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Does anyone know if my fibro has anything to do with me getting sick

all the time. I alway's seem to have a cold, or stomach virus and I

get strep a lot. I take vitamin C and a daily vitamin with no sucess

in keeping me healthy. Any suggestions?

Thanks for your help

Misty

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Fibromyalgia is mainly inflammation of the fibrous tissues in your body.

Inflammation is the one thing we all have and is the one thing that brings us

all down.

If you are interested in what can heal the organs, chakras, body systems,

acupuncture meridians and acupuncture elements go to www.Perkl-Light.com and

watch the video................this is one of the best color and frequency

healer I have ever found at a reasonable price considering all the $10,000 to

$20,000 units available. If you want to buy it wholesale all you need is a

resale license. Check it out! Read the newsletter about the woman with

fibromyalgia and numerous other problems (asthma, etc.). Her pain was gone in a

week!

Question about getting sick all the time

Does anyone know if my fibro has anything to do with me getting sick

all the time. I alway's seem to have a cold, or stomach virus and I

get strep a lot. I take vitamin C and a daily vitamin with no sucess

in keeping me healthy. Any suggestions?

Thanks for your help

Misty

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Yes, Misty.

It has everything to do with it.

Fibromyalgia is a congestive problem thoughout the body.

The clear fluids (end product of blood) that is supposed to be

rinsing, feeding and lubricating all our cells, is not moving enough.

This is not some Third World herbal gerbal stuff. This is a fact.

This problem can be treated using a combination method.

www.FibroFix.com is an all free web site.

It tells how to do this. I was the first and have been using it for almost 7

years.

The web site has all the info on how to do this. I am glad to answer questions

any time.

It's not a cure, but it will let you get your life back.

Annie

Question about getting sick all the time

Does anyone know if my fibro has anything to do with me getting sick

all the time. I alway's seem to have a cold, or stomach virus and I

get strep a lot. I take vitamin C and a daily vitamin with no sucess

in keeping me healthy. Any suggestions?

Thanks for your help

Misty

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Hello Misty,

Yes I do have a suggestion, go see your doctor right away. And if

he/she does not help you go to another docotor or the local ER.

mistyprice wrote:

Does anyone know if my fibro has anything to do with me getting sick

all the time. I alway's seem to have a cold, or stomach virus and I

get strep a lot. I take vitamin C and a daily vitamin with no sucess

in keeping me healthy. Any suggestions?

Thanks for your help

Misty

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It seems this group is not good for anything but people pedling snake oil.

Unless you are a doctor you have no place giving advice. I think it might be a

good idea to quit this group. I will read a few more first.

dbaker@... wrote:

Fibromyalgia is mainly inflammation of the fibrous tissues in your body.

Inflammation is the one thing we all have and is the one thing that brings us

all down.

If you are interested in what can heal the organs, chakras, body systems,

acupuncture meridians and acupuncture elements go to www.Perkl-Light.com and

watch the video................this is one of the best color and frequency

healer I have ever found at a reasonable price considering all the $10,000 to

$20,000 units available. If you want to buy it wholesale all you need is a

resale license. Check it out! Read the newsletter about the woman with

fibromyalgia and numerous other problems (asthma, etc.). Her pain was gone in a

week!

Question about getting sick all the time

Does anyone know if my fibro has anything to do with me getting sick

all the time. I alway's seem to have a cold, or stomach virus and I

get strep a lot. I take vitamin C and a daily vitamin with no sucess

in keeping me healthy. Any suggestions?

Thanks for your help

Misty

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You have me seing red. How dare you give medical advice? Are you a doctor?

Misty could have something wrong with her besides Fibromyalgia. Are you

willing to risk her life on it? I am not. Let her see her doctor first and

then try your snake oil.

Maybe I am needed her before someone dies.

Anne Hillebrand wrote:

Yes, Misty.

It has everything to do with it.

Fibromyalgia is a congestive problem thoughout the body.

The clear fluids (end product of blood) that is supposed to be

rinsing, feeding and lubricating all our cells, is not moving enough.

This is not some Third World herbal gerbal stuff. This is a fact.

This problem can be treated using a combination method.

www.FibroFix.com is an all free web site.

It tells how to do this. I was the first and have been using it for almost 7

years.

The web site has all the info on how to do this. I am glad to answer questions

any time.

It's not a cure, but it will let you get your life back.

Annie

Question about getting sick all the time

Does anyone know if my fibro has anything to do with me getting sick

all the time. I alway's seem to have a cold, or stomach virus and I

get strep a lot. I take vitamin C and a daily vitamin with no sucess

in keeping me healthy. Any suggestions?

Thanks for your help

Misty

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You are still not a doctor and should not be assuming anything.

Anne Hillebrand wrote:

Misty asked a very specific question. And she asked for suggestions.

I was the same way she describes before we figured out what was wrong.

We figured out what was causing it. I share the information for free.

Sounds like it's been going on a while and she has not found help.

She knows one of the problems is strep, that requires a culture,

so she has seen a doctor or nurse, more than once.

And yes, you are needed here . We all are.

Anne

Question about getting sick all the time

Does anyone know if my fibro has anything to do with me getting sick

all the time. I alway's seem to have a cold, or stomach virus and I

get strep a lot. I take vitamin C and a daily vitamin with no sucess

in keeping me healthy. Any suggestions?

Thanks for your help

Misty

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I went to the site and it is a joke. Even the medical asst. dog is a joke. It

is a Jack Russel and they have a big long dragged out story about this pooch,

even a picture of the dog in action..NOT. It turns out the action pictures of

the dog is a joke. Actually you might get a laugh out of it, they even have

further adventures. It is the only part woth looking at. The site itself is a

joke. I clicked on support? and it was not good.

healthshelley@... wrote: In

a message dated 7/26/07 8:40:47 PM Eastern Daylight Time,

annehillebrand@... writes:

> This problem can be treated using a combination method.

>

> www.FibroFix.com is an all free web site.

>

In a nutshell..what's the FIX?

**************************************

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sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour

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Why don't you consult a doctor or maybe a first aid book.

healthshelley@... wrote: In

a message dated 7/26/07 8:00:37 PM Eastern Daylight Time,

dbaker@... writes:

> Inflammation is the one thing we all have and is the one thing that brings

> us all down.

>

>

How can we bring inflammation down?

**************************************

Get

a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour

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>

> Anne

>

> Someone and not either of us ;) should step away from the key board.

I don't know this persons issue but the negativity is really hurtful.

I am sorry but I am going to speak UP! on this once again! you see, so

much is at stake for a fibro sufferer some of us get HIGHLY indignant

when someone proposes that they and ONLY they have some inside track on

a Cure or The Answer, becoming The Expert.

This ain't negativity to point out what we are saying . This is CONcern.

>

> I joined the My Space site so at least it has some good outcome. I

need to do more reading on your site which I value. I have severe

concentration issues. Once I tested my ph level and found I wasn't

accidic I kind of lost direction. I think you recommended that I check

my thyroid. My Dr. this spring told me that looked fine but I wonder

and should research what is the normal range what is mine etc. I know

my Mother has thyroid issue.

Yes, research says many of us have " thyroid issues " . but it is not a

CAUSE of fibro. I've checked that out thoroughly in my many years of

dealing with this as I have Hashimoto's thyroiditis and suffered

thyrotoxicosis which was THE PITS. Western medicine is not good on

understanding glands at ALL, that is for sure. But thyroi's get wanky

and disturb our immune system; thyroid malfunction, like fibromyalgia,

thus far is at epidemic levels among women. The standard for concern

about a wanky thyroid was adjusted by the medical community during the

past two years, indicating far more concern should be shown to those

with genetic predispositions. The thyroid acts as a sort of third ovary

... that's why trauma has caused so many of us to have our thyroids go

toxic, we're the products of a society that does NOT support women. It

may take generations to set this right .. it may not, too, as more of us

start EMPOWERING ourselves.

One big problem is that researchers of endocrinology are often paid vast

sums of money to research diabetes and NOT thyroid disorders. Also, I

have noticed that lots of endocrine system sufferers are never advised

to STOP DRINKING!! All these lobby groups do not want the sale of Big

Pharma and liquid drug products (alcohol) stopped. So they aren't.

Instead, medical associations (AMA, FDA, etc.) just continue to let us

get sick in ever greater numbers. We are going to have to go out and

write letters to our health ministers and other political people and

write the MEDIA constantly to get any change in this. We need public

funding to get the research, real research, done .... Once interesting

sidelight to all this is that as endocinology is NOT a surgical

speciality per se, it doesn't keep women doctors out of its ranks as

more other areas of allopathic medicine is prone to do and this is Good

News. Now we must get the researchers funded!

That said, I have rarely seen a post on this whereby a woman doesn't

point out that HER MOTHER was a sufferer. It is seen as genetic; I

think this is a nonsense - it points to systemic abuse of women over

many generations. In my family the men alway suffer from pituitary

disorder (giantitis)- thus my BROTHER were targettted early for

disorders; I was not and my entire endocrine system shut DOWN as a

result. My body looks like one big SAG as no one did anything during my

adolescence/puberty when they SHOULD have been looking for potential

disorder(s) as I was highly at risk. I never developed a proper

waistline, my breast became fibrous in my teens and SAG -- it is a

syndrome someone should have noticed -- and NO DOCTOR did anything until

my 30s when I got the thyrotoxocosis. I got treatment at Mt. Sinai in

NYC, which was a world leader at looking at thyroids and treating the

disorders. They pointed out the very poor medical care I had received

at the hands of male doctors. My family RAGED from pituitary disorders

becoming mean and abusive as their pituatary glands went to toxic levels

and it should have been apparent to any doctor. I have to have

expensive blood tests for my antigen levels every 3 months to assure my

dosage of thyroxine is correct and the amount perscribed has

consistently gone up over two decades as I age .. At one point, I was

overprescribed due to contracting viruses, the tests given didn't take

that into account, was withdrawn way too quickly and now have a wrinkled

pericardium as a result, and suffer frequent anxiety attacks as my heart

sputters. It is CRUCIAL that if you suspect you have thyroid problems to

find PROPER medical people to help you deal with it. When you find

them, stick with them. This is not medical advice; this is my

experience. So please read it this way. As the research on this is long

coming, I think we have to build off each other's individual

experiences.

>

> By the way I love your dog page. Did you see the cat who is in a

nursing home in the news of late. She can tell when a person is going

to pass and lays by them hours preceeding their death. Animals are a

wonderful gift.

Yes, they are. And did you read the actual article ...? They want

RESEARCH done on that cat because they do not know IF the cat is simply

imitating the nurses on that floor of the hospital or what it is doing

....

And yes, research shows that IF we have a pet we are LIKELY to get

better (rabbits expecially) but this is not for everyone as taking care

of them can be a right burden. I know. I had a high maintenance dog

and mini lops for years and miss them so much. So now I have to talk to

squirrels, birds and trees directly . .. as they are my new healing

allies. They cost less (my disability doesn't allow their upkeep, the

government has seen to THAT) and these outdoor " pets " require no

maintenance. And they do talk back! when I need them to as I take my

daily walk about my neighborhood, which I do very slowly ... LOL. They

find me so very interesting as I stop to talk to them.

All our cases, every single one, is DIFFERENT. But there are certain

thangs we all have in common ....

Virginia

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Nightshades cause inflammation in me and I quit them 18 years ago. I would

suppose that everybody is different but there seem to be things everyone

with inflammation are either allergic to or sensitive to.

Jane

***************************************

dbakervolcano (DOT) <mailto:dbaker%40volcano.net> net writes:

> Inflammation is the one thing we all have and is the one thing that brings

> us all down.

>

>

How can we bring inflammation down?

**************************************

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I agree with about the websites peddling snake oil. Even if it is run

by someone

for whom the " cure " has worked, with Fibro, there is no magic cure for everyone,

or even

for 50% of us.

I will tell you what worked for me. I won't promise it will work for anyone

else, but it would

probably help and is pretty much common sense.

* 1. The most important element in my improvement has been exercise. I started

out

small, just 15 minute walks around my neighborhood. Now I am up to 1 hour and 20

minute hikes 3-4 times a week. I can't tell you how much this improves my

depression, my

energy levels, and my pain. Walking in the forest or on the coast works best for

me.

Pavement causes stress on the joints.

* 2. Cut out ALL Soda and processed sugars. If you really want to get better,

quit the high

fructose corn syrup. Yes, it is heck, especially if you were bottle fed the

stuff from birth

through college, like I was. But I found I can not eat sugar and feel good at

the same time.

Plus it has caused diabetes in every member of my immediate family. The only

reason I am

not diabetic is because I quit sugar about five years ago.

*3. Eat a common sense healthy diet of lean white meats (I try to stick to fish

and turkey

but I NEVER EVER eat red meat), vegetables, fruit, and whole grains.

Any doctor worth his license will tell you these are good suggestions. Since

implementing

the exercise program, I've gotten off all my prescriptions. I take certain

vitamins and herbs

to help, but since those are highly individualized things, I'm not going into

them.

In short, the best recommendation I can offer is to live a healthy lifestyle. It

helped me.

When I wasn't exercising, I was on a total of 11 medications at the age of 23

and I was still

miserable. Now I'm on none, except for the vitamins and an occassional Aleve. It

just takes

a while before seeing results, but they will come.

I hope this helps. Good luck. Fibro is a miserable disease and I understand the

willingness

to try just about anything.

Peace,

Karis

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Hello Jane,

I am very interested in what you have to say. Did quiting nightshades help

relieve your pain? Besides tomatoes what else are nightshades? I would

really like to know.

Mike & Jane Gagner wrote:

Nightshades cause inflammation in me and I quit them 18 years ago. I would

suppose that everybody is different but there seem to be things everyone

with inflammation are either allergic to or sensitive to.

Jane

***************************************

dbakervolcano (DOT) <mailto:dbaker%40volcano.net> net writes:

> Inflammation is the one thing we all have and is the one thing that brings

> us all down.

>

>

How can we bring inflammation down?

**************************************

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Hello,

I just wrote my post to you and I can't believe I said that. That was an

entirely rude thing to say for a question that was just showing interest. I

believe you are right, I do have an attitude problem. I am very sorry. I

don't know why I said that.

As for your question, I don't know what works. Maybe that is why I joined

this group. I need to have more of an open mind and a better attitude.

Kent and a wrote:

THOUGHT we could share and help one another. sheesh, you have more

problems than fibro, and it is in you attitude.

a J. I

I hope Heaven smells like orange blossoms

http://stores.ebay.com/as-Hodge-Podge

Re: Question about getting sick all the time

> None of your damn business, I am not the one claiming to have a cure.

>

>

>

> Kent and a wrote:

> So, what has helped you, or worked for you?

>

> a J.

> I hope Heaven smells like orange blossoms

> http://stores.ebay.com/as-Hodge-Podge

---------------------------------

Be a better Globetrotter. Get better travel answers from someone who knows.

Yahoo! Answers - Check it out.

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Fibro can get to you, kiddo.

You ain't the first one.

One of the worst cussins I ever got was from a lady who thought we were trying

to sell her something.

That was maybe 4 years ago.

Her career had been destroyed by Fibro, after years in school and the expense of

going into business.

Married, with a young daughter. I would be angry, too. But boy, she took it out

on me.

She eventually found that we weren't asking for anything. Just had found a way

to beat the unbeatable beast.

On treatment she was quickly able to function again for the first time in a long

time, and now (this past year) has gone back into practice.

She is a dentist in Illinois. And sends us terrific jokes and u-tube funnies.

Some are from her family overseas and are really weird.

We cherish a photo of her and her husband and daughter on vacation at the beach

when she first got better. All grinning from ear to ear for our benefit.

The one she sent of her at her new practice is special, too.

That's what keeps us going.

Anne at FibroFix

Re: Question about getting sick all the time

> None of your damn business, I am not the one claiming to have a cure.

>

>

>

> Kent and a wrote:

> So, what has helped you, or worked for you?

>

> a J.

> I hope Heaven smells like orange blossoms

> http://stores.ebay.com/as-Hodge-Podge

---------------------------------

Be a better Globetrotter. Get better travel answers from someone who knows.

Yahoo! Answers - Check it out.

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I can't remember who mentioned Vitamin D which is essential to have a test for.

I found out I was VERY low in that.. No wonder I was in such pain and was losing

my hair in clumps. It was very very thin like cobwebs too and would fall out

and also be found in my hair brush in batches every time I brushed my hair.. My

specialist made me have a blood test and that was the major thing that stood out

so he ordered vials of Vitamin D in liquid form that I have to get from a

pharmacy in the city here. I take one vial every two months sublingually. I

think my hair loss is slowing down but I can't wait to take the next lot.. ( I

got two doses and after that I have to go back down for another appointment to

the specialist) Oh and he also has FMS!! So he knows what it's like. He's

great. I am much more hopeful now. It may not be an actual cure but it will

make my life better by far. So see if you can all get more Vitamin D or stay

out in the sun for short times every day.. We're not getting much sun here in

Australia being winter time now. And that's the problem with me.. I hardly ever

used to go outside much so was VERY low in Vitamin D.

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That person was me, Jane. How much are you taking? I think it's very

interesting that that's a problem with Fibro people. That is to say, I

would love to find out from others if it's true for them as well. Since I'm

working on going into remission using the protocol from the site I

mentioned, this makes it even more exciting that I may just get wellish one

day.

How many IU's are you taking a day. I'm currently up to 2400.

Hugs,

Jane

***********************************

Subject: Re: Question about getting sick all the time

I can't remember who mentioned Vitamin D which is essential to have a test

for. I found out I was VERY low in that.. No wonder I was in such pain and

was losing my hair in clumps. It was very very thin like cobwebs too and

would fall out and also be found in my hair brush in batches every time I

brushed my hair.. My specialist made me have a blood test and that was the

major thing that stood out so he ordered vials of Vitamin D in liquid form

that I have to get from a pharmacy in the city here. I take one vial every

two months sublingually. I think my hair loss is slowing down but I can't

wait to take the next lot.. ( I got two doses and after that I have to go

back down for another appointment to the specialist) Oh and he also has

FMS!! So he knows what it's like. He's great. I am much more hopeful now. It

may not be an actual cure but it will make my life better by far. So see if

you can all get more Vitamin D or stay out in the sun for short times every

day.. We're not getting much sun here in Australia being winter time now.

And that's the problem with me.. I hardly ever used to go outside much so

was VERY low in Vitamin D.

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Hi Jane, I don't know how much is in each vial. I was only prescribed two and I

can't take the other one till another month. Wish I could have more but you

have to be careful with it apparently as too much is NOT good I read that

somewhere. However at the moment I think I need much more than I was given.

Just looked at the prescription on the package and it's 50,000 per vial which is

two months worth. Can't figure out how much daily till I find a pen. You're

probably getting around the same. No I just worked it out and you're getting

quite a bit more than that. about 72,000 a month. roughly. Could be wrong as I

was never good with math. So I'm getting 100,000 for two months. Maybe he'll

up the dose if this much isn't working. I hope so. Or I should wait till summer

and sit outside a lot LOL.

Jen

That person was me, Jane. How much are you taking? I think it's very

interesting that that's a problem with Fibro people. That is to say, I

would love to find out from others if it's true for them as well. Since I'm

working on going into remission using the protocol from the site I

mentioned, this makes it even more exciting that I may just get wellish one

day.

How many IU's are you taking a day. I'm currently up to 2400.

Hugs,

Jane

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Hi Jane I just looked up the dosage on my vial which has to be kept

refrigerated. It says 100,000 iu which is less than what you're getting with

your daily dosage.. Lucky girl! However I'm sure if this doesn't do the trick

for me, my specialist will see that and up the dose. Thanks for letting me know

and find out about that.

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Yes and the Doctors as they call themselves don't help with anything like that.

All they know to do is prescribe useless drugs.. why don't they know about the

Sunlight and it's properties? It's free too. I wish I'd known years ago as I

avoided sunlight like the plague for years after the Dr's dire predictions of

it's harm to us. They love manufacturing new patients for themselves don't

they?

jenny

Totally not up to speed on this email exchange. Interest beyond belief because

I kid you not moved from Nebraska to FL at 41 for the sun and yes Vit D. The

sun gives me strength.

KIM

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Hello Jennny,

I have been having pain in my legs and fore arms that is quite severe, any

ideas?

jenny wrote:

I can't remember who mentioned Vitamin D which is essential to have a test

for. I found out I was VERY low in that.. No wonder I was in such pain and was

losing my hair in clumps. It was very very thin like cobwebs too and would fall

out and also be found in my hair brush in batches every time I brushed my

hair.. My specialist made me have a blood test and that was the major thing

that stood out so he ordered vials of Vitamin D in liquid form that I have to

get from a pharmacy in the city here. I take one vial every two months

sublingually. I think my hair loss is slowing down but I can't wait to take the

next lot.. ( I got two doses and after that I have to go back down for another

appointment to the specialist) Oh and he also has FMS!! So he knows what it's

like. He's great. I am much more hopeful now. It may not be an actual cure but

it will make my life better by far. So

see if you can all get more Vitamin D or stay out in the sun for short times

every day.. We're not getting much sun here in Australia being winter time

now. And that's the problem with me.. I hardly ever used to go outside much so

was VERY low in Vitamin D.

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At least you're getting a good, substantial amount. I've worked my way up

to just over 2,000IU's and will get to 3,000IU's and stay there until my

next blood test. It's good that you're doing this with your doctor. Too

much is bad as it is with everything.too little isn't good and too much

isn't good. Since I'm a vegetarian they checked my B12 but it was fine.

Next, get some flaxseed oil (it comes in get tab form). It helps a lot with

Fibro Fog I've found. I'm also making sure I get A and E.

I should put the amounts in the File section. I'll go do that right now.

Hugs,

Jane

***************************************

Subject: Re: Question about getting sick all the time

Hi Jane, I don't know how much is in each vial. I was only prescribed two

and I can't take the other one till another month. Wish I could have more

but you have to be careful with it apparently as too much is NOT good I read

that somewhere. However at the moment I think I need much more than I was

given. Just looked at the prescription on the package and it's 50,000 per

vial which is two months worth. Can't figure out how much daily till I find

a pen. You're probably getting around the same. No I just worked it out and

you're getting quite a bit more than that. about 72,000 a month. roughly.

Could be wrong as I was never good with math. So I'm getting 100,000 for two

months. Maybe he'll up the dose if this much isn't working. I hope so. Or I

should wait till summer and sit outside a lot LOL.

Jen

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I hate to sound stupid but what is a good amount of sunshine? I have a porch

and a porch swing I can sit on with a good book. I should be doing that

instead of sitting in front of the TV, a true potato couch.

Mike & Jane Gagner wrote:

A good amount of sunshine will give you about 1,000IU’s. Your body stops

absorbing any more (I can’t remember why).

Jane

---------------------------------

Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news,

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Don't put on sunscreen whatever you do. I can't remember the name of it but

there's a substance in sunscreen I was reading about just tonight is a toxic

thing that we shouldn't be plastering on our skins, it goes through the skin

straight into the blood system. Sunlight is the best thing to sit in. Just as

long as you don't stay too long at once. Here in Australia in summer the sun is

very strong and hot too.. So best thing is sit in the sun for about ten minutes

at a time...say every 2 hours maybe. You'll get plenty of Vitamin D that way.

I'm doing that on sunny days here.. a bit rare at the moment.

cheers,

Tell me about the sunlight please. How much do you stay out? Do you wear

sunscreen. Here in Arizona we are concerned about such things. I would like

to know alll about it.

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