Re: re: buy a book - digest 1274

[Guest guest]

Hi all,

My sleep dr gave me a antibiotic to see if it helps, it is called

doxycycline(generic) or vibramycin (brand name) I have to take 2 100MG pills a

day for

200MG a day. I have fybro, cronic fatigue, hypothryroidism, high blood

pressure, I take synthroid and norvasc for those. I also heard someone say a lot

of

people have hypothryroid with fibro, I just found out I had cronic fatigue and

the start of sleep apnea, through my sleep tests. I don't mind anyone saying

what works for them.

take care,

Jody

[Guest guest]

Hi,

I haven't contributed to the list in quite some time but I do want to add

something now. About 2 years ago I went to see Dr. Lowe. She was located in

Tulas, OK and I live in CA so it was quite an expensive trip but so worth it.

She suggested I needed Thyroid meds even though my regular Dr. said I had no

thyroid problem.

As soon as I located a Fibro Dr. here that would allow me to try the

thyroid meds Dr. Lowe suggested, I found a marked improvment in my fibro and I

also followed Dr. Lowes other advice which was to eliminate all things made with

flour or gluten, sugar, drink lots of water and I take a vitamin powder (All

Insurance Vitamin Powder by Bronson Labs) that she suggests but has no

affiliation to so she is not selling it but simply suggests that she has found

it

works best for fibro patients. I freeze fresh fruit and make smoothies with it

in the morning and add the vitamin powder along with a scoop of soy protien

powder to it. When I run out of the vitamin powder, I immediately notice a huge

difference in my energy level. My chronic fatique comes back with a vengence

and its like my Fibro just hits me full on.

When I start to think I can get away with eating things made with flour,

(bread, cakes, pasta, etc.) within a day or so, all my hip pain and bones

start to ache badly again and then I have to face it that these foods just do

not

work well with me.

I have been a vegetarian since birth so its much harder for me to give

them up than most people because its all I've eaten all my life. No one thing

works the same for every person with Fibro but I have found that drinking a lot

of water, taking a good quality vitamin supplement everyday without fail,

changing your diet to fresh foods as much as possible and exercising with

weights

will improve you.

It's true that you can spend a small fortune on everything under the sun

trying to find that one miralce " cure " but I think the " cure " is simply doing

what isn't so simple to do. Eating right, exercising, drinking water and

taking vitamins. If you do this everyday, you may not be cured, but you will

feel

like it until you stop doing it. I was on the brink of suicide...the worst

case ever of Fibro but have all but cured myself with a lot of very hard work.

Once I find myself on the other side of this, I would nver turn back. I

have found my life again and so can you. It takes a lot of effort but you are

so worth it. Remember, it's just one step at a time. One day at a time. In

a few months you will look back and say " I am feeling better " and then a few

more months you will say " hmmm...I wonder if I still have Fibro " then you

will slip back into your old habits and your body will answer that question for

you. So you get back on that horse and start again.

Life is worth it. Fight for your health, for any of you that are very

heavy and cannot exercise, I say lift one arm...lift a leg...point your

toes...just do something every single day. Move forward and visualize getting

better

and try, try, try.

If I can do it, anyone can. I am the worlds laziest person. I lost 90

pounds. I decided to just get well.

Okay I'm done.

Donna

hey jody:

you should investigate the thyroid angle. Look up drlowe.com and

wilsonthyroidsyndrome.com. they talk about people who take synthroid

and how they may need T3 also. You need a doc who is willing to

examine this aspect of your health. hope it helps. it did help me.

rosemarie

[Guest guest]

Hi Suzy,

It's true, I have heard that also, but then again, I have heard so many

things. Many conflicting each other. Since I'm a vegetarian and when we all

have this terrible brain fog and need something easy and quick to fix to eat

and something that gives us protien and energy, I decided to try the soy anyway.

I have not myself had any adverse side effects using it. I feel great and

so far (going on two years now) since using it, I feel very good and when I

don't use it, I feel bad. So I think you really must experiment for yourself

and

listen to your own body. If soy doesn't agree with you then do not use it.

Donna

[Guest guest]

>ArtistDesigner@... wrote:

> I haven't contributed to the list in quite some time but I do want to add

>something now. About 2 years ago I went to see Dr. Lowe. She was located in

>Tulas, OK and I live in CA so it was quite an expensive trip but so worth it.

Wow ! Glad to hear you found something which is working! Brava !

> She suggested I needed Thyroid meds even though my regular Dr. said I had no

>thyroid problem.

That is interesting because I have had a bunch of blood tests and they all say

my thyroid is fine. I am cold all the time, have trouble keeping my weight

normal

without a lot of thought and some exercise. I don't have the straw-like hair

that my hubby did before taking his thyroid meds, but I am going to ask my

acupunturist about that.

>

>........I also followed Dr. Lowes other advice which was to eliminate all

things made with

>flour or gluten, sugar, drink lots of water and I take a vitamin powder (All

>Insurance Vitamin Powder by Bronson Labs) that she suggests but has no

>affiliation to so she is not selling it but simply suggests that she has found

it

>works best for fibro patients.

Caffeine in tea, coffee, colas, etc., all had to go for me. Helped a lot.

>I freeze fresh fruit

you know there is sugar in fruit right ?

>and make smoothies with it

>in the morning and add the vitamin powder along with a scoop of soy protien

>powder to it. When I run out of the vitamin powder, I immediately notice a

huge

>difference in my energy level. My chronic fatique comes back with a vengence

>and its like my Fibro just hits me full on.

Over my entire life I have had to take supplements to feel half way right.

> When I start to think I can get away with eating things made with flour,

>(bread, cakes, pasta, etc.) within a day or so, all my hip pain and bones

>start to ache badly again and then I have to face it that these foods just do

not

>work well with me.

Have your read ER4YT book on foods by blood type?

I am an O and had to quit all corn, wheat, all grains, actually, am allergic to

soy, alfalfa, egg whites, dairy, to name a few. I hear ya, it is tough.

I was a vegetarian for 10 years, three of which I was a total Vegan.

Did not work well for my body at all, in fact for me I hurt my body depriving

myself of animal/poultry proteins.

> I have been a vegetarian since birth so its much harder for me to give

>them up than most people because its all I've eaten all my life. No one thing

>works the same for every person with Fibro but I have found that drinking a lot

>of water, taking a good quality vitamin supplement everyday without fail,

>changing your diet to fresh foods as much as possible and exercising with

weights

>will improve you.

The exercise is important to get the blood moving and get toxins flushed out of

the

system.

> It's true that you can spend a small fortune on everything under the sun

>trying to find that one miralce " cure " but I think the " cure " is simply doing

>what isn't so simple to do. Eating right, exercising, drinking water and

>taking vitamins.

That is very important.

and if someone is sick, for me, I think acupuncture is essential in order to

heal much

faster.

>If you do this everyday, you may not be cured, but you will feel

>like it until you stop doing it. I was on the brink of suicide...the worst

>case ever of Fibro but have all but cured myself with a lot of very hard work.

Good for you. I totally agree that we have to do whatever we can to help our

bodies heal itself.

> Life is worth it. Fight for your health, for any of you that are very

>heavy and cannot exercise, I say lift one arm...lift a leg...point your

>toes...just do something every single day. Move forward and visualize getting

better

>and try, try, try.

Yup and getting outside in fresh air is important. Start with walking one

minute,

then 5, then 10 til you can do 15 min. every day for sure. That one walk a day

will help a lot.

> If I can do it, anyone can. I am the worlds laziest person. I lost 90

>pounds. I decided to just get well.

> Okay I'm done.

Much appreciate you sharing, Donna. I really think the best support we get

is from

other people who have been through this. My husband and I have always been

extremely athletic, exercising intensely for 4 hours 5 days a week. Now

I am sure deep down he must think I am lazy, or he doesn't " get it " or something

because just today he asked me to take down some shelving.

WTF? I am trying to get myself well enough by not over-exerting and still

doing

some exercise. Right !! I'll just grab the power tools and spent 6 hours

doing

what I could do ten years ago (and even then I wasn't well).

So it is up to us to keep providing each other with the motiviation and mental

energy and emotional support it takes to do what we alone must do for ourselves.

cheers, Cat

^. .^ ~

" Enjoy the edge you're on . . . don't think about the one to come! "

http://www.webspawner.com/users/fayskelley/index.html

[Guest guest]

suzy1 wrote:

>I'm not sure about this but I thought I had read where people with thyroid

problems shouldn't eat anything with soy in it, Suzy

for anyone following ER4YT D'Adamo says that soy is not the greatest source of

protein for Type Os.

Some of us, like myself, are allergic to soy. Otherwise, it doesn't provide

quite the same kind of nutrition in feeling strong that it would for another

blood type.

Cheers, Cat

^. .^ ~

" Enjoy the edge you're on . . . don't think about the one to come! "

http://www.webspawner.com/users/fayskelley/index.html

[Guest guest]

In a message dated 4/25/2004 9:11:15 AM Pacific Daylight Time,

iceisit@... writes:

<Caffeine in tea, coffee, colas, etc., all had to go for me. Helped a lot.>

I forgot, I also eliminated these things as well.

<you know there is sugar in fruit right ?>

I know, but I meant to say I got rid of refined white sugar. The natural

sugars found in unprocessed fruits works fine for me.

<NowI am sure deep down he must think I am lazy, or he doesn't " get it " or

something

because just today he asked me to take down some shelving.

WTF? I am trying to get myself well enough by not over-exerting and still

doing

some exercise. Right !! I'll just grab the power tools and spent 6 hours

doing

what I could do ten years ago (and even then I wasn't well).>

I don't think most spouses who don't have this disease " get it " . I know my

husband tries most of the time but he doesn't get it either. I can see it in

his eyes that he thinks I should just suck it up and take it and move on and

get 9 to 5 job, be super mom, take on several PTA commities, continue to write

all 3 books I'm writing, finish all the portraits I'm drawing, and start up my

jewelry business again. He says he doesn't have the Luxury to stay at home

and be sick like me. So now you have a new perspective...we are all lving in

luxury. lol. I think he'll " get it " when I get strong enough to kick his ass.

Until then, I can't let anyones inability to not understand what we go

through to get me too down. I just keep on. keeping on.

Thanks Cat, it sounds like you're doing great!

[Guest guest]

and where are u