Re: Re: Welcome New familiy!

[Guest guest]

Ibby,

had no fear - still doesn't for most things, what made her pause is

when she dove into the deep end of the pool about 2 year ago and my brother

had to dive in (cloths, wallet, cell phone and all) to get her. Now she has

a healthy fear of the deep end of swimming pools - but not much else. I

have drilled into her head about the road and cars but since we live so far

up (about 1/4 mile up) she never goes that far down the driveway - all her

fun stuff: swings, trampoline, flowers, chalk are up here - nothing down

there but the mail and the school bus.

Darlene - Mom to (13) and (11)

>

>

> Hello and Group!

>

> What a great way to start off as a new member here!! I really appreciate

> the invitation to introduce myself. My name Ibby , from Iowa. My do

> have 11 beautiful children, all very precious to me. However, my youngest,

> AJ ( Jude) is most precious to us all, and at times, most

> exasperating to us all. We had a prenatal diagnosis of Ds, so our whole

> family learned to sign and began signing to AJ since his birth. I remember

> explaining to inquisitive folks how signing would promote his language

> development and would be useful if his language should be delayed. But in

> the back of my mind,I never really thought we would be dealing with language

> delays.

>

> AJ currently has no words he is using. As a younger child, he did have

> several words, but those have since vanished. He has had several incidents

> where a new word would appear briefly and then never be heard again. (A

> popout?) AJ does not have the simean crease on either hand. He has never

> been formally tested for MDS, but I do continue to wonder.

>

> AJ also has no sense of danger to self. He is constantly running for the

> street, or if his caretaker happens to look the other way, he will be

> running down the block at full speed. I followed him once to see if he would

> ever reach a point of feeling too far from home, but that point never

> happened.

>

> I am really struggling with feeling as though I am not doing enough for my

> son. He is very frustrated with his lack of speech. He has been lashing out

> at me and his siblings, which is very unusual for him. He is normally

> extremely loving.

>

> I am very anxious to get to know you all and learn from you as well. Best

> wishes,

>

> Ibby

>

>

>

--

“Knowing is not enough, we must apply. Willing is not enough, we must do.”

Johann Wolfgang von Goethe

[Guest guest]

Welcome Ibby and family

Our Jack (9mds) seems to have no fear either, he just ran right off the end of

a

dock at a lake when he was two.  I jumped in clothes and all. At 9 he still

likes to sit in the front of the boat and look over the front edge when the boat

is going at high speeds.  We have to be right on him and he doesn't like

it.  He

is and wants to be very independant, so sometimes he lashes out at us when we

are concerned for his safety and try to help him.  When he was little (2-3) he

also had some words that " vanished " .  We did basic signing.  He has had speech

therapy since he was two.  Currently his langauge is still delayed.  He has a

tough time finding the right words sometimes, which can lead to him getting

really frustrated.  We feel he has a short curcuit.  Somedays it's connected

and

all his language works and other days it's not and he can't find the words. 

Our

Jack is also very loving and affectionate, but I can see how he gets frustrated.

Is AJ in speech therapy?  Jack has speech through the school district.  He

also

works on social skills with small groups.  It has helped him a lot.

Where in Iowa are you?  We live in MN.

Ann

(13), Annika (11) and Jack (9mds)

 

________________________________

To: MosaicDS

Sent: Fri, July 9, 2010 5:03:44 PM

Subject: Re: Welcome New familiy!

 

Hello and Group!

What a great way to start off as a new member here!! I really appreciate the

invitation to introduce myself. My name Ibby , from Iowa. My do have 11

beautiful children, all very precious to me. However, my youngest, AJ (

Jude) is most precious to us all, and at times, most exasperating to us all. We

had a prenatal diagnosis of Ds, so our whole family learned to sign and began

signing to AJ since his birth. I remember explaining to inquisitive folks how

signing would promote his language development and would be useful if his

language should be delayed. But in the back of my mind,I never really thought we

would be dealing with language delays.

AJ currently has no words he is using. As a younger child, he did have several

words, but those have since vanished. He has had several incidents where a new

word would appear briefly and then never be heard again. (A popout?) AJ does not

have the simean crease on either hand. He has never been formally tested for

MDS, but I do continue to wonder.

AJ also has no sense of danger to self. He is constantly running for the street,

or if his caretaker happens to look the other way, he will be running down the

block at full speed. I followed him once to see if he would ever reach a point

of feeling too far from home, but that point never happened.

I am really struggling with feeling as though I am not doing enough for my son.

He is very frustrated with his lack of speech. He has been lashing out at me and

his siblings, which is very unusual for him. He is normally extremely loving.

I am very anxious to get to know you all and learn from you as well. Best

wishes,

Ibby