Guest guest Posted April 7, 2009 Report Share Posted April 7, 2009 Hi Everyone We have a new family. Here is what she had to say... I have a 3 y/o daughter who has undiagnosed medical issues. In some of her pictures, she looks like she has Down Syndrome, and I am interested in this after seeing Mystery Diagnosis last night. Welcome to our family! I am so glad you have joined us. Please tell us all about your daughter and what makes you suspect that she has mosaic Down syndrome. We can not send attachments over the egroup (virus protection) but you are welcome to add a picture to our photo albulm or email one to me directly at Kristy@... and I will be happy to look at it for you. Please feel free to ask any questions you have here. No question is a dumb question and we will all be happy to share our experiences. Kristy-Mom to Arron 27, 24, Tim 22 MDS, Stevan 21 and Garrett 12 Kristy Colvin IMDSA President ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa.org http://www.mosaicmoments.today.com SAVE THE DATE! JULY 10-12 Cincinnati, Ohio, USA BUILDING BRIDGES FOR DOWN SYNDROME RESEARCH & AWARENESS CONFERENCE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2009 Report Share Posted April 8, 2009 Hi all newcomers, I am so glad that the Mystery Diganosis seems to have touch so many people. It was so worth doing it knowing that it may have given answers to families that were not getting them. Sue ________________________________ To: mosaicds Sent: Tuesday, April 7, 2009 5:38:42 PM Subject: Welcome Raechel! Hi Everyone We have a new family. Here is what she had to say... I have a 3 y/o daughter who has undiagnosed medical issues. In some of her pictures, she looks like she has Down Syndrome, and I am interested in this after seeing Mystery Diagnosis last night. Welcome to our family! I am so glad you have joined us. Please tell us all about your daughter and what makes you suspect that she has mosaic Down syndrome. We can not send attachments over the egroup (virus protection) but you are welcome to add a picture to our photo albulm or email one to me directly at Kristyimdsa (DOT) org and I will be happy to look at it for you. Please feel free to ask any questions you have here. No question is a dumb question and we will all be happy to share our experiences. Kristy-Mom to Arron 27, 24, Tim 22 MDS, Stevan 21 and Garrett 12 Kristy Colvin IMDSA President ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa. org http://www.mosaicmo ments.today. com SAVE THE DATE! JULY 10-12 Cincinnati, Ohio, USA BUILDING BRIDGES FOR DOWN SYNDROME RESEARCH & AWARENESS CONFERENCE Quote Link to comment Share on other sites More sharing options...
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