Re: New Family

[Guest guest]

She has been getting cardio exams since she was born,the only thing she has is a

murmur,thanks though.

________________________________

To: MosaicDS

Sent: Sun, December 12, 2010 3:45:26 PM

Subject: Re: New Family

Tim,

Just make sure you have an Echo cardiogram done on Savanna - we did not; no

one mentioned it.  I would have saved us A LOT of grief and saved a

lot of catching up.  When told me her heart hurt; I called

immediately to see a cardiologist only because never complains about

anything.  The Doctor did the echo and saw the damage that the repaired hole

left and showed me the two areas where the blood flowed backwards in her

heart.  He told me it could not have caused her any pain, she was probably

feeling heartburn but it did show that there was a problem that needed to be

fixed.  Thank God for heartburn.

Darlene

>

>

> Thanks Darlene,this actually gives me more optimism. Tim

>

>

> ________________________________

> From: Darlene Benoit <Darleneand@...<Darleneand%40gmail.com>

> >

> To: MosaicDS <MosaicDS%40yahoogroups.com>

> Sent: Sun, December 12, 2010 2:18:42 PM

>

> Subject: Re: New Family

>

> 20 or 24 months - I am sorry but I really don't remember - it was late but

> not that late...  What we did not know at the time was she had 3 holes in

> her heart (so she was not getting a lot of oxygen and was really sleepy)

> We did not know about the heart issue until she was 10, when she told me

> her

> heart hurt.  One closed on it's own, one we had closed and the other one is

> very, very tiny so the doctors said it might close on its own but it is not

> an issue for her health.  She had been in and out of hospitals her whole

> life and no one ever said anything about her heart - she had a silent PDA.

> is my  medical mystery miracle baby girl - she loves to confound her

> doctors and teachers - everything " they " said she can't do - (if she wants

> it) she does it.

>

> Darlene

>

> On Sun, Dec 12, 2010 at 12:18 PM, TIM FLYNN

><tjfly69@...<tjfly69%40yahoo.com>>

> wrote:

>

> >

> >

> > Thank you for the info Darlene,yeah she scoots by pulling with her arms,

> if

> > I

> > might ask,at what age did your daughter start walking?Thanks,Tim

> >

> > ________________________________

> > From: Darlene Benoit <Darleneand@...<Darleneand%40gmail.com>

> <Darleneand%40gmail.com>

> > >

> > To: MosaicDS <MosaicDS%40yahoogroups.com> <MosaicDS%

> 40yahoogroups.com>

>

> > Sent: Sun, December 12, 2010 7:36:37 AM

> > Subject: Re: New Family

> >

> > Tim -

> >

> > Welcome, my , (11), did not " crawl " - she commando crawled across

> the

> > floor using her arms - she got around but she did not do traditional

> > crawling.  She still does that trying to sneak into our room at night

> > because if she walks in, I will see her and send her back to her room.

> ;-)

> >

> > Darlene - mom to (14 today!) and (11)

> >

> > On Sun, Dec 12, 2010 at 8:24 AM, Teri Grubb

> ><gtwins08@... <gtwins08%40yahoo.com><gtwins08%40yahoo.com>>

>

> > wrote:

> >

> > >

> > >

> > > Hello Everyone

> > >

> > > We have a new family joining us.  Please welcome Tim and his daughter

> > > Savanna.  Here is what Tim had to say.....

> > >

> > >

> > >

> > >

> > > Hello,My Child Savanna was born 11-11-09 and right away she was

> diagnosed

> > > with Mosaic Down Syndrome by the Genetics team at the University of

> Iowa

> > > Hospitals and Clinics, last May we lost her mother tragically due to

> > > Pulmonary Embolism. At 13 months my daughter attends Physical Therapy

> > weekly

> > > as she still cannot crawl.My daughter also has a premature gag reflex

> and

> > > she does not eat anything yet by mouth,only by way of feeding tube. As

> a

> > > single/widower father with a child who has special needs I was hoping

> > there

> > > was someone out there with a simular situation that could give me words

> > of

> > > encouragement. Thanks,Tim

> > >

> > > Welcome Tim,

> > >

> > > Our group is very friendly and supportive of each other.  If you have

> any

> > > questions please ask.

> > >

> > > Teri Grubb        Mom to Grace (mDs) and Emma (mDs) 2yrs

> > >

> > >

[Guest guest]

Welcome Tim and Savanna~

I'm Tara Marie and my daughter Emma Sage is 9 and has MDs. 

You have found a wonderful community here.

Welcome.

http://www.emmasage.blogspot.com

 

________________________________

To: MosaicDS

Sent: Sun, December 12, 2010 12:18:42 PM

Subject: Re: New Family

 

Thank you for the info Darlene,yeah she scoots by pulling with her arms, if I

might ask,at what age did your daughter start walking?Thanks,Tim

________________________________

To: MosaicDS

Sent: Sun, December 12, 2010 7:36:37 AM

Subject: Re: New Family

Tim -

Welcome, my , (11), did not " crawl " - she commando crawled across the

floor using her arms - she got around but she did not do traditional

crawling.  She still does that trying to sneak into our room at night

because if she walks in, I will see her and send her back to her room. ;-)

Darlene - mom to (14 today!) and (11)

>

>

> Hello Everyone

>

> We have a new family joining us.  Please welcome Tim and his daughter

> Savanna.  Here is what Tim had to say.....

>

>

>

>

> Hello,My Child Savanna was born 11-11-09 and right away she was diagnosed

> with Mosaic Down Syndrome by the Genetics team at the University of Iowa

> Hospitals and Clinics, last May we lost her mother tragically due to

> Pulmonary Embolism. At 13 months my daughter attends Physical Therapy weekly

> as she still cannot crawl.My daughter also has a premature gag reflex and

> she does not eat anything yet by mouth,only by way of feeding tube. As a

> single/widower father with a child who has special needs I was hoping there

> was someone out there with a simular situation that could give me words of

> encouragement. Thanks,Tim

>

> Welcome Tim,

>

> Our group is very friendly and supportive of each other.  If you have any

> questions please ask.

>

> Teri Grubb        Mom to Grace (mDs) and Emma (mDs) 2yrs

>

>

[Guest guest]

Thank you

________________________________

To: MosaicDS

Sent: Wed, December 15, 2010 10:41:15 PM

Subject: Re: New Family

 

Welcome Tim and Savanna~

I'm Tara Marie and my daughter Emma Sage is 9 and has MDs. 

You have found a wonderful community here.

Welcome.

http://www.emmasage.blogspot.com

 

________________________________

To: MosaicDS

Sent: Sun, December 12, 2010 12:18:42 PM

Subject: Re: New Family

 

Thank you for the info Darlene,yeah she scoots by pulling with her arms, if I

might ask,at what age did your daughter start walking?Thanks,Tim

________________________________

To: MosaicDS

Sent: Sun, December 12, 2010 7:36:37 AM

Subject: Re: New Family

Tim -

Welcome, my , (11), did not " crawl " - she commando crawled across the

floor using her arms - she got around but she did not do traditional

crawling.  She still does that trying to sneak into our room at night

because if she walks in, I will see her and send her back to her room. ;-)

Darlene - mom to (14 today!) and (11)

>

>

> Hello Everyone

>

> We have a new family joining us.  Please welcome Tim and his daughter

> Savanna.  Here is what Tim had to say.....

>

>

>

>

> Hello,My Child Savanna was born 11-11-09 and right away she was diagnosed

> with Mosaic Down Syndrome by the Genetics team at the University of Iowa

> Hospitals and Clinics, last May we lost her mother tragically due to

> Pulmonary Embolism. At 13 months my daughter attends Physical Therapy weekly

> as she still cannot crawl.My daughter also has a premature gag reflex and

> she does not eat anything yet by mouth,only by way of feeding tube. As a

> single/widower father with a child who has special needs I was hoping there

> was someone out there with a simular situation that could give me words of

> encouragement. Thanks,Tim

>

> Welcome Tim,

>

> Our group is very friendly and supportive of each other.  If you have any

> questions please ask.

>

> Teri Grubb        Mom to Grace (mDs) and Emma (mDs) 2yrs

>

>