Re: Sensory issues

[Guest guest]

Hi ...our Jack is 10 with MDS.  He has always had a need to chew on

things.  It has gotten better as he has gotten older.  We use to have chewies

all over the house.  They helped him feel comfortable with his need to chew. 

We

let him know that it was okay.When he would get really excited or anxious he

would chew on his fingers.  It was so bad they would bleed.  He doesn't seem

to

have as much of a need now, but will sometimes chew on water bottle tops or

plastic cups.  We do have a few chewies lying around in case he needs them, but

he has become embarassed to use them.  As far as I know he hasn't needed to

chew

at school.  We never took him to get " help " for it.  He has always been in

speech and his instructors were the ones to suggest the chewies.

What does your Dr say?  Does your Dr. have any suggestions that won't charge

you

an arm and a leg?  A speech therapist would know how to curb the chewing and

would show you were to get chewies.

Jack doesn't have a sensitivity to noise, however, he does not care for loud,

crowded places.  Holidays in a full house with no where to escape can wear on

him, but again,  as he has gotten older he has been coping better.  We use to

take him out to our car and sit for awhile. You do what you need to do for your

child.  Best of luck, I would get something for Kaylee to chew on.  You never

know, helping her cope with the chewing might help her relax more, knowing it's

okay.  She might stop the grinding and pushing because of it.   Keep us

posted:)

Ann, mom of (13), Annika (12) and Jack (10mds) 

________________________________

To: mosaicds

Sent: Mon, September 27, 2010 11:31:57 AM

Subject: Sensory issues

 

Hi to all!

Has anyone had any experience with sensory issues?  Kaylee is 4 years old and

she has issues with teeth grinding, chewing holes in her clothes, grinding of

body parts, pushing her friends and a sensitivity to noise.

I friend suggested that I take her to an institute in our area that specializes

in " sensory motor integration " .  She cares for a young boy who attends and she

says that his progress is remarkable. When I called I was told that they charge

$715.00 to evaluate your child and that each class after the evaluation was

$120.00 per hour. She said that children generally need at least 10 but

sometimes as many as 30 visits. Insurance would not pay for it because the

doctor is an " educational doctor " , not medical.

I really want to help Kaylee but I want to make sure that I am not being taken

advantage of.  In your experience are places like this taking advantage of

desperate parents? If your child has experienced sensory issues what have you

found to benefit them?

Thanks for all of your help,

Sandy

[Guest guest]

Ricky is 7 and he used to grind his teeth until the dentist had to put caps on

them (because he had ground them down to the gums). When he came home from the

dentist, he immediately began sucking his thumb. He chews on his clothing,

squeezes people and things, and is very sensitive to noise (and not very

sensitive to pain).

We purchased a compression shirt (spandex-like) from Under Armour that fits him

snug. We put it on him every couple of days so he doesn't become too accustomed

to the pressure and so far, we are noticing that when he is wearing it, he

seems

to seek out noticeably fewer sensory stimulants. Maybe this could help Kaylee as

well.

________________________________

To: mosaicds

Sent: Mon, September 27, 2010 11:31:57 AM

Subject: Sensory issues

 

Hi to all!

Has anyone had any experience with sensory issues?  Kaylee is 4 years old and

she has issues with teeth grinding, chewing holes in her clothes, grinding of

body parts, pushing her friends and a sensitivity to noise.

I friend suggested that I take her to an institute in our area that specializes

in " sensory motor integration " .  She cares for a young boy who attends and she

says that his progress is remarkable. When I called I was told that they charge

$715.00 to evaluate your child and that each class after the evaluation was

$120.00 per hour. She said that children generally need at least 10 but

sometimes as many as 30 visits. Insurance would not pay for it because the

doctor is an " educational doctor " , not medical.

I really want to help Kaylee but I want to make sure that I am not being taken

advantage of.  In your experience are places like this taking advantage of

desperate parents? If your child has experienced sensory issues what have you

found to benefit them?

Thanks for all of your help,

Sandy

[Guest guest]

Thanks , I have never heard of a compression shirt.  Sounds l like a great

idea.  I'm going to check it out!

Subject: Re: Sensory issues

To: MosaicDS

Date: Tuesday, September 28, 2010, 11:39 AM

 

Ricky is 7 and he used to grind his teeth until the dentist had to put

caps on

them (because he had ground them down to the gums). When he came home from the

dentist, he immediately began sucking his thumb. He chews on his clothing,

squeezes people and things, and is very sensitive to noise (and not very

sensitive to pain).

We purchased a compression shirt (spandex-like) from Under Armour that fits him

snug. We put it on him every couple of days so he doesn't become too accustomed

to the pressure and so far, we are noticing that when he is wearing it, he

seems

to seek out noticeably fewer sensory stimulants. Maybe this could help Kaylee as

well.

________________________________

To: mosaicds

Sent: Mon, September 27, 2010 11:31:57 AM

Subject: Sensory issues

 

Hi to all!

Has anyone had any experience with sensory issues?  Kaylee is 4 years old and

she has issues with teeth grinding, chewing holes in her clothes, grinding of

body parts, pushing her friends and a sensitivity to noise.

I friend suggested that I take her to an institute in our area that specializes

in " sensory motor integration " .  She cares for a young boy who attends and she

says that his progress is remarkable. When I called I was told that they charge

$715.00 to evaluate your child and that each class after the evaluation was

$120.00 per hour. She said that children generally need at least 10 but

sometimes as many as 30 visits. Insurance would not pay for it because the

doctor is an " educational doctor " , not medical.

I really want to help Kaylee but I want to make sure that I am not being taken

advantage of.  In your experience are places like this taking advantage of

desperate parents? If your child has experienced sensory issues what have you

found to benefit them?

Thanks for all of your help,

Sandy