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Re: OT: Is the speech therapy helping my son or the diet? 5-28-2010

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How old is your son? Is he still in school? Any real " diet " should have

little or no PROCESSED food. The general rule is, the closer to the wall,

the better for all. Shop on the outside of the aisles, not on the inside.

That should include veggies (if kids don't like them, throw them in the food

processor and then in a sauce), meats, fish, dairy, and some soft

margarine/butter. Read labels. If you can't pronounce it and it's not a

vitamin or mineral, think about it. I have food sensitivity to Yellow #5

food coloring, which is a naturally occurring compound found in many fruits

and berries.

Check out the Nautral Food section of your grocery or a natural foods store

for some additional good food.

I would also check to see what meds he's on, if any. Check with your

pharmacist for any side effects, also.

We're all a " work in progress " - sometimes fast, sometimes slow. Hope this

helps.

Barb, mom of

Charlie - Age 15 [?]

Plymouth, NH

On Fri, May 28, 2010 at 10:37 AM, agirlnamedsuess21 <

agirlnamedsuess@...> wrote:

>

>

> I know this addresses autism, but we are bending that way with my son, who

> has MDS. It appears that the GFCF diet, along with no HFCS and no red dye is

> working. But is it coiincidental, contributory, or the sole reason for

> speech improvement? He had a gluten infraction a couple of days ago (test at

> a fast food with french fries) and he regressed, but is slowly coming out of

> it.

> http://www.msnbc.msn.com/id/37362208

> We have been at it (speech therapy) off and on for nearly 7 years and over

> one full year exclusively for apraxia. The only difference we have seen in

> speech is when we removed casein. Of course, the speech therapist takes the

> credit, but we are considering ceasing ST because of no real improvement

> with therapy. (It is a long way each way for twice a week. We have some

> quirps with the therapist and the obvious difference in treatment between

> son with MDS and son without. Also, she noticeably acts outwardly different,

> fake, when student is in the room. But we are feeling it is more than likely

> becoming a waste of time/gas/money, since we can do this therapy , and more,

> at home.)

> I feel like our efforts may be better spent with diet, supplements,

> chelation, etc... and I might be better off continuing Sign Language here at

> home (just got a video phone in an attempt to help him become a more

> functional member of society).

> Any opinions?

>

>

>

>

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We did the GFCF diet for a year and a half - the only thing it did to him

was make him MORE picky - he was a picky eater to start with now he is MUCH

worse. He used to eat rice - now he won't touch it - he used to eat Mashed

potatoes, not anymore. Now he only eats PB and J and turkey (sometimes

with/sometimes without cheese) He won't touch a vegetable, only eats yellow

fruits. Does not eat condiments or sauce on anything (except Pizza) - which

he likes cheese-less! Try getting that when you are out. It was a

miserable experience for the entire family and made me intolerant to dairy

for a while when I started eating like a normal person again.

In my opinion, I think the no HFCS and no red dye is making more of a

difference than the GFCF - but each person is different and it is possible

he has a Wheat intolerance. And you tested at a fast food restaurant - you

have no idea what else was in that food - NOT a valid test. Leave

everything the same and introduce some wheat or some dairy and then you will

see if it makes a difference.

Darlene

On Fri, May 28, 2010 at 5:37 PM, Barbara Spike wrote:

> How old is your son? Is he still in school? Any real " diet " should have

> little or no PROCESSED food. The general rule is, the closer to the wall,

> the better for all. Shop on the outside of the aisles, not on the inside.

> That should include veggies (if kids don't like them, throw them in the

> food

> processor and then in a sauce), meats, fish, dairy, and some soft

> margarine/butter. Read labels. If you can't pronounce it and it's not a

> vitamin or mineral, think about it. I have food sensitivity to Yellow #5

> food coloring, which is a naturally occurring compound found in many fruits

> and berries.

>

> Check out the Nautral Food section of your grocery or a natural foods store

> for some additional good food.

>

> I would also check to see what meds he's on, if any. Check with your

> pharmacist for any side effects, also.

>

> We're all a " work in progress " - sometimes fast, sometimes slow. Hope this

> helps.

>

> Barb, mom of

> Charlie - Age 15 [?]

> Plymouth, NH

>

> On Fri, May 28, 2010 at 10:37 AM, agirlnamedsuess21 <

> agirlnamedsuess@...> wrote:

>

> >

> >

> > I know this addresses autism, but we are bending that way with my son,

> who

> > has MDS. It appears that the GFCF diet, along with no HFCS and no red dye

> is

> > working. But is it coiincidental, contributory, or the sole reason for

> > speech improvement? He had a gluten infraction a couple of days ago (test

> at

> > a fast food with french fries) and he regressed, but is slowly coming out

> of

> > it.

> > http://www.msnbc.msn.com/id/37362208

> > We have been at it (speech therapy) off and on for nearly 7 years and

> over

> > one full year exclusively for apraxia. The only difference we have seen

> in

> > speech is when we removed casein. Of course, the speech therapist takes

> the

> > credit, but we are considering ceasing ST because of no real improvement

> > with therapy. (It is a long way each way for twice a week. We have some

> > quirps with the therapist and the obvious difference in treatment between

> > son with MDS and son without. Also, she noticeably acts outwardly

> different,

> > fake, when student is in the room. But we are feeling it is more than

> likely

> > becoming a waste of time/gas/money, since we can do this therapy , and

> more,

> > at home.)

> > I feel like our efforts may be better spent with diet, supplements,

> > chelation, etc... and I might be better off continuing Sign Language here

> at

> > home (just got a video phone in an attempt to help him become a more

> > functional member of society).

> > Any opinions?

> >

> >

> >

> >

>

>

>

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And the labels keep getting smaller and smaller, don't they?

Even my daughters have a difficult time reading them. It seems like these

companies do not want you to know what they are putting in the foods. (with good

reason)

> > >

> > > >

> > > >

> > > > I know this addresses autism, but we are bending that way with my son,

> > who

> > > > has MDS. It appears that the GFCF diet, along with no HFCS and no red

> > dye is

> > > > working. But is it coiincidental, contributory, or the sole reason for

> > > > speech improvement? He had a gluten infraction a couple of days ago

> > (test at

> > > > a fast food with french fries) and he regressed, but is slowly coming

> > out of

> > > > it.

> > > > http://www.msnbc.msn.com/id/37362208

> > > > We have been at it (speech therapy) off and on for nearly 7 years and

> > over

> > > > one full year exclusively for apraxia. The only difference we have seen

> > in

> > > > speech is when we removed casein. Of course, the speech therapist takes

> > the

> > > > credit, but we are considering ceasing ST because of no real

> > improvement

> > > > with therapy. (It is a long way each way for twice a week. We have some

> > > > quirps with the therapist and the obvious difference in treatment

> > between

> > > > son with MDS and son without. Also, she noticeably acts outwardly

> > different,

> > > > fake, when student is in the room. But we are feeling it is more than

> > likely

> > > > becoming a waste of time/gas/money, since we can do this therapy , and

> > more,

> > > > at home.)

> > > > I feel like our efforts may be better spent with diet, supplements,

> > > > chelation, etc... and I might be better off continuing Sign Language

> > here at

> > > > home (just got a video phone in an attempt to help him become a more

> > > > functional member of society).

> > > > Any opinions?

> > > >

> > > >

> > > >

> > > >

> > >

> > >

> > >

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