hello

[Guest guest]

BTW, BETSY AND EVERYONE ELSE!

I KNOW SOMEONE FROM ANOTHER LIST, WHO WORKS FOR YAHOO; AND HE SAYS

THEY ARE INSTALLING A BUNCH OF NEW SOFTWARE AND THAT IS WHY THEY ARE

BEING UNUSUALLY DIFFICULT!

BIRDSONG

> JOY AND KAREN

> JUST REALIZED THAT JOY " S MAIL

> WAS DATED SATURDAY--DARN

> YAHOO WHEN ARE THEY GOING

> TO GET THEIR ACTS TOGETHER?

>

> WHAT HAPPENS IF SOMEONE

> HAD WRITTEN A MESSAGE THAT

> WAS REAL IMPORTANT??

>

> GUESS YAHOO DOES NOT CARE

> LOVE BETSY

>

>

> Gee, Joy !!! Just got this one from Saturday, hon !!!! Guess you

work

> week is almost over by now !! LOL ! Hope your hands are feelin

beeter,

> hon ! 8^)

>

>

>

[Guest guest]

And you are special to us Joy!!

Hugs

Sharon

-----Original Message-----From: Joy Sent: Saturday, May 05, 2001 3:59 AMTo: cfidsfms-friends Subject: Hello

Hi all,

Sorry I have posted much this week. Belated Birthday wishes to , , and Sharon. You all have became very special to me. My work week starts on Friday so I've got my first day in, tired be know it would be useless to try to go to bed. So I thought I'd drop a line, and wish every one a Happy Cinco de Mayo.

Joy

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Hey, El !!! Nice to meet ya, hon ! Boy ! A LOT of what you've said

sounds familar !!! My fms started when I had an emegency c-section with

my 1st and only child at age 39 !! It also thru me into early menopause

and I had a stroke !! If its any hope, hon, once I finished menopause,

some of my symptoms werent as bad !!

Have you gone to a rheumatologist and had the 18 point pressure test

done ?! That would diagnose fms for sure ! I take oxycontin for pain,

Soma (muscle relaxer) and it helps me sleep ! I am on HRT (prempro).

You'll get lots of support and understanding here, hon !! Tho right

now quite few of us are havin big trouble with fatigue !! So mail may

be a little slow ! But you'll meet everyone sooner or later ! 8^)

Hi, I'm new to the list. Haven't been officially diagnosed with FMS by a MD

but I've been experiencing an increasing array of FMS type symptoms for the

past decade or so. Medical tests for just about every other ailment have

come up negative, leading to dismissive, contemptuous " Nothing is wrong with

you " attitudes of HMO docs (except from my wonderful neurologist, who has

been treating me for chronic spine pain and PLMS for the past nine years).

I'm 53, an artist-writer living in energy crisis CA, married to an incredibly

supportive and loving husband. Most of the rest of my family and friends

have disowned me due to my prolonged health meltdown. I've been housebound

with chronic pain and illness since a spine injury in '93. A flu-like aching

all over (feels like my bone marrow is being sucked out) began with

menopausal hot flashes a couple years ago. Now I have continuous pain-aching

but it's worse whenever a hot flash strikes (I get hit with them about 20X a

day). I was on some menopause support egroup lists a few years back but no

one else had my range of symptoms aside from a woman with FMS. I can't take

HRT because it exacerbates my gall bladder disease, plus I was a DES baby.

Among my amazing current repertoire: joint and muscle pain EVERYWHERE,

dizziness, stiffness, muscle twitches and jerking limbs (PLMS), burning and

tingling, carpal and tarsal tunnel syndrome in all my limbs, eczema on my

hands, fatigue, irritability, anxiety, depression, itching, allergies

(sensitive to chemicals/drugs), overactive bladder, gastrointestinal

problems, headaches, interrupted sleep (I awaken once an hour throughout the

night), hypersensitivity to sounds and some weirder stuff I won't go into

now. And, ta da, for good measure, my teeth are all going. I hurt 24/7 at

varying degrees of intensity day and night. Stop me if any of this sounds

familiar.

I am wary of most AMA protocols for treating FMS. I've had bad reactions to

antidepressants and other prescriptions meds. Presently, the vicodan I take

for my spine pain helps relieve some of the other pain as well. Has anyone

found malic acid and magnesium or SAM-e helpful? I just started malic acid

and take a wide spectrum of vitamins and supplements which are somewhat

helpful. I hope to hear from those of you in the trenches who might be able

to offer tips on how to cope with or alleviate any of these miseries. Sorry

for my overly detailed and rather downer introductory bio...

El

[Guest guest]

Welcome El, sounds like you are a bonafide member of this group to me!

Cause I agree with 's diagnosis, if you don't have FMS, I am a

monkey's aunt!

Glad you found us, this group is firmly committed to unconditional

acceptance and positive regard! We definitely get " off topic " in

fact I am not sure most of us are out of the " Fibro Brain Fog " enough

to remember what the topic is!LOL!! But not really because the truth

is the only topic this wonderful support group has is loving concern

and support!XXXXXOOOOOO group!<G>

Looking foward to getting to know you,

Robin Birdsong aka: birdsong or birdie

-- In cfidsfms-friends@y..., KLD7@w... wrote:

> Hey, El !!! Nice to meet ya, hon ! Boy ! A LOT of what you've said

> sounds familar !!! My fms started when I had an emegency c-section

with

> my 1st and only child at age 39 !! It also thru me into early

menopause

> and I had a stroke !! If its any hope, hon, once I finished

menopause,

> some of my symptoms werent as bad !!

>

> Have you gone to a rheumatologist and had the 18 point pressure

test

> done ?! That would diagnose fms for sure ! I take oxycontin for

pain,

> Soma (muscle relaxer) and it helps me sleep ! I am on HRT

(prempro).

>

> You'll get lots of support and understanding here, hon !! Tho

right

> now quite few of us are havin big trouble with fatigue !! So mail

may

> be a little slow ! But you'll meet everyone sooner or later ! 8^)

[Guest guest]

Jo, I thought I was your aunt!!LOL!

hugs, birdie

> > Hey, El !!! Nice to meet ya, hon ! Boy ! A LOT of what you've

said

> > sounds familar !!! My fms started when I had an emegency c-

section

> with

> > my 1st and only child at age 39 !! It also thru me into early

> menopause

> > and I had a stroke !! If its any hope, hon, once I finished

> menopause,

> > some of my symptoms werent as bad !!

> >

> > Have you gone to a rheumatologist and had the 18 point pressure

> test

> > done ?! That would diagnose fms for sure ! I take oxycontin for

> pain,

> > Soma (muscle relaxer) and it helps me sleep ! I am on HRT

> (prempro).

> >

> > You'll get lots of support and understanding here, hon !! Tho

> right

> > now quite few of us are havin big trouble with fatigue !! So

mail

> may

> > be a little slow ! But you'll meet everyone sooner or later ! 8^)

>

>

>

[Guest guest]

Welcome Ellen...I hope you find many answers in your search for

alternative treatment. I've been on the same track and have been

amazed at what MDs don't know. Alternative is definitely the way to

go!

Good luck,

> Hi, my name is Ellen and I'm new to the group. I'm 26 years old

with

> Fibro and have had a diagnosis of it now for almpost 3 years. I do

> take medication but Iam interested in alternative therapies and

other

> ways as well in reducing my symptoms. I look forward to getting to

> know everyone and learning all that I can from all of you.

Hopefully,

> from all of the reading and experimenting I have done someone can

> learn something from me too. I would love to hear all of anything

> that has to be said on this topic. Hope everyone has a great night.

> As for me I will try.

>

> Love, Ellen

[Guest guest]

What vitamins did you take to get well?... Connie

[Guest guest]

Hi ,

I, too, was exposed to toxic mold and lost my home and all possessions due to

it. Three sinus surgeries and an emergency hysterectomy later (due to mold)

and the burning down of my home, I believe I am on the road to recovery. The

yeast issue has been the greatest help to me. My sinus surgeon mentioned it

to me and I have had the best 2-3 months of my life since starting to rid my

body of candida. I have begun using Essential Oils for detoxing and on a no

flour/no sugar diet.

Please email me to share some of your issues with the mold situation. I am

trying to find an attorney to help me health wise and property wise. I'd love

to hear from you.

Loree

[Guest guest]

Hello Del, I suffered the dreadful aching ribs, and I hate to tell you that

even though I don't suffer chesty complaints( muccousy) much at all now, I

still suffer the aching ribs, almost constantly, just blends in with my R/A

pain.

Seriously I tried all the rubs, linaments that are on the market, they only

work for very short times, there was one that burnt like crazy like your

chillie cream. but I think thats what its meant to do, while your burning,

you supposedly forget all else, lol,sorry.

I have an electric pad( breville) I must have had 5 now over 7 years for the

pain, and it does help,

I,m keeping the company going.

They are great.

I use it almost every day even in this heat in Q, land.

I did find goanna balm/oil mixed with a few drops of rosemary and eacalyptus

oil helped, I still use that with the R/A too, I mix it all up myself, but I

buy the tin of goanna oil or cream and then mix it all in.

When painn under arms pleura area, I use it more there and arond the bra

line, and then when I have ( make) the time, I plug in my pad and wrap it

round me and its bliss.

It even helps when I have been struggling to breathe with asthma, that pain

in the back just goes with this treatment.

I,m not able to be heavy on the eucalyptus oil as it upsets the asthma, but

if I keep in an airy area Its OK.

I take my hot pad every where I go. Never with out it.

On before I go out, sometimes I use it at lunch time when out and always hit

it as soon as I,m home, use it for 20 mins while having a cuppa, then get

dinner, and back on till I go to sleep.

I have often slept with it on, but they tell you not to.

As you were saying to June ( was it June) that she could probably get in on

the trials, I too know someone who managed to get into a trial after it had

been going for some time, and the fact that she has bronchiectasis, might

help. because they were originally trialling on people with cystic fibrosis.

I do know that I was in a small trial with mannitol year before last, but I

had to stop as my asthma worsened, it is great to get up the muccous, but it

tightens and restricts the broch tubes in asthmatics.

Even the oral form has the same affect on asthmatics.

Well must go, again trying to hit the kitchen to cook, I have had to give in

and put the air cond on, that means much more pain, agony actually, however

my asthma has really been bad over the last few weeks, taking twice as much

ventolin, almost desperate enough to go get a few hrs oxygen.

Bye again

Sandy

[Guest guest]

>

>

> Hi all. I was given this group as a suggestion from a friend. I am

> 30 years old and disabled with fibromyalgia and multiple pain

> syndrome. I am looking into things that may work for treatment.

> About a year and a half ago the doctor had me on 13 prescriptions,

> one of which was Duragesic (morphine patch). I was so lost I

> couldn't function at all. I went cold turkey off all the meds and

> suffer now with nothing. I have no interest in being so drugged

> that I can't think but I am in such pain that I have no relief

> from. I am open to any and all suggestions. Thank you.

Hi ,

I am in the same boat as you, 30 with fibro and have been suffering for 7

years. I too have been on and off of a lot of pills, and now take none as

they are just masking the symptoms vs. getting to the root of the problem.

First thing you need to understand is that fibro is systemic, and caused by

a number of things. First thing is Candida - it is a a serious factor

involved with almost all fibro sufferers. Change your diet and treat the

Candida and your symptoms will lessen. Many people believe the fibro is

caused by Candida that has been left untreated for so long that it has

spread throughout the body and become systemic.

Here's a great support group for Candida:

http://health.groups.yahoo.com/group/candidasupport/

If you are unfamiliar with the Candida diet, start off by eliminating sugar,

wheat, dairy and simple carbs. By eliminating wheat alone I noticed a big

decrease in my pain levels.

It really frustrated me that I suffered for 7 years and not a SINGLE western

medicine doctor EVER brought up diet (and I saw a million of them).

On that note, the second thing you need to understand is that traditional

western doctors are CLUELESS. They will not help you. They don't even know

how. They will load you up on pills and send you on your way with no

answers, as they don't even have them. Look to naturopaths or natural

medicine doctors.

Fibro is also caused by an overload of toxins in your system - liver, colon,

etc should all be cleansed. Take quality digestive enzymes to help digest

the undigested food / toxins in your colon/intestines.

Stop aspartame (nutra sweet) immediately if you drink it. It is a

neurotoxin, is very bad for you, and there is a big link between fibro +

aspartame. Same with MSG - avoid it.

Here's an article on that:

Eat as much whole, natural foods as possible. Veggies (organic and the more

raw the better), quality meats, good fats, etc.

It is hard to summarize all I have learned in one email, but I have tried

:-) Keep in mind that fibro is not some " mystery " like all the docs tell

you, it is a result of the lifestyle that has become the norm these days.

Loads of toxins, sugar, msg/aspartame (POISONS!)

_jason_

_________ ________ _______ _____ ____ ___ __ _ _ _

[Guest guest]

hi, Mosley, I have researched many diseases and chronic conditions and

have found that purifying the body is your best bet yet. You can begin with

a positive attitude. Then eat as many natural foods that are available.

Keep from animal proteins and consume lots of fiber and whole grains. Next,

you can begin to fast for optimum health and rejuvenation. Start with a

juice fast. As your body begins to detox and you begin to regain your

health, you can begin the water only fast with lemon, honey (raw), and

cayenne pepper. Keep in mind that the water fast is a powerful method of

cleansing the body. Only attempt such a course of healing under the

guidance of an experience health practitioner. Believe me you will be cured

as you continue a life of fasting and consuming natural foods the way GOD

intended. Take care.

>

>Reply-To: fibromyalgiacured

>To: fibromyalgiacured

>Subject: Hello

>Date: Sun, 06 Feb 2005 01:43:15 -0000

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[Guest guest]

Thanks very much Del! Yes, I am generally sent home with oral antibiotics. I guess they don't want to see me back again too soon (lol)!!

Enjoy your bike ride. I'm going in at 2.00pm today, so will catch you on my return.

Love Bunny

------------------------------

Bunny---hope your hospital stay gets you well quickly --do they keep you on oral AB's when the IV's are finished?? I'm off for a bike ride as the remainder of the week is supposed to be raining ---LEE are you still able to go for a bike ride --take care ---Del

[Guest guest]

Enjoy the peace

and quiet, Bunny.

To be honest, I

wish I could get twelve days and know my infection is well and truly gone. I’m

going to discuss the duration with my specialist next time I’m there,

because lately they’re just not totally clearing up.

I hope your

hospital visit is very successful.

Cheryl

----------------------------------------------------------------

Cheryl

, Award Winning Australian

Author

http://www.cheryl-wright.com

http://www.savingemma.com

http://www.writer2writer.com

Saving Emma - #9 Best

Seller February 2005 http://www.whiskeycreekpress.com

-----Original

Message-----

From: bronchiectasis

[mailto:bronchiectasis ]

On Behalf Of Bob & Bunny

Sent: Tuesday, 19 April 2005 11:25

AM

To: bronchiectasis

Subject: RE:

Hello

Thanks very much Del! Yes, I

am generally sent home with oral antibiotics. I guess they don't want to

see me back again too soon (lol)!!

Enjoy your bike ride. I'm

going in at 2.00pm today, so will catch you on my return.

Love Bunny

------------------------------

Bunny---hope your hospital stay gets

you well quickly --do they keep you on oral AB's when the IV's are finished??

I'm off for a bike ride as the remainder of the week is supposed to be raining

---LEE are you still able to go for a bike ride --take care ---Del

[Guest guest]

Dear Bunny,

I missed the post about your hospital stay. Hoping

your stay goes well and that you are soon feeling much

better.

Hugs:0)

) " Miracles happen with love..... " ..... Please support your local children's

hospital.... and " Give with all your might! "

http://iwkfoundation.org/

)Visit.... Children's Miracle Network.... http://www.cmn.org/ )

Pre-Lung Transplant Journey

http://www2.caringbridge.org/canada/maryelizabeth/

" I don't give in, I don't give up, and I don't take no for an answer. "

~Doris ~

______________________________________________________________________

Post your free ad now! http://personals.yahoo.ca

[Guest guest]

Hi Jeanae,

Welcome to our group. What antibiotic are you taking for your

infection? Since a fungal infection

is a fungus rather than a bacteria, you might need something other than an

antibiotic to fight it. Unfortunately, we tend to colonize funguses

after we’ve had bronch for a while.

I take a cough syrup when I cough all

night due to an infection, and I also have trouble getting up in the morning

when I take it. But I do like to

sleep at night, so I live with the morning problem.

I hope you’re feeling better soon.

Barb (from Wisconsin)

[Guest guest]

I am not saying that the post highlighted below was true or not, but I have

seen this EXACT same post probably more than a year ago. I am not sure who

signed the post I saw but the story was exactly the same. It is possible that

the mystery stuff really does help but I'm sure most of you have spent more

money than you can afford on " miracle " stuff only to be still sick and in

pain. Just a heads up...that's all.

Are we supposed to guess what it is or just send money?

--- Terri wrote:

> Hello everyone,

>

> My name is Terri and I have been a lurker on this list

> for some time

> now. I have been wanting to say hi to everyone for a

> while but was

> afraid due to my work schedule and being so tired on my

> off time

> that I would not have time to reply to many posts. I am a

> 44 yr old

> divorced mother of three, grandmother of two from

> Oklahoma.

> Anyway, I have been suffering with Fibro, IBS, Candida?,

> EI, Edema,

> Food sensitivities, and so on, for many years now.

> I have tried many different treatments. Some have failed

> and some

> have given me some relief.

> Recently I have gone back to something that I tried and

> then stopped

> taking due to some finacial hardships I was going thru.

> It has been

> the only thing that has really given me relief and made

> it possible

> for me to continue working the way I do. The first time I

> was not

> consistant in taking it so it didn't work like it should,

> but this

> time I have been taking it very faithfully and it is

> working

> wonderfully.

> 2 months ago I was really wondering if I was going to be

> able to

> keep my job. Now I come home from working a 10 hr day and

> do things

> around the house and stay busy on my days off instead of

> spending

> those days in bed as I was doing before. My IBS is

> completely gone,

> my pain has decreased signifigintly, my energy level is

> almost like

> it was before I started showing signs of my illness, I

> can eat

> almost anything now, my swelling has decreased and I am

> overall

> feeling so much better.

> I was walking out of work one night after I had been

> taking it for

> about a month and was singing. My friend turned around to

> me and

> asked me if it was me and told me she wanted to start

> taking what

> ever I was taking it if it makes you feel that good.

> She has been on it for a month now and is feeling

> wonderful. She

> also has problems with edema and is already noticing a

> difference.

> Before found out about this product I was about to resign

> myself to

> not getting any better then I ran into a friend I had not

> seen in a

> while that said she had been so sick, in and out of the

> hospital,

> that she had turned all her affairs over to her daughter

> to care for

> and was getting ready to die. She was also suffering from

> fibro and

> numerous other things, but her worse problem was her

> lungs were

> harding so she could hardly breath, ( I can't remember

> the name of

> the illness but it calcifies the lungs or something like

> that.)

> Anyway, the doctors had given up on her and she thought

> she was

> going to die.

> Her daughter told her she was not going to give up on her

> that easy

> and started looking and researching different natural

> products. She

> found this product and started her mother on it because

> there was so

> many people that she met that had such good results.

> Needless to say, my friend now has her life back.

> I sent my daughters over to her house the other day to

> get a bale of

> hay, (This lady is around 60 yrs old), and when they came

> back they

> were laughing about they way she was cliiming up on the

> top of the

> hay in the barn throwing the bales down to them. She also

> works a

> full time job then comes home and cares for 40 head of

> horses.

> Since I have started on this product I have met a lot of

> others that

> have the same sort of stories.

> I have not found anything else that works this well. And

> anytime I

> run into someone with some sort of health problems I tell

> them about

> what I am taking because I hate hearing about many people

> seem to be

> suffering from such bad health.

> I know w/o a doubt it has to do with the poor nutrition

> we get from

> our food supply and all the toxins in our enviroment.

> One thing that has improved some but I am hoping will

> improve more

> is my chemical sensitivity. I am in an office filled with

> people

> wearing purfumes and lotions. Some people have been

> really nice and

> have stopped wearing it to work but others refused to. I

> have had to

> bring notes from my Doc due to the amount of days I have

> missed from

> the effects it has on me. I have even had to fill out the

> famlly

> medical leave act papers and most of my vaction days have

> been taken

> up due to my illness.

> Anyway if anyone wants any more info on what I am taking

> just shoot

> me an email: terrisplace@...

> I look forward to getting to know everyone and will try

> to post as

> often as possible.

> (will try not to be so long winded next time)

>

> God Bless,

> Terri

>

[Guest guest]

Well if anyone is in the mood to " just send money " to anyone

....please...send it to me! Ha ha ha

that's what I was thinking. ha ha

Re: Hello

Are we supposed to guess what it is or just send money?

--- Terri wrote:

[Guest guest]

Are we supposed to guess what it is or just send money?

--- Terri wrote:

> Hello everyone,

>

> My name is Terri and I have been a lurker on this list

> for some time

> now. I have been wanting to say hi to everyone for a

> while but was

> afraid due to my work schedule and being so tired on my

> off time

> that I would not have time to reply to many posts. I am a

> 44 yr old

> divorced mother of three, grandmother of two from

> Oklahoma.

> Anyway, I have been suffering with Fibro, IBS, Candida?,

> EI, Edema,

> Food sensitivities, and so on, for many years now.

> I have tried many different treatments. Some have failed

> and some

> have given me some relief.

> Recently I have gone back to something that I tried and

> then stopped

> taking due to some finacial hardships I was going thru.

> It has been

> the only thing that has really given me relief and made

> it possible

> for me to continue working the way I do. The first time I

> was not

> consistant in taking it so it didn't work like it should,

> but this

> time I have been taking it very faithfully and it is

> working

> wonderfully.

> 2 months ago I was really wondering if I was going to be

> able to

> keep my job. Now I come home from working a 10 hr day and

> do things

> around the house and stay busy on my days off instead of

> spending

> those days in bed as I was doing before. My IBS is

> completely gone,

> my pain has decreased signifigintly, my energy level is

> almost like

> it was before I started showing signs of my illness, I

> can eat

> almost anything now, my swelling has decreased and I am

> overall

> feeling so much better.

> I was walking out of work one night after I had been

> taking it for

> about a month and was singing. My friend turned around to

> me and

> asked me if it was me and told me she wanted to start

> taking what

> ever I was taking it if it makes you feel that good.

> She has been on it for a month now and is feeling

> wonderful. She

> also has problems with edema and is already noticing a

> difference.

> Before found out about this product I was about to resign

> myself to

> not getting any better then I ran into a friend I had not

> seen in a

> while that said she had been so sick, in and out of the

> hospital,

> that she had turned all her affairs over to her daughter

> to care for

> and was getting ready to die. She was also suffering from

> fibro and

> numerous other things, but her worse problem was her

> lungs were

> harding so she could hardly breath, ( I can't remember

> the name of

> the illness but it calcifies the lungs or something like

> that.)

> Anyway, the doctors had given up on her and she thought

> she was

> going to die.

> Her daughter told her she was not going to give up on her

> that easy

> and started looking and researching different natural

> products. She

> found this product and started her mother on it because

> there was so

> many people that she met that had such good results.

> Needless to say, my friend now has her life back.

> I sent my daughters over to her house the other day to

> get a bale of

> hay, (This lady is around 60 yrs old), and when they came

> back they

> were laughing about they way she was cliiming up on the

> top of the

> hay in the barn throwing the bales down to them. She also

> works a

> full time job then comes home and cares for 40 head of

> horses.

> Since I have started on this product I have met a lot of

> others that

> have the same sort of stories.

> I have not found anything else that works this well. And

> anytime I

> run into someone with some sort of health problems I tell

> them about

> what I am taking because I hate hearing about many people

> seem to be

> suffering from such bad health.

> I know w/o a doubt it has to do with the poor nutrition

> we get from

> our food supply and all the toxins in our enviroment.

> One thing that has improved some but I am hoping will

> improve more

> is my chemical sensitivity. I am in an office filled with

> people

> wearing purfumes and lotions. Some people have been

> really nice and

> have stopped wearing it to work but others refused to. I

> have had to

> bring notes from my Doc due to the amount of days I have

> missed from

> the effects it has on me. I have even had to fill out the

> famlly

> medical leave act papers and most of my vaction days have

> been taken

> up due to my illness.

> Anyway if anyone wants any more info on what I am taking

> just shoot

> me an email: terrisplace@...

> I look forward to getting to know everyone and will try

> to post as

> often as possible.

> (will try not to be so long winded next time)

>

> God Bless,

> Terri

>

>

>

________________________________________________________________________________\

____

We won't tell. Get more on shows you hate to love

(and love to hate): Yahoo! TV's Guilty Pleasures list.

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[Guest guest]

, thanks for posting this. Reading it confirms what I have been

thinking about some people just do better off meds. This was my case.

Anyways,thanks for posting.

>

> Hi Terri,

> My husband has fibromyalia. I have a hyper-sensitivity to

> airborne stuff. I'd like to hear what has helped you.

> My story goes like this -

> A few years ago I began having headaches that gradually got

worse

> and lasted longer until I could hardly function - I was desperate.

> The doctor gave me anti-depressants and sleeping pills - go figure!

> This was the same roller coaster ride my husband had already gone

> through with his fibromyalgia and the same doctor. My husband had

> given up on the doctor and quit taking all the prescriptions with

> their nasty side effects. He found some pain relief with

nutritional

> supplements. He wasn't pain free but he was once again able to

> function and believed he was heading in the right direction. I

agreed.

> The first thing I did was stopped taking prescription meds.

Next,

> I started writing everything down and discovered a pattern to my

> headaches. They were triggered by airborne allergens but the

> headaches didn't begin until 24 hours after the exposure. Freshly

> mowed grass was the worst. This information gave me a place to

start

> and I tested my theories and confirmed the results. I bought a face

> mask and was headache free. WOW! The third thing we did was move.

> The fourth thing we did was to do liver and bowel cleanses to begin

> cleaning out our systems.

> I am not sure why we both got worse living at the other

location.

> It was a home in the country.... Perhaps it was living beside a

> farmers field that was sprayed with poisons. Perhaps it was living

in

> the flight path of a major airport. Perhaps it was the water. I

> don't know, but during the time we lived there we both got sicker

and

> sicker. It was effecting us in different ways. I also noticed

other

> people in the area that lived beside farmer's fields that suffered

> from the exact same headaches. It was bad.

> At first I was so hyper sensitive to airborne stuff I was having

> to wear the mask almost all the time - but I didn't have the

headaches

> and was sleeping again. Early on, I discovered that long term use

of

> the simple white masks cut down on my oxygen enough that it put a

> strain on my heart. Now I carry a black rubber mask with

replaceable

> filters that I purchased from a hardware store. It looks like a

> serious ventilator. I get lots of fresh filtered air.

> I still hold my breath walking past people in public that wear

> perfume. I also carry a face mask at all times and put it on if I

am

> in a location that I can't get away from 'fumes. When I

smell 'fumes

> or smoke or animals or cut grass, I just put on my mask. A quick

> visual of someone puting on a facemask is more effective than

> complaining at or about the offender. After all, you are not trying

> to be rude! or pushy! Other people in the vicinity also get the

hint.

> It just isn't worth it to me to go through a three-day-migraine

with

> throwing up and all. My mask has been very useful. I suspect it

also

> makes people a little uncomfortable because it is harder for them to

> read your expression behind that thing - Oh well!

> A visual image of someone wearing a mask at the office or in

their

> home makes people stop and think. I know it takes guts to make a

> public statement like this but they will never get the point and

make

> the change if I just hide away curled up in a dark room rolled up in

> my pain either. It is no different than wearing a splint or cast

for

> medical reasons. I find that the mask gives me a lot more

confidence

> because I can protect myself. I no longer live in fear and pain. I

> can clean my home and burn wood without worry of future pain. I

don't

> have to add more chemicals into my body either.

> I got sick over a period of seven years so it has taken a few

> years to get my full strength back and get my immune system

> straightened out. I am not nearly as sensitive any more. AMEN! At

> this point, I use the mask when I'm cleaning my home or around folks

> mowing or burning something outside. All the people I work closely

> with are sensitive to my problems with allergies and try their best

to

> keep cars, homes, and offices allergen free. I am very willing to

use

> my car or have the 'get together' at my home, but it didn't last

long

> before everyone had tossed the candles, perfume, and air fresheners

so

> I could go with them. It's great, and we are all healthier for

it

> I almost never have to wear my mask now and I almost never have a

> headache, but when I do it does not last for as long and is not near

> as bad.

> Grubb

>

[Guest guest]

so, terri, what are you taking? marsha

In a message dated 2/3/2007 3:34:39 PM Eastern Standard Time,

TerrisPlace@... writes:

Hello everyone,

My name is Terri and I have been a lurker on this list for some time

now. I have been wanting to say hi to everyone for a while but was

afraid due to my work schedule and being so tired on my off time

that I would not have time to reply to many posts. I am a 44 yr old

divorced mother of three, grandmother of two from Oklahoma.

Anyway, I have been suffering with Fibro, IBS, Candida?, EI, Edema,

Food sensitivities, and so on, for many years now.

I have tried many different treatments. Some have failed and some

have given me some relief.

Recently I have gone back to something that I tried and then stopped

taking due to some finacial hardships I was going thru. It has been

the only thing that has really given me relief and made it possible

for me to continue working the way I do. The first time I was not

consistant in taking it so it didn't work like it should, but this

time I have been taking it very faithfully and it is working

wonderfully.

2 months ago I was really wondering if I was going to be able to

keep my job. Now I come home from working a 10 hr day and do things

around the house and stay busy on my days off instead of spending

those days in bed as I was doing before. My IBS is completely gone,

my pain has decreased signifigintly, my energy level is almost like

it was before I started showing signs of my illness, I can eat

almost anything now, my swelling has decreased and I am overall

feeling so much better.

I was walking out of work one night after I had been taking it for

about a month and was singing. My friend turned around to me and

asked me if it was me and told me she wanted to start taking what

ever I was taking it if it makes you feel that good.

She has been on it for a month now and is feeling wonderful. She

also has problems with edema and is already noticing a difference.

Before found out about this product I was about to resign myself to

not getting any better then I ran into a friend I had not seen in a

while that said she had been so sick, in and out of the hospital,

that she had turned all her affairs over to her daughter to care for

and was getting ready to die. She was also suffering from fibro and

numerous other things, but her worse problem was her lungs were

harding so she could hardly breath, ( I can't remember the name of

the illness but it calcifies the lungs or something like that.)

Anyway, the doctors had given up on her and she thought she was

going to die.

Her daughter told her she was not going to give up on her that easy

and started looking and researching different natural products. She

found this product and started her mother on it because there was so

many people that she met that had such good results.

Needless to say, my friend now has her life back.

I sent my daughters over to her house the other day to get a bale of

hay, (This lady is around 60 yrs old), and when they came back they

were laughing about they way she was cliiming up on the top of the

hay in the barn throwing the bales down to them. She also works a

full time job then comes home and cares for 40 head of horses.

Since I have started on this product I have met a lot of others that

have the same sort of stories.

I have not found anything else that works this well. And anytime I

run into someone with some sort of health problems I tell them about

what I am taking because I hate hearing about many people seem to be

suffering from such bad health.

I know w/o a doubt it has to do with the poor nutrition we get from

our food supply and all the toxins in our enviroment.

One thing that has improved some but I am hoping will improve more

is my chemical sensitivity. I am in an office filled with people

wearing purfumes and lotions. Some people have been really nice and

have stopped wearing it to work but others refused to. I have had to

bring notes from my Doc due to the amount of days I have missed from

the effects it has on me. I have even had to fill out the famlly

medical leave act papers and most of my vaction days have been taken

up due to my illness.

Anyway if anyone wants any more info on what I am taking just shoot

me an email: _terrisplace@terrisplace@ter_

(mailto:terrisplace@...)

I look forward to getting to know everyone and will try to post as

often as possible.

(will try not to be so long winded next time)

God Bless,

Terri

<BR><BR><BR>**************************************<BR> AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

[Guest guest]

Hi. I'm new to the group. I am married with young daughter, never

diagnosed with AS but am on the spectrum. My wife is not AS. In

addition to AS, I have anxiety and panic disorder, but with meds my

anxiety is mitigated. My AS is most apparent in my relationship

with my wife and is less apparent in the workplace. It is

frustrating to me(and her) because I feel so competent and high

functioning at work and elsewhere but in the home with my wife I

have challenges. For instance, I am slow to read non-verbal cues

and easily get defensive when there's an issue; I feel feelings but

have a hard time communicating them in the marital context, but have

much less difficulty dealing with controversy in the workplace. I

am very literal about things so if I have done something in the past

that has not worked in my marriage, I am not likely to try try it

again--huge fear of failure. It is sometimes hard to sort out what

is AS related, and what is normal male/female stuff in a marriage.

50% of marriages end in divorce, and presumably most of those do not

have a partner with AS, so I don't think challenge in marriage is

unique to the AS community. Still, I feel like I need help but

don't really know where to start. So basically wondering where do I

start and also wondering if there are others out there where their

AS is most debiliating in their marriage but less debilitating in

other areas of life.

[Guest guest]

So basically wondering where do I

> start and also wondering if there are others out there where their

> AS is most debiliating in their marriage but less debilitating in

> other areas of life.

>

>

>

Oh yes, there are some of us here. In my case, I am the so called NT

while my husband is AS. There are many days where I have to tell

myself to take a deep breath and think about whatever event just

transpired. I often have to be careful about touch, movement, and even

ambiance of a room. More often than not, these 'cues' are

misinterpreted to mean things that they do not, making all parties

quite frustrated.

Feel free to ask specific questions or even contact me off the list.

Im no expert, but Ive been doing this for over ten years now, so Id

like to think I know something =)

Kaida

[Guest guest]

c wrote

SNIP <

My AS is most apparent in my relationship

> with my wife and is less apparent in the workplace. It is

> frustrating to me(and her) because I feel so competent and high

> functioning at work and elsewhere but in the home with my wife I

> have challenges. For instance, I am slow to read non-verbal cues

> and easily get defensive when there's an issue; I feel feelings but

> have a hard time communicating them in the marital context, but have

> much less difficulty dealing with controversy in the workplace.

END SNIP>

And hello to you. Great way to

start on this forum by asking for help.

Can I just say that I identify so painfully

with all you have said. The marriage context is so difficult for

me too, yet I am very high functioning in the workplace as well.

The defensiveness is the biggest issue

for me and fear of failure when I have tried things in the past and it

has been less than successful or a disaster. Anxiety feeds on itself

to some extent and shutting down does not help anyone in the relationship.

Avoidance behaviours are my biggest

issue as that is how I tend to cope with things. I am working with

my psychologist to manage that.

Good luck and I hope things change for

the better

Greg DX AS at 53

[Guest guest]

I am NT married to an AS and also new to the group. Hello.

My husband's story sounds much like yours. He is very good in his job.

He's also clever and funny. I think he's wonderful, but our marriage

is on it's last leg. We have been married for 10 years this spring. We

have a few young children. I am finding that the children have caused

even more stress in our marriage (more than is typical I mean), as the

noise and chaos they bring are a big problem for my husband. Our home

is in constant disorder and it makes his life very difficult.

I don't know if there is hope for our marriage. I'm pretty well

checked out at this point. His response to me is always to mirror my

mood and thus he seems checked out as well. I have come here looking

for some support. Maybe some insight. I don't know.

I guess I only mean to tell you that you're not alone. It's good that

you're here, taking a step toward making your marriage better. Maybe

if he'd taken such an initiative we'd be in better shape. I hope you

find what you are looking for.

Best wishes,

>

> Hi. I'm new to the group. I am married with young daughter, never

> diagnosed with AS but am on the spectrum. My wife is not AS. In

> addition to AS, I have anxiety and panic disorder, but with meds my

> anxiety is mitigated. My AS is most apparent in my relationship

> with my wife and is less apparent in the workplace. It is

> frustrating to me(and her) because I feel so competent and high

> functioning at work and elsewhere but in the home with my wife I

> have challenges. For instance, I am slow to read non-verbal cues

> and easily get defensive when there's an issue; I feel feelings but

> have a hard time communicating them in the marital context, but have

> much less difficulty dealing with controversy in the workplace. I

> am very literal about things so if I have done something in the past

> that has not worked in my marriage, I am not likely to try try it

> again--huge fear of failure. It is sometimes hard to sort out what

> is AS related, and what is normal male/female stuff in a marriage.

> 50% of marriages end in divorce, and presumably most of those do not

> have a partner with AS, so I don't think challenge in marriage is

> unique to the AS community. Still, I feel like I need help but

> don't really know where to start. So basically wondering where do I

> start and also wondering if there are others out there where their

> AS is most debiliating in their marriage but less debilitating in

> other areas of life.

>

>

>

[Guest guest]

I agree with most of what you've said. I've been with my husband since the age

of 13 or 14, and have learned over that time how to communicate with him. I

think he and I need to see a professional to work through some of our deeper

issues, which likely have nothing to do with his syndrome.

>

>

>

>

> > I am NT married to an AS and also new to the group. Hello.

> > My husband's story sounds much like yours. He is very good in his job.

> > He's also clever and funny. I think he's wonderful, but our marriage

> > is on its last leg. We have been married for 10 years this spring. We

> > have a few young children. I am finding that the children have caused

> > even more stress in our marriage (more than is typical I mean), as the

> > noise and chaos they bring are a big problem for my husband. Our home

> > is in constant disorder and it makes his life very difficult.

> > I don't know if there is hope for our marriage. I'm pretty well

> > checked out at this point. His response to me is always to mirror my

> > mood and thus he seems checked out as well. I have come here looking

> > for some support. Maybe some insight. I don't know.

> > I guess I only mean to tell you that you're not alone. It's good that

> > you're here, taking a step toward making your marriage better. Maybe

> > if he'd taken such an initiative we'd be in better shape. I hope you

> > find what you are looking for.

> > Best wishes,

> >

>

>

> I dont know about the rest of the world, but in my little bubble Ive

> noticed that my aspies often need help, but it never occurs to them

> that they should ask for it.

>

> Also, you mention that he mirrors your emotions - can you really

> expect different from someone who has trouble with

> emotions/reciprocity to begin with?

>

> Have you tried moving past the social normality of expecting him to do

> things and just flat out asked him? given directions on what you need

> him to do? (ie - take suzy to the couch and watch episode 23 of sesame

> street with her. When it is over come check with me) Ive often found

> that 1- my husband cannot handle multiple instructions coming at him

> at once, and 2 - I cannot expect him to read my mind or realize that

> just because its noon does not translate to lunch time for him.

>

> I guess all I am saying is don't expect him to reach out, cause in his

> mind he might not realize something is so wrong. As his wife, you have

> to take 99% of the first steps until he is on board with what your

> needs are - then things start to change for the better.

>

> Everything's a learning process

>

>

> Kaida

>