Cholestyramine

[Guest guest]

I am currently on cholestyramine, I am interested in talking with any one

who has had experience with this, good or bad. I have heard wonderful things

about it from articles (Dr. Shoemakers) but have not actually talked to

anyone who has taken it and had the remarkable outcome which is spoken

about. Where are the people who were part of the first study that are so

much better? Would love to hear some feedback. There are many docs in No. CA

using it.

Meg

[Guest guest]

Mitch Hoggard is the guy to contact in Chico California. He is doing a

study with the cholesteramine. I have no idea where he is at with the

study. I spoke to him many months ago. I can't find his phone number at

the moment. He is also the head of Chico Hyperbaric Center. You can

probably reach him though email or phone through the center. The website

http://www.hbotoday.com/ has that information available.

I hope this helps.

Robynn

Re: [ ] Digest Number 1637

Rhonna,

Supposedly Bowen is looking for lyme, babesia, and erlichia. The results

should be to my doctor soon. If you could scan the pictures you have, and

briefly explain it to the group, that would be great! So far, my only

positive tests arre LUATS. WB and elisa equivocal.

Doed anyone know who Dr. Shoemaker's colleague in CA is, and how to contact

them?

Lets get better,

[Guest guest]

>The protocol is used alot w/ patients w/ Lyme's disease.

That is a bad sign, since most of these people don't really have lyme

disease, they have an incompetent doctor who can't treat what they do

have (usually mercury) so he keeps randomly changing the diagnosis.

> I am still pretty confused but also excited. I was using activated

> charcoal prior to this w/ good results but not this good. I am

> still questioning alot of things w/ its use.

>

> I only mentioned it so other people could do their own research and

> see if it might help there child. Lynn Knapp on the stealth group

> has been helped immensely w/ its use.

Many fat soluble and similar toxins are excreted in bile and then

reabsorbed. Bile is how the body gets oil and water to mix in the

intestines (it is actually soaps and detergents) so the oily stuff can

be digested.

Cholestyramine absorbs bile. This has several consequences if you use

enough of it.

1. no fat absorption. No omega 3's, vitamin E, vitamin A, etc.

absorbed. Might as well not give them with the cholestyramine.

2. constipation. Bile is lubricating. Laxatives like fiber and

mineral oil need to be given if large amounts of cholestyramine are

used.

Actually the fat soluble nasties come out in the fats and oils that

don't get digested. So you do want a reasonable amount of fat in the

diet while doing this. But since it won't be absorbed well you aren't

too concerned about its nutritional properties.

I think in most instances this won't be a very useful intervention,

but as long as you realize it can impair fat soluble nutrient

absorption and double up on those on the off weeks (they last a long

time in the body, you don't have to give them every day) and take

reasonable measures to avoid constipation it is harmless. Also

inexpensive. Cholestyramine is completely inert and not absorbed

systemmically. So if you want to try it there is very little risk, it

is not hard to do, and it might work. My guess is that it will be

fairly magical for a few people and not do much for most, but I don't

know how much nasty junk is circulating back and forth between all of

our livers and intestines.

Andy .

[Guest guest]

>

>

>

> Hi Lizzie,

> I would like to get a prescription for the CHOLESTYRAMINE but don't

> know how to ask my Dr. to write it could you help, please. How much

> and anything else written on the label. I'm hoping that it will help

> my neuro-lyme

> Thanks,

> H.

HI MARY- HAPPY TO HELP. THE RX STATES; CHOLESTYRAMINE 4GM PACKETS

60'S. DIRECTIONS SAY MIX I PACKET WITH LIQUID BY MOUTH TWICE A DAY.

HOPE THIS HELPS. LET ME KNOW IF YOU HAVE ANY FURTHER QUESTIONS

REGARDING THIS METHOD OF TREATMENT. LIZZIE

> > > Minocycline has been greatly helping my neuro-lyme.

> > > 100 mg 2x daily

> > > AM

> > >

> >

> > I'm getting ready to start this. Do you notice any side effects?

> The info

> > from the pharmacy said to take it 30 minutes befoe eating, if

> possible. I

> > could really use some help with my neurolyme, so I'm hopeful this

> will be well

> > tolerated.

>

> HI, I HAVE BEEN ON MINOCYCLINE FOR THREE MONTHS WITH ZERO SIDE

> EFFECTS. I AM VERY SENSATIVE TO ABX AND HAVE BEEN ON MANY TYPES GOING

> ON 5 YEARS. I AM HAPPY TO REPORT THIS ROUND HAS BEEN PROBLEM FREE! AND

> I AM REALLY FEELING MUCH BETTER. I DID HAVE HERXES WITH THIS. AT FIRST

> INTENSE, BUT THEY ARE NOW MUCH LESS SEVERE AND I AM HAVING LOTS OF

> REALLY GOOD DAYS IN BETWEEN. MY LLMD GAVE ME A PRESCRIPTION FOR

> CHOLESTYRAMINE. I DRINK IT ONCE IN THE MORNING BEFORE I TAKE MY ABX,

> AND AGAIN IN THE EVENING. THIS IS A POWDER THAT I MIX WITH WATER. IT

> BINDS THE TOXINS AND HELPS ELIMINATE THEM FROM THE BODY FAST! THIS HAS

> MADE A HUGE DIFFERENCE IB THE SEVERITY OF THE HERXES.

> GOOD LUCK! LIZZIE

[Guest guest]

> >Thanks fo much Lizzie, am going to try it.

H.

> >

> >

> > Hi Lizzie,

> > I would like to get a prescription for the CHOLESTYRAMINE but

don't

> > know how to ask my Dr. to write it could you help, please. How

much

> > and anything else written on the label. I'm hoping that it will

help

> > my neuro-lyme

> > Thanks,

> > H.

>

> HI MARY- HAPPY TO HELP. THE RX STATES; CHOLESTYRAMINE 4GM PACKETS

> 60'S. DIRECTIONS SAY MIX I PACKET WITH LIQUID BY MOUTH TWICE A DAY.

> HOPE THIS HELPS. LET ME KNOW IF YOU HAVE ANY FURTHER QUESTIONS

> REGARDING THIS METHOD OF TREATMENT. LIZZIE

>

>

> > > > Minocycline has been greatly helping my neuro-lyme.

> > > > 100 mg 2x daily

> > > > AM

> > > >

> > >

> > > I'm getting ready to start this. Do you notice any side

effects?

> > The info

> > > from the pharmacy said to take it 30 minutes befoe eating, if

> > possible. I

> > > could really use some help with my neurolyme, so I'm hopeful

this

> > will be well

> > > tolerated.

> >

> > HI, I HAVE BEEN ON MINOCYCLINE FOR THREE MONTHS WITH ZERO SIDE

> > EFFECTS. I AM VERY SENSATIVE TO ABX AND HAVE BEEN ON MANY TYPES

GOING

> > ON 5 YEARS. I AM HAPPY TO REPORT THIS ROUND HAS BEEN PROBLEM

FREE! AND

> > I AM REALLY FEELING MUCH BETTER. I DID HAVE HERXES WITH THIS. AT

FIRST

> > INTENSE, BUT THEY ARE NOW MUCH LESS SEVERE AND I AM HAVING LOTS OF

> > REALLY GOOD DAYS IN BETWEEN. MY LLMD GAVE ME A PRESCRIPTION FOR

> > CHOLESTYRAMINE. I DRINK IT ONCE IN THE MORNING BEFORE I TAKE MY

ABX,

> > AND AGAIN IN THE EVENING. THIS IS A POWDER THAT I MIX WITH WATER.

IT

> > BINDS THE TOXINS AND HELPS ELIMINATE THEM FROM THE BODY FAST!

THIS HAS

> > MADE A HUGE DIFFERENCE IB THE SEVERITY OF THE HERXES.

> > GOOD LUCK! LIZZIE

>

[Guest guest]

Both my husband and I have taken Cholestyramine as prescribed by our LLMD to

help detox and we both tolerated it just fine.  We mixed it with juice, but it

is not terrible in water.  I cannot remember whether it caused some temporary

constipation or not - but if it did, we would have just taken more magnesium.

Good luck to you!

Peace, Terri 

" If any man would come after me,

       let him deny himself and take up his cross daily and follow me. "

                  ~Luke 9:23

" Whoever does not bear his own cross and come after me,

       cannot be my disciple. "

                  ~Luke 14:27                 

   

[Guest guest]

In just one week I noticed my brain fog lifting and headaches were less.

Other things took much longer especially the fatigue and joint pain.

>>

I just started taking Cholestyramine for mold exposure and was wondering

approximately how long it takes to work? I realize everyone responds

differently and results may vary.

Thank you

Dave

[Guest guest]

I just started taking Cholestyramine for mold exposure and was wondering

approximately how long it takes to work? I realize everyone responds differently

and results may vary.

Thank you

Dave

[Guest guest]

took me about two weeks until i noticed it working. dont miss any doses

From: Tug <tug_slug@...>

Subject: [] Cholestyramine

Date: Sunday, January 10, 2010, 12:54 PM

I just started taking Cholestyramine for mold exposure and was wondering

approximately how long it takes to work? I realize everyone responds differently

and results may vary.

Thank you

Dave

text portions of this message have been removed]

[Guest guest]

This may sound like a stupid question but what doctor prescribed the

cholestyramine? I'm interested but don't know who to approach. My internist will

probably prescribe (he's a delightful pill pusher) but he won't know what I'm

talking about and what dose etc. I've just had a bad mold exposure and and

wondering if this might help me-I'm at that desperate stage.

I'm in NYC if that helps for a recommendation.

Thanks, Surella

>

> From: Tug <tug_slug@...>

> Subject: [] Cholestyramine

>

> Date: Sunday, January 10, 2010, 12:54 PM

>

> I just started taking Cholestyramine for mold exposure and was wondering

approximately how long it takes to work? I realize everyone responds differently

and results may vary.

>

> Thank you

>

> Dave

>

> text portions of this message have been removed]

>

[Guest guest]

what have other people's experience been with cholestyramine, my kid is

seeing no improvements after 2 months on cholestyramine, although he has

missed doses...

>took me about two weeks until i noticed it working. dont miss any doses

>

>

>

>From: Tug <tug_slug@...>

>Subject: [] Cholestyramine

>

>Date: Sunday, January 10, 2010, 12:54 PM

>

> I just started taking Cholestyramine for mold exposure and was

>wondering approximately how long it takes to work? I realize everyone

>responds differently and results may vary.

>

>Thank you

>

>Dave

>

>text portions of this message have been removed]

>

[Guest guest]

>

> I just started taking Cholestyramine for mold exposure and was wondering

approximately how long it takes to work? I realize everyone responds differently

and results may vary.

Depends on how sick/toxic you are, I think.

I've been taking it pretty steadily for about a year now, and huge amounts of

toxins are still coming out of my body.

This only happens if I get my exposures REALLY low though. Otherwise the toxins

won't come out at all, no matter what I use. CSM just gives me constipation

then.

This is the part that Mold Warriors doesn't cover. That book suggests that CFS

sufferers' C3a (and presumably C4a) stay up even after csm therapy. Dr. S acts

like it's perplexing why.

With someone like me, with CFS, exposures need to be super low in order to get

the system " damped down " enough to switch complement off (which is part of the

point of " extreme avoidance " ). And a couple of weeks of csm is just a drop in

the bucket, considering the amount of toxins that some of us have in our bodies.

(I believe Dr. S understands that now.)

My reactivity is coming down, and I think that the csm has been a big part of

that. It's not been any sort of a quick fix though.

[Guest guest]

If you have high cholesterol, you could ask for it for that. If not, you might

need to search for info on the internet about the role of bile sequesterants in

protecting the liver, or if you think he would be open minded enough to follow

Dr Shoemakers' advise, take in Mold Warrior. You might be able to get it from

library? Does he understand the value of detoxing the liver. If so, that's a

start. I just asked a doctor who I do alot of business with, alt doctor, if he

would do me the favor of Rxing it for me. He had other ideas but in the end he

wrote the Rx. Alternative doctors usually are knowledgeable about the

importance of detoxing the liver.

>

> This may sound like a stupid question but what doctor prescribed the

cholestyramine? I'm interested but don't know who to approach. My internist will

probably prescribe (he's a delightful pill pusher) but he won't know what I'm

talking about and what dose etc. I've just had a bad mold exposure and and

wondering if this might help me-I'm at that desperate stage.

> I'm in NYC if that helps for a recommendation.

> Thanks, Surella

>

[Guest guest]

MDs or DO (Doctors of Osteopathy), that practice alternative medicine or

Integrative medicine (intergrat traditional and alternative medicine), should

understand. Traditional doctors you probably would need to have high

cholesterol since that is what it is made for and they never think " outside the

box/outsides their box " , which is very small.

>

> This may sound like a stupid question but what doctor prescribed the

cholestyramine? I'm interested but don't know who to approach. My internist will

probably prescribe (he's a delightful pill pusher) but he won't know what I'm

talking about and what dose etc. I've just had a bad mold exposure and and

wondering if this might help me-I'm at that desperate stage.

> I'm in NYC if that helps for a recommendation.

> Thanks, Surella

>

>

[Guest guest]

slayadragon@

so I guess you dont have the smelly sweat problem that several have commented on

because you dont detox ?

weird, after I got out of my exposure I think it was coming out of my pours,my

feet, my scalp,my fingers,tears,poo,urine,anywhere it could.

soaking in a hot bath made me fight not to pass out and I got nauses because

that would really get the detox going.

I was border line CFS 5 years after my exposure, probably would have been

diagnosed with it than if I would have went to this doctor than. could hardly

walk and had problems with falling mainly because of dragging feet. I was doing

so much better by the time I went to him. were you diagnosed with fibromyalgia

too?

>

>

> >

> > I just started taking Cholestyramine for mold exposure and was wondering

approximately how long it takes to work? I realize everyone responds differently

and results may vary.

>

>

> Depends on how sick/toxic you are, I think.

>

> I've been taking it pretty steadily for about a year now, and huge amounts of

toxins are still coming out of my body.

>

> This only happens if I get my exposures REALLY low though. Otherwise the

toxins won't come out at all, no matter what I use. CSM just gives me

constipation then.

>

> This is the part that Mold Warriors doesn't cover. That book suggests that

CFS sufferers' C3a (and presumably C4a) stay up even after csm therapy. Dr. S

acts like it's perplexing why.

>

> With someone like me, with CFS, exposures need to be super low in order to get

the system " damped down " enough to switch complement off (which is part of the

point of " extreme avoidance " ). And a couple of weeks of csm is just a drop in

the bucket, considering the amount of toxins that some of us have in our bodies.

>

> (I believe Dr. S understands that now.)

>

> My reactivity is coming down, and I think that the csm has been a big part of

that. It's not been any sort of a quick fix though.

>

>

>

[Guest guest]

It may take a year to see a measurable improvement with CSM if you have a great

toxin load, also if you are still in a toxic environment, it will not keep up at

all, this has been my personal experience.

> >

> >From: Tug <tug_slug@...>

> >Subject: [] Cholestyramine

> >

> >Date: Sunday, January 10, 2010, 12:54 PM

> >

> > I just started taking Cholestyramine for mold exposure and was

> >wondering approximately how long it takes to work? I realize everyone

> >responds differently and results may vary.

> >

> >Thank you

> >

> >Dave

> >

> >text portions of this message have been removed]

> >

>

[Guest guest]

there was a Dr. ph Tadlebaum (<spelling?) on Dr. Oz the other day talking

about CFS, he said that basicly CFS was not being able to sleep even though your

very very tired. one of the symptoms I suffered during exposure and after with

aquired chemical sensitivity.

amaseing how advoidance made a hudge difference in my ability to sleep

amaseing how this same symptom returns if something gets in my space

like perfume for example.

> > >

> > > I just started taking Cholestyramine for mold exposure and was wondering

approximately how long it takes to work? I realize everyone responds differently

and results may vary.

> >

> >

> > Depends on how sick/toxic you are, I think.

> >

> > I've been taking it pretty steadily for about a year now, and huge amounts

of toxins are still coming out of my body.

> >

> > This only happens if I get my exposures REALLY low though. Otherwise the

toxins won't come out at all, no matter what I use. CSM just gives me

constipation then.

> >

> > This is the part that Mold Warriors doesn't cover. That book suggests that

CFS sufferers' C3a (and presumably C4a) stay up even after csm therapy. Dr. S

acts like it's perplexing why.

> >

> > With someone like me, with CFS, exposures need to be super low in order to

get the system " damped down " enough to switch complement off (which is part of

the point of " extreme avoidance " ). And a couple of weeks of csm is just a drop

in the bucket, considering the amount of toxins that some of us have in our

bodies.

> >

> > (I believe Dr. S understands that now.)

> >

> > My reactivity is coming down, and I think that the csm has been a big part

of that. It's not been any sort of a quick fix though.

> >

> >

> >

>

[Guest guest]

I guess I should consider myself lucky than, I've been taking it for 3 days and

my headaches arent nearly as bad as they were and while the but the brain fog is

still there it's also lessened to a certain degree.

I was exposed the the toxic environment for about 6 weeks but because I work out

of my home I was inhaling mold spores 7 days a week 24 hours a day so Im not

sure if that makes a difference.

What worries me is my townhouse is being fogged for the second time in 3 days

and will have air samples taken within 2 days after that. If the air samples

deemed acceptable I'll be expected to move back in but because I'm so

hypersensitive how will I be able to without getting sick again?

I cant believe the stress this has caused. I can honestly see myself having to

file for bankruptcy because Im quickly running out of money when all I wanted to

do was buy a townhouse.

>

>

> In just one week I noticed my brain fog lifting and headaches were less.

Other things took much longer especially the fatigue and joint pain.

> >>

> I just started taking Cholestyramine for mold exposure and was wondering

> approximately how long it takes to work? I realize everyone responds

> differently and results may vary.

>

> Thank you

>

> Dave

>

>

>

>

>

>

[Guest guest]

I see Dr. Shoemaker. The following is the protocol and you can also tell

your Dr. to go to his website _www.biotoxin.info_ (http://www.biotoxin.info)

for more info. I worked for me and I NEVER missed a dose! I would set my

alarm for about 6AM to take the 1st dose so eating breakfast didn't interfere

then took dose two about 11AM, then the 3rd one about 4 or 4:30 then the

last about 9PM. I used the little plastic sippy cups (for kids) & removed

the straws and would premix it before going to bed that way I could just

shake it well, drink it down followed by another cup of water. Also easy to

travel with. I kept mine in a small insulated lunch bag and never had to

worry about mixing if I was out.

Hope your Dr. will give it a try for you!

S

Re: CSM Protocol

Posted by:

Sun Jan 20, 2008 3:34 pm (PST)

Here is the CSM protocol I received from Dr. Shoemaker in April 2007:

1. On an empty stomach, take one scoop of CSM (9 grams), mix with

water, or juice, 4-6 oz

2. Stir well and swallow. Add more liquid, repeat 1 above until done.

3. Drink an extra 4-6 oz of liquid

4. After 30 minutes, you may eat or take meds (wait at least 2 hours

before taking thyroxine, digitalis, theophylline, coumadin and

others, ask your doctor for information)

5. Take CSM 4 times a day!

6. If you eat first, wait at least 60 minutes before taking your next

CSM

7. Reflux, constipation, bloating and bowel distress are to be

expected

8. Use acid blocking medications as needed

9. Use sorbitol, 70% solutions, 1 TBSP 3-4 times a day to relieve

constipation

This may sound like a stupid question but what doctor prescribed the

cholestyramine? I'm interested but don't know who to approach. My internist

will probably prescribe (he's a delightful pill pusher) but he won't know what

I'm talking about and what dose etc. I've just had a bad mold exposure and

and wondering if this might help me-I'm at that desperate stage.

I'm in NYC if that helps for a recommendation.

Thanks, Surella

[Guest guest]

I'm just going to make a comment to newbees regarding the book " mold warriors " .

Dr. Shoemaker has commented himself that it's in need of updateing, so you may

also want to visit his web sites.

also remain open to other veiws as there is a verity of illness

involved and differentes in organ damage,exposures,ect.

I dont think anyone has all the answers yet, so pay careful attn. to your body,

your reactions,ect. but understand that it's all going to be a little

confuseing, or alot, depending on how bad you were injured

and problems with brain function could be hindering your thought process. I

think we are all in agreement that you have to first get away from that toxic

environment and into or somewhere where you can began to fell better. and theres

a good possability that your own shampoo's,laundry deturgents,soaps,and

household cleaning products,stuff like that can keep you in a reactive state,so

it's good to practice avoidance of purfumes in these products and chemicals.

keep in mind that some have been here for awhile and because all is not known

you well read different views, take it all with a grain of salt and worry about

sorting it all out in your own head later when you fell more up to it.

a good guide that you are reaching a decent level of advoidance might be that

your symptoms start to seperate instead of being just one mass of symptoms close

to what you suffered during exposure.

you may later than start reconizing certain triggers cause certain effects but

you really do have to pay close attn. to your body.

ps, trying to many different things at once could be more taxing on the body so

you really have to be careful.

and dont think any question is dumb, thats how we learn.

>

> This may sound like a stupid question but what doctor prescribed the

cholestyramine? I'm interested but don't know who to approach. My internist will

probably prescribe (he's a delightful pill pusher) but he won't know what I'm

talking about and what dose etc. I've just had a bad mold exposure and and

wondering if this might help me-I'm at that desperate stage.

> I'm in NYC if that helps for a recommendation.

> Thanks, Surella

>

>

[Guest guest]

The constipation can easily be treated with Milk of Magnesia. Try

2 teaspoons EVERY night!

Ok I am just not too sure about this course of treatment anymore. I have

had ulcers and severe constipation and from the looks of it, this drug will

exacerbate both these issues again. I don't know if this is the way to go

for me now. I appreciate that you are so honest and direct about the

issues-thank you!

Surella

[Guest guest]

Unfortunately you will know almost immediately if your house is safe again. You

will either remain feeling good or all your symptoms will come back right after

moving back in. It is cruel and unfair and I wish I had something happier to

say. Just don't ignore the feelings you get-one thing I have learned is that

denial about feeling bad doesn't get me anywhere. I know when I'm reacting and

I've learned to listen to my body. Unfortunately, this has cost me thousands and

thousands of dollars in repair work in my house and it continues till today. I

will forever be hunting down little sprouts of mold in my house I think. Next

challenge: I smell something wrong in my bedroom closet. Walls will be coming

down.

>

> I guess I should consider myself lucky than, I've been taking it for 3 days

and my headaches arent nearly as bad as they were and while the but the brain

fog is still there it's also lessened to a certain degree.

>

> I was

[Guest guest]

Ok I am just not too sure about this course of treatment anymore. I have had

ulcers and severe constipation and from the looks of it, this drug will

exacerbate both these issues again. I don't know if this is the way to go for me

now. I appreciate that you are so honest and direct about the issues-thank you!

Surella

>

>

> I see Dr. Shoemaker. The following is the protocol and you can also tell

> your Dr. to go to his website _www.biotoxin.info_ (http://www.biotoxin.info)

> for more info. I worked for me and I NEVER missed a dose!

[Guest guest]

Milk of Magnesia stops the digestive systems process, and confuses

eventually. You can try Flaxseed in a fruit shake.

Abraham

Try

2 teaspoons EVERY night!

> >

> >

> > I see Dr. Shoemaker. The following is the protocol and you can also tell

> > your Dr. to go to his website _www.biotoxin.info_ (http://www.biotoxin.info)

> > for more info. I worked for me and I NEVER missed a dose!

>

[Guest guest]

Ascorbic acid/vit C powder, or magnesium, goes the trick and you get the benefit

of the supplement at the same time.

>

> Milk of Magnesia stops the digestive systems process, and confuses

eventually. You can try Flaxseed in a fruit shake.

>

> Abraham

>

> Try

> 2 teaspoons EVERY night!

>