Guest guest Posted May 1, 2005 Report Share Posted May 1, 2005 June, If you have menopausal asthma, can't they give you Premarin or some other estrogen replacer to take care of it. I was on HRTs for five years and loved them. It was only after I stopped taking them that I started having lung problems. I'm eating roasted soybeans (but they rather bother my stomach) and am taking the natural estogen from plants. Sandy might know since she is into natural living. It's just like taking your car to the shop. It works fine when you have it in the shop and the minute you leave the shop, it doesn't want to work. Hope your doctor gets to see you with your asthma rather than when you're super healthy so they can figure out what's wrong with you. When I had my bronchscophy at Mayo Clinic my lungs were completely clear- but the CAT scan still showed damanged lungs and airway restrictions. Rats. I was hoping that it would go away. Wishful thinking. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2005 Report Share Posted May 1, 2005 i don,t think anything will go away completely, but I,m sure you can get control over most, with natural things, however we are all going to have to take prescribed meds( if we can) when things are left to get out of control. I take all fish oils , ie, I take glaucasamine with fish oil, , a B2, fish oil with evening primrose oil, and ginkenko, I couldnt take evening primrose on its own, nor with E, but the group I take now, are even making a difference with my R/A. I am sure of that. as I ran out at the old chaps place, and had to go without for 2 weeks, it was awful, I will never let myself run outr again, and of course I take pear juice. If I run out of it, I have a blend of pear and banana, juice or eat one of each a day, I also have at least one serve of celery , potato, garlic and onion each day, in some form or another. I eat very little red meat, maybe twice a week, but fish, chicken, vegies, legumes , nuts ( few)each day. I also have yoghurt daily when I feel I need something extra, as I,m dairy intolerant, and also allergic to soya. Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2005 Report Share Posted May 2, 2005 Hi Sandy, Unfortunately, for me, I already live healthy. Had I been one of those hard-drinking, hard smoking, hard-living type, getting a bum lung would have been at least understandable. But I'm the opposite- and do many of the things that you already do. I have no known allergies except to tetanus, eat right, exercise everyday, and went to the doctor when I was sick. I had pneumonia several times in the last few years, and that is what the doctors are now saying was the culprit (because it was never completely healed up when I got it). Rats! I recently was given a Polar heart monitor as a gift and now exercise up to my maximum level 20 minutes a day. I figured it I kept my heart rate up, my lungs would do better also. I also now am the proud owner of a thousand dollar elliptical trainer in addition to my weights, gazelle (that I got when I broke my knee) , exercise ball, yoga tapes and all the other exercise stuff in my house. The good news is that I will probably have one of the better lookin bods in the old folks home if I keep working out all the time. Doc told me I looked pretty good for 44 (laughs on him I'm 54!). __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2005 Report Share Posted May 2, 2005 Hi , I’m like you. I used to exercise regular via aerobics, did yoga, and walked up to 6kms per day. (yes, per day!) Always ate healthy foods – still do – and won’t put anything into my body that may be harmful. (junk food, drugs etc) Then we go and get this sort of cr*p. I have mega high cholesterol that I inherited from my darling dad (died six years ago), and arthritis that I inherited from my mum. My son says it won’t matter a hoot what you do, look after yourself or not, and sometimes I wonder if he’s right. But of course I know he’s not. But it does make you wonder… Cheryl ---------------------------------------------------------------- Cheryl , Award Winning Australian Author http://www.cheryl-wright.com http://www.savingemma.com http://www.writer2writer.com Saving Emma - #9 Best Seller February 2005 http://www.whiskeycreekpress.com -----Original Message----- From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of K. Sent: Tuesday, 3 May 2005 8:49 AM To: bronchiectasis Subject: Re: Hi from London Hi Sandy, Unfortunately, for me, I already live healthy. Had I been one of those hard-drinking, hard smoking, hard-living type, getting a bum lung would have been at least understandable. But I'm the opposite- and do many of the things that you already do. I have no known allergies except to tetanus, eat right, exercise everyday, and went to the doctor when I was sick. I had pneumonia several times in the last few years, and that is what the doctors are now saying was the culprit (because it was never completely healed up when I got it). Rats! I recently was given a Polar heart monitor as a gift and now exercise up to my maximum level 20 minutes a day. I figured it I kept my heart rate up, my lungs would do better also. I also now am the proud owner of a thousand dollar elliptical trainer in addition to my weights, gazelle (that I got when I broke my knee) , exercise ball, yoga tapes and all the other exercise stuff in my house. The good news is that I will probably have one of the better lookin bods in the old folks home if I keep working out all the time. Doc told me I looked pretty good for 44 (laughs on him I'm 54!). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2005 Report Share Posted May 2, 2005 Hi karen i have always lived a very healthy life too, danced all night , lived in the bush, then city, but have beenin 3 road accidents, which I don,t think helped too much, had several major ops that went horribly wrong, ( female) and ears, and legs) now spinal tumor, but the rest is all hereditry stuff , so couldn,t really have done any better. I have lived with a lot of stress in my life, stresses that I had no control over, and that again is something that unless you can make changes( which in the end I had to do) sometimes can cause most problems that can last forever. Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 I have lived with a lot of stress in my life, stresses that I had no control over, and that again is something that unless you can make changes ( which in the end I had to do) sometimes can cause most problems that can last forever. Another reason why I had to give up the day job. The specialist said that stress can seriously aggravate Bronchiectasis. I was in a high powered job, working 60 or more hours per week, so it had to go. Anyone with loads of stress should seriously try to reduce it. I found Yoga really good for that. Soaking in a bath or spa, with relaxation oils burning, candles flickering, and a lock on the door (!) is another great way. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Cheryl, My mom has bronchiectasis so I was particularly diligent and STILL got it. Auggh. Other than that ailment, I seem to be doing OK, as they say for my age. It is rather discouraging though when you have plans and have worked so hard to be healthy. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Sandy and group, That is where I am at, too. It is amazing our similarities. I was in a car crash that did neck damage so I struggle with headaches and pain if I don't keep stretching and exercising. I went through an ugly divorce and custody battle and the ensuing poverty and now raising teenagers who are in college so the stress is still there. I have started doing more for myself and am wondering now about taking a new job. I'm balancing potential stress of moving with the increased income and chances for more retirement benefits. Pondering is tough. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 hi chau, welcome to our bronch family. i hope you will learn lots and feel free to ask us any questions, we do like to help each other here. jennifer in canada soft ocean breezes ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Thank you. I had it for 4 years now, it was diagnosed with all kinds of wrong names, from " incurable and fatal disease " (they stuff me w/steroids) to " nothing is wrong " (they told me to go home, take a rest!)until recently when a real good pulmonologist finally put a name to it, based on a catscan. It's good to find a " family " . Chau, from California PS: I have been to Montreal, Quebec, Toronto...Beautiful ! --- " L. " wrote: > hi chau, welcome to our bronch family. > i hope you will learn lots and feel free to ask us > any > questions, we do like to help each other here. > jennifer in canada > > > soft ocean breezes > > ______________________________________________________________________ > > Post your free ad now! http://personals.yahoo.ca > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 , when it’s hereditary, there’s just nothing you can do. Don’t beat yourself up about it. in my case, it is thought I got it from measles. Basically, with Bronch, none of us have done anything to get it. From what I understand, it’s very rare to get it from smoking. (And I don’t think anyone here has got it from that?) I was never a smoker. Thank goodness. Cheryl ---------------------------------------------------------------- Cheryl , Award Winning Australian Author http://www.cheryl-wright.com http://www.savingemma.com http://www.writer2writer.com Saving Emma - #9 Best Seller February 2005 http://www.whiskeycreekpress.com -----Original Message----- From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of K. Sent: Wednesday, 4 May 2005 6:09 AM To: bronchiectasis Subject: RE: Hi from London Cheryl, My mom has bronchiectasis so I was particularly diligent and STILL got it. Auggh. Other than that ailment, I seem to be doing OK, as they say for my age. It is rather discouraging though when you have plans and have worked so hard to be healthy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Hi Chau, welcome to the group. I’m sure you’ll learn heaps and makes lots of new friends. Cheryl ---------------------------------------------------------------- Cheryl , Award Winning Australian Author http://www.cheryl-wright.com http://www.savingemma.com http://www.writer2writer.com Saving Emma - #9 Best Seller February 2005 http://www.whiskeycreekpress.com -----Original Message----- From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of chau trinh Sent: Wednesday, 4 May 2005 6:35 AM To: bronchiectasis Subject: RE: Hi from London · Hi, I am a new member. First name is Chau. I had the same horrible cough than Joy last month, that made me bend over and lots of time throw up, for 14 days, during a trip. As soon as I came back and saw the Dr, he gave me an inhaler ADVAIR 500/50 that did wonder (stopped the cough almost the next day) and a three-days antibiotic (Zinthromax ? not sure of spelling). I take the inhaler with me everywhere far now, although I use it only for persistent coughing. No, we do not qualify for Soc Sec, because we still can walk (!!). Somebody got to pay those taxes. But make sure, if you retire, to collect Social security at the earliest possible age (62 for those born before 1950; need checking), we will not make old bones ): Chau Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Hi Chau and welcome, Hope you don't mind me asking but when you say you take the inhaler everywhere you don't mean the Advair one do you.? Advair is a preventer and it's really important you don't overdose on it as it is a powerful steroid. Been a life saver for me too. Sorry you have the Bronch, it's a beastly thing but with luck you will manage it. Welcome to our group June in London > Hi, > I am a new member. First name is Chau. I had the same > horrible cough than Joy last month, that made me bend > over and lots of time throw up, for 14 days, during a > trip. As soon as I came back and saw the Dr, he gave > me an inhaler ADVAIR 500/50 that did wonder (stopped > the cough almost the next day) and a three-days > antibiotic (Zinthromax ? not sure of spelling). I take > the inhaler with me everywhere far now, although I use > it only for persistent coughing. > > No, we do not qualify for Soc Sec, because we still > can walk (!!). Somebody got to pay those taxes. But > make sure, if you retire, to collect Social security > at the earliest possible age (62 for those born before > 1950; need checking), we will not maups.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 June, I take it w/me on trips but use it only if I cough a lot. My last experience w/coughing 14 days straight last month was very horrible. Thank you for telling me that Advair is a steroid, I didn't know that, Dr didn't say. No wonder why my appetite improves, I ate like an oger when they put me on steroid a few years back. He now gave me the 250/50 to take one puff every day, cough or not. Should I? Doctors know so little about broncho. Thanks again, Chau --- June Fraser wrote: > Hi Chau and welcome, > Hope you don't mind me asking but when you say you > take the inhaler > everywhere you don't mean the Advair one do you.? > Advair is a preventer > and it's really important you don't overdose on it > as it is a powerful > steroid. Been a life saver for me too. Sorry you > have the Bronch, it's > a beastly thing but with luck you will manage it. > Welcome to our group > June in London > > > > Hi, > > I am a new member. First name is Chau. I had the > same > > horrible cough than Joy last month, that made me > bend > > over and lots of time throw up, for 14 days, > during a > > trip. As soon as I came back and saw the Dr, he > gave > > me an inhaler ADVAIR 500/50 that did wonder > (stopped > > the cough almost the next day) and a three-days > > antibiotic (Zinthromax ? not sure of spelling). I > take > > the inhaler with me everywhere far now, although > I use > > it only for persistent coughing. > > > > No, we do not qualify for Soc Sec, because we > still > > can walk (!!). Somebody got to pay those taxes. > But > > make sure, if you retire, to collect Social > security > > at the earliest possible age (62 for those born > before > > 1950; need checking), we will not maups.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Hi Chau, your doctor has not given you very good advice! You should take Advair regularly even if you are not coughing. It is a preventative steroid which must be taken every day, morning and evening,. If you stop and start you do not get the benefit. I take Advair 500 Accuhaler 1 puff am and pm increased to 2 puffs if I am bad. I have followed this regime for 3 months and it has made a big difference to my Bronch. My specialist said I may be on it for years, don't worry too much about steroid factor it goes straight to the lungs so does not have the side effects of tablets. Ask your doctor to give you a Ventolin inhaler which is not steroid and opens the airways when you are having problems. You can take that every 4 hours if needed and that is a rescue inhaler. Yes the steroids do increase your appetite a lot but you will find the coughing keeps you weight down anyway. Anything you need to know just ask away June > June, > I take it w/me on trips but use it only if I cough a > lot. My last experience w/coughing 14 days straight > last month was very horrible. Thank you for telling me > that Advair is a steroid, I didn't know that, Dr > didn't say. No wonder why my appetite improves, I ate > like an oger when they put me on steroid a few years > back. He now gave me the 250/50 to take one puff every > day, cough or not. Should I? > Doctors know so little about broncho. > Thanks again, > > Chau > > --- June Fraser wrote: > > Hi Chau and welcome, > > Hope you don't mind me asking but when you say you > > take the inhaler > > everywhere you don't mean the Advair one do you.? > > Advair is a preventer > > and it's really important you don't overdose on it > > as it is a powerful > > steroid. Been a life saver for me too. Sorry you > > have the Bronch, it's > > a beastly thing but with luck you will manage it. > > Welcome to our group > > June in London > > > > > > > Hi, > > > I am a new member. First name is Chau. I had the > > same > > > horrible cough than Joy last month, that made me > > bend > > > over and lots of time throw up, for 14 days, > > during a > > > trip. As soon as I came back and saw the Dr, he > > gave > > > me an inhaler ADVAIR 500/50 that did wonder > > (stopped > > > the cough almost the next day) and a three-days > > > antibiotic (Zinthromax ? not sure of spelling). I > > take > > > the inhaler with me everywhere far now, although > > I use > > > it only for persistent coughing. > > > > > > No, we do not qualify for Soc Sec, because we > > still > > > can walk (!!). Somebody got to pay those taxes. > > But > > > make sure, if you retire, to collect Social > > security > > > at the earliest possible age (62 for those born > > before > > > 1950; need checking), we will not maups.com > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Hi Chau welcome to this wonderful group. my name is Lee from Australiachau trinh wrote: Thank you. I had it for 4 years now, it was diagnosedwith all kinds of wrong names, from "incurable andfatal disease"(they stuff me w/steroids) to "nothingis wrong" (they told me to go home, take a rest!)untilrecently when a real good pulmonologist finally put aname to it, based on a catscan. It's good to find a"family".Chau, from CaliforniaPS: I have been to Montreal, Quebec,Toronto...Beautiful !--- " L." wrote:> hi chau, welcome to our bronch family.> i hope you will learn lots and feel free to ask us> any> questions, we do like to help each other here.> jennifer in canada> > > soft ocean breezes> >______________________________________________________________________> > Post your free ad now! http://personals.yahoo.ca> Find local movie times and trailers on Yahoo! Movies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Thanks a lot. I am printing your email and will take it with me on my next visit to the Doctor. Working on my " quality of life " now, beside killing the cough ! Chau --- June Fraser wrote: > Hi Chau, your doctor has not given you very good > advice! You should > take Advair regularly even if you are not coughing. > It is a > preventative steroid which must be taken every day, > morning and > evening,. If you stop and start you do not get the > benefit. I take > Advair 500 Accuhaler 1 puff am and pm increased to 2 > puffs if I am bad. > I have followed this regime for 3 months and it has > made a big > difference to my Bronch. My specialist said I may be > on it for years, > don't worry too much about steroid factor it goes > straight to the lungs > so does not have the side effects of tablets. Ask > your doctor to give > you a Ventolin inhaler which is not steroid and > opens the airways when > you are having problems. You can take that every 4 > hours if needed and > that is a rescue inhaler. Yes the steroids do > increase your appetite a > lot but you will find the coughing keeps you weight > down anyway. > Anything you need to know just ask away > June > > > > June, > > I take it w/me on trips but use it only if I > cough a > > lot. My last experience w/coughing 14 days > straight > > last month was very horrible. Thank you for > telling me > > that Advair is a steroid, I didn't know that, Dr > > didn't say. No wonder why my appetite improves, I > ate > > like an oger when they put me on steroid a few > years > > back. He now gave me the 250/50 to take one puff > every > > day, cough or not. Should I? > > Doctors know so little about broncho. > > Thanks again, > > > > Chau > > > > --- June Fraser wrote: > > > Hi Chau and welcome, > > > Hope you don't mind me asking but when you say > you > > > take the inhaler > > > everywhere you don't mean the Advair one do > you.? > > > Advair is a preventer > > > and it's really important you don't overdose on > it > > > as it is a powerful > > > steroid. Been a life saver for me too. Sorry > you > > > have the Bronch, it's > > > a beastly thing but with luck you will manage > it. > > > Welcome to our group > > > June in London > > > > > > > > > > Hi, > > > > I am a new member. First name is Chau. I had > the > > > same > > > > horrible cough than Joy last month, that > made me > > > bend > > > > over and lots of time throw up, for 14 days, > > > during a > > > > trip. As soon as I came back and saw the Dr, > he > > > gave > > > > me an inhaler ADVAIR 500/50 that did wonder > > > (stopped > > > > the cough almost the next day) and a > three-days > > > > antibiotic (Zinthromax ? not sure of > spelling). I > > > take > > > > the inhaler with me everywhere far now, > although > > > I use > > > > it only for persistent coughing. > > > > > > > > No, we do not qualify for Soc Sec, because > we > > > still > > > > can walk (!!). Somebody got to pay those > taxes. > > > But > > > > make sure, if you retire, to collect Social > > > security > > > > at the earliest possible age (62 for those > born > > > before > > > > 1950; need checking), we will not maups.com > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Glad to help Chau, a good thing to break the mucus and cough cycle is the old fashioned steam method. Hot steamy bathroom or a bowl of steaming water with a towel over your head and inhale. With Bronchiectasis the key is clearing your lungs by whatever method suits you. will advise you about physio I'm sure, she and seem to most successful at keeping his lungs clear. Love June > Thanks a lot. I am printing your email and will take > it with me on my next visit to the Doctor. Working on > my " quality of life " now, beside killing the cough ! > > Chau > --- June Fraser wrote: > hoo.com/7visLB/gsnJAA/xGEGAA/VzSolB/TM > --------------------------------------------------------------------~-> > > > Yahoo! Groups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 I know it doesn't amount to much. I have worked twenty-two years and paid in, I think I can draw around five hundred a month when I turn sixty-two. I have never really understood the set up they go by. We live in a small area and of course everybody knows everybody,s business. There are so many that can draw more than I and have never worked in their life. My neighbor was married three times so she just picked the husband that you could get the most from . She luckly stayed with them all ten years. We have some on total that work for cash all the time. Take care love Joy Cheryl wrote: My husband earns too much for me to get it. Only by about $20. if I worked ‘outside of home’ for three days a week, I can get a disability allowance, which would give me a health care card and around $60 f/n to help with travel. That’s it, that’s all that’s available. But, I’m getting a superannuation payout soon, so that will be a big help. At the moment, I’m earning about one third of my previous wage via my writing. Which I think is pretty good considering all my problems. Cheryl ---------------------------------------------------------------- Cheryl , Award Winning Australian Author http://www.cheryl-wright.com http://www.savingemma.com http://www.writer2writer.com Saving Emma - #9 Best Seller February 2005 http://www.whiskeycreekpress.com -----Original Message-----From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of joy larsenSent: Wednesday, 4 May 2005 6:12 AMTo: bronchiectasis Subject: RE: Hi from London Cheryl, did you try to get disabilty Social Security?? I am not sure if they would consider us diabled, but it might be worth a try. I start drawing Social Security next year. I have been so sick the last couple of weeks. I was in the hospital with Pneumonia and came home but not getting better. I still have a up and down temp. I just can't seem to break it up. I don't cough up anything, yet I sure do my share of coughing. I am still on Tobi and another medicine. The Doctor is suppose to call me this afternoon to see where we go from here. Hopefully he can find somthing that will help me feel some better. I might be expecting to jump back to fast but this is my fourth week of it. I can't do much of anything, no energy and I feel so weak . It's not hard to become deperessed. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Welcome Chau I am new to the group also. I never did a lot of research on my disease till the last few years. The more we know the better we can be prepared to understand our Doctors. My disease has gotten much worse in the last couple years,. Not sure why?? Again welcome to the group and hope we both find good information and the best of it all is having someone to relate that understands the disease. Hope you have a wonderful Mother's Day Love Joy chau trinh wrote: Thank you. I had it for 4 years now, it was diagnosedwith all kinds of wrong names, from "incurable andfatal disease"(they stuff me w/steroids) to "nothingis wrong" (they told me to go home, take a rest!)untilrecently when a real good pulmonologist finally put aname to it, based on a catscan. It's good to find a"family".Chau, from CaliforniaPS: I have been to Montreal, Quebec,Toronto...Beautiful !--- " L." wrote:> hi chau, welcome to our bronch family.> i hope you will learn lots and feel free to ask us> any> questions, we do like to help each other here.> jennifer in canada> > > soft ocean breezes> >______________________________________________________________________> > Post your free ad now! http://personals.yahoo.ca> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 Hi Cheryl, I was never a smoker either, but have always been around smokers up until my children started having kiddies themselves, then they gave it up, and now where ver I go, family wise etc, all smoke out doors. no one smokes around the children or me, or any of us who are asthmatic, have bronch etc. But in my early years my hubby smoked a pipe or cigars, Never affected me. But the rest of the extended family were smokers and at work most were smokers. When I go on the Mental health ward , that is the only place I am surrounded by smokers, it is hard to get those with MI to stop smoking, I have even seen non smokers take it up, when having to have a stay in the mental health ward. So I try to keep the visits always out doors. Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 My parents were both very heavy smokers. Dad started at age 12 – country boy. Died from cancer. I’ve tried to get my son to give it up, but he says that smoking causing cancer is just government propaganda. Grrrrrrrrrrrrr! When will they learn. No one is allowed to smoke in my home – haven’t been able to for over twenty years. Anyone smoking outside has to move away from the house – right away from the doors, otherwise we just end up walking through it. no point at all. Big problem when I worked – same as you – they’re in the doorways. Some people just have no brains. Or consideration for others. Cheryl ---------------------------------------------------------------- Cheryl , Award Winning Australian Author http://www.cheryl-wright.com http://www.savingemma.com http://www.writer2writer.com http://www.authorsunlimited.net - check us out! Saving Emma - #9 Best Seller February 2005 http://www.whiskeycreekpress.com -----Original Message----- From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of sandy taylor Sent: Friday, 6 May 2005 11:34 AM To: bronchiectasis Subject: RE: Hi from London Hi Cheryl, I was never a smoker either, but have always been around smokers up until my children started having kiddies themselves, then they gave it up, and now where ver I go, family wise etc, all smoke out doors. no one smokes around the children or me, or any of us who are asthmatic, have bronch etc. But in my early years my hubby smoked a pipe or cigars, Never affected me. But the rest of the extended family were smokers and at work most were smokers. When I go on the Mental health ward , that is the only place I am surrounded by smokers, it is hard to get those with MI to stop smoking, I have even seen non smokers take it up, when having to have a stay in the mental health ward. So I try to keep the visits always out doors. Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 Hello Chau, welcome to the group, I am wondering where you live. How old you are etc. I am 59 yrs, and live in Australia, one of the main reasons I was put on a disability support pension was my acute & chronic asthma, then after 2 years when they did a review, they added the probs caused from medical errors made and the consequences of, with my hysterectomy, then next review added, spinal tumor and R/A. But not bronch. I only get $440 Aussie dolllars a fortnight, , $ 5-60 pf allowance for meds, and small discount on house and land rates, car rego, and phone rental 1/4ly. , this pension we get is actually under the poverty line mind you. But I suppose we should be greatful. Pay taxes all your life, and then when become disabled at an early age, have to basically grovel. Scrimp and scrape all the time, cut out most pleasures etc. No money for holidays, and choices in hospitals, doctors, etc, taking the cheapest version of almost everything, food and all other necessities. I have a carer, companion who helps me with heavy chores and dusting etc, he gets a carers allowance of $45 aussie dollars pf,. I care for others but don,t get a pay, as I am being cared for myself in so many areas. But the persons I care for( old chaps, give me $ 50 a week, ( cash in hand to sleep over 5 nights a week and do the nursing care, meals and meds, and driving them back and forth, this is all I am allowed to earn on the disability pension. When I go and tutor as I do, I get a mobility allowance of $ 30 aussie dollars to help with fuel costs, but cannot get paid for the tutoring. Its a very hard life, and if I didn,t keep as busy as I do, I would not be able to cope, I would cave in to my ill health. And I won,t let that happen. Don,t get me wrong I do sometimes feel sad and sorry for myself, but that generally is caused by all the pain, and when finances look like OH HELL, but I quickly snap out of it, by diverting my thoughts and energy into my family ( with their probs) and my work ( vol) etc. Its wonderful medicine, doing for others that really do appreciate your love and help. Do you have kiddies, ? I have 4 married, all with children, and I step daughter who has a son and new baby girl too .I have 12 grandchildren, latest is 6 months old, just got his 1 st tooth last Sunday, and my third daughter is pregnant with her 4th, a baby girl( been lots of worries), baby will be arriving Tuesday the 17th of May, by C section. This date is the memorandum of my mums death. But at least we will always remember it was a special day, as my mum, really wanted to go on that day peacefully, and she did. She just got mothers day in , here that is the 2nd Sunday in May. I have 3 daughters and 1 son. I have 5 grand daughters and 7 grandsons, this new coming baby will even it up a bit. we all know stress can kill, but no-one really ever is totally stress free, I have never met anyone who has been stress free. Some just have more than others, and some have better strategies and coping skills, don,t you think. Thats why we all keep going. I hope you can share more about yourself etc, once again welcome, Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 Hi Chau, about the Advair, it is Ok to take every 4 hrs only while acute. After that its really only meant to be taken 2-3 times a day, as preventers last up to 8hrs.and after a build up, it really isn,t doing any good, just makes you more unwell really. But whilst not well, I would take it 8 hrly myself. I use a ventolin puffer with me at all times, sometimes need to use it 5-6 times a day, and not ever 1 puff, always 3. I was always told to take 3 puffs-- preventer. and any where between 2 and 4 puffs with ventolin, salbutamol etc. Hope this helps. I have bronch, and asthma, and have had it most my life. as do my grand children and 2 of my kids. Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 June Ventolin can be used quite safely whenever you can,t breathe, not just 4 hrly. When acute, or difficulty breathing you can take it 2 hrly. I was 2 hrly for almost 2 months , when had an acute attack. Sandy Quote Link to comment Share on other sites More sharing options...
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