2001 Conference & another survey question

[Guest guest]

Hey Bonnie,

Remember that the only country in the world that still measures temperature

by the Fahrenheit scale is the United States of America. I was totally

freaked for a minute when you said that your daughter's temperature was

96.8. That's nearly the boiling point of water on the Celsius scale! Took my

daughter's temperature today and it was 37.18. We used to do temperatures in

Fahrenheit when I was little, but I forget what was normal. Is 96.8 higher

or lower than expected?

Thanks,

Ruth

in cold Sudbury, where it was -11 degrees Celsius at high noon today

[Guest guest]

Hi Bonnie,

My normal body temperature is 97 degrees F. My father who had EDS but

did not know about it was the same.

It will be interesting to know the results.

[Guest guest]

It's me again with another survey....can you tell my brain is working again?

hehehe

I was talking with Lynn today about the conference. We have another

planning meeting in a week. I also told her about the exprience with the MD

not believing 's body temp being 96.8. She and I are both wondering

if there has ever been a scientific survey of this with data to back it?

Anyone know of it?

How many people are coming to the conference in Milwaukee July 17-20, 2001?

We are taking an informal poll and urge everyone to make their hotel

reservations soon as rooms are filling up. If you need a handicapped room,

please call early and register! Be sure to tell them you are with the EDS

conference to get the preferred room rate.

For people who are coming, would you be willing to be a part of a research

project to document normal body temp (if there is no previous temps done)?

If you know you are coming for sure to Milwaukee you can email me privately.

Also, if you know your normal body temp and wouldn't mind sharing it, please

let me know on list.

Bonnie

bheint@...

[Guest guest]

> I was talking with Lynn today about the conference. We have

another

> planning meeting in a week. I also told her about the exprience with the

MD

> not believing 's body temp being 96.8. She and I are both wondering

> if there has ever been a scientific survey of this with data to back it?

> Anyone know of it?

My husband and daughter both have unusually high body temperatures. I'm not

sure how high, as I dont own a thermometer! I can tell if they run a

temperature since they're hands and feet get burning hot.

Sleeping next to my husband is like sleeping with a huge hot water

bottle...great in the winter, but not so good in the summer! Then when Allie

comes and gets in too its just unbearable!

They have a crossover diagnosis of OI and EDS. Excessive perspiration is a

recognised feature of OI....I wonder if this is related?

Love, Glenda

[Guest guest]

Bonnie,

I haven't made plans to attend the conference yet. I don't know what the budget

will be by then.

As for the body temperature, mine has always been 97.6. Kerry is slightly lower

than that, but I can't remember it off hand.

-Barb