Re: Re: xanax

[Guest guest]

hi lee,

as i was reading your correspondance about xanax i can see your panikking and

understand that it is scary, but i wanted to ease your mind a little , first of

all, i know about xanax first hand as i take it 1-2 mg every 6-8 hours as needed

for anxiety, and i normally just take it at nite to help me sleep or if i have a

bad kidney infection as it eases my stress and helps me sleep even just a

little. 

the dosage your mom started on .25 mg is a very very tiny dose, i agree they

should not have increased it against your wishes, hospice, nurses, even doctors

shouldn't change the dosage without family consent first esp with lbd'ers since

they react so differently,  and you have every right to have her taken off of

it, but wean her slowly off of it, even at teh slight dosage she was taking, the

paperwork i got with it, says do not stop suddenly, discuss stopping htis

medication with your doctor.

but i really wanted you to know that her taking 3 or even 4 of .25 mg is only 1

mg which is still a minimal dosage except it was a fast change for an lbd'er. 

my dad got relief from zoloft started out at 25 mg then worked up to 50mg then

100 mg then 150 mg, he took 50 mg for 6 months and then broke his hip and went

to 100 and 150 very quickly trying to stop the hallucinations. esp when he

popped his hip out of jiont after surgery and we opted not to redo the surgery. 

this stressed him bad poor thing he was like a stork or flamingo laying in the

bed with his knee pulled up to his hip. 

i hope my letter eases your mind a little about the amount of xanax, my dad

never tried it as my doctor's choice for him was zoloft and that worked good for

him.  now me i have been thru the whole realm, from celexa, zoloft, paxil,

lexapro (i am on now along with xanax for high stress days.)  good luck and

hugs, sharon

> From: Janet Colello <janetcolello@ yahoo.com>

> Subject: Re: Re: Lee/ME AGAIN!!!

> To: LBDcaregivers@ yahoogroups. com

> Date: Friday, July 11, 2008, 1:24 PM

> Lee, it's doing nothing, because it's having adverse

> reactions, which means it doesn't help anxiety, it

> causes anxiety and they should not be increasing the

> dosage, it will only make things worse. I would quit that

> Hospice immediately if they will not listen to you. The

> Xanax is the answer to calming her down. You have the right

> to stop using people that won't listen. Maybe just

> having the CNAs is all you need. Hospice is not doing their

> job of keeping her calm, they are causing her the anxiety by

> not listening. GET RID OF THEM. You have other choices.

>

>

>

> ME AGAIN!!!

> >

> > Ok folks... Mother is now in Hospice. Her combative

> and aggressive

> > ways have finally burned me out... SOOOOO.... I hired

> my own private

> > team of 24/7 care. It is an expensive team, but I

> picked this crew for

> > a reason. (I'M ABOUT TO BUTT HEADS WITH HOSPICE)

> >

> > a is a CNA and in middle of Nursing School (she

> has the summer off)

> > is nursing home experienced CNA

> > is Alzheimers Unit experienced CNA

> > Terry is a High School Registered Nurse with the

> summer off.

> > is a retired Registered Nurse.

> > and 1 Personal Assistant (she was the only one willing

> to work that

> > time slot)

> >

> > There is much chatter about possible med problem. Is

> it drug

> > interactions? or are we lacking a drug we should try?

> etc... Of course

> > non of these women had ever heard of LBD until they

> got a phone call

> > from me. I understand what it's like to live in

> Lewyland 24/7, but

> > they understand the medical stuff.

> >

> > I have attempted to read through those files about

> meds, but to be

> > honest, my brain turns to mush trying to make heads or

> tails out of

> > those articles. And the poor gals cant read those

> articles cause

> > Mother just keeps them occupied NON STOP with her

> difficult ways. I

> > had to hire all 3 shifts all 7 days cause Mother's

> brain wont shut

> > down to sleep. This is some pretty nasty aggitation.

> >

> > So here is what my crew is curious about.... Is she

> currently taking

> > any meds that are NORMALLY/USUALLY considered major

> No-No meds?

> >

> > Carbo/Levodopa

> > Requip

> > Seroquel

> > Xanax

> > Lexapro

> > Plavix

> >

> > And we are currently mid way of weaning her off

> Aricept and Namenda

> >

> > I'm not going to offer dosages cause we are

> interested in whether or

> > not a particular drug could be the OBVIOUS culprit.

> >

> > Back a few weeks ago, Hospice gave the Avian and

> Morphine and after

> > the 1st few days that was an OBVIOUS DISASTER!!!!

> (which seems to be a

> > real head butting issue with Hospice right now)

> >

> > And I just want to point out that Mother started

> having multiple mini

> > strokes as of early March. PRIOR TO MARCH... Xanax and

> Seroquel were

> > the MAGIC meds that I worshipped. Doesnt seem to be

> doing jackcrap any

> > more. Ever since the mini strokes started happening in

> early March....

> > life has been HELL SINCE MARCH!!!!!!! !! and it just

> keeps getting

> > worse. (maybe the mini strokes are the true culprit of

> this combative

> > problem?)

> >

> > These poor gals are earning their paycheck the hard

> way. I have

> > declared 1 gal the supervisor of the crew, and

> it's her job to

> > maintain communication with Hospice. When the Hospice

> Nurse does show

> > up twice/week.. . most of the crew tries to be here at

> the same time to

> > offer their input of this situation.

> >

> > (Hospice and doctors cant claim the problem is me)

> >

> > Lee

> >

> >

> > ------------ --------- --------- ------

> >

> > Welcome to LBDcaregivers. 

> >

> >