Guest guest Posted November 20, 2001 Report Share Posted November 20, 2001 Hi Teri May I also extend happy Thanksgiving thoughts to you, and all fellow Americans. I am sure I speak for everyone when I say special thoughts are with you this year in particular. Good luck with your surgery on December 7th, I am absolutely sure you will be fine, and hopefully swooshing free!!!! I am seeing a neurosurgeon tomorrow evening, which will probably result in major surgery on my spine sometime after Christmas, although I am hoping of course that this will not be necessary, but neurosurgeons really only operate, or send you away. Well so I am reliably informed anyway. I have a holiday from 5-12 December in Lanzarote, so hoping that some winter sunshine will set me in good stead. I will happily say prayers for you. Best wishes UK Re: Thanksgiving Thanks for the " happy thanksgiving " thoughts, Pierre. We sure need to be thankful for all the freedoms, love, opportunities, etc., that we have in America, and be thankful that we ARE Americans (no offense to any other countries). I haven't posted lately, because my IGAN has been fine and my BP meds have been keeping my BP regulated. I've also had to concentrate on an ear problem I've had for 7 years, but that has recently got more annoying. I hear a " swooshing " noise in my right ear, almost like hearing a fetus' heartbeat on an ultrasound. I've been able to deal with this for 7 years because I usually only noticed it at night or when it was really quiet. For some reason, in the last couple of months the noise has gotten louder and I hear it all day/night long. It's driving me insane, so I decided to talk to an ENT about anything that could be done. The only medical thing they can do for me is a surgery in which they go in through the neck (under the jawline) and tie off the internal jugular vein branch that goes around the ear. The bloodflow through this vein is what is making so much noise. I'm having this surgery on Fri., Dec. 7th. It's a short day surgery, although I'm pretty nervous about it and a little upset about having a small scar on my neck. But I'll worry about that later. I would appreciate any prayers (for those of you who pray). Hope everyone is doing okay with their IGAN. Maybe we could get an update from everyone, since the postings have been slow lately? Teri in Texas > We already had our Thanksgiving a month ago, but before all you Americans > rush off to the airport for the 2 hour wait, I thought I would wish all of > you a very happy Thanksgiving. > Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2001 Report Share Posted November 20, 2001 Good luck on your surgery and yes my prayers are with you:) I hope you are as healthy as can be !And yes the postings have been slow lately and Pierre i miss the ranting of ,was it Sam?,the constant complaints and the the everyday problems solved here. I read the groups everyday but lately have found them to be slowing down. Seems like everyone is healthy and i hope they are.As for me just to update i am in the alternate day 40 mg predisone therapy and i am in my 5 week.Moods have calmed down and things look positive .i will be going in for my 24hr pee-in-red-jug on the 28th of this month and hope fully the prednisone is working! anyways that my 2 bits for the day god be with you teri! Re: Thanksgiving > Thanks for the " happy thanksgiving " thoughts, Pierre. We sure need > to be thankful for all the freedoms, love, opportunities, etc., that > we have in America, and be thankful that we ARE Americans (no offense > to any other countries). > > I haven't posted lately, because my IGAN has been fine and my BP meds > have been keeping my BP regulated. I've also had to concentrate on > an ear problem I've had for 7 years, but that has recently got more > annoying. I hear a " swooshing " noise in my right ear, almost like > hearing a fetus' heartbeat on an ultrasound. I've been able to deal > with this for 7 years because I usually only noticed it at night or > when it was really quiet. > > For some reason, in the last couple of months the noise has gotten > louder and I hear it all day/night long. It's driving me insane, so > I decided to talk to an ENT about anything that could be done. The > only medical thing they can do for me is a surgery in which they go > in through the neck (under the jawline) and tie off the internal > jugular vein branch that goes around the ear. The bloodflow through > this vein is what is making so much noise. > > I'm having this surgery on Fri., Dec. 7th. It's a short day surgery, > although I'm pretty nervous about it and a little upset about having > a small scar on my neck. But I'll worry about that later. I would > appreciate any prayers (for those of you who pray). > > Hope everyone is doing okay with their IGAN. Maybe we could get an > update from everyone, since the postings have been slow lately? > > Teri in Texas > > > We already had our Thanksgiving a month ago, but before all you > Americans > > rush off to the airport for the 2 hour wait, I thought I would wish > all of > > you a very happy Thanksgiving. > > Pierre > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2001 Report Share Posted November 20, 2001 Well, ranting and complaints are always welcome, as long as they have something to do with IgAN : ) Good luck with your pee collection Dave. Pierre Re: Thanksgiving > > > > Thanks for the " happy thanksgiving " thoughts, Pierre. We sure need > > to be thankful for all the freedoms, love, opportunities, etc., that > > we have in America, and be thankful that we ARE Americans (no offense > > to any other countries). > > > > I haven't posted lately, because my IGAN has been fine and my BP meds > > have been keeping my BP regulated. I've also had to concentrate on > > an ear problem I've had for 7 years, but that has recently got more > > annoying. I hear a " swooshing " noise in my right ear, almost like > > hearing a fetus' heartbeat on an ultrasound. I've been able to deal > > with this for 7 years because I usually only noticed it at night or > > when it was really quiet. > > > > For some reason, in the last couple of months the noise has gotten > > louder and I hear it all day/night long. It's driving me insane, so > > I decided to talk to an ENT about anything that could be done. The > > only medical thing they can do for me is a surgery in which they go > > in through the neck (under the jawline) and tie off the internal > > jugular vein branch that goes around the ear. The bloodflow through > > this vein is what is making so much noise. > > > > I'm having this surgery on Fri., Dec. 7th. It's a short day surgery, > > although I'm pretty nervous about it and a little upset about having > > a small scar on my neck. But I'll worry about that later. I would > > appreciate any prayers (for those of you who pray). > > > > Hope everyone is doing okay with their IGAN. Maybe we could get an > > update from everyone, since the postings have been slow lately? > > > > Teri in Texas > > > > > We already had our Thanksgiving a month ago, but before all you > > Americans > > > rush off to the airport for the 2 hour wait, I thought I would wish > > all of > > > you a very happy Thanksgiving. > > > Pierre > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2001 Report Share Posted November 24, 2001 Last question.... The tip of my index finger is numb....No feeling ( maybe slight tingling). No history of trauma or injury. Also, i have an small xemic rash on my leg that does not go away or change in size....Are these related to IgAN???? _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2001 Report Share Posted November 25, 2001 Could be. Is the rash purple-ish? Some people believe that IgAN is a subset of the disease HSP, that is, only the renal manifestations. There are some cases where there is a bit overlap and patients get some HSP symptoms in a minor way. Don't know about the numb fingertip. My guess would be a BP med side effect - nothing to worry about. I'm not a doctor though. Pierre Re: Re: Thanksgiving > > Last question.... > > The tip of my index finger is numb....No feeling ( maybe slight tingling). > No history of trauma or injury. Also, i have an small xemic rash on my > leg that does not go away or change in size....Are these related to IgAN???? > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2001 Report Share Posted November 25, 2001 Could be. Is the rash purple-ish? Some people believe that IgAN is a subset of the disease HSP, that is, only the renal manifestations. There are some cases where there is a bit overlap and patients get some HSP symptoms in a minor way. Don't know about the numb fingertip. My guess would be a BP med side effect - nothing to worry about. I'm not a doctor though. Pierre Re: Re: Thanksgiving > > Last question.... > > The tip of my index finger is numb....No feeling ( maybe slight tingling). > No history of trauma or injury. Also, i have an small xemic rash on my > leg that does not go away or change in size....Are these related to IgAN???? > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2001 Report Share Posted November 25, 2001 Could be. Is the rash purple-ish? Some people believe that IgAN is a subset of the disease HSP, that is, only the renal manifestations. There are some cases where there is a bit overlap and patients get some HSP symptoms in a minor way. Don't know about the numb fingertip. My guess would be a BP med side effect - nothing to worry about. I'm not a doctor though. Pierre Re: Re: Thanksgiving > > Last question.... > > The tip of my index finger is numb....No feeling ( maybe slight tingling). > No history of trauma or injury. Also, i have an small xemic rash on my > leg that does not go away or change in size....Are these related to IgAN???? > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2001 Report Share Posted November 25, 2001 Could be. Is the rash purple-ish? Some people believe that IgAN is a subset of the disease HSP, that is, only the renal manifestations. There are some cases where there is a bit overlap and patients get some HSP symptoms in a minor way. Don't know about the numb fingertip. My guess would be a BP med side effect - nothing to worry about. I'm not a doctor though. Pierre Re: Re: Thanksgiving > > Last question.... > > The tip of my index finger is numb....No feeling ( maybe slight tingling). > No history of trauma or injury. Also, i have an small xemic rash on my > leg that does not go away or change in size....Are these related to IgAN???? > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > > > Quote Link to comment Share on other sites More sharing options...
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