Guest guest Posted May 7, 2001 Report Share Posted May 7, 2001 Subj: Re: New at this Date: 5/6/2001 9:57:48 AM Eastern Daylight Time From: pierre.lachaine@... (Pierre Lachaine) To: enidfmaldonado@... Hi Enid. You sent your message to me personally instead of to the group's address. Once you have subscribed, you can either post directly from the site: http://groups.yahoo.com/group/iga-nephropathy ....or, you can email the message to: iga-nephropathy A lot more people will see it that way. By the way, I've never heard of such a side effect. That must have been pretty awful. Pierre enidfmaldonado@... wrote: > Hello there. I just joined your group because I have been battling > my disease without support of others in my same condition, and I need > to find out more about how to care for myself, and how to cope with > all ofthe side effects that result from taking so much medication. I > am 27 years old, single-parent of a six year old boy. I was > diagnosed with IGA in November of last year. Since then I have been > taking the prednisone (started at a dosage of 80mg per day), diovan, > fish oil, and several other medications to counteract some side > effects. I have had many problems since I started the treatements, > one that left me in the hospital when there was an abnormal reaction > between the prednisone and prevacid (stomach medication). My body > had a toxic reaction where my skin burned from the inside out and I > had high fevers for days. My skin was burnt from the tip of my head > to my toes, including my face, lips, I looked like a monster! > Eventually I shed my skin, I looked like a lizard, it was so bad, I > was not able to return to my full-time job afterward, My body has not > fully recovered, now my new skin is strange to me and it doesn't > feel right. > Anyways, I want to know if anyone else has had similar effects and if > I am worrying too much about this. I just feel that I need help in > learning more about this disease and know how much of a "normal" life > can I live considering all of this. > > Thank you for your time, > > Enid ----------------------- Headers -------------------------------- Return-Path: Received: from rly-ye02.mx.aol.com (rly-ye02.mail.aol.com [172.18.151.199]) by air-ye02.mail.aol.com (v77_r1.37) with ESMTP; Sun, 06 May 2001 09:57:48 -0400 Received: from tomts14-srv.bellnexxia.net (tomts14.bellnexxia.net [209.226.175.35]) by rly-ye02.mx.aol.com (v77_r1.36) with ESMTP; Sun, 06 May 2001 09:57:33 -0400 Received: from sympatico.ca ([64.229.135.7]) by tomts14-srv.bellnexxia.net (InterMail vM.4.01.03.16 201-229-0115) with ESMTP id <20010506135732.EWND28559.tomts14-srv.bellnexxia.net@... > for ; Sun, 6 May 2001 09:57:32 -0400 Message-ID: Date: Sun, 06 May 2001 22:01:14 -0400 X-Mailer: Mozilla 4.7 [en]C-SYMPA (Win98; U) X-Accept-Language: en,fr-CA MIME-Version: 1.0 To: enidfmaldonado@... Subject: Re: New at this References: <9d2qcu+cauueGroups> Content-Type: text/plain; charset=us-ascii Content-Transfer-Encoding: 7bit Hi Enid. You sent your message to me personally instead of to the group's address. Once you have subscribed, you can either post directly from the site: http://groups.yahoo.com/group/iga-nephropathy ....or, you can email the message to: iga-nephropathy A lot more people will see it that way. By the way, I've never heard of such a side effect. That must have been pretty awful. Pierre enidfmaldonado@... wrote: > Hello there. I just joined your group because I have been battling > my disease without support of others in my same condition, and I need > to find out more about how to care for myself, and how to cope with > all ofthe side effects that result from taking so much medication. I > am 27 years old, single-parent of a six year old boy. I was > diagnosed with IGA in November of last year. Since then I have been > taking the prednisone (started at a dosage of 80mg per day), diovan, > fish oil, and several other medications to counteract some side > effects. I have had many problems since I started the treatements, > one that left me in the hospital when there was an abnormal reaction > between the prednisone and prevacid (stomach medication). My body > had a toxic reaction where my skin burned from the inside out and I > had high fevers for days. My skin was burnt from the tip of my head > to my toes, including my face, lips, I looked like a monster! > Eventually I shed my skin, I looked like a lizard, it was so bad, I > was not able to return to my full-time job afterward, My body has not > fully recovered, now my new skin is strange to me and it doesn't > feel right. > Anyways, I want to know if anyone else has had similar effects and if > I am worrying too much about this. I just feel that I need help in > learning more about this disease and know how much of a " normal " life > can I live considering all of this. > > Thank you for your time, > > Enid Quote Link to comment Share on other sites More sharing options...
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