Welcome The s Family!

[Guest guest]

Hi everyone! We have a new family joining us today! Here is what they had

said.....

My daughter was diagnosed with MDS last week here in Seattle.  She is 14

years old with PDD-NOS (mild autism) and Dyspraxia (motor planning

difficulties in oral/fine/gross motor skills).

We have worked hard with her and her special needs for the last 13 years

without suspecting DS since her appearance does not reveal it, nor dozens of

medical and developmental specialists had ever mentioned it to us.

The reason we had the chromosome test done last month was that she had

stopped growing for nearly a year and we wanted to know the reason for her

short stature.   The medical professionals were initially concerned about

Mosaic Syndrome.

Now that we have learned that she has MDS, many things make sense.  We have

always drawn a lot of helpful, developmental and " how-to " info from the Down

Syndrome books as well as autism books.  We also have been very blessed with

many friends who have children with DS, and I have built an extensive

network among the autism community as well.

An interesting thing is that we had never heard of " Mosaic DS " until last

week, and as far as we know, we have no one around us whose child has MDS.

We are in the middle of learning about MDS, and  I would appreciate the

opportunity to get connected with the MDS community and learn from their

experience and wisdom.

Thank you so much for reading this, and look forward to hearing from you.

Please feel free to ask me any questions.

-Kai s (Sophie's mom)

Welcome Kai, I'm so glad your here! This is a wonderful supportive group that we

have here. Please feel free to ask any questions that you may have.

Hellard

IMDSA President

brandy@...

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International Mosaic Down Syndrome Association

PH:

Toll Free: 1-888-MDS-LINK

http://www.imdsa.org