Re: Fw: Introduction from the Bangs family

[Guest guest]

Honestly, Kate I wouldnt say anything execpt for letting her know, that I can

relate. And know one should be treated any other way. But what a normal child

would do, have, or be. And honestly it would be purely up to you. The only other

way, I can think of that wouldn't be to abrasive is to write her alittle letter.

The last thing, I would ever want to do is upset a child with MDS. So, we can

talk further if you'd like and see where we think it would be good her her, you

know her better.  

 

I know how detrimental is it for a person to say " you're different " that's not

what I'd be doing. I would simply being a person of reassurance.  saying " it's

okay "

Casey Morton: ----------------------------------

IMDSA Self-Advocate/Spokesman www.imdsa.org

Morton Programs Management: Founder.  www.linkedin.com

Blog: http://caseymorton30.blogspot.com/ 

----------------------------------------------------

 

Subject: Introduction

To: " MosaicDS Moderator " <MosaicDS-owner >

Date: Monday, June 7, 2010, 5:15 PM

Hello,

 

My name is Kate Bangs, I am the single parent mother of belle Bangs.  She

was born in 2005 and was diagnosed at birth with MDS.  It was a very traumatic

time for me, and we got lots of support to help her development in the early

months... but then she kept on reaching her milestones (except gross motror) on

time or early, so gradually we stopped the therapies.  It was actually

embarassing being at DS groups and events where belle was just way too

normal!

 

Now, I do not mention her MDS to new people we meet as she just comes across as

no different from any other 4 and a half year old little girl.  For example, at

gym club, the instructor

mentioned to my au pair that she was physically behind for her age, and when she

relayed the news to me, I just shrugged.  This is so much better an outcome

than I could possibly have imagined when she was born, I didn't imagine that she

would even make it to gym club!  It is early days still, she has yet to face

all of ther hurdles that are to come at school, and there may still be

developmental issues that have not yet surfaced... However, at the moment, I

have a bright, articulate little bundle of joy (I always hear how happy kids

with Downs are, so maybe this, along with the poor muscle tone are what she got

from her extra genes??) who can write her name, add up double digits and spell

out words like cat and dog. 

 

I have not yet discussed her diagnosis with her, and I am revisiting the whole

MDS topic, which frankly I forget about 99% of the time now, to get some ideas

about when and how I should broach the subject

with her.

 

I have enclosed a couple of pics of her.

 

Kind regards,

 

Kate

From: MosaicDS Moderator <MosaicDS-owner >

To: katebangs@...

Sent: Mon, 7 June, 2010 17:23:50

Subject: Yahoo! Groups: Welcome to MosaicDS. Visit today!

Hello,

Welcome to the list.

Please take a moment to review (and save) this message...and not delete it!

List Guidelines

1)Please change the subject heading when the subject refers to something else.

2)Please delete most of the old message, and keep only what you are

responding to, as it is a

royal pain for the people on the digest.  Please set the text you are including

separately from your own response with either << >>, or anything else creative.

3)All questions, comments and suggestions come directly to

me (privately), not group-level.

4)No flaming (private or group level) or spamming allowed.  This will result in

immediate removal from the list!

5)I ask that ALL members be treated with respect, as we each come from different

backgrounds and have very different personal levels of sensitivity.

6)If at all possible, please use a short signature line in all your e-mails to

the group, including your child/children's name and age.  This will help the

newcomers to our list remember who you are!

7)Have fun and enjoy the list.  We are here to share and learn from each

other's own experiences!

8)To ensure safty to our members, I ask that you first send me a short

introduction about yourself, then I will gladly allow you in!

The group posting address is:  MosaicDS  

I look forward

to getting to know you better, as well as your precious child/children!

Please consider adding your personal story to the MDS website.  You'll find the

link below!

Kristy Colvin

IMDSA President

http://www.imdsa.com

http://www.mosaicdownsyndrome.com

IMDSA is not responsible for comments made on this e-group.The views of members

on this list are not necessarly the views of IMDSA. 

[Guest guest]

or you can relate. the persistence is really a key factor in her situation

considering her age.

Casey Morton: ----------------------------------

IMDSA Self-Advocate/Spokesman www.imdsa.org

Morton Programs Management: Founder.  www.linkedin.com

Blog: http://caseymorton30.blogspot.com/ 

----------------------------------------------------

 

Subject: Introduction

To: " MosaicDS Moderator " <MosaicDS-owner >

Date: Monday, June 7, 2010, 5:15 PM

Hello,

 

My name is Kate Bangs, I am the single parent mother of belle Bangs.  She

was born in 2005 and was diagnosed at birth with MDS.  It was a very traumatic

time for me, and we got lots of support to help her development in the early

months... but then she kept on reaching her milestones (except gross motror) on

time or early, so gradually we stopped the therapies.  It was actually

embarassing being at DS groups and events where belle was just way too

normal!

 

Now, I do not mention her MDS to new people we meet as she just comes across as

no different from any other 4 and a half year old little girl.  For example, at

gym club, the instructor

mentioned to my au pair that she was physically behind for her age, and when she

relayed the news to me, I just shrugged.  This is so much better an outcome

than I could possibly have imagined when she was born, I didn't imagine that she

would even make it to gym club!  It is early days still, she has yet to face

all of ther hurdles that are to come at school, and there may still be

developmental issues that have not yet surfaced... However, at the moment, I

have a bright, articulate little bundle of joy (I always hear how happy kids

with Downs are, so maybe this, along with the poor muscle tone are what she got

from her extra genes??) who can write her name, add up double digits and spell

out words like cat and dog. 

 

I have not yet discussed her diagnosis with her, and I am revisiting the whole

MDS topic, which frankly I forget about 99% of the time now, to get some ideas

about when and how I should broach the subject

with her.

 

I have enclosed a couple of pics of her.

 

Kind regards,

 

Kate

From: MosaicDS Moderator <MosaicDS-owner >

To: katebangs@...

Sent: Mon, 7 June, 2010 17:23:50

Subject: Yahoo! Groups: Welcome to MosaicDS. Visit today!

Hello,

Welcome to the list.

Please take a moment to review (and save) this message...and not delete it!

List Guidelines

1)Please change the subject heading when the subject refers to something else.

2)Please delete most of the old message, and keep only what you are

responding to, as it is a

royal pain for the people on the digest.  Please set the text you are including

separately from your own response with either << >>, or anything else creative.

3)All questions, comments and suggestions come directly to

me (privately), not group-level.

4)No flaming (private or group level) or spamming allowed.  This will result in

immediate removal from the list!

5)I ask that ALL members be treated with respect, as we each come from different

backgrounds and have very different personal levels of sensitivity.

6)If at all possible, please use a short signature line in all your e-mails to

the group, including your child/children's name and age.  This will help the

newcomers to our list remember who you are!

7)Have fun and enjoy the list.  We are here to share and learn from each

other's own experiences!

8)To ensure safty to our members, I ask that you first send me a short

introduction about yourself, then I will gladly allow you in!

The group posting address is:  MosaicDS  

I look forward

to getting to know you better, as well as your precious child/children!

Please consider adding your personal story to the MDS website.  You'll find the

link below!

Kristy Colvin

IMDSA President

http://www.imdsa.com

http://www.mosaicdownsyndrome.com

IMDSA is not responsible for comments made on this e-group.The views of members

on this list are not necessarly the views of IMDSA. 

[Guest guest]

Casey, You are such a good friend.  I haven't commented in while, but have kept

in touch by reading the emails.  You have a genuine concern for others and are

using your gifts to help and encourage everyone here.  Just sending some kudos

your way:) Have a good one.

 

________________________________

To: MosaicDS

Sent: Mon, June 14, 2010 12:25:40 PM

Subject: Re: Fw: Introduction from the Bangs family

 

or you can relate. the persistence is really a key factor in her situation

considering her age.

Casey Morton: ----------------------------------

IMDSA Self-Advocate/Spokesman www.imdsa.org

Morton Programs Management: Founder.  www.linkedin.com

Blog: http://caseymorton30.blogspot.com/ 

----------------------------------------------------

 

Subject: Introduction

To: " MosaicDS Moderator " <MosaicDS-owner >

Date: Monday, June 7, 2010, 5:15 PM

Hello,

 

My name is Kate Bangs, I am the single parent mother of belle Bangs.  She

was born in 2005 and was diagnosed at birth with MDS.  It was a very traumatic

time for me, and we got lots of support to help her development in the early

months... but then she kept on reaching her milestones (except gross motror) on

time or early, so gradually we stopped the therapies.  It was actually

embarassing being at DS groups and events where belle was just way too

normal!

 

Now, I do not mention her MDS to new people we meet as she just comes across as

no different from any other 4 and a half year old little girl.  For example, at

gym club, the instructor

mentioned to my au pair that she was physically behind for her age, and when she

relayed the news to me, I just shrugged.  This is so much better an outcome

than I could possibly have imagined when she was born, I didn't imagine that she

would even make it to gym club!  It is early days still, she has yet to face

all of ther hurdles that are to come at school, and there may still be

developmental issues that have not yet surfaced... However, at the moment, I

have a bright, articulate little bundle of joy (I always hear how happy kids

with Downs are, so maybe this, along with the poor muscle tone are what she got

from her extra genes??) who can write her name, add up double digits and spell

out words like cat and dog. 

 

I have not yet discussed her diagnosis with her, and I am revisiting the whole

MDS topic, which frankly I forget about 99% of the time now, to get some ideas

about when and how I should broach the subject

with her.

 

I have enclosed a couple of pics of her.

 

Kind regards,

 

Kate

From: MosaicDS Moderator <MosaicDS-owner >

To: katebangs@...

Sent: Mon, 7 June, 2010 17:23:50

Subject: Yahoo! Groups: Welcome to MosaicDS. Visit today!

Hello,

Welcome to the list.

Please take a moment to review (and save) this message...and not delete it!

List Guidelines

1)Please change the subject heading when the subject refers to something else.

2)Please delete most of the old message, and keep only what you are

responding to, as it is a

royal pain for the people on the digest.  Please set the text you are including

separately from your own response with either << >>, or anything else creative.

3)All questions, comments and suggestions come directly to

me (privately), not group-level.

4)No flaming (private or group level) or spamming allowed.  This will result in

immediate removal from the list!

5)I ask that ALL members be treated with respect, as we each come from different

backgrounds and have very different personal levels of sensitivity.

6)If at all possible, please use a short signature line in all your e-mails to

the group, including your child/children's name and age.  This will help the

newcomers to our list remember who you are!

7)Have fun and enjoy the list.  We are here to share and learn from each

other's own experiences!

8)To ensure safty to our members, I ask that you first send me a short

introduction about yourself, then I will gladly allow you in!

The group posting address is:  MosaicDS  

I look forward

to getting to know you better, as well as your precious child/children!

Please consider adding your personal story to the MDS website.  You'll find the

link below!

Kristy Colvin

IMDSA President

http://www.imdsa.com

http://www.mosaicdownsyndrome.com

IMDSA is not responsible for comments made on this e-group.The views of members

on this list are not necessarly the views of IMDSA. 

[Guest guest]

<<difficulty bonding with baby, parent with mds>>

Hello everyone.  My sis (33,MDS) just had her second baby last week.  I'm

worried that she is not bonding with him.  She really didn't have much motherly

instinct with her first.( now 18 month old toddler) but what my hubby and I are

witnessing is unquestionable, non-interest.  It is very hard to see.  She

always was great with our kids and very affectionate.  Any insight?  Is she

more susceptible to hormone imbalances? For example, she may or may not go to

the baby's first Dr appt today, she doesn't hold and snuggle him.  I'm just so

hurt for her:( 

THX!

 

________________________________

To: MosaicDS

Sent: Mon, June 14, 2010 12:25:40 PM

Subject: Re: Fw: Introduction from the Bangs family

 

or you can relate. the persistence is really a key factor in her situation

considering her age.

Casey Morton: ----------------------------------

IMDSA Self-Advocate/Spokesman www.imdsa.org

Morton Programs Management: Founder.  www.linkedin.com

Blog: http://caseymorton30.blogspot.com/ 

----------------------------------------------------

 

Subject: Introduction

To: " MosaicDS Moderator " <MosaicDS-owner >

Date: Monday, June 7, 2010, 5:15 PM

Hello,

 

My name is Kate Bangs, I am the single parent mother of belle Bangs.  She

was born in 2005 and was diagnosed at birth with MDS.  It was a very traumatic

time for me, and we got lots of support to help her development in the early

months... but then she kept on reaching her milestones (except gross motror) on

time or early, so gradually we stopped the therapies.  It was actually

embarassing being at DS groups and events where belle was just way too

normal!

 

Now, I do not mention her MDS to new people we meet as she just comes across as

no different from any other 4 and a half year old little girl.  For example, at

gym club, the instructor

mentioned to my au pair that she was physically behind for her age, and when she

relayed the news to me, I just shrugged.  This is so much better an outcome

than I could possibly have imagined when she was born, I didn't imagine that she

would even make it to gym club!  It is early days still, she has yet to face

all of ther hurdles that are to come at school, and there may still be

developmental issues that have not yet surfaced... However, at the moment, I

have a bright, articulate little bundle of joy (I always hear how happy kids

with Downs are, so maybe this, along with the poor muscle tone are what she got

from her extra genes??) who can write her name, add up double digits and spell

out words like cat and dog. 

 

I have not yet discussed her diagnosis with her, and I am revisiting the whole

MDS topic, which frankly I forget about 99% of the time now, to get some ideas

about when and how I should broach the subject

with her.

 

I have enclosed a couple of pics of her.

 

Kind regards,

 

Kate

From: MosaicDS Moderator <MosaicDS-owner >

To: katebangs@...

Sent: Mon, 7 June, 2010 17:23:50

Subject: Yahoo! Groups: Welcome to MosaicDS. Visit today!

Hello,

Welcome to the list.

Please take a moment to review (and save) this message...and not delete it!

List Guidelines

1)Please change the subject heading when the subject refers to something else.

2)Please delete most of the old message, and keep only what you are

responding to, as it is a

royal pain for the people on the digest.  Please set the text you are including

separately from your own response with either << >>, or anything else creative.

3)All questions, comments and suggestions come directly to

me (privately), not group-level.

4)No flaming (private or group level) or spamming allowed.  This will result in

immediate removal from the list!

5)I ask that ALL members be treated with respect, as we each come from different

backgrounds and have very different personal levels of sensitivity.

6)If at all possible, please use a short signature line in all your e-mails to

the group, including your child/children's name and age.  This will help the

newcomers to our list remember who you are!

7)Have fun and enjoy the list.  We are here to share and learn from each

other's own experiences!

8)To ensure safty to our members, I ask that you first send me a short

introduction about yourself, then I will gladly allow you in!

The group posting address is:  MosaicDS  

I look forward

to getting to know you better, as well as your precious child/children!

Please consider adding your personal story to the MDS website.  You'll find the

link below!

Kristy Colvin

IMDSA President

http://www.imdsa.com

http://www.mosaicdownsyndrome.com

IMDSA is not responsible for comments made on this e-group.The views of members

on this list are not necessarly the views of IMDSA. 

[Guest guest]

-

This could be postpartum depression - everyone reacts to it in different

ways.

Darlene

>

>

> <<difficulty bonding with baby, parent with mds>>

>

> Hello everyone. My sis (33,MDS) just had her second baby last week. I'm

> worried that she is not bonding with him. She really didn't have much

> motherly instinct with her first.( now 18 month old toddler) but what my

> hubby and I are witnessing is unquestionable, non-interest. It is very hard

> to see. She always was great with our kids and very affectionate. Any

> insight? Is she more susceptible to hormone imbalances? For example, she

> may or may not go to the baby's first Dr appt today, she doesn't hold and

> snuggle him. I'm just so hurt for her:(

> THX!

>

>

>

> ________________________________

> From: Casey Morton <casey@... <casey%40imdsa.org>>

> To: MosaicDS <MosaicDS%40yahoogroups.com>

> Sent: Mon, June 14, 2010 12:25:40 PM

> Subject: Re: Fw: Introduction from the Bangs family

>

>

> or you can relate. the persistence is really a key factor in her situation

> considering her age.

>

> Casey Morton: ----------------------------------

> IMDSA Self-Advocate/Spokesman www.imdsa.org

> Morton Programs Management: Founder. www.linkedin.com

>

> Blog: http://caseymorton30.blogspot.com/

> ----------------------------------------------------

>

>

>

>

> From: Kate Bangs <katebangs@... <katebangs%40yahoo.co.uk>>

> Subject: Introduction

> To: " MosaicDS Moderator "

<MosaicDS-owner <MosaicDS-owner%40yahoogroups.com>

> >

> Date: Monday, June 7, 2010, 5:15 PM

>

> Hello,

>

> My name is Kate Bangs, I am the single parent mother of belle Bangs.

> She was born in 2005 and was diagnosed at birth with MDS. It was a very

> traumatic time for me, and we got lots of support to help her development in

> the early months... but then she kept on reaching her milestones (except

> gross motror) on time or early, so gradually we stopped the therapies.

> It was actually embarassing being at DS groups and events where belle

> was just way too normal!

>

> Now, I do not mention her MDS to new people we meet as she just comes

> across as no different from any other 4 and a half year old little girl.

> For example, at gym club, the instructor

> mentioned to my au pair that she was physically behind for her age, and

> when she relayed the news to me, I just shrugged. This is so much better an

> outcome than I could possibly have imagined when she was born, I didn't

> imagine that she would even make it to gym club! It is early days still,

> she has yet to face all of ther hurdles that are to come at school, and

> there may still be developmental issues that have not yet surfaced...

> However, at the moment, I have a bright, articulate little bundle of joy (I

> always hear how happy kids with Downs are, so maybe this, along with the

> poor muscle tone are what she got from her extra genes??) who can write her

> name, add up double digits and spell out words like cat and dog.

>

> I have not yet discussed her diagnosis with her, and I am revisiting the

> whole MDS topic, which frankly I forget about 99% of the time now, to get

> some ideas about when and how I should broach the subject

> with her.

>

> I have enclosed a couple of pics of her.

>

> Kind regards,

>

> Kate

>

> From: MosaicDS Moderator

<MosaicDS-owner <MosaicDS-owner%40yahoogroups.com>

> >

> To: katebangs@... <katebangs%40yahoo.co.uk>

> Sent: Mon, 7 June, 2010 17:23:50

> Subject: Yahoo! Groups: Welcome to MosaicDS. Visit today!

>

> Hello,

>

> Welcome to the list.

>

> Please take a moment to review (and save) this message...and not delete it!

>

> List Guidelines

>

> 1)Please change the subject heading when the subject refers to something

> else.

>

> 2)Please delete most of the old message, and keep only what you are

> responding to, as it is a

> royal pain for the people on the digest. Please set the text you are

> including separately from your own response with either << >>, or anything

> else creative.

>

> 3)All questions, comments and suggestions come directly to

> me (privately), not group-level.

>

> 4)No flaming (private or group level) or spamming allowed. This will

> result in immediate removal from the list!

>

> 5)I ask that ALL members be treated with respect, as we each come from

> different backgrounds and have very different personal levels of

> sensitivity.

>

> 6)If at all possible, please use a short signature line in all your e-mails

> to the group, including your child/children's name and age. This will help

> the newcomers to our list remember who you are!

>

> 7)Have fun and enjoy the list. We are here to share and learn from each

> other's own experiences!

>

> 8)To ensure safty to our members, I ask that you first send me a short

> introduction about yourself, then I will gladly allow you in!

>

> The group posting address is:

MosaicDS <MosaicDS%40yahoogroups.com>

>

>

> I look forward

> to getting to know you better, as well as your precious child/children!

>

> Please consider adding your personal story to the MDS website. You'll find

> the link below!

>

> Kristy Colvin

> IMDSA President

> http://www.imdsa.com

> http://www.mosaicdownsyndrome.com

>

> IMDSA is not responsible for comments made on this e-group.The views of

> members on this list are not necessarly the views of IMDSA.

>

>

[Guest guest]

I just hope that my in-laws and her husband get her the help she needs.  They

seem to be " helping " by doing all the baby care for her, which makes her seem

more detached. 

________________________________

To: MosaicDS

Sent: Mon, June 14, 2010 4:52:49 PM

Subject: Re: Fw: Introduction from the Bangs family

-

This could be postpartum depression - everyone reacts to it in different

ways.

Darlene

>

>

> <<difficulty bonding with baby, parent with mds>>

>

> Hello everyone.  My sis (33,MDS) just had her second baby last week.  I'm

> worried that she is not bonding with him.  She really didn't have much

> motherly instinct with her first.( now 18 month old toddler) but what my

> hubby and I are witnessing is unquestionable, non-interest.  It is very hard

> to see.  She always was great with our kids and very affectionate.  Any

> insight?  Is she more susceptible to hormone imbalances? For example, she

> may or may not go to the baby's first Dr appt today, she doesn't hold and

> snuggle him.  I'm just so hurt for her:(

> THX!

>

>

>

> ________________________________

> From: Casey Morton <casey@... <casey%40imdsa.org>>

> To: MosaicDS <MosaicDS%40yahoogroups.com>

> Sent: Mon, June 14, 2010 12:25:40 PM

> Subject: Re: Fw: Introduction from the Bangs family

>

>

> or you can relate. the persistence is really a key factor in her situation

> considering her age.

>

> Casey Morton: ----------------------------------

> IMDSA Self-Advocate/Spokesman www.imdsa.org

> Morton Programs Management: Founder.  www.linkedin.com

>

> Blog: http://caseymorton30.blogspot.com/

> ----------------------------------------------------

>

>

>

>

> From: Kate Bangs <katebangs@... <katebangs%40yahoo.co.uk>>

> Subject: Introduction

> To: " MosaicDS Moderator "

<MosaicDS-owner <MosaicDS-owner%40yahoogroups.com>

> >

> Date: Monday, June 7, 2010, 5:15 PM

>

> Hello,

>

> My name is Kate Bangs, I am the single parent mother of belle Bangs.

> She was born in 2005 and was diagnosed at birth with MDS.  It was a very

> traumatic time for me, and we got lots of support to help her development in

> the early months... but then she kept on reaching her milestones (except

> gross motror) on time or early, so gradually we stopped the therapies.

> It was actually embarassing being at DS groups and events where belle

> was just way too normal!

>

> Now, I do not mention her MDS to new people we meet as she just comes

> across as no different from any other 4 and a half year old little girl.

> For example, at gym club, the instructor

> mentioned to my au pair that she was physically behind for her age, and

> when she relayed the news to me, I just shrugged.  This is so much better an

> outcome than I could possibly have imagined when she was born, I didn't

> imagine that she would even make it to gym club!  It is early days still,

> she has yet to face all of ther hurdles that are to come at school, and

> there may still be developmental issues that have not yet surfaced...

> However, at the moment, I have a bright, articulate little bundle of joy (I

> always hear how happy kids with Downs are, so maybe this, along with the

> poor muscle tone are what she got from her extra genes??) who can write her

> name, add up double digits and spell out words like cat and dog.

>

> I have not yet discussed her diagnosis with her, and I am revisiting the

> whole MDS topic, which frankly I forget about 99% of the time now, to get

> some ideas about when and how I should broach the subject

> with her.

>

> I have enclosed a couple of pics of her.

>

> Kind regards,

>

> Kate

>

> From: MosaicDS Moderator

<MosaicDS-owner <MosaicDS-owner%40yahoogroups.com>

> >

> To: katebangs@... <katebangs%40yahoo.co.uk>

> Sent: Mon, 7 June, 2010 17:23:50

> Subject: Yahoo! Groups: Welcome to MosaicDS. Visit today!

>

> Hello,

>

> Welcome to the list.

>

> Please take a moment to review (and save) this message...and not delete it!

>

> List Guidelines

>

> 1)Please change the subject heading when the subject refers to something

> else.

>

> 2)Please delete most of the old message, and keep only what you are

> responding to, as it is a

> royal pain for the people on the digest.  Please set the text you are

> including separately from your own response with either << >>, or anything

> else creative.

>

> 3)All questions, comments and suggestions come directly to

> me (privately), not group-level.

>

> 4)No flaming (private or group level) or spamming allowed.  This will

> result in immediate removal from the list!

>

> 5)I ask that ALL members be treated with respect, as we each come from

> different backgrounds and have very different personal levels of

> sensitivity.

>

> 6)If at all possible, please use a short signature line in all your e-mails

> to the group, including your child/children's name and age.  This will help

> the newcomers to our list remember who you are!

>

> 7)Have fun and enjoy the list.  We are here to share and learn from each

> other's own experiences!

>

> 8)To ensure safty to our members, I ask that you first send me a short

> introduction about yourself, then I will gladly allow you in!

>

> The group posting address is: 

MosaicDS <MosaicDS%40yahoogroups.com>

>

>

> I look forward

> to getting to know you better, as well as your precious child/children!

>

> Please consider adding your personal story to the MDS website.  You'll find

> the link below!

>

> Kristy Colvin

> IMDSA President

> http://www.imdsa.com

> http://www.mosaicdownsyndrome.com

>

> IMDSA is not responsible for comments made on this e-group.The views of

> members on this list are not necessarly the views of IMDSA.

>

>