you! > > > > a Belling > > UNMC Department of Surgery > > 983280 Nebraska Medical Center > > Omaha, NE 68198-3280 > > (402)559-6784 (phone) (402)559-6749 (fax) > > > > > > > > > > > > > > > > " junefraser2002 " > > > > <junefraser@... > > > > om> To > > > > bronchiectasis > > 12/13/2004 > > 03:24 cc > > > > PM > > > > Subject > > The elusive > > bug > > Please respond > > to > > > > bronchiectasis@ya > > > > hoogroups.com > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi everyone, need a bit of input from you all re my 8th negative > > sputum > > test! > > Feel so despondant they haven't found a bug again, Cheryl you > > mentioned > > you had this happen to you, how did they find something eventually. > > Been > > feeling like death the last few days, not only bad Bronch, bad > > asthma, now > > I've > > strained my back coughing and can't stand upright. Just want to > crawl > > under > > a > > nice warm duvet and die, I'm sure you all know what i mean? Anyway > > when I > > go on antibiotics I do improve, no doubt. Today i'm running a fever > > again > > so > > to hell with what they say ,I'm taking Tetracycline because I do not > > want > > to be > > crook for Xmas. Has anyone else had all this and then had lung wash > > (Broncoscophy, is that right????) and got a result, not that I want > > to go > > through that but I'm getting desperate. > > On a different note, Tina, my heart goes out to you over your > > adoption, > > don't > > give up, there is a child in need of your wonderful care, when the > > time is > > right > > it will happen. Just believe in yourself, I'm surprised the powers > > that be > > are not > > queuing up for you to take a child there must be so many in need. I > > will > > pray to > > God tonight to find that special baby for you . > > It is very cold in London today so I haven't ventured out as I > wheeze > > badly > > in > > cold air, put my tree up yesterday and my kitten tried to demolish > > it, he > > is the > > number one thing that cheers me up at the moment. Five minutes after > > we put > > > > the real tree up he promptly decided he would water it for me, we > > were all > > in > > stitches. Never a dull moment here. Love from London June > > > > > > > > > > > > > > Yahoo! Groups > > Sponsor > > > > > > > > > > > > > > > > > > > > > > ADVERTISEMENT > > (Embedded image moved to file: pic00491.gif)click > > here > > > > > > > > > > > > > > (Embedded image moved to file: > > pic02995.gif) > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2004 Report Share Posted December 14, 2004 Don't feel bad, This happened to me all the time. A lung wash could show the bug b/c it gets down farther and brings up stuff you might not have coughed out. They found staph and other buggies with me this way. BeckiLife is not measured by the number of breaths we take, but by the moments that take our breath away.Double Lung Transplant Recipient and PFO Repairat Mayo Clinic ville,Fla. Sept 15,2004YOUNGLUNG EMAIL SUPPORT LISThttp://health.groups.yahoo.com/group/YOUNGLUNG/Pediatric Interstitial Lung Disease Societyhttp://groups.yahoo.com/group/InterstitialLung_Kids/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2004 Report Share Posted December 14, 2004 Hi June, I've also had a couple of bronchoscopies. Even though I was quite nervous before the first one, they really aren't so bad. I woke up toward the end of the last one and still got through it without a problem. I felt a little uncomfortable the next day, but nothing I couldn't handle. They tend to get better samples to culture with bronchoscopies because they can get the really deep stuff. So, if your doctor ever says he wants you to have one, don't worry about it too much--it's not all that bad. Barb Re: The elusive bug Thanks a, at least now I know the worst! Don't fancy that at all, has to be the last resort. Why doesn't the bug show up in the sputum sample but does in Bronchoscopy I wonder. Anyway I know those little devils are there because the anti b's I started yesterday are already on the go, just had my first night's full sleep for some time! June > In a bronchoscopy, they go into your lungs with a suction tube and a > camera -so they can see where they are going. They get as far down as > they can and suction some of the mucous out. I really don't like them > at all - but like I said - if you aren't getting well - it may be your > only option. They just found moraxella catarrhalis in my lungs. What > a name. I was having a horrible time breathing, I lost my voice and I > just couldn't function. Thank God they finally found it and I'm > feeling like I want to live again. The best of luck to you and don't > rule that bronchoscopy out! > > a Belling > UNMC Department of Surgery > 983280 Nebraska Medical Center > Omaha, NE 68198-3280 > (402)559-6784 (phone) (402)559-6749 (fax) > > <image.tiff> > > June Fraser > > 12/13/2004 09:54 PM GMT > Please respond to bronchiectasis > <image.tiff> > > To > <image.tiff> > bronchiectasis > > <image.tiff> > > cc > <image.tiff> > > <image.tiff> > > bcc > <image.tiff> > > <image.tiff> > > Subject > <image.tiff> > Re: The elusive bug > > <image.tiff><image.tiff> > > Thanks a, I'm sure you are right the bugs are deep in the lung and > no I don't want a Bronchoscophy but this latest test I went 6 weeks > without anti b's and was so ill. Took a first thing in the morning > sample to the Brompton, London's leading lung hospital and still they > could not find anything but I know if anti b's work it has to be in > there somewhere! Will ask for another test, I know next time they are > going to look for tropical bugs as I have travelled extensively over > the Far East, Africa, S America and many other places. I don;t even > know what they do with a Bronchoscophy is it terrible? I' m the biggest > coward in the world and claustrophobic. Last time they took blood from > my ear lobe by slicing it and I had a horrendous asthma attack from > sheer terror! > Regards June > > > > > > > > > > > > I've had this happen and it is very frustrating. When they can't > > find what > > you have and don't use the right antibiotic to get rid of it. When > > they > > did my bronchoscopy, it did help because they can get the stuff that > > is way > > down in your lungs and get a culture from that. If you can avoid > it, > > I > > would. I'm very claustrophobic so when I had mine done, they gave > me > > enough medicine to knock out a guy 3 times my size and I was still > > fighting. You get a really sore throat too - but if the ends > justify > > the > > means - maybe it is your best bet! Hope all gets better for you! > > > > a Belling > > UNMC Department of Surgery > > 983280 Nebraska Medical Center > > Omaha, NE 68198-3280 > > (402)559-6784 (phone) (402)559-6749 (fax) > > > > > > > > > > > > > > > > " junefraser2002 " > > > > <junefraser@... > > > > om> To > > > > bronchiectasis > > 12/13/2004 > > 03:24 cc > > > > PM > > > > Subject > > The elusive > > bug > > Please respond > > to > > > > bronchiectasis@ya > > > > hoogroups.com > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi everyone, need a bit of input from you all re my 8th negative > > sputum > > test! > > Feel so despondant they haven't found a bug again, Cheryl you > > mentioned > > you had this happen to you, how did they find something eventually. > > Been > > feeling like death the last few days, not only bad Bronch, bad > > asthma, now > > I've > > strained my back coughing and can't stand upright. Just want to > crawl > > under > > a > > nice warm duvet and die, I'm sure you all know what i mean? Anyway > > when I > > go on antibiotics I do improve, no doubt. Today i'm running a fever > > again > > so > > to hell with what they say ,I'm taking Tetracycline because I do not > > want > > to be > > crook for Xmas. Has anyone else had all this and then had lung wash > > (Broncoscophy, is that right????) and got a result, not that I want > > to go > > through that but I'm getting desperate. > > On a different note, Tina, my heart goes out to you over your > > adoption, > > don't > > give up, there is a child in need of your wonderful care, when the > > time is > > right > > it will happen. Just believe in yourself, I'm surprised the powers > > that be > > are not > > queuing up for you to take a child there must be so many in need. I > > will > > pray to > > God tonight to find that special baby for you . > > It is very cold in London today so I haven't ventured out as I > wheeze > > badly > > in > > cold air, put my tree up yesterday and my kitten tried to demolish > > it, he > > is the > > number one thing that cheers me up at the moment. Five minutes after > > we put > > > > the real tree up he promptly decided he would water it for me, we > > were all > > in > > stitches. Never a dull moment here. Love from London June > > > > > > > > > > > > > > Yahoo! Groups > > Sponsor > > > > > > > > > > > > > > > > > > > > > > ADVERTISEMENT > > (Embedded image moved to file: pic00491.gif)click > > here > > > > > > > > > > > > > > (Embedded image moved to file: > > pic02995.gif) > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2004 Report Share Posted December 14, 2004 I think the answer is that with a bronch they can get way down where the bugs are living and what we cough up is what spills over into the healthy part of our lungs (if I understand the way my doctor explains it). Have they tried one of those machines to loosen it up for you so maybe you can get the sputum from lower to run a sample on? Just a suggestion that might keep you from getting that bronchoscopy - although it sounds like some people don't have as hard a time with them as I did. Maybe it will be a breeze for you too! a Belling UNMC Department of Surgery 983280 Nebraska Medical Center Omaha, NE 68198-3280 (402)559-6784 (phone) (402)559-6749 (fax) June Fraser <junefraser@... om> To bronchiectasis 12/14/2004 01:31 cc AM Subject Re: The elusive Please respond to bug bronchiectasis@ya hoogroups.com Thanks a, at least now I know the worst! Don't fancy that at all, has to be the last resort. Why doesn't the bug show up in the sputum sample but does in Bronchoscopy I wonder. Anyway I know those little devils are there because the anti b's I started yesterday are already on the go, just had my first night's full sleep for some time! June > In a bronchoscopy, they go into your lungs with a suction tube and a > camera -so they can see where they are going. They get as far down as > they can and suction some of the mucous out. I really don't like them > at all - but like I said - if you aren't getting well - it may be your > only option. They just found moraxella catarrhalis in my lungs. What > a name. I was having a horrible time breathing, I lost my voice and I > just couldn't function. Thank God they finally found it and I'm > feeling like I want to live again. The best of luck to you and don't > rule that bronchoscopy out! > > a Belling > UNMC Department of Surgery > 983280 Nebraska Medical Center > Omaha, NE 68198-3280 > (402)559-6784 (phone) (402)559-6749 (fax) > > <image.tiff> > > June Fraser > > 12/13/2004 09:54 PM GMT > Please respond to bronchiectasis > <image.tiff> > > To > <image.tiff> > bronchiectasis > > <image.tiff> > > cc > <image.tiff> > > <image.tiff> > > bcc > <image.tiff> > > <image.tiff> > > Subject > <image.tiff> > Re: The elusive bug > > <image.tiff><image.tiff> > > Thanks a, I'm sure you are right the bugs are deep in the lung and > no I don't want a Bronchoscophy but this latest test I went 6 weeks > without anti b's and was so ill. Took a first thing in the morning > sample to the Brompton, London's leading lung hospital and still they > could not find anything but I know if anti b's work it has to be in > there somewhere!  Will ask for another test, I know next time they are > going to look for tropical bugs as I have travelled extensively over > the Far East, Africa, S America and many other places. I don;t even > know what they do with a Bronchoscophy is it terrible? I' m the biggest > coward in the world and claustrophobic. Last time they took blood from > my ear lobe by slicing it and I had a horrendous asthma attack from > sheer terror! > Regards June > > > > > > > > > > > >  I've had this happen and it is very frustrating. When they can't > > find what > >  you have and don't use the right antibiotic to get rid of it. When > > they > >  did my bronchoscopy, it did help because they can get the stuff that > > is way > >  down in your lungs and get a culture from that. If you can avoid > it, > > I > >  would. I'm very claustrophobic so when I had mine done, they gave > me > >  enough medicine to knock out a guy 3 times my size and I was still > >  fighting. You get a really sore throat too - but if the ends > justify > > the > >  means - maybe it is your best bet! Hope all gets better for you! > > > >  a Belling > >  UNMC Department of Surgery > >  983280 Nebraska Medical Center > >  Omaha, NE 68198-3280 > >  (402)559-6784 (phone)      (402)559-6749 (fax) > > > > > > > > > > > > > > > > " junefraser2002 " > > > > <junefraser@... > > > > om>                                      Â\                 To > > > > bronchiectasis > >              12/13/2004 > > 03:24                                     Â\     cc > > > > PM > > > > Subject > >                                        The elusive > > bug > >              Please respond > > to > > > > bronchiectasis@ya > > > > hoogroups.com > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >  Hi everyone, need a bit of input from you all re my 8th negative > > sputum > >  test! > >  Feel so despondant they haven't found a bug again, Cheryl you > > mentioned > >  you had this happen to you, how did they find something eventually. > > Been > >  feeling like death the last few days, not only bad Bronch, bad > > asthma, now > >  I've > >  strained my back coughing and can't stand upright. Just want to > crawl > > under > >  a > >  nice warm duvet and die, I'm sure you all know what i mean? Anyway > > when I > >  go on antibiotics I do improve, no doubt. Today i'm running a fever > > again > >  so > >  to hell with what they say ,I'm taking Tetracycline because I do not > > want > >  to be > >  crook for Xmas. Has anyone else had all this and then had lung wash > >  (Broncoscophy, is that right????) and got a result, not that I want > > to go > >  through that but I'm getting desperate. > >  On a different note, Tina, my heart goes out to you over your > > adoption, > >  don't > >  give up, there is a child in need of your wonderful care, when the > > time is > >  right > >  it will happen. Just believe in yourself, I'm surprised the powers > > that be > >  are not > >  queuing up for you to take a child there must be so many in need. I > > will > >  pray to > >  God tonight to find that special baby for you . > >  It is very cold in London today so I haven't ventured out as I > wheeze > > badly > >  in > >  cold air, put my tree up yesterday and my kitten tried to demolish > > it, he > >  is the > >  number one thing that cheers me up at the moment. Five minutes after > > we put > > > >  the real tree up he promptly decided he would water it for me, we > > were all > >  in > >  stitches. Never a dull moment here. Love from London June > > > > > > > > > > > > > >                            Yahoo! Groups > > Sponsor > > > > > > > > > > > > > > > > > > > > > > ADVERTISEMENT > >            (Embedded image moved to file: pic00491.gif)click > > here > > > > > > > > > > > > > >  (Embedded image moved to file: > > pic02995.gif) > > > > > > > > > > > > > >  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2004 Report Share Posted December 14, 2004 hi june and all, this might be a total shot in the dark but are you using an approved sterile specimen container? also is it a specimen from first thing in the morning before you've had coffee/tea/juice/food etc which could contaminate it. if you provide a specimen while taking antibx, this is not a true specimen as it will not 'grow' correctly in the lab. just my experience talking here.......both as a caregiver and a hospital employee ~ retired!!!!!!!! i wish i had the magic cure, june.......just hang in there, we're here for you........never forget that. jennifer in canada June Fraser wrote: Thanks a, at least now I know the worst! Don't fancy that at all, has to be the last resort. Why doesn't the bug show up in the sputum sample but does in Bronchoscopy I wonder. Anyway I know those little devils are there because the anti b's I started yesterday are already on the go, just had my first night's full sleep for some time!June> In a bronchoscopy, they go into your lungs with a suction tube and a > camera -so they can see where they are going. They get as far down as > they can and suction some of the mucous out. I really don't like them > at all - but like I said - if you aren't getting well - it may be your > only option. They just found moraxella catarrhalis in my lungs. What > a name. I was having a horrible time breathing, I lost my voice and I > just couldn't function. Thank God they finally found it and I'm > feeling like I want to live again. The best of luck to you and don't > rule that bronchoscopy out!>> a Belling> UNMC Department of Surgery> 983280 Nebraska Medical Center> Omaha, NE 68198-3280> (402)559-6784 (phone) (402)559-6749 (fax)>> >> June Fraser >> 12/13/2004 09:54 PM GMT> Please respond to bronchiectasis > >> To > > bronchiectasis >> >> cc > >> >> bcc > >> >> Subject > > Re: The elusive bug>> >> Thanks a, I'm sure you are right the bugs are deep in the lung and> no I don't want a Bronchoscophy but this latest test I went 6 weeks> without anti b's and was so ill. Took a first thing in the morning> sample to the Brompton, London's leading lung hospital and still they> could not find anything but I know if anti b's work it has to be in> there somewhere! Will ask for another test, I know next time they are> going to look for tropical bugs as I have travelled extensively over> the Far East, Africa, S America and many other places. I don;t even> know what they do with a Bronchoscophy is it terrible? I' m the biggest> coward in the world and claustrophobic. Last time they took blood from> my ear lobe by slicing it and I had a horrendous asthma attack from> sheer terror!> Regards June> On 13 Dec 2004, at 21:40, jbelling@... wrote:>> >> >> >> >> > I've had this happen and it is very frustrating. When they can't> > find what> > you have and don't use the right antibiotic to get rid of it. When> > they> > did my bronchoscopy, it did help because they can get the stuff that> > is way> > down in your lungs and get a culture from that. If you can avoid > it,> > I> > would. I'm very claustrophobic so when I had mine done, they gave > me> > enough medicine to knock out a guy 3 times my size and I was still> > fighting. You get a really sore throat too - but if the ends > justify> > the> > means - maybe it is your best bet! Hope all gets better for you!> >> > a Belling> > UNMC Department of Surgery> > 983280 Nebraska Medical Center> > Omaha, NE 68198-3280> > (402)559-6784 (phone) (402)559-6749 (fax)> >> >> >> >> >> >> >> > "junefraser2002"> >> > > >> > om> To> >> > bronchiectasis > > 12/13/2004> > 03:24 cc> >> > PM> >> > Subject> > The elusive> > bug> > Please respond> > to> >> > bronchiectasis@ya> >> > hoogroups.com> >> >> >> >> >> >> >> >> >> >> >> >> >> >> > Hi everyone, need a bit of input from you all re my 8th negative> > sputum> > test!> > Feel so despondant they haven't found a bug again, Cheryl you> > mentioned> > you had this happen to you, how did they find something eventually.> > Been> > feeling like death the last few days, not only bad Bronch, bad> > asthma, now> > I've> > strained my back coughing and can't stand upright. Just want to > crawl> > under> > a> > nice warm duvet and die, I'm sure you all know what i mean? Anyway> > when I> > go on antibiotics I do improve, no doubt. Today i'm running a fever> > again> > so> > to hell with what they say ,I'm taking Tetracycline because I do not> > want> > to be> > crook for Xmas. Has anyone else had all this and then had lung wash> > (Broncoscophy, is that right????) and got a result, not that I want> > to go> > through that but I'm getting desperate.> > On a different note, Tina, my heart goes out to you over your> > adoption,> > don't> > give up, there is a child in need of your wonderful care, when the> > time is> > right> > it will happen. Just believe in yourself, I'm surprised the powers> > that be> > are not> > queuing up for you to take a child there must be so many in need. I> > will> > pray to> > God tonight to find that special baby for you .> > It is very cold in London today so I haven't ventured out as I > wheeze> > badly> > in> > cold air, put my tree up yesterday and my kitten tried to demolish> > it, he> > is the> > number one thing that cheers me up at the moment. Five minutes after> > we put> >> > the real tree up he promptly decided he would water it for me, we> > were all> > in> > stitches. Never a dull moment here. Love from London June> >> >> >> >> >> >> > Yahoo! Groups> > Sponsor> >> >> >> >> >> >> >> >> >> >> > ADVERTISEMENT> > (Embedded image moved to file: pic00491.gif)click> > here> >> >> >> >> >> >> > (Embedded image moved to file:> > pic02995.gif)> >> >> >> >> >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2004 Report Share Posted December 14, 2004 Thanks but yes, I had a sterile pot from the hospital, coughed up before touching even a sip of water, no antibiotics for 6 weeks till I was so ill and presented a nice tub of green gunk but no bug! Oh yeah, well after being half dead all week coughing up gunk and blood yesterday I had had enough and started on Tetracycline. Today 30 hours after starting anti biotics my peak flow has improved by 100, the gunk has gone much paler and my fever has eased. So now let them tell me there is no bug, if it wasn't there anti b's wouldn't work. I could scream over this I'm so frustrated they can't find it. All I know is anti biotics work and somehow I have to convince my doctors I'm on the right track but how? Thanks for the advice anyway Love June > hi june and all, > this might be a total shot in the dark but are you using an approved > sterile specimen container? also is it a specimen > from first thing in the morning before you've had > coffee/tea/juice/food etc which could contaminate it. > if you provide a specimen while taking antibx, this is not a true > specimen as it will not 'grow' correctly in the lab. > just my experience talking here.......both as a caregiver and a > hospital employee ~ retired!!!!!!!! > i wish i had the magic cure, june.......just hang in there, we're here > for you........never forget that. > jennifer in canada > > > June Fraser wrote: > > Thanks a, at least now I know the worst! Don't fancy that at all, > has to be the last resort. Why doesn't the bug show up in the sputum > sample but does in Bronchoscopy I wonder. Anyway I know those little > devils are there because the anti b's I started yesterday are already > on the go, just had my first night's full sleep for some time! > June > > > > In a bronchoscopy, they go into your lungs with a suction tube and a > > camera -so they can see where they are going. They get as far down > as > > they can and suction some of the mucous out. I really don't like > them > > at all - but like I said - if you aren't getting well - it may be > your > > only option. They just found moraxella catarrhalis in my lungs. > What > > a name. I was having a horrible time breathing, I lost my voice > and I > > just couldn't function. Thank God they finally found it and I'm > > feeling like I want to live again. The best of luck to you and > don't > > rule that bronchoscopy out! > > > > a Belling > > UNMC Department of Surgery > > 983280 Nebraska Medical Center > > Omaha, NE 68198-3280 > > (402)559-6784 (phone) (402)559-6749 (fax) > > > > > > > > June Fraser > > > > 12/13/2004 09:54 PM GMT > > Please respond to bronchiectasis > > > > > > To > > > > bronchiectasis > > > > > > > > cc > > > > > > > > > > bcc > > > > > > > > > > Subject > > > > Re: The elusive bug > > > > > > > > Thanks a, I'm sure you are right the bugs are deep in the lung > and > > no I don't want a Bronchoscophy but this latest test I went 6 weeks > > without anti b's and was so ill. Took a first thing in the morning > > sample to the Brompton, London's leading lung hospital and still they > > could not find anything but I know if anti b's work it has to be in > > there somewhere! Will ask for another test, I know next time they > are > > going to look for tropical bugs as I have travelled extensively over > > the Far East, Africa, S America and many other places. I don;t even > > know what they do with a Bronchoscophy is it terrible? I' m the > biggest > > coward in the world and claustrophobic. Last time they took blood > from > > my ear lobe by slicing it and I had a horrendous asthma attack from > > sheer terror! > > Regards June > > > > > > > > > > > > > > > > > > > I've had this happen and it is very frustrating. When they can't > > > find what > > > you have and don't use the right antibiotic to get rid of it. > When > > > they > > > did my bronchoscopy, it did help because they can get the stuff > that > > > is way > > > down in your lungs and get a culture from that. If you can avoid > > it, > > > I > > > would. I'm very claustrophobic so when I had mine done, they gave > > me > > > enough medicine to knock out a guy 3 times my size and I was still > > > fighting. You get a really sore throat too - but if the ends > > justify > > > the > > > means - maybe it is your best bet! Hope all gets better for you! > > > > > > a Belling > > > UNMC Department of Surgery > > > 983280 Nebraska Medical Center > > > Omaha, NE 68198-3280 > > > (402)559-6784 (phone) (402)559-6749 (fax) > > > > > > > > > > > > > > > > > > > > > > > > " junefraser2002 " > > > > > > > > > > > om> To > > > > > > bronchiectasis > > > 12/13/2004 > > > 03:24 cc > > > > > > PM > > > > > > Subject > > > The > elusive > > > bug > > > Please respond > > > to > > > > > > bronchiectasis@ya > > > > > > hoogroups.com > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi everyone, need a bit of input from you all re my 8th negative > > > sputum > > > test! > > > Feel so despondant they haven't found a bug again, Cheryl you > > > mentioned > > > you had this happen to you, how did they find something > eventually. > > > Been > > > feeling like death the last few days, not only bad Bronch, bad > > > asthma, now > > > I've > > > strained my back coughing and can't stand upright. Just want to > > crawl > > > under > > > a > > > nice warm duvet and die, I'm sure you all know what i mean? Anyway > > > when I > > > go on antibiotics I do improve, no doubt. Today i'm running a > fever > > > again > > > so > > > to hell with what they say ,I'm taking Tetracycline because I do > not > > > want > > > to be > & ! gt; > crook for Xmas. Has anyone else had all this and then had > lung wash > > > (Broncoscophy, is that right????) and got a result, not that I > want > > > to go > > > through that but I'm getting desperate. > > > On a different note, Tina, my heart goes out to you over your > > > adoption, > > > don't > > > give up, there is a child in need of your wonderful care, when the > > > time is > > > right > > > it will happen. Just believe in yourself, I'm surprised the powers > > > that be > > > are not > > > queuing up for you to take a child there must be so many in need. > I > > > will > > > pray to > > > God tonight to find that special baby for you . > > > It is very cold in London today so I haven't ventured out as I > > wheeze > > > badly > > > in > > > cold air, put my tree up yesterday and my kitten tried to demolish > > > it, he > > > is the > > > number one thing that cheers me up at the moment. Five minutes > after > > > we put > > > > > > the real tree up he promptly decided he would water it for me, we > > > were all > > > in > > > stitches. Never a dull moment here. Love from London June > > > > > > > > > > > > > > > > > > > > > Yahoo! Groups > > > Sponsor > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ADVERTISEMENT > > > (Embedded image moved to file: pic00491.gif)click > > > here > > > > > > > > > > > > > > > > > > > > > (Embedded image moved to file: > > > pic02995.gif) > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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