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In message <082401c0786d$75669780$0300a8c0@Helen>, Helen Sempel

writes

Helen,

>I also have a lot of trouble buying shoes and I am extremely fussy about

>what I buy for my feet. Because they are the first thing I put on in the

>morning and the last thing to come off at night.

My glasses are the first thing on and the last off! Can't see otherwise.

VERY short sighted.

>They have to support my

>ankle too. I find if I wander around like I have been in the slip ons like

>I was. My ankles go out from under me at the drop of a hat. Very annoying.

Yes, that is always fun, isn't it. I have trainers that are ankle high

which help....except for the fact that I can no longer tie shoe laces. I

find it hard enough just trying to reach my feet! My feet are very

narrow, but long. Most shoe makers assume that people with long feet

have wide feet too. Then there is the problem of ankle splints. If I am

wearing ankle splints, my normal shoes won't fit over them. Can't win

sometimes.

>I tried orthoses for my feet, but they seemed to cause more trouble than

>they were worth. So I was back to square one. I can't seem to relieve the

>pain in my feet or the subluxing bones, if I want to be able to walk without

>hip, SI and knee pain. Sometimes I groan at my body!

Well, what works for one doesn't always work for another, especially

when EDS is involved. I am severely disabled now, so most of my time is

spent in a powered wheelchair (which I should get back some time this

week if the part arrives).

><Laughing> God really had no idea how stuffed up she did it when she

>spilled that coffee, on this blueprint for a human being!! I tell ya!!

I think that probably applies to all people with EDS. It certainly does

apply to me. With a spine as unstable as mine, it is a miracle I am

upright at all (according to my doctor).

--

Fuller

Winchester, England

HEDS, FMS, OA, IBS, lumbar scoliosis, multiple allergies, asthma....

Please excuse any typos or odd phrases. I am talking to the Dragon.

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