other kidney disease - PKD

[Guest guest]

Hello everyone! Thanks for all the information, support, and advice

the last few weeks. I learned this weekend that my maternal

grandmother's sister, and the sisters 2 daughters all died in their

50's and 60's, after years of dialysis, of renal failure from PKD

(polycycstic kidney disease). The sister was diagnosed by

exlporatory surgery after falling on the floor with flank pain. The

daughters were diagnosed through unknown means. It appears that the

gene can be recessive or dominant, and that it doesn't affect all

family members (or even immediate family members). For the dominate

form to develop, only one parent has to carry the gene. This info

comes from the PKD Foundation website which I can provide if anyone

is interested. So, my worries of IgAN (based on my flank pain and

hematuria) have switched to worries of PKD. Familial history, flank

pain, hematuria, cardio valvular problems (mitral valve prolapse),

and hypertension being my main symptoms and matching those of PKD. A

grim weekend indeed. Looks like I'm not in for a biopsy or scope or

IVP, but CT scan or MRI (recommended by PKD website). Anyway, that's

an update. I appreciate again all the info on this message board!

If anyone has experience with PKD - please post or reply. I'll be

keeping up with the message board since there seems to be good

support and advice for " other kidney disease. "

Have a good day,