Re: Advice on anitviral and immune stategy

[Guest guest]

Hi Beth,

I would suggest trying Homeopathy. We have seen many successes (including

behavioral, speech, social, cognitive, GI health) since beginning treatment with

the Homeopathy Center of Houston. My son is now 11-1/2 years old and we started

working with them not quite 1 year ago. The progress with this speech and GI

health in that time has been amazing - we are thrilled with the results so far!

From another " tired and worn out warrior Mom " who also has refused to give up

(and who has now been re-inspired thanks to homeopathy!!),

Advice on anitviral and immune stategy

I have a 9 year old toughnut who we have been treating biomedically

for the last 7 years with only modest success. As discouraged as I

am, I am resolved not to give up. We have seen some of the best

DANs with small improvements and some all out regressions, and spent

the last 2 years doing Yasko, where my son did well on Step I of her

protocol, but just could not tolerate Step 2 (methylation support)

even though we tried it 3 different times over the course of the

last 2 years). He just became too unmanageble with behaviors to

continue on. We get small gains, then regressions, and a waxing and

waning patern with an overall trend of slight improvement. But

still very much autistic and nowhere near out of the woods. I would

say he is moderately affected overall, but on a " good " day can look

more on the milder end, and on a " bad " day can look quite severe.

One area I am convinced we have not done enough with is the immune

and viral component. Quite frankly, I wonder if he has autoimmune

disease.

He has the following significant clinical history:

Very colicky as a baby, but autistic symptoms did not appear until

age 17 months (after the MMR/varicella)

Received Pentocel (a five in one vaccination) in Canada containing

Act-HIB, DTaP, and polio 3 separate times in the first year and a

half of life.

Regressed into autism after MMR/varicella shots at 17 months

Developed severe explosive bowel movments therafter, which has

resolved in recent years thanks to diet and time. But still has bad

OATs and CDSAs. A bacterial and parasitic kid for sure. Used to be

yeast, not so much anymore.

Was a secretin responder initially, then he became refractory to it

(his usual pattern).

Scoped at age 4 and found to have marked colitis and LNH of terminal

ileum by Krigsman

Multiple food sensitivities, SCD and rotation diets help/

In 2001, had antibodies to brain endothelail cells but not upon

repeated testing 2 years later.

A variety of diets and pathogen eliminating strategies helped but

never really " cured " so to speak or did much for language.

Chronically enlarged tonsils.

Autistic symptoms dramatically get better with fever, but he is

rarely sick.

Wonderful responses to Septra (trimethoprim sulfametaxazole) and IM

penicillin on autistic symptoms, but regression once antibiotic is

stopped.

Seems to be a " one hit wonder " , i.e. responds to interventions for a

short time, then regresses again.

Language very delayed (apx 4 yo level)

Had all over welty looking body rash to a 3 day course of OLE Plus

earlier this year. We stopped it, fearing an allergic reaction.

Maybe it weas viral rash though.

Had a major body rask to LDM-100 this fall (a natual antiviral)

which we used for 2 months. Ont he first day of the rash when he

had a fever, he was more lucid and less autistic. That was the only

clinicla benefit we saw and it lasted one day.

Did high dose A protocol when he was 4 but did not see much so never

repeated.

Had sideways eye glancing when he was aged 2-4, which resolved with

CLO.

When tested in 2002, he showed high titers to measles: 3.96 EIA,

reference range >1.1 positive for immunity.

When tested in 2002, he showed high titers to CMV: 5.2 EIA,

reference range >1.1 positive for immunity

When tested in 2002, he showed borderline high titers to HHV 6 IgG:

1:80, reference range equivocal 1:20-1:80

I am desperatly looking for guidance and direction. We have done

many things over the years including chelation, B12, glutathione,

genomic nutrient support, FGF2, secretin, etc. but only really

dabbled with immune viral treatment. Never did IVIG nor an " all

out " antiviral attack.

Any suggestions for a tired and worn out warrior mom refusing to

give up?

Thanks so much,

Beth

[Guest guest]

Beth,

I noticed that you wrote that your child improves - ceases autistic symptoms

when he has fever. Our daughter is exactly the same. She rarely runs fever but

it's amazing to watch her and interact with her when she has fever. I would go

so far as to say it's a miracle - a cure for her autism - her autistic symptoms

just stop. She has eye contact, she's relaxed, she's focused, she wants to read,

she responds to us immediately with appropriate answers, she's pleasant,

compliant, and her speech improves. I really don't know why doctors won't pursue

this. I wish I could replicate the cause and effect - but I just don't

understand it.

,

What are the differences between the treatment you receive from the Homeopathy

Center and the biomedical treatments for autism? Our daughter is 13 and she

isn't " recovered " after years of every treatment and intervention under the sun.

She's extremely improved. LDN is helping her. It's encouraging to hear that your

11 1/2 year old has made progress after being treated for a year using

homeopathic treatments.

Shari

Advice on anitviral and immune stategy

I have a 9 year old toughnut who we have been treating biomedically

for the last 7 years with only modest success. As discouraged as I

am, I am resolved not to give up. We have seen some of the best

DANs with small improvements and some all out regressions, and spent

the last 2 years doing Yasko, where my son did well on Step I of her

protocol, but just could not tolerate Step 2 (methylation support)

even though we tried it 3 different times over the course of the

last 2 years). He just became too unmanageble with behaviors to

continue on. We get small gains, then regressions, and a waxing and

waning patern with an overall trend of slight improvement. But

still very much autistic and nowhere near out of the woods. I would

say he is moderately affected overall, but on a " good " day can look

more on the milder end, and on a " bad " day can look quite severe.

One area I am convinced we have not done enough with is the immune

and viral component. Quite frankly, I wonder if he has autoimmune

disease.

He has the following significant clinical history:

Very colicky as a baby, but autistic symptoms did not appear until

age 17 months (after the MMR/varicella)

Received Pentocel (a five in one vaccination) in Canada containing

Act-HIB, DTaP, and polio 3 separate times in the first year and a

half of life.

Regressed into autism after MMR/varicella shots at 17 months

Developed severe explosive bowel movments therafter, which has

resolved in recent years thanks to diet and time. But still has bad

OATs and CDSAs. A bacterial and parasitic kid for sure. Used to be

yeast, not so much anymore.

Was a secretin responder initially, then he became refractory to it

(his usual pattern).

Scoped at age 4 and found to have marked colitis and LNH of terminal

ileum by Krigsman

Multiple food sensitivities, SCD and rotation diets help/

In 2001, had antibodies to brain endothelail cells but not upon

repeated testing 2 years later.

A variety of diets and pathogen eliminating strategies helped but

never really " cured " so to speak or did much for language.

Chronically enlarged tonsils.

Autistic symptoms dramatically get better with fever, but he is

rarely sick.

Wonderful responses to Septra (trimethoprim sulfametaxazole) and IM

penicillin on autistic symptoms, but regression once antibiotic is

stopped.

Seems to be a " one hit wonder " , i.e. responds to interventions for a

short time, then regresses again.

Language very delayed (apx 4 yo level)

Had all over welty looking body rash to a 3 day course of OLE Plus

earlier this year. We stopped it, fearing an allergic reaction.

Maybe it weas viral rash though.

Had a major body rask to LDM-100 this fall (a natual antiviral)

which we used for 2 months. Ont he first day of the rash when he

had a fever, he was more lucid and less autistic. That was the only

clinicla benefit we saw and it lasted one day.

Did high dose A protocol when he was 4 but did not see much so never

repeated.

Had sideways eye glancing when he was aged 2-4, which resolved with

CLO.

When tested in 2002, he showed high titers to measles: 3.96 EIA,

reference range >1.1 positive for immunity.

When tested in 2002, he showed high titers to CMV: 5.2 EIA,

reference range >1.1 positive for immunity

When tested in 2002, he showed borderline high titers to HHV 6 IgG:

1:80, reference range equivocal 1:20-1:80

I am desperatly looking for guidance and direction. We have done

many things over the years including chelation, B12, glutathione,

genomic nutrient support, FGF2, secretin, etc. but only really

dabbled with immune viral treatment. Never did IVIG nor an " all

out " antiviral attack.

Any suggestions for a tired and worn out warrior mom refusing to

give up?

Thanks so much,

Beth

[Guest guest]

Shari,

Exactly.....

One way to think about this is that autism is an autoimmune

condition. What causes it is the question. V. Singh has been

saying autism is an autoimmune condition for years, and suggests

measles virus may be the etiology. He actually seemed to rule out

thimerisol as a trigger for autoimmunity, based on a study. Others

have other explanations. One interesting one that I am following

with keen interest is that the lack of helminths in out modern

society is repsonsible for autoimmune diseas including autism.

Baiscally the theory goes that the human body's immune sysytem was

calibrated to coexist with helminths, and when they were removed

from our bodies via modern sanitation methods (ie public toilets),

the immune system began attacking itself (autoimmunity) becasue it

was adapted to the helminths and had " lost " that interaction. Have

you seen the remarkable story and amazing improvments of

's formerly severly affected 16 year old son with autism at

www.tsoautism.com ? Unbelievable. I am very tempted to try this

TSO therapy.

A positive response to fever seems to indicate to me at least that

when the immune system is presented with something " legitamate " to

do, it turns it's attention away from attacking itself (in our kid's

case the brain and the gut for sure) and you see improvements. And

then the child regresses again when fever is gone. Autoimmunity?

While I am waiting to see more about this TSO, I am trying to figure

out some holistic stratgies that could be helpful in autoimmune

disorders. One I have come across is Vitamin D. It is one thing we

dropped when dropping the Yasko protocol and I have added it back in

again, at a dose of 1000 IU a day, but may go up to 2000 IU a day.

But we live in the Northeast so we do not get much sun here

especialy in the winter, I am not sure I would give that much if we

lived in the south or in the southwest.

I am also considering virus as the cause of autimmunity, and

mounting an all out attack on virus, though I am not sure how

effective it will be. Seems killing measles virus is a very

difficult task, and my son also has high titers to CMV which I think

is also a difficult virus to eliminate.

Thanks for brainstorming this with me.

Maybe this is a reason why the toughnut kids are still toughnits and

why chelation has not been as effective as we had hoped.

Beth

[Guest guest]

Wow - about the TSO. I glanced at the article - I'll read it in depth later

today. Thank you so much for the information. I assume this is a prescription

for allergies? - I'll have to research this afternoon.....

Shari

Re: Advice on anitviral and immune stategy

Shari,

Exactly.....

One way to think about this is that autism is an autoimmune

condition. What causes it is the question. V. Singh has been

saying autism is an autoimmune condition for years, and suggests

measles virus may be the etiology. He actually seemed to rule out

thimerisol as a trigger for autoimmunity, based on a study. Others

have other explanations. One interesting one that I am following

with keen interest is that the lack of helminths in out modern

society is repsonsible for autoimmune diseas including autism.

Baiscally the theory goes that the human body's immune sysytem was

calibrated to coexist with helminths, and when they were removed

from our bodies via modern sanitation methods (ie public toilets),

the immune system began attacking itself (autoimmunity) becasue it

was adapted to the helminths and had " lost " that interaction. Have

you seen the remarkable story and amazing improvments of

's formerly severly affected 16 year old son with autism at

www.tsoautism.com ? Unbelievable. I am very tempted to try this

TSO therapy.

A positive response to fever seems to indicate to me at least that

when the immune system is presented with something " legitamate " to

do, it turns it's attention away from attacking itself (in our kid's

case the brain and the gut for sure) and you see improvements. And

then the child regresses again when fever is gone. Autoimmunity?

While I am waiting to see more about this TSO, I am trying to figure

out some holistic stratgies that could be helpful in autoimmune

disorders. One I have come across is Vitamin D. It is one thing we

dropped when dropping the Yasko protocol and I have added it back in

again, at a dose of 1000 IU a day, but may go up to 2000 IU a day.

But we live in the Northeast so we do not get much sun here

especialy in the winter, I am not sure I would give that much if we

lived in the south or in the southwest.

I am also considering virus as the cause of autimmunity, and

mounting an all out attack on virus, though I am not sure how

effective it will be. Seems killing measles virus is a very

difficult task, and my son also has high titers to CMV which I think

is also a difficult virus to eliminate.

Thanks for brainstorming this with me.

Maybe this is a reason why the toughnut kids are still toughnits and

why chelation has not been as effective as we had hoped.

Beth

[Guest guest]

Recently on another list, listmates were asked to describe DAN!-oriented

physicians for whom the parents had respect. One comment was quite out of

the ordinary. The parent strongly praised a prominent DAN! doc and

mentioned that (after several years) her child had plateaued. With the

DAN! doc's respectful encouragement, the parents switched to a homeopathy

clinic that treats autistic kids. The parent reported that the child has

now moved well beyond what had been the recovery plateau.

Let's be very clear. I believe that the DAN! approach helps most autistic

kids. However, the lesson from the aforementioned anecdote is that - for

some individual kids after they've reached a plateau - a quite different

approach may be worth looking into and perhaps trying.

- - - -

Advice on anitviral and immune stategy

Posted by: " starfish1995 " starfish1995@... starfish1995

Date: Thu Nov 29, 2007 11:24 am ((PST))

I have a 9 year old toughnut who we have been treating biomedically

for the last 7 years with only modest success...

[Guest guest]

,

May I ask what list that is - I would like to go back and look at

the thread.

Do you have any thoughts on our situation? I do respect your

opinion.

Beth

>

> Recently on another list, listmates were asked to describe DAN!-

oriented

> physicians for whom the parents had respect. One comment was quite

out of

> the ordinary. The parent strongly praised a prominent DAN! doc and

> mentioned that (after several years) her child had plateaued. With

the

> DAN! doc's respectful encouragement, the parents switched to a

homeopathy

> clinic that treats autistic kids. The parent reported that the

child has

> now moved well beyond what had been the recovery plateau.

>

> Let's be very clear. I believe that the DAN! approach helps most

autistic

> kids. However, the lesson from the aforementioned anecdote is

that - for

> some individual kids after they've reached a plateau - a quite

different

> approach may be worth looking into and perhaps trying.

>

>

>

> - - - -

>

> Advice on anitviral and immune stategy

> Posted by: " starfish1995 " starfish1995@... starfish1995

> Date: Thu Nov 29, 2007 11:24 am ((PST))

>

> I have a 9 year old toughnut who we have been treating biomedically

> for the last 7 years with only modest success...

>

[Guest guest]

Hi Shari,

The treatment from the Homeopathy Center of Houston is sequential/integrative

homeopathy.

Previously, from ages 3-10, we had done many various biomed/DAN! treatments

(i.e. diets, chelation, vits/minerals, Valtrex, high dose Vit. A, HBOT, other

anti-viral and anti-bacterial protocols, etc., etc., etc.), as well as Yasko.

It sounds like your daughter is doing well, too - how wonderful!! It's a LOT of

years of hard work under our belts, isn't it? For some of our kids, it has

taken a LOT of interventions and treatments, trying this, that, and the other,

to find what seems to be " key " for them. But, at least we're trying!

Best regards,

Advice on anitviral and immune stategy

I have a 9 year old toughnut who we have been treating biomedically

for the last 7 years with only modest success. As discouraged as I

am, I am resolved not to give up. We have seen some of the best

DANs with small improvements and some all out regressions, and spent

the last 2 years doing Yasko, where my son did well on Step I of her

protocol, but just could not tolerate Step 2 (methylation support)

even though we tried it 3 different times over the course of the

last 2 years). He just became too unmanageble with behaviors to

continue on. We get small gains, then regressions, and a waxing and

waning patern with an overall trend of slight improvement. But

still very much autistic and nowhere near out of the woods. I would

say he is moderately affected overall, but on a " good " day can look

more on the milder end, and on a " bad " day can look quite severe.

One area I am convinced we have not done enough with is the immune

and viral component. Quite frankly, I wonder if he has autoimmune

disease.

He has the following significant clinical history:

Very colicky as a baby, but autistic symptoms did not appear until

age 17 months (after the MMR/varicella)

Received Pentocel (a five in one vaccination) in Canada containing

Act-HIB, DTaP, and polio 3 separate times in the first year and a

half of life.

Regressed into autism after MMR/varicella shots at 17 months

Developed severe explosive bowel movments therafter, which has

resolved in recent years thanks to diet and time. But still has bad

OATs and CDSAs. A bacterial and parasitic kid for sure. Used to be

yeast, not so much anymore.

Was a secretin responder initially, then he became refractory to it

(his usual pattern).

Scoped at age 4 and found to have marked colitis and LNH of terminal

ileum by Krigsman

Multiple food sensitivities, SCD and rotation diets help/

In 2001, had antibodies to brain endothelail cells but not upon

repeated testing 2 years later.

A variety of diets and pathogen eliminating strategies helped but

never really " cured " so to speak or did much for language.

Chronically enlarged tonsils.

Autistic symptoms dramatically get better with fever, but he is

rarely sick.

Wonderful responses to Septra (trimethoprim sulfametaxazole) and IM

penicillin on autistic symptoms, but regression once antibiotic is

stopped.

Seems to be a " one hit wonder " , i.e. responds to interventions for a

short time, then regresses again.

Language very delayed (apx 4 yo level)

Had all over welty looking body rash to a 3 day course of OLE Plus

earlier this year. We stopped it, fearing an allergic reaction.

Maybe it weas viral rash though.

Had a major body rask to LDM-100 this fall (a natual antiviral)

which we used for 2 months. Ont he first day of the rash when he

had a fever, he was more lucid and less autistic. That was the only

clinicla benefit we saw and it lasted one day.

Did high dose A protocol when he was 4 but did not see much so never

repeated.

Had sideways eye glancing when he was aged 2-4, which resolved with

CLO.

When tested in 2002, he showed high titers to measles: 3.96 EIA,

reference range >1.1 positive for immunity.

When tested in 2002, he showed high titers to CMV: 5.2 EIA,

reference range >1.1 positive for immunity

When tested in 2002, he showed borderline high titers to HHV 6 IgG:

1:80, reference range equivocal 1:20-1:80

I am desperatly looking for guidance and direction. We have done

many things over the years including chelation, B12, glutathione,

genomic nutrient support, FGF2, secretin, etc. but only really

dabbled with immune viral treatment. Never did IVIG nor an " all

out " antiviral attack.

Any suggestions for a tired and worn out warrior mom refusing to

give up?

Thanks so much,

Beth

[Guest guest]

,

Thanks. I'm glad to know there may still be hope in other forms of therapies.

AIT was the first therapy that was " miracle' in nature for our daughter. We, too

have done diet, anti-virals, anti-fungals, anti-bacterial, probiotics, MB12,

chelation, ionic supplements, ABA, sensory integration, speech, OT, PT,

chiropractic, HGH patches, clay baths, LDN, etc....... We haven't tried HBOT.

She's taking prescription medication for acid reflux and seizures - as well as

valtrex and diflucan.

I certainly understand about all of the years of hard work. It's really worth it

just to see her improve even a small amount. I think her gut is probably one of

her main issues. When she's constipated then her autistic characteristics are

full blown. We battle constipation daily.

Thank you for your encouraging words. I'll check out homeopathy treatments. And,

I'm going to read up on the TSO treatment for the gut.

Shari

Advice on anitviral and immune stategy

I have a 9 year old toughnut who we have been treating biomedically

for the last 7 years with only modest success. As discouraged as I

am, I am resolved not to give up. We have seen some of the best

DANs with small improvements and some all out regressions, and spent

the last 2 years doing Yasko, where my son did well on Step I of her

protocol, but just could not tolerate Step 2 (methylation support)

even though we tried it 3 different times over the course of the

last 2 years). He just became too unmanageble with behaviors to

continue on. We get small gains, then regressions, and a waxing and

waning patern with an overall trend of slight improvement. But

still very much autistic and nowhere near out of the woods. I would

say he is moderately affected overall, but on a " good " day can look

more on the milder end, and on a " bad " day can look quite severe.

One area I am convinced we have not done enough with is the immune

and viral component. Quite frankly, I wonder if he has autoimmune

disease.

He has the following significant clinical history:

Very colicky as a baby, but autistic symptoms did not appear until

age 17 months (after the MMR/varicella)

Received Pentocel (a five in one vaccination) in Canada containing

Act-HIB, DTaP, and polio 3 separate times in the first year and a

half of life.

Regressed into autism after MMR/varicella shots at 17 months

Developed severe explosive bowel movments therafter, which has

resolved in recent years thanks to diet and time. But still has bad

OATs and CDSAs. A bacterial and parasitic kid for sure. Used to be

yeast, not so much anymore.

Was a secretin responder initially, then he became refractory to it

(his usual pattern).

Scoped at age 4 and found to have marked colitis and LNH of terminal

ileum by Krigsman

Multiple food sensitivities, SCD and rotation diets help/

In 2001, had antibodies to brain endothelail cells but not upon

repeated testing 2 years later.

A variety of diets and pathogen eliminating strategies helped but

never really " cured " so to speak or did much for language.

Chronically enlarged tonsils.

Autistic symptoms dramatically get better with fever, but he is

rarely sick.

Wonderful responses to Septra (trimethoprim sulfametaxazole) and IM

penicillin on autistic symptoms, but regression once antibiotic is

stopped.

Seems to be a " one hit wonder " , i.e. responds to interventions for a

short time, then regresses again.

Language very delayed (apx 4 yo level)

Had all over welty looking body rash to a 3 day course of OLE Plus

earlier this year. We stopped it, fearing an allergic reaction.

Maybe it weas viral rash though.

Had a major body rask to LDM-100 this fall (a natual antiviral)

which we used for 2 months. Ont he first day of the rash when he

had a fever, he was more lucid and less autistic. That was the only

clinicla benefit we saw and it lasted one day.

Did high dose A protocol when he was 4 but did not see much so never

repeated.

Had sideways eye glancing when he was aged 2-4, which resolved with

CLO.

When tested in 2002, he showed high titers to measles: 3.96 EIA,

reference range >1.1 positive for immunity.

When tested in 2002, he showed high titers to CMV: 5.2 EIA,

reference range >1.1 positive for immunity

When tested in 2002, he showed borderline high titers to HHV 6 IgG:

1:80, reference range equivocal 1:20-1:80

I am desperatly looking for guidance and direction. We have done

many things over the years including chelation, B12, glutathione,

genomic nutrient support, FGF2, secretin, etc. but only really

dabbled with immune viral treatment. Never did IVIG nor an " all

out " antiviral attack.

Any suggestions for a tired and worn out warrior mom refusing to

give up?

Thanks so much,

Beth

[Guest guest]

My son 2.3 y.o is already 2 months on OLE

and Garlic (and one month on Lauricidin 50 pillets 3

times a day)– he is very good responded to antivirals

- probably I am supposed to rotate Natural

antibacterial antivirals for more efficiency ? If

someone could suggest a good working protocol?

I remember someone did reply and you were going to

send you such a protocol - but I accidentally deleted

it and could not find anymore.

Thanks.

Elena

--- starfish1995 wrote:

> I have a 9 year old toughnut who we have been

> treating biomedically

> for the last 7 years with only modest success. As

> discouraged as I

> am, I am resolved not to give up. We have seen some

> of the best

> DANs with small improvements and some all out

> regressions, and spent

> the last 2 years doing Yasko, where my son did well

> on Step I of her

> protocol, but just could not tolerate Step 2

> (methylation support)

> even though we tried it 3 different times over the

> course of the

> last 2 years). He just became too unmanageble with

> behaviors to

> continue on. We get small gains, then regressions,

> and a waxing and

> waning patern with an overall trend of slight

> improvement. But

> still very much autistic and nowhere near out of the

> woods. I would

> say he is moderately affected overall, but on a

> " good " day can look

> more on the milder end, and on a " bad " day can look

> quite severe.

>

> One area I am convinced we have not done enough with

> is the immune

> and viral component. Quite frankly, I wonder if he

> has autoimmune

> disease.

>

> He has the following significant clinical history:

>

> Very colicky as a baby, but autistic symptoms did

> not appear until

> age 17 months (after the MMR/varicella)

> Received Pentocel (a five in one vaccination) in

> Canada containing

> Act-HIB, DTaP, and polio 3 separate times in the

> first year and a

> half of life.

> Regressed into autism after MMR/varicella shots at

> 17 months

> Developed severe explosive bowel movments therafter,

> which has

> resolved in recent years thanks to diet and time.

> But still has bad

> OATs and CDSAs. A bacterial and parasitic kid for

> sure. Used to be

> yeast, not so much anymore.

> Was a secretin responder initially, then he became

> refractory to it

> (his usual pattern).

> Scoped at age 4 and found to have marked colitis and

> LNH of terminal

> ileum by Krigsman

> Multiple food sensitivities, SCD and rotation diets

> help/

> In 2001, had antibodies to brain endothelail cells

> but not upon

> repeated testing 2 years later.

> A variety of diets and pathogen eliminating

> strategies helped but

> never really " cured " so to speak or did much for

> language.

> Chronically enlarged tonsils.

> Autistic symptoms dramatically get better with

> fever, but he is

> rarely sick.

> Wonderful responses to Septra (trimethoprim

> sulfametaxazole) and IM

> penicillin on autistic symptoms, but regression once

> antibiotic is

> stopped.

> Seems to be a " one hit wonder " , i.e. responds to

> interventions for a

> short time, then regresses again.

> Language very delayed (apx 4 yo level)

> Had all over welty looking body rash to a 3 day

> course of OLE Plus

> earlier this year. We stopped it, fearing an

> allergic reaction.

> Maybe it weas viral rash though.

> Had a major body rask to LDM-100 this fall (a natual

> antiviral)

> which we used for 2 months. Ont he first day of the

> rash when he

> had a fever, he was more lucid and less autistic.

> That was the only

> clinicla benefit we saw and it lasted one day.

> Did high dose A protocol when he was 4 but did not

> see much so never

> repeated.

> Had sideways eye glancing when he was aged 2-4,

> which resolved with

> CLO.

> When tested in 2002, he showed high titers to

> measles: 3.96 EIA,

> reference range >1.1 positive for immunity.

> When tested in 2002, he showed high titers to CMV:

> 5.2 EIA,

> reference range >1.1 positive for immunity

> When tested in 2002, he showed borderline high

> titers to HHV 6 IgG:

> 1:80, reference range equivocal 1:20-1:80

>

> I am desperatly looking for guidance and direction.

> We have done

> many things over the years including chelation, B12,

> glutathione,

> genomic nutrient support, FGF2, secretin, etc. but

> only really

> dabbled with immune viral treatment. Never did IVIG

> nor an " all

> out " antiviral attack.

>

> Any suggestions for a tired and worn out warrior mom

> refusing to

> give up?

>

> Thanks so much,

>

> Beth

>

>

________________________________________________________________________________\

____

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[Guest guest]

Hi.. if you deleted a message you can always go to the list on the

web and do a search for it. Hope this helps

Moderator

>

> > I have a 9 year old toughnut who we have been

> > treating biomedically

> > for the last 7 years with only modest success. As

> > discouraged as I

> > am, I am resolved not to give up. We have seen some

> > of the best

> > DANs with small improvements and some all out

> > regressions, and spent

> > the last 2 years doing Yasko, where my son did well

> > on Step I of her

> > protocol, but just could not tolerate Step 2

> > (methylation support)

> > even though we tried it 3 different times over the

> > course of the

> > last 2 years). He just became too unmanageble with

> > behaviors to

> > continue on. We get small gains, then regressions,

> > and a waxing and

> > waning patern with an overall trend of slight

> > improvement. But

> > still very much autistic and nowhere near out of the

> > woods. I would

> > say he is moderately affected overall, but on a

> > " good " day can look

> > more on the milder end, and on a " bad " day can look

> > quite severe.

> >

> > One area I am convinced we have not done enough with

> > is the immune

> > and viral component. Quite frankly, I wonder if he

> > has autoimmune

> > disease.

> >

> > He has the following significant clinical history:

> >

> > Very colicky as a baby, but autistic symptoms did

> > not appear until

> > age 17 months (after the MMR/varicella)

> > Received Pentocel (a five in one vaccination) in

> > Canada containing

> > Act-HIB, DTaP, and polio 3 separate times in the

> > first year and a

> > half of life.

> > Regressed into autism after MMR/varicella shots at

> > 17 months

> > Developed severe explosive bowel movments therafter,

> > which has

> > resolved in recent years thanks to diet and time.

> > But still has bad

> > OATs and CDSAs. A bacterial and parasitic kid for

> > sure. Used to be

> > yeast, not so much anymore.

> > Was a secretin responder initially, then he became

> > refractory to it

> > (his usual pattern).

> > Scoped at age 4 and found to have marked colitis and

> > LNH of terminal

> > ileum by Krigsman

> > Multiple food sensitivities, SCD and rotation diets

> > help/

> > In 2001, had antibodies to brain endothelail cells

> > but not upon

> > repeated testing 2 years later.

> > A variety of diets and pathogen eliminating

> > strategies helped but

> > never really " cured " so to speak or did much for

> > language.

> > Chronically enlarged tonsils.

> > Autistic symptoms dramatically get better with

> > fever, but he is

> > rarely sick.

> > Wonderful responses to Septra (trimethoprim

> > sulfametaxazole) and IM

> > penicillin on autistic symptoms, but regression once

> > antibiotic is

> > stopped.

> > Seems to be a " one hit wonder " , i.e. responds to

> > interventions for a

> > short time, then regresses again.

> > Language very delayed (apx 4 yo level)

> > Had all over welty looking body rash to a 3 day

> > course of OLE Plus

> > earlier this year. We stopped it, fearing an

> > allergic reaction.

> > Maybe it weas viral rash though.

> > Had a major body rask to LDM-100 this fall (a natual

> > antiviral)

> > which we used for 2 months. Ont he first day of the

> > rash when he

> > had a fever, he was more lucid and less autistic.

> > That was the only

> > clinicla benefit we saw and it lasted one day.

> > Did high dose A protocol when he was 4 but did not

> > see much so never

> > repeated.

> > Had sideways eye glancing when he was aged 2-4,

> > which resolved with

> > CLO.

> > When tested in 2002, he showed high titers to

> > measles: 3.96 EIA,

> > reference range >1.1 positive for immunity.

> > When tested in 2002, he showed high titers to CMV:

> > 5.2 EIA,

> > reference range >1.1 positive for immunity

> > When tested in 2002, he showed borderline high

> > titers to HHV 6 IgG:

> > 1:80, reference range equivocal 1:20-1:80

> >

> > I am desperatly looking for guidance and direction.

> > We have done

> > many things over the years including chelation, B12,

> > glutathione,

> > genomic nutrient support, FGF2, secretin, etc. but

> > only really

> > dabbled with immune viral treatment. Never did IVIG

> > nor an " all

> > out " antiviral attack.

> >

> > Any suggestions for a tired and worn out warrior mom

> > refusing to

> > give up?

> >

> > Thanks so much,

> >

> > Beth

> >

> >

>

>

>

>

>

>

>

______________________________________________________________________

______________

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> Find them fast with Yahoo! Search.

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>

[Guest guest]

Beth,

As another immune boost strategy, you may want to consider also

homeopathic post vaccination kits (including MMR, DPT, Polio,

Hep.. A good description is available at:

http://www.elixirs.com/products.cfm?productcode=S94U, but I prefer

to buy them directly from the manufacturer (http://celletech.com/).

We got excellent results by using two rounds of all of these kits

(in parallel with the DAN protocol). I would like to know if other

parents tried them.

Marin

>

> Hi Beth,

>

> I would suggest trying Homeopathy. We have seen many successes

(including behavioral, speech, social, cognitive, GI health) since

beginning treatment with the Homeopathy Center of Houston. My son

is now 11-1/2 years old and we started working with them not quite 1

year ago. The progress with this speech and GI health in that time

has been amazing - we are thrilled with the results so far!

>

> From another " tired and worn out warrior Mom " who also has refused

to give up (and who has now been re-inspired thanks to homeopathy!!),

>

>

> Advice on anitviral and immune stategy

>

>

> I have a 9 year old toughnut who we have been treating

biomedically

> for the last 7 years with only modest success. As discouraged as

I

> am, I am resolved not to give up. We have seen some of the best

> DANs with small improvements and some all out regressions, and

spent

> the last 2 years doing Yasko, where my son did well on Step I of

her

> protocol, but just could not tolerate Step 2 (methylation

support)

> even though we tried it 3 different times over the course of the

> last 2 years). He just became too unmanageble with behaviors to

> continue on. We get small gains, then regressions, and a waxing

and

> waning patern with an overall trend of slight improvement. But

> still very much autistic and nowhere near out of the woods. I

would

> say he is moderately affected overall, but on a " good " day can

look

> more on the milder end, and on a " bad " day can look quite severe.

>

> One area I am convinced we have not done enough with is the

immune

> and viral component. Quite frankly, I wonder if he has

autoimmune

> disease.

>

> He has the following significant clinical history:

>

> Very colicky as a baby, but autistic symptoms did not appear

until

> age 17 months (after the MMR/varicella)

> Received Pentocel (a five in one vaccination) in Canada

containing

> Act-HIB, DTaP, and polio 3 separate times in the first year and

a

> half of life.

> Regressed into autism after MMR/varicella shots at 17 months

> Developed severe explosive bowel movments therafter, which has

> resolved in recent years thanks to diet and time. But still has

bad

> OATs and CDSAs. A bacterial and parasitic kid for sure. Used to

be

> yeast, not so much anymore.

> Was a secretin responder initially, then he became refractory to

it

> (his usual pattern).

> Scoped at age 4 and found to have marked colitis and LNH of

terminal

> ileum by Krigsman

> Multiple food sensitivities, SCD and rotation diets help/

> In 2001, had antibodies to brain endothelail cells but not upon

> repeated testing 2 years later.

> A variety of diets and pathogen eliminating strategies helped

but

> never really " cured " so to speak or did much for language.

> Chronically enlarged tonsils.

> Autistic symptoms dramatically get better with fever, but he is

> rarely sick.

> Wonderful responses to Septra (trimethoprim sulfametaxazole) and

IM

> penicillin on autistic symptoms, but regression once antibiotic

is

> stopped.

> Seems to be a " one hit wonder " , i.e. responds to interventions

for a

> short time, then regresses again.

> Language very delayed (apx 4 yo level)

> Had all over welty looking body rash to a 3 day course of OLE

Plus

> earlier this year. We stopped it, fearing an allergic reaction.

> Maybe it weas viral rash though.

> Had a major body rask to LDM-100 this fall (a natual antiviral)

> which we used for 2 months. Ont he first day of the rash when he

> had a fever, he was more lucid and less autistic. That was the

only

> clinicla benefit we saw and it lasted one day.

> Did high dose A protocol when he was 4 but did not see much so

never

> repeated.

> Had sideways eye glancing when he was aged 2-4, which resolved

with

> CLO.

> When tested in 2002, he showed high titers to measles: 3.96 EIA,

> reference range >1.1 positive for immunity.

> When tested in 2002, he showed high titers to CMV: 5.2 EIA,

> reference range >1.1 positive for immunity

> When tested in 2002, he showed borderline high titers to HHV 6

IgG:

> 1:80, reference range equivocal 1:20-1:80

>

> I am desperatly looking for guidance and direction. We have done

> many things over the years including chelation, B12,

glutathione,

> genomic nutrient support, FGF2, secretin, etc. but only really

> dabbled with immune viral treatment. Never did IVIG nor an " all

> out " antiviral attack.

>

> Any suggestions for a tired and worn out warrior mom refusing to

> give up?

>

> Thanks so much,

>

> Beth

>

>

>

>

>

>