Re: Digests and Mucomist?

December 17, 2004

hi june,

sorry you didn't get to have a sleep in........darn the bronch.

roger was prescribed mucomyst a couple of years ago in the nebuliser.........it didn't do anything for him......except fog up his glasses!!!!!!!!!!! didn't help at all .

so he went back to his regular inhaler.......flovent twice a day, which along with postural drainage and the flutter valve twice a day, works for him.

hang in there.

jennifer in canadajunefraser2002 wrote:

Morning everyone, Saturday morning supposed to be having a lovely sleep in but here I am at the crack of dawn on the old neb! First, Cheryl apologies about the digests, I'm guilty of that too but don't you just read the top reply and delete the rest? Try not ot do it again, just laziness I guess.Next question is about Mucomist or any product which thins the mucuus. I am doing much better on my new asthma drugs and a course of A/B's plus spud water, cider vinegar and saline neb every 4 hours BUT I am still coughing up mucus constantly. It is thinner than it was but my ribs could do with a break.Is anyone doing Mucomist or similar without CF? I know they do give it to non CF patients but when I asked the specialist she was a bit negative and said I didn't need it but I need something. What wakes me up is the feeling I'm drowning in the

stuff, I cough up for a good 20 minutes every morning before I can breathe properly. Then it goes on all day, I am so fed up of it. Any suggestions would be really appreciated.Did any on else get a post (asthma group I think) about Halotherapy using salt crystals, didn't quite understand the mechanics of it but I think you inhale tiny particles of salt which breaks the mucus and kills the bugs? I'm cynical about every so called cure but will always look at anything new with an open mind, especially when no drugs involved.Anyone heard of this?Love to all JunePost your free ad now! Yahoo! Canada Personals

December 18, 2004

Hi June, yes I got same from asthma group.

I also got similar from dept of health, for asthma week.

It is salt, and like all saline products do help , but you must remember

that anything with salt, saline etc, you must keep your fluids up( drink)

and also moisturise skin, because you do get really dry.

I have used Mucomist, and had it with many other things, doctors are often

hesitant, but do keep to as many of your homeopathic remedies as you can,

the saline is yet another thing you can make up for yourself, if your not

sure about amounts per mi; etc, any pharmacist will tell you( after they try

to sell you something off the shelf)

June, I hope you are just a little better, at least then you know there is

light at the end of the tunnel, still stay with the spud water, and even try

the almond drink its great.

Love,

Sandy

>

>Reply-To: bronchiectasis

>To: bronchiectasis

>Subject: Digests and Mucomist?

>Date: Sat, 18 Dec 2004 06:28:18 -0000

>

>Morning everyone, Saturday morning supposed to be having a lovely sleep in

>but here I am at the crack of dawn on the old neb! First, Cheryl apologies

>about the digests, I'm guilty of that too but don't you just read the top

>reply and

>delete the rest? Try not ot do it again, just laziness I guess.

>Next question is about Mucomist or any product which thins the mucuus. I am

>doing much better on my new asthma drugs and a course of A/B's plus spud

>water, cider vinegar and saline neb every 4 hours BUT I am still coughing

>up

>mucus constantly. It is thinner than it was but my ribs could do with a

>break.Is

>anyone doing Mucomist or similar without CF? I know they do give it to non

>CF patients but when I asked the specialist she was a bit negative and said

>I

>didn't need it but I need something. What wakes me up is the feeling I'm

>drowning in the stuff, I cough up for a good 20 minutes every morning

>before I

>can breathe properly. Then it goes on all day, I am so fed up of it. Any

>suggestions would be really appreciated.

>Did any on else get a post (asthma group I think) about Halotherapy using

>salt

>crystals, didn't quite understand the mechanics of it but I think you

>inhale tiny

>particles of salt which breaks the mucus and kills the bugs? I'm cynical

>about

>every so called cure but will always look at anything new with an open

>mind,

>especially when no drugs involved.Anyone heard of this?

>Love to all June

>

December 18, 2004

Hi June! I am not feeling too great myself. But after three days, just came on- line to read my mail. I increased the amount of Mucomyst that my doctor had prescribed to twice the amount, and added a third daily treatment to the twice a day routine. The reason for this is that I have been getting horrible chills at night and running a fever of 102 . I did not want to develop bronchitis or pneumonia. I told the pharmacist what I was doing and he agreed that this would be a help. (This info. is contained in the fine print that comes with the medication.) I got up this morning feeling a lot better and I think that I am out of the woods, so to speak. I really believe that Mucomyst is an amazing product to keep the mucus thinned out. I had five days of laryngitis followed by horrible sinus infection. After using three different meds. for that I finally got relief and blow out gobs of thick yucky green pus. That was three days ago. It has been a tough two weeks, and I too shed a few tears. More out of frustration than anything else because I needed to get out and do my Christmas shopping. It is an awful time of year to be indisposed, isn"t it? I do hope you feel better soon, in Ca.

December 18, 2004

my dear claire and june,

you 2 girls have done the right thing...had a cry.......sometimes that gets rid of the frustration and pent up feelings........gets your nose all stuffy again though!!

sending you both cyber hugs and get well wishes.

sincerely

jennifer in canadaBCSCOFFMAN@... wrote:

Hi June! I am not feeling too great myself. But after three days, just came on- line to read my mail. I increased the amount of Mucomyst that my doctor had prescribed to twice the amount, and added a third daily treatment to the twice a day routine. The reason for this is that I have been getting horrible chills at night and running a fever of 102 . I did not want to develop bronchitis or pneumonia. I told the pharmacist what I was doing and he agreed that this would be a help. (This info. is contained in the fine print that comes with the medication.) I got up this morning feeling a lot better and I think that I am out of the woods, so to speak. I really believe that Mucomyst is an amazing product to keep the mucus thinned out. I had five days of laryngitis

followed by horrible sinus infection. After using three different meds. for that I finally got relief and blow out gobs of thick yucky green pus. That was three days ago. It has been a tough two weeks, and I too shed a few tears. More out of frustration than anything else because I needed to get out and do my Christmas shopping. It is an awful time of year to be indisposed, isn"t it? I do hope you feel better soon, in Ca. Post your free ad now! Yahoo! Canada Personals

December 18, 2004

Is anyone doing Mucomist or similar without CF? I know they

do give it to non

CF patients but when I asked the specialist she was a bit

negative and said I

didn't need it but I need something.

Hi June,

I just want to add that I have tried Mucomist, however

before my doctor would prescribe it he insisted that I trial

it in the Lung Function room under supervision. It can

bring on an asthma attack with some people, so you need to

be careful. I still have some in the cupboard, but stopped

using it. It did help to thin the mucus, but it also made

me feel short of breath. It does have an awful smell, like

rotton eggs, so you need to have an outlet or window open

when using it (lol)!! I use normal saline in the neb which

helps somewhat. I sometimes get an herbal mix made up by a

Naturopath with expectorant herbs. I can certainly relate

to the coughing, I do postural drainage twice a day, and

then some. I actually feel better when I am coughing up

heaps, as that is normal to me (lol)! I find that by doing

regular PD, I don't cough at night.

Take care, and feel better soon.

Love Bunny

December 18, 2004

I've never heard of mucomist. My doc gives me pulmozyme.

December 18, 2004

Bunny Mucomist, to me was a shocker, I had one of the worst asthma attacks

ever.

I often used herbal concoctions I made up, in my nebuliser, and always use

saline with , either or both, atrovent and ventolin.

Seems a lot of us use similar methods, but once again we are all individual,

and what is good isn,t always for another, same as some get great reults and

others barely notice.

Bye for now,