Re: Vision issues, Side glances,etc

[Guest guest]

vit A MIGHT be low, or low cal

Vision issues, Side glances,etc

My 4 year-old side-glances alot and rub his eyes during ABA trials if

things are put close to him--as if they are too busy or hard to

process. I know this is a sensory processing issue, but others have

seemed to say it goes away with the GCF diet. My son is GCF and other

IgG sensitivities are removed. Does this mean I am not getting all of

the gluten/casein/other sensitivities out of his diet or is there some

other intervention I need to look into? Are there vision specialists

out there for children with Autism? I am in Michigan. Thx.

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10:12 AM

[Guest guest]

Hello

> vit A MIGHT be low, or low cal

Does he wear colorimeter or Irlen lenses? I found these helped my

sideways looking. Either that or he may find eye contact distressing

and this is instead of full eye contact.

is

> Vision issues, Side glances,etc

>

>

> My 4 year-old side-glances alot and rub his eyes during ABA trials if

> things are put close to him--as if they are too busy or hard to

> process. I know this is a sensory processing issue, but others have

> seemed to say it goes away with the GCF diet. My son is GCF and other

> IgG sensitivities are removed. Does this mean I am not getting all of

> the gluten/casein/other sensitivities out of his diet or is there some

> other intervention I need to look into? Are there vision specialists

> out there for children with Autism? I am in Michigan. Thx.

>

>

>

>

>

>

> ------------------------------------------------------------------------------

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.503 / Virus Database: 269.15.29/1124 - Release Date: 11/11/2007

10:12 AM

>

>

>

[Guest guest]

Hi! My son (2 y, 10 mo) des visual stimming a lot. He likes lookigna

t things that move and if thigns don't move, he makes them move by

either mivign his body or his head or by wavign the object in front

of his face. If there are no objects around he would wave his finger

in front of his face. Someone posted a web resource about vision

therapy www.covd.org I am still checking.

My sister-in-law in Spokane, WA told me about this doctor who found

out that her 10-year old twins who have 20/20 vision are legally

blind, that was why they could not learn anything she teaches them

(she home schools. I doubt that my son could not see but how sees is

what I want to find out.

Sheila

> > vit A MIGHT be low, or low cal

>

> Does he wear colorimeter or Irlen lenses? I found these helped my

> sideways looking. Either that or he may find eye contact distressing

> and this is instead of full eye contact.

>

> is

> > Vision issues, Side glances,etc

> >

> >

> > My 4 year-old side-glances alot and rub his eyes during ABA

trials if

> > things are put close to him--as if they are too busy or hard to

> > process. I know this is a sensory processing issue, but others

have

> > seemed to say it goes away with the GCF diet. My son is GCF and

other

> > IgG sensitivities are removed. Does this mean I am not getting

all of

> > the gluten/casein/other sensitivities out of his diet or is

there some

> > other intervention I need to look into? Are there vision

specialists

> > out there for children with Autism? I am in Michigan. Thx.

> >

> >

> >

> >

> >

> >

> > ------------------------------------------------------------------

------------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG Free Edition.

> > Version: 7.5.503 / Virus Database: 269.15.29/1124 - Release

Date: 11/11/2007 10:12 AM

> >

> >

> >

[Guest guest]

we got rid of this in 4 hours with vit A by klair labs, it was related to

measels living in the body, using up the vit A leaving my son low

Vision issues, Side glances,etc

> >

> >

> > My 4 year-old side-glances alot and rub his eyes during ABA

trials if

> > things are put close to him--as if they are too busy or hard to

> > process. I know this is a sensory processing issue, but others

have

> > seemed to say it goes away with the GCF diet. My son is GCF and

other

> > IgG sensitivities are removed. Does this mean I am not getting

all of

> > the gluten/casein/other sensitivities out of his diet or is

there some

> > other intervention I need to look into? Are there vision

specialists

> > out there for children with Autism? I am in Michigan. Thx.

> >

> >

> >

> >

> >

> >

> > ----------------------------------------------------------

------------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG Free Edition.

> > Version: 7.5.503 / Virus Database: 269.15.29/1124 - Release

Date: 11/11/2007 10:12 AM

> >

> >

> >

[Guest guest]

Hello

> we got rid of this in 4 hours with vit A by klair labs, it was related to

measels living in the body, using up the vit A leaving my son low

i would like to do a high dose vitamin A but i dont know how much to

take. i have some tablets with 100% RDA on them so i dont know how

many to take.

Any ideas?

is

[Guest guest]

I am sorry for the bad typo errors...I probably need some vision

therapy myself I have been giving my son 4 drops of micellized

Vit A from Klaire Labs for more than 3 months. I still wonder. Thanks

for sharing the info though.

Sheila

> > > vit A MIGHT be low, or low cal

> >

> > Does he wear colorimeter or Irlen lenses? I found these helped

my

> > sideways looking. Either that or he may find eye contact

distressing

> > and this is instead of full eye contact.

> >

> > is

> > > Vision issues, Side glances,etc

> > >

> > >

> > > My 4 year-old side-glances alot and rub his eyes during ABA

> trials if

> > > things are put close to him--as if they are too busy or hard

to

> > > process. I know this is a sensory processing issue, but

others

> have

> > > seemed to say it goes away with the GCF diet. My son is GCF

and

> other

> > > IgG sensitivities are removed. Does this mean I am not

getting

> all of

> > > the gluten/casein/other sensitivities out of his diet or is

> there some

> > > other intervention I need to look into? Are there vision

> specialists

> > > out there for children with Autism? I am in Michigan. Thx.

> > >

> > >

> > >

> > >

> > >

> > >

> > > ----------------------------------------------------------

> ------------

> > >

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG Free Edition.

> > > Version: 7.5.503 / Virus Database: 269.15.29/1124 - Release

> Date: 11/11/2007 10:12 AM

> > >

> > >

> > >

[Guest guest]

Below is previous post from Dr. McCandless on Vitamin A therapy. This

was ONLY developed for those who suffer from measles in the gut due

to MMR vaccine. It must be done with Mycelized A and NOT CLO or other

combo. There are guidelines to determine whether the person is

candidate for this therapy that must be followed for safety and Dr.

JM recommends testing to establish whether the criteria are met for

needing the therapy. It is not meant for everyone with vision issues

necessarily-or gut issues. All that said for newbies to Autism

treatment or others who may have missed this earlier, it has helped a

lot of children but again, must be done safely and per the guidelines.

All the best,

Moderator

Edited message from Dr. McCandless:

The high dose should be given as a bolus (all at once in the morning -

it has a better wallop to the viruses, and also so the child can be

observed and made sure he/she stays awake, as coma might not be

noticed at night. (It has never happened to any DAN! child as far as

I know, and I don't want it to)

Side effects to watch for on the first day of dosing would be; a

rough scruffy neck rash, headache, nausea/vomiting, sleepiness (do

not let kids go to sleep) - if any of these happen the parents should

not go on to give the next dose. Just drink lots and lots of water

and keep awake. If child does have severe any of these, go to ER for

IV fluids (never happened, but parents need to know what to do) just

in case

..

Dr. Megson has never advocated the high dose Vitamin A - she likes

only the natural A in CLO whereas I have had much, much success with

Klaire's Mycelized Vit A, 5000iu per drop, BUT when parents observe

the guidelines. If a child indeed has gut measles, the measles virus

will devour Vit A so it can not be toxic, otherwise toxicity is a

possibility.

Vitamin A is the only treatment for measles other than supportive

measures. LDN will not eradicate measles virus, and I know of no

anti-viral that is effective, natural or prescriptive. After the

high dose, the child should be on a daily maintenance dose, from

5000iu (tiny kids) to 25,000iu daily for bigger kids between the

every six-month high dose.

===================================================================

CLARIFICATION ON THE VITAMIN A ISSUE

Sidney Mac Baker, M.D. and Jaquelyn McCandless, M.D.

Internet posting on an autism parent-support list has revealed some

potentially harmful misunderstanding on some parents' part concerning

the use of Vitamin A. The speculation that Vitamin A may benefit

children with persistent measles vaccine virus problems as has been

shown for hospitalized children with acute wild measles infections

has led to some parents using the mega-dosing regime with or without

medical supervision with variations of dosing and agents. A recent

post from a parent who was giving mega-doses to her child for 4 days

in a row wanted to know if she should increase the dose even more,

even though her child was showing alternating lethargy and

hyperactivity, because he hadn't yet gotten what she called

the " measles " rash. She stated that she had gotten this from another

parent, who believed you would not have effectiveness until you got

the rash. The parent was contacted immediately and told to stop all

Vitamin A, and the list was given all pertinent information about the

Vitamin A issue. (Her child is fine now). We felt it was important

enough to alert all of you in the DAN! community of our position on

this treatment.

Background: (Dr. Baker) In the spring of 2002, measles virus was

reliably reported to be present in the spinal fluid of some autistic

children who had previously demonstrated measles vaccine virus in the

lymphoid tissue of their digestive tracts. The alarm of this finding

increased our incentive to come up with ideas upon which well-

informed parents might base safe private decisions for their children

pending a shift in public policy to address the measles virus issue.

The gap between the urgency of private decisions in regard to this

issue and the resistance to the very idea on the part of those

responsible for public policy suggested that it might be many years

before speculations about treatment of individual children with

atypical presence of MV might be resolved by research in groups of

children.

Very high doses of vitamin A palmitate (400,000iu per day for two

consecutive days) is the only measles specific treatment for children

with active acute measles. This common childhood infection may

involve a sometimes fatal inflammation of the lungs (pneumonia),

inflammation of the brain (encephalitis) as well as other

complications that befall very sick children. Other anti-viral

treatments have not been shown to work in measles. A discussion at

the DAN! Think Tank in May of 2002 in Boston led to a consensus that

some form of Vitamin A treatment would be worthy of consideration.

Guidelines for such treatment were published in Biomedical Assessment

Options For Children with Autism and Related Problems, by Pangborn, J

and Baker, SM, published by the Autism Research Institute, 4182

Avenue, San Diego, DA 92116 October 2002 Edition, pages 216-220.

The chronic nature of the possible measles problem in a subgroup of

children in the autism spectrum led me (SMB) to consider that a

lengthy treatment that pushed Vitamin A levels toward the high end of

the safe range would make sense in that it answered the need of

parents to observe their children over a period of a few weeks or

longer to judge progress if any should occur and it gave time for

monitoring a slow increase intake to avoid surprises of toxicity. My

own experience with this approach in my patients did not yield

positive results. Meanwhile Dr. McCandless, inspired by

Binstock's and my literature search showing this to be effective in

children with wild measles and also as reported from English parents

with 2-day high dosing, began suggesting that parents who fit certain

criteria might try the two-day protocol, followed by maintenance

doses only for at least 6 months before doing any more mega-doses.

Her preliminary clinical study of salivary secretory IgA rubeola

antibodies done with Dr. Ari Vojdani at Immunosciences has revealed

an elevated level in 14 of 32 children tested. Those with very high

levels were some of the best responders to this protocol, and other

positive feedback started coming in from parents doing the protocol.

Another study is almost completed checking both the serum IgG rubeola

antibody level as well as the secretory IgA salivary antibody level

to see how these two correlate along with clinical assessment and

reports.

Seizing upon the positive implications of those reports and guided by

the simplicity and safety of that approach (for which safety has been

documented in studies of both well-nourished and undernourished

children) I took the position that this approach might form the basis

for clinical observations that could benefit children.

Unfortunately, there are no generally available tests to reliably

measure Vitamin A levels in the body; the assessment is primarily

clinical observation. Signs of toxicity are a " scruffy " rash around

the neck, headache, nausea, vomiting, lethargy, and excessive unusual

hyperactivity. The few parents reporting whose children have shown

any of these responses have stopped with no sequelae. Most reports

have been very positive with some showing remarkable benefit. It is

important to emphasize that this is not a treatment for autism

generally (though the RDI is probably very low for Vitamin A) but

only for those suspected of having measles in their systems. The

risks at this time do not seem to be from the protocol itself, but

from misunderstandings such as related above. High doses should not

be given until a skin rash is produced, for that is one sign of

Vitamin A poisoning!

Based upon existing medical literature, two (2) days of high dose

vitamin A in the range of 200,000-400,000iu of Vitamin A Palmitate is

the only way of proceeding that appears to be safe. Any further

exploration of high-dose Vitamin A therapy must be carried out with

close medical supervision. Based on the belief that children with

active measles in their gut or brain are probably low or depleted in

Vitamin A, the criteria as outlined by Dr. McCandless for her

patients for launching into this pilot study are three or more of the

following:

-History of regression after MMR (particularly in those children who

had an immediate and strong negative reaction to the vaccine or

booster).

-Persistent gut problems in spite of all recommended treatments.

-More than slightly elevated IgG serum rubeola levels.

-Elevated anti-myelin basic protein (MBP) and anti-neurofilament

antibodies (indication of autoimmune reaction).

-Elevated secretory salivary rubeola IgA antibodies.

-Needless to say, endoscopy showing ileal lymphoid hyperplasia with

vaccine strain measles by PCR, or measles in CSF studies.

Sidney M. Baker, M.D. Jaquelyn McCandless, M.D.

3/21/2004

> > we got rid of this in 4 hours with vit A by klair labs, it was

related to measels living in the body, using up the vit A leaving my

son low

>

> i would like to do a high dose vitamin A but i dont know how much to

> take. i have some tablets with 100% RDA on them so i dont know how

> many to take.

>

> Any ideas?

>

> is

>

[Guest guest]

My 7 year old son in recovery has been doing vision therapy for over a

year now, and we have seen dramatic improvement. He goes to therapy

once a week where they work on fun games and exercises for his eyes and

body. Some of them are similar to what an OT would do. We also have 15

minutes of homework 4 days a week. Jack now is interested in books (he

wasn't before) and I believe it has helped him with the work required of

him in kindergarten. If you decide to have your child evaluated, make

sure you see a developmental or behavioral optometrist who specializes

in vision therapy.

Yerly

Austin, TX