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Hi Cheryl, Thanks for posting to me, no I'm ashamed to say I didn't go

to hospital. I'm so scared of picking up something worse and our local

hospital is not the best. Yes I am sort of doing my own thing on the

Prednisolone. The consultant gave me a prescription and said I was to

take a tapered dose each time I get an infection along with anti

biotics. I see her every 4 weeks and have to keep a diary of

medications and symptoms for her to monitor. I know the stuff is bad

news but without it I really can't breathe. It's the asthma that is so

bad and the Pred is meant to help that more than the Bronch! Apparently

as soon as they find what bug cultures from my sputum sample I'm going

on inhaled anti biotics (Colymycin) something else to worry about side

effects! To be honest I 'm starting to give up worrying about the

future, this sounds awful but I don't expect to get to a ripe old age,

if I go on like this the asthma will finish me off anyway.

You sound as though you are through your own rough patch, isn't it

lovely when you start to pick up, makes you appreciate life so much

when you are relatively well. I'm typing this at 4 AM, managed 5 hours

sleep before needing my neb!

Love from London June

> June wrote: Have had an awful 24 hours, had a severe asthma attack

> last night, peak flow went down to 250 thought I'd have to go in. It's

> taken 24 hours to ease up so I'm feeling a bit wobbly just now. Back

> on the Prednisolone, every time I wean myself off I have another bad

> patch and have to use it again. Sometimes wonder if it is worth the

> hassle coming off it but I'm so scared of the long term problems.

>

>  

>

>  

>

>  

>

>  

>

> Hi June, sorry to hear things are not good. The lowest my peak flows

> have gotten to is 100, and that was scary!

>

>  

>

> Please tell me that your doctor is controlling the prednisolone.

> You’re not putting yourself on it, are you? This is very dangerous, so

> please don’t.

>

>  

>

> I used to work with a lady (many years ago) who did that, and now

> she’s a right mess. problems with her bones AND her skin. She’s frail

> as well. It’s simply not worth the risk.

>

>  

>

> Did you take yourself off to the hospital? That’s really the best

> thing to do.

>

>  

>

>  

>

> Cheryl

>

>  

>

>  

>

>  

>

>

>

>

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Hello June, just thought I would email you to say its hard to get a handle

on asthma, like other things, and almost if not everything you take has side

effects.

I,v e suffered acur=te asthma since 21, now 59.

I have spent many weeks /months in ICU with asthma.

And like you hade prednisone.

It has caused me so much damage, all my bones are crumbling.

But one has to weigh up the odds, and if you can breathe comfortably then at

least you can get on and enjoy the times you are well.

I have lots of dreadful painful ailments( as I,ve wriitten often).

But the scariest of course is when you just can,t breathe.

Even if I had to go back over time, things could not have been different.

I would have been dead from asthma 38 years ago, I have and still suffer

with asthma, and try to only use puffer, but nebuliser always on standby.

But I am alive and I have been blessed to see each of my children marry, and

that was my prayers answered each time I was dying with my asthma, I prayed

to god to let me live long enough to see each child marry and find a lovely

partner to help share their lives( I was a single mum for many years).

Then as these prayers were answered. and I got ill and in ICU, I prayed that

god now let me live to see each of my grand children born, 12 grand kids

down the track, I pray that I see the last grandchild to be born, ( March)

and that I see them all reach the age where they are healthy, honest and

loving /caring people/hold great values.

So you see through all the rdreadful side effects, the dreadful times with

asthma, I,m still living with my family all around.( not under foot though)

I do however have all these other life threatening things and pain( as hard

to tolerate as the asthma, but in a different way)

But I also know, I,ve been blessed, and still am being blessed.

Even through all we go through, there is a light, and keeping faith and a

positive attitude( not always easy) we manage to get through each day.

And we both give and receive something each day.

June, a friend of mine has just come back from a trip to london, also

visited scottland.

She went with another of my friends, she returns tomorrow.

They loved it all except the shettlands.

Just thought I would share that too.

Try to use home remedies between bouts, of infections, and asthma.

Garlic and ginger are good for both.

Must go and am thinking of you always, its damn hard to live , but its got

its rewards too.

Love, friendship, goes a long way.

Sandy ( not a very religious person) yet pray all the time, and also thank

god all the time, don,t know if thats selfish, but I do give of myself, and

I do have faith,

Bye for now,

Sandy

>

>Reply-To: bronchiectasis

>To: bronchiectasis

>Subject: Re: june

>Date: Sat, 27 Nov 2004 04:25:39 +0000

>

>

>Hi Cheryl, Thanks for posting to me, no I'm ashamed to say I didn't go

>to hospital. I'm so scared of picking up something worse and our local

>hospital is not the best. Yes I am sort of doing my own thing on the

>Prednisolone. The consultant gave me a prescription and said I was to

>take a tapered dose each time I get an infection along with anti

>biotics. I see her every 4 weeks and have to keep a diary of

>medications and symptoms for her to monitor. I know the stuff is bad

>news but without it I really can't breathe. It's the asthma that is so

>bad and the Pred is meant to help that more than the Bronch! Apparently

>as soon as they find what bug cultures from my sputum sample I'm going

>on inhaled anti biotics (Colymycin) something else to worry about side

>effects! To be honest I 'm starting to give up worrying about the

>future, this sounds awful but I don't expect to get to a ripe old age,

>if I go on like this the asthma will finish me off anyway.

>You sound as though you are through your own rough patch, isn't it

>lovely when you start to pick up, makes you appreciate life so much

>when you are relatively well. I'm typing this at 4 AM, managed 5 hours

>sleep before needing my neb!

>Love from London June

>

>

> > June wrote: Have had an awful 24 hours, had a severe asthma attack

> > last night, peak flow went down to 250 thought I'd have to go in. It's

> > taken 24 hours to ease up so I'm feeling a bit wobbly just now. Back

> > on the Prednisolone, every time I wean myself off I have another bad

> > patch and have to use it again. Sometimes wonder if it is worth the

> > hassle coming off it but I'm so scared of the long term problems.

> >

> >  

> >

> >  

> >

> >  

> >

> >  

> >

> > Hi June, sorry to hear things are not good. The lowest my peak flows

> > have gotten to is 100, and that was scary!

> >

> >  

> >

> > Please tell me that your doctor is controlling the prednisolone.

> > You’re not putting yourself on it, are you? This is very dangerous, so

> > please don’t.

> >

> >  

> >

> > I used to work with a lady (many years ago) who did that, and now

> > she’s a right mess. problems with her bones AND her skin. She’s frail

> > as well. It’s simply not worth the risk.

> >

> >  

> >

> > Did you take yourself off to the hospital? That’s really the best

> > thing to do.

> >

> >  

> >

> >  

> >

> > Cheryl

> >

> >  

> >

> >  

> >

> >  

> >

> >

> >

> >

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  • 2 months later...

cheryl, this is such a well informed and helpful

response to june...lifestyle changes are what have

worked for us and the info about asthma and

bronch........wow, you've probably hit the nail on its

proverbial head.

you are a great source of straightforward information

and you have the gift of presenting it in a 'user

friendly' fashion.

thanks cheryl.

jennifer in canada

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>

> Cheryl , Award Winning Australian Author

>

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> http://www.cheryl-wright.com

>

> <http://www.savingemma.com>

> http://www.savingemma.com

>

> <http://www.writer2writer.com>

> http://www.writer2writer.com

>

> Saving Emma - #9 Best Seller at

> <http://www.whiskeycreekpress.com>

> http://www.whiskeycreekpress.com

>

>

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>

______________________________________________________________________

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Thanks for all the info Cheryl, phoning GP to get appointment for this

week, she is brilliant about doing every blood test. Will take your

post and show her, it's worth following up isn't it? Having much better

day, flying along on my computer, brain seems to be functioning better

with more air in my lungs!!

Love June

> June wrote:  Don't think the problem is my immune system because last

> Ige level was normal but will ask them to retest.

>

>  

>

>  

>

>  

>

> Sorry for the multiple posts everyone – I’m on digest and working my

> way through.

>

>  

>

> June, it took them about four tests before the problem showed up for

> me.   A lot depends on how you are travelling at the time. If you are

> really bad it may show up, but then they often discount it because you

> are unwell.  (That’s what they did with me – a few times.)

>

>  

>

> It really does need to be testing regularly for a few months before

> they can be sure of the results.

>

>  

>

> And yes – stress can be a major factor with both the bronch AND the

> immune levels.

>

>  

>

> (BTW, I also have a sliding oesophageal hernia – I take Nexium daily.

> I used to be on Losec, but it didn’t work as well – and had several

> major attacks from it; attacks that put me in hospital. I’ve recently

> been told that reflux can have a major impact on Bronchiectasis.)

>

>  

>

>  

>

>  

>

>  

>

> Cheryl

>

>  

>

>  

>

>  

>

>  

>

>  

>

> ----------------------------------------------------------------

>

> Cheryl , Award Winning Australian Author

>

> http://www.cheryl-wright.com 

>

> http://www.savingemma.com 

>

> http://www.writer2writer.com 

>

> Saving Emma - #9 Best Seller at http://www.whiskeycreekpress.com

>

>   

>

>  

>

>

>

>

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I’ve recently been told that reflux can have a major impact on Bronchiectasis.)

Cheryl,

You are right. I was also told that I have a sliding hiatia hernia. The second time that I was in the hospital for exacerbation of pseudomonas, my infectious disease doctor mentioned reflux to me. Her husband is a gastroenterologist in the same group with my gastroenterologist. National Jewish Hospital and Research Center also mentions reflux as a possible cause. I am almost sure that my lung problems originated from my sinus problems. Last year my allergist said that I have vasomotor rhinitis which is a runny nose (an imbalance in the blood vessels and nerves in the nasal passage) which can be caused by change in weather (especially rainy weather), barometric changes, scents and irritants. The only way I can treat this is avoid irritants as much as possible, irrigate my sinuses and use a steroid nasal spray to help

Norma

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  • 1 month later...
Guest guest

Hi Barbara, I haven,t had a peak flow over 275, for over 5 yrs, but have a

very good clear chest.

June its amazing how you have such good peak flows, keep it up. hugs,

Sandy

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Hi June, I usually don't realise my peak flows are that low until I test

them. There was research done on this a few years back, and it's something

to do with the brain's reactions that causes the problem. This research was

specific to asthma.

Did you look into the 'natural' hormone replacement treatments? I use

Promensil, and find it excellent.

Cheryl

Re: June

Yes you are right about the medicines Cheryl but I know mine is

hormonal because they only puff up at certain time of the month.

Definitely going to ask my Gp to look into this if I don't get any joy

at Brompton on Friday!

That's quite a variation in peak flow isn't it, mine is not quite as

drastic as that but don't you feel ill when it drops low.

Love from June

> You can actually get puffy eyes from an allergic reaction to

> medications. 

>

>  

>

> My peak flow, when I’m well, is usually about 550. (Yes, believe it or

> not!!) When I’m sick, it can go as low as 100, even less at times. 

>

>  

>

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Hi Cheryl- yes I did a bit of research yesterday. Can' t find

Promensil in UK but will look elsewhere but did find a reputable

alternative health clinic in London which does a product to help.

Phoning them today. I did see an article which said menopause hormone

problems lower your immune system. I now have a low grade throat

infection, earache, etc. But no antibiotics unless I get really bad.

Determined to do without them for a while.

Hope you are on the mend after the IV's?

Love June

> Hi June, I usually don't realise my peak flows are that low until I

> test

> them. There was research done on this a few years back, and it's

> something

> to do with the brain's reactions that causes the problem. This

> research was

> specific to asthma.

>

> Did you look into the 'natural' hormone replacement treatments?  I use

> Promensil, and find it excellent.

>

>

>

> Cheryl

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Guest guest

Hi June, yes

much better, but still very tired.

It is

definitely better to stay away from anti’s if you can. Your body gets

immuned to them, and after a while they won’t work terribly well. (Been

there, done that.)

Hope the alternative

health clinic can help. I think we have enough junk to feed into our bodies

with all our meds, so if there’s an alternative for anything it’s a

bonus. And frankly, I think the Promensil works better than the HRT ever did.

Cheryl

----------------------------------------------------------------

Cheryl

, Award Winning Australian

Author

http://www.cheryl-wright.com

http://www.savingemma.com

http://www.writer2writer.com

Saving Emma - #9 Best

Seller February 2005 http://www.whiskeycreekpress.com

-----Original

Message-----

From: June

Fraser

Sent: Monday, 4 April 2005 4:36 PM

To: bronchiectasis

Subject: Re: June

·

Hi Cheryl- yes I did a bit of research

yesterday. Can' t find

Promensil in UK but will look elsewhere but did

find a reputable

alternative health clinic in London which does a

product to help.

Phoning them today. I did see an article which said

menopause hormone

problems lower your immune system. I now have a

low grade throat

infection, earache, etc. But no antibiotics unless

I get really bad.

Determined to do without them for a while.

Hope you are on the mend after the IV's?

Love June

> Hi June, I usually don't realise my peak

flows are that low until I

> test

> them. There was research done on this a

few years back, and it's

> something

> to do with the brain's reactions that

causes the problem. This

> research was

> specific to asthma.

>

> Did you look into the 'natural' hormone

replacement treatments? I use

> Promensil, and find it excellent.

>

>

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  • 1 month later...
Guest guest

Hi Thereze,

Yes I wouldn't recommend British winters, cold and damp, not good for

Bronch at all.

I actually find a nebuliser the easiest because I use a mask so it's no

effort. The pipe is quite tiring as you have to breathe it in, but

there is no doubt saline generally is a useful treatment.

June

> June,

> I'm inclined to agree re giving things a try.  I've got a couple of

> gadgets that help with the bronch.  I won't be going to Britain with

> him this time.  I thnk it would be too cold for me at that time of the

> year & I'll have too many things on.  He's mainly visiting his elderly

> father  & old friends & will be going in October, November.  That's

> when the weather is warming up here.  I am planning to go to Cairns in

> September with my children.  I couldn't afford Britain after that!

> I find saline fantastic for my lungs & sinuses.  The pipe would be

> more user friendly than the nebuliser.

>  

> Theresa

>

> Yahoo! Mail

> Stay connected, organized, and protected. Take the tour

>

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I get great results from standing under a hot shower. I feel so much better,

and can breathe easier. And I can then move a lot of gunk. It's kinda like

the old methods they used for croup, isn't it?

I don't care really - whatever works, I'm all for. (Even better if it's

drug-free)

Cheryl

Re: June

Hi Thereze,

Yes I wouldn't recommend British winters, cold and damp, not good for

Bronch at all.

I actually find a nebuliser the easiest because I use a mask so it's no

effort. The pipe is quite tiring as you have to breathe it in, but

there is no doubt saline generally is a useful treatment.

June

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Guest guest

My lungs do much better in winter. Summer is coming

and I'm just dreading it. Humidity and heat virtually

confine me to the house and make it almost impossible

to breathe.

Hugs:0)

:o) " Miracles happen with love..... " ..... Please support your local children's

hospital.... and " Give with all your might! "

http://iwkfoundation.org/

:o)Visit.... Children's Miracle Network.... http://www.cmn.org/ :o)

Pre-Lung Transplant Journey

http://www2.caringbridge.org/canada/maryelizabeth/

" I don't give in, I don't give up, and I don't take no for an answer. "

~Doris ~

______________________________________________________________________

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Guest guest

Hi I am absolutely opposite, far better in summer, especially warm

humid weather and awful in winter, cold, wet just finishes me!

Having a good breathing day today thank goodness, hope you are too!

Love June

> My lungs do much better in winter. Summer is coming

> and I'm just dreading it. Humidity and heat virtually

> confine me to the house and make it almost impossible

> to breathe.

>

> Hugs:0)

>

>

>

> :o) " Miracles happen with love..... " ..... Please support your local

> children's hospital.... and " Give with all your might! "

> http://iwkfoundation.org/

> :o)Visit.... Children's Miracle Network.... http://www.cmn.org/ :o)

>

> Pre-Lung Transplant Journey

> http://www2.caringbridge.org/canada/maryelizabeth/

>

> " I don't give in, I don't give up, and I don't take no for an answer. "

> ~Doris ~

>

> ______________________________________________________________________

> Post your free ad now! http://personals.yahoo.ca

>

>

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Guest guest

--even though I love summer I feel like I will choke for air on a really

hot day now---must be the scarring--we had to get air-con in the house so i

have somewhere i can breathe---cheers Del

RE: June

> My lungs do much better in winter. Summer is coming

> and I'm just dreading it. Humidity and heat virtually

> confine me to the house and make it almost impossible

> to breathe.

>

> Hugs:0)

>

>

>

> :o) " Miracles happen with love..... " ..... Please support your local

children's hospital.... and " Give with all your might! "

> http://iwkfoundation.org/

> :o)Visit.... Children's Miracle Network.... http://www.cmn.org/ :o)

>

> Pre-Lung Transplant Journey

> http://www2.caringbridge.org/canada/maryelizabeth/

>

> " I don't give in, I don't give up, and I don't take no for an answer. "

> ~Doris ~

>

> ______________________________________________________________________

> Post your free ad now! http://personals.yahoo.ca

>

>

>

>

>

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Guest guest

Do you use an air cleaner? I found that keeping it on

at low (reduce noise, save energy) help keep the air

light and purer. They sell them at Home Depot (USA) or

on-line.

Chau

--- P & DA Thistleton wrote:

> --even though I love summer I feel like I will

> choke for air on a really

> hot day now---must be the scarring--we had to get

> air-con in the house so i

> have somewhere i can breathe---cheers Del

> RE: June

>

>

> > My lungs do much better in winter. Summer is

> coming

> > and I'm just dreading it. Humidity and heat

> virtually

> > confine me to the house and make it almost

> impossible

> > to breathe.

> >

> > Hugs:0)

> >

> >

> >

> > :o) " Miracles happen with love..... " ..... Please

> support your local

> children's hospital.... and " Give with all your

> might! "

> > http://iwkfoundation.org/

> > :o)Visit.... Children's Miracle Network....

> http://www.cmn.org/ :o)

> >

> > Pre-Lung Transplant Journey

> > http://www2.caringbridge.org/canada/maryelizabeth/

> >

> > " I don't give in, I don't give up, and I don't

> take no for an answer. "

> > ~Doris ~

> >

> >

>

______________________________________________________________________

> > Post your free ad now! http://personals.yahoo.ca

> >

> >

> >

> >

> >

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Guest guest

I'm like you June. Winter is a real killer for me.

Cheryl

Re: June

Hi I am absolutely opposite, far better in summer, especially warm

humid weather and awful in winter, cold, wet just finishes me!

Having a good breathing day today thank goodness, hope you are too!

Love June

> My lungs do much better in winter. Summer is coming

> and I'm just dreading it. Humidity and heat virtually

> confine me to the house and make it almost impossible

> to breathe.

>

> Hugs:0)

>

>

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Guest guest

Del, I am totally the same. I feel like I am in a microwave in summer. The hot air going in is an awful feeling, I hate sweating, I do all my work in the mornings cos I know in the afternoon I will be a zombie.I dont like being cold but at least I can get air in....hugs LeeP & DA Thistleton wrote:

--even though I love summer I feel like I will choke for air on a reallyhot day now---must be the scarring--we had to get air-con in the house so ihave somewhere i can breathe---cheers Del RE: June> My lungs do much better in winter. Summer is coming> and I'm just dreading it. Humidity and heat virtually> confine me to the house and make it almost impossible> to breathe.>> Hugs:0)> >>> :o) "Miracles happen with love....." ..... Please support your localchildren's hospital.... and "Give with all your might!"> http://iwkfoundation.org/>

:o)Visit.... Children's Miracle Network.... http://www.cmn.org/ :o)>> Pre-Lung Transplant Journey> http://www2.caringbridge.org/canada/maryelizabeth/>> "I don't give in, I don't give up, and I don't take no for an answer."> ~Doris ~>> ______________________________________________________________________> Post your free ad now! http://personals.yahoo.ca>>>>>

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Guest guest

Dear Lee and Del,

Precisely, I am the same way. Silly old lungs! For

some reason, I always get sick in October as well,

anywhere between Canadian Thanksgiving and Halloween.

It is always annoying to miss fun with the family, and

the turkey dinner. I cannot tell you how many times

this has happened. Months of May, those from June

through September and including October are my

nastiest times during the year. Hoping this year will

be different and much better for all of us! Generally

from October through April, I am not too bad. IVs are

away of life now even when I am doing well, but I am

fortunate to avoid most colds and other viruses.

Frequent handwashing and generous use of hand

sanitiser must be helping.

Hugs:0)

:o) " Miracles happen with love..... " ..... Please support your local children's

hospital.... and " Give with all your might! "

http://iwkfoundation.org/

:o)Visit.... Children's Miracle Network.... http://www.cmn.org/ :o)

Pre-Lung Transplant Journey

http://www2.caringbridge.org/canada/maryelizabeth/

" I don't give in, I don't give up, and I don't take no for an answer. "

~Doris ~

______________________________________________________________________

Post your free ad now! http://personals.yahoo.ca

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Guest guest

And hubby wonders why I take such loong, hot showers...;) I also use

the time to breathe some steam in and cough stuff up!

I haven't been doing well with the water recently...I get so busy

during the school day, I forget to drink water! Also, I have to time

my drinking so that my bathroom needs don't come at inpportune times...

Karin

>I get great results from standing under a hot shower. I feel so much

better, and can breathe easier. And I can then move a lot of gunk.

It's kinda like the old methods they used for croup, isn't it?

>

I don't care really - whatever works, I'm all for. (Even better if it's

> drug-free)

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Guest guest

Karin, I’m

like you – not so much time to spare.

I generally get

the kiddies organised, take them wherever, then come home and enjoy a leisurely

shower without interruption. Got to be aware of time though – we still

have a major water shortage here.

The steam definitely

works for me – and no risk of pseudo!

Cheryl

----------------------------------------------------------------

Cheryl

, Award Winning Australian Author

http://www.cheryl-wright.com

http://www.savingemma.com

http://www.writer2writer.com

http://www.authorsunlimited.net - check us out!

Saving Emma - #9 Best

Seller February 2005 http://www.whiskeycreekpress.com

-----Original

Message-----

From: bronchiectasis

[mailto:bronchiectasis ]

On Behalf Of Karin

Sent: Monday, 9 May 2005 4:30 AM

To: bronchiectasis

Subject: Re: June

And hubby wonders why I take

such loong, hot showers...;) I also use

the time to

breathe some steam in and cough stuff up!

I haven't

been doing well with the water recently...I get so busy

during the

school day, I forget to drink water! Also, I have to time

my drinking

so that my bathroom needs don't come at inpportune times...

Karin

>I get

great results from standing under a hot shower. I feel so much

better, and can

breathe easier. And I can then move a lot of gunk.

It's kinda

like the old methods they used for croup, isn't it?

>

I don't care

really - whatever works, I'm all for. (Even better if it's

> drug-free)

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Guest guest

Hi , I do agree, we just have to change our mindset and yes

lifestyle. even if it means moving house, job, whatever, its up to us to

make the changes to change attitiude and remind ourselves we are here to

make the most of what we have and learn to live and be happy with our LOT.

We have all had to make huge changes, some you think you will never get

through, but acceptance helps it to happen.

Oh how hard some of us have had to think and rethink, but had to do it, or

DIE or lose each other,

Sandy

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  • 2 weeks later...
Guest guest

I live in Brisbane Theresa. I have found even in summer if the water is a little colder I have to watch it carefully. Thanks for the input. Best wishes Pam

Life is a grindstone.Whether it grinds you down or polishes you up depends on what you are made of.

June

June, you sound much more positive and obviously happy. I am so glad to hear it!

Everything sounds very positive. You must be feeling better!!

Cheryl

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Cheryl , Award Winning Australian Author

http://www.cheryl-wright.com

http://www.savingemma.com

http://www.writer2writer.com

http://www.authorsunlimited.net - check us out!

Saving Emma - #9 Best Seller February 2005 http://www.whiskeycreekpress.com

-----Original Message-----From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of junefraser2002Sent: Friday, 20 May 2005 9:32 PMTo: bronchiectasis Subject: Congratulations Grandma

Sandy, so glad your latest grandaughter is here safely, hope your daughter is ok sounds like she has had quite a time of it. I love the name Leila,)Layla)so many ways of spelling it?Well my son phoned me from Venice at midnight to say he had proposed to and she has accepted, hooray, I get a daughter in law! I spoke to her and she said it was so romantic, on the terrace overlooking Venice lagoon, he presented her with a big bouquet of white roses (her favourite) and got down on one knee. Then Champagne and the people around clapping them. Apparently she was so overwhelmed she cried, so did I when she told me. How wonderful that romance is still alive, what a wonderful memory she will have of this. And the ring fitted perfectly.

Yahoo! MailStay connected, organized, and protected. Take the tour

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Guest guest

-----

I live in Brisbane Theresa. I have found even in summer if the water is a little colder I have to watch it carefully. Thanks for the input. Best wishes Pam

June

June, you sound much more positive and obviously happy. I am so glad to hear it!

Everything sounds very positive. You must be feeling better!!

Cheryl

----------------------------------------------------------------

Cheryl , Award Winning Australian Author

http://www.cheryl-wright.com

http://www.savingemma.com

http://www.writer2writer.com

http://www.authorsunlimited.net - check us out!

Saving Emma - #9 Best Seller February 2005 http://www.whiskeycreekpress.com

-----Original Message-----From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of junefraser2002Sent: Friday, 20 May 2005 9:32 PMTo: bronchiectasis Subject: Congratulations Grandma

Sandy, so glad your latest grandaughter is here safely, hope your daughter is ok sounds like she has had quite a time of it. I love the name Leila,)Layla)so many ways of spelling it?Well my son phoned me from Venice at midnight to say he had proposed to and she has accepted, hooray, I get a daughter in law! I spoke to her and she said it was so romantic, on the terrace overlooking Venice lagoon, he presented her with a big bouquet of white roses (her favourite) and got down on one knee. Then Champagne and the people around clapping them. Apparently she was so overwhelmed she cried, so did I when she told me. How wonderful that romance is still alive, what a wonderful memory she will have of this. And the ring fitted perfectly.

Yahoo! MailStay connected, organized, and protected. Take the tour

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  • 3 weeks later...
Guest guest

I know what you mean , just finished a course of Pred for severe

sinus problems and put on 5 lbs in 10 days. The blurred vision too,

what a strange drug it is. I think your body starts to rely on it to so

it's hard to breathe when you stop it. I've just started on Rhinocort,

hoping it helps clear my nose. Like you I've only developed bad asthma

since the Bronch was diagnosed 3 years ago!

June

> June,

> I did read about the Buteyko breathing and have tried to breathe

> through my nose as much as possible. 

> When I was a child, about 9 years old, I spent a week at UC Hospital

> in San Francisco with severe asthma.  I remember my doctor giving me

> breathing exercises to do.  They did help and through my teens and

> just up until the last 3 years I maintained really well and hardly

> ever took any meds for asthma.  The bronch is whole different story

> I'm learning.

> The saline flush and the Rhinocort nasal spray keep my nasal passages

> open.  I always breathe better on the prednisone, but this last time I

> took it I felt like I was eight months pregnant.  My stomach was so

> bloated, my vision was blurred, my joints and muscles hurt.  I could

> breathe but everything else went to pot.   

> Thanks June..

> :) >

> >ribe

>  

> •

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Guest guest

the bloating etc are the most common side effects of pred, thats why

we hate it so much,

The breathing excersises are great for life, so try and retrain yourself, as

you can do them anywhere, they are great for bronch, asthma, and even sinus,

they also are great for panic/anxiety attacks that we often have, during an

attak, or pending one, especiall if alone, or out somewhere.

There are many great breathing techniques that all apply to and do the same

for all.

Diaphram breathing too is great, you just need to get so familiar with them

that they come second nature, and I can assure you you will always get quick

and good relief.

Its also a great way to bring yourself back in tune with yourself, and learn

to relax.

Sandy ( silly)

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