Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Hi all, Well, I went to the doctor on Monday...my regular GP since the pain management doctor " dismissed " me since I couldn't take the Elavil...geez....anyway....he is trying me on Topamax 50 mg to start and also Quinine (thanks for the tip). I have been on it since Monday night (he said to take at bedtime) but I have a bit of a problem with side effects. During the day I almost feel " carbonated " . I tingle all over, my legs feel quite weak and I am very sleepy. Is anyone else on the topamax and did the side effects go away after a bit? I am ready to just throw in the towel and go off all meds. I don't like the side effects. I think they make you feel worse than the problems you take them for! Alright, enough ranting for this morning. Just wanted to fill you all in and see if anyone else was on the topamax and what your experiences with the drug was. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Donna, Did you have any side effects on the topamax, other than the weight loss? JoAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Well, I called the doc this morning and am waiting to hear back from him. I feel sooooo sick. I am tingly all over (I described it as feeling like a giant glass of soda), shaky, weak muscles, sick to my stomache, and so tired that I could curl up and go back to sleep after sleeping for 10 hours last night. But, I have to say I HAVE NO PAIN. But what is worse???? Oy vey! JoAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 What med. is this??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Fortunately my doc gave me samples to start with so I dont know the cost yet. JoAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Hi Lorrie, I talked to my doctor today and he cut my dosage in half and said to give it another week. I hope that the side effects go away because I have been waking up PAIN FREE. What a wonderful feeling. JoAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Topamax....but I am having some really bad side effects. I tingle all day long...real irritating. I am a *itch on wheels...can snap for no reason...not good....my poor husband....and I am very very tired. But, yes there is a but, I sleep very well and I have NO PAIN. The doctor also gave me quinine. The quinine is for muscle spasms especially at night and that has been helping also. Ask you doc. Everyone has different levels of tolerence to medications. You may not have any side effects at all. Good luck. JoAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Lorrie, You need to find a new Dr. I ran into the same road block. My regular GP sent me to a rheumatologist for a diagnosis. She was able to diagnose but not treat so she then referred me to a pain management doctor. I went to the same one that my husband has been going to for years for an accident that he had (fractured skull and badly bruised brain among other things). He concurred that it was FM and instantly wanted to put me on an anti depressant. Well, I had a very bad experience with anti depressants about 2 years ago after the birth of our son. I was having suicidal thoughs and instantly weaned myself off and made an oath that I would NEVER go back on them. Well, I explained the whole situation to him and he insisted that I HAD to be depressed--which I'm not. Plus the Elavil would help me sleep and if I sleep my pain would miraculously go away. yep, sure. So, I humored him and went on the Elavil. It helped me sleep alright, so well that I couldn't wake up in the morning. Now, mind you, we have a 2 year old son that I have to get up with in the morning. So, I told him this and he promptly told me that there was nothing more that he could or would do for me. That is when I called my GP and asked if I could come back and discuss this with him and he told me that he would do whatever he could for me (beside prescribe narcotics...he won't do that....only if I am in dire need and he knows that I only ask when I am absolutely dying) I am very lucky that I have such an understanding doctor that will sit and listen to me and take me seriously. I know from experience that all doctors aren't like that. Oh, another thing that the pain management doctor told me..he told me that he really doesn't do pain management anymore....hmmmm, that's funny because what does he do for my husband???? PAIN MANAGEMENT????? Okay, enough ranting for one night...lmao. But, don't give up hope. I am sure that there is a doctor out there that will sit and listen and take you seriously. Just keep looking. Good luck and please keep me posted. My email address is joannvasile@... if you would like to keep in touch outside the group. JoAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 Butch, Lol I'm not itching from the meds.....put a B in front of it....I was trying to be delicate on here....lol. I have to say, the side effects are diminishing and am feeling alot better....not to mention the 7 pound weight loss since Monday! (Lord knows I needed that) I am going to stick it out a bit longer and try to go with the increase in about a week and see what happens. I am praying that this works because as I said in a previous email, I have no pain, which, as you know, for us is a wonderful thing! I will kepp you posted. Hugs., JoAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 --- Donna wrote: > Hi, > I used to take Topamax for about 3 years. I took it every night before > bed and it helped me sleep and I also lost some weight on it. I took it with > 1 Xanax each night. " I have since gotten well and no longer take any medications at all. I have done this once before but got sick again when I resumed my bad eating. So now finally I am eating healthy and all signs of this horrible illness are gone. I plan on staying on this good eating path for life now,... Donna, I went thru some fairly bad fibro, but pretty much licked it by changing to non toxic products in the house, and for my personal care, as well as some great vitamins - but have friends that this did not work for (as well as some who did improve like I did). Now I'm curious (for my friends who did not improve), what is the dietary change that helped so much? Was it diet alone or diet AND meds? What bad eating habits triggered it again? New to the forum and looking forward to learning more! Thanks in advance, Sharon Could home environment contribute to health problems? www.lifechangingteam.com/page2.html curious if anyone thinks so Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 I'm sorry Butch but I really had to laugh at you in regards to the " itch " !!?????!! sssluvscats (Shirley) > > > Date: 2006/01/20 Fri PM 12:36:59 EST > To: fibromyalgiacured > Subject: Re: on new meds > > Quote Link to comment Share on other sites More sharing options...
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