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Re: Re: Our son

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Thanks, Walt. took his first dose this morning and is already

starving. This for a guy who had zero appetite. His urine is clear and he

has color in his face. We just came back from getting blood drawn. His

doctor wants to check and see that his creatine is going down. He is not on

Lasix or an ACE inhibitor at the moment. Should I mention this to his

doctor? I know he wants to gain weight, but he doesn't want to get fat. He

is skinny in fact. How long have you been on prednisone? Does it affect your

mood?

>

>Reply-To: iga-nephropathyegroups

>To: iga-nephropathyegroups

>Subject: Re: Our son

>Date: Thu, 28 Dec 2000 04:17:18 -0000

>

>Pamela:

>

>From what I understand, 80mg is about the high dose. Of course, I

>had a very fast rampup to a high creatinine. Plus, I still am quite

>heavy. I feel Very Good in comparison to what I did one month ago.

>

>My nephrologist is talking about starting to wean me back after about

>1/11/2001 -- all depending on my levels at that point.

>

>Many people warned me of problems from Prednisone -- particularly

>bloating and puffing of skin. However, with Lasix and Zestril, I

>appear to actually be losing weight.

>

>The only side effect that I notice from the Prednisone is a quick-

>rising appetite. If I start to feel hungry, I have to have

>something -- usually grape juice, or my stomach starts aching. I

>don't know if that is Prednisone, or what that is causing it.

>However, I'm learning to pace myself...

>

>Walt

>

>

> > > > Yes, it's the same . He had his first symptoms one month

>ago,

> > >the day

> > > > after Thanksgiving. He had a renal biopsy the Monday after

> > >Thanksgiving and

> > > > his creatinine was normal and no renal compromise. This episode

> > >started

> > > > with a low-grade fevor a week ago and progressed to this.

>There is

> > >an

> > > > outside chance that if he has some virus, that could cause the

> > >kidney

> > > > function to decrease temporarily, but his doctors can't find a

> > >disease

> > > > process yet, and they didn't want to take the chance of

>permanent

> > >damage.

> > > > They think, and that's the big word, they can reverse the damage

> > >with early

> > > > intervention of steroids. When I ask the doctors about beer,

>they

> > >are

> > > > pretty evasive. None have said outright not to drink, but

> > >definitely do not

> > > > smoke.

> > > >

> > > >

> > > > >From: " Northern Lights Academy " <northernlightsacademy@h...>

> > > > >Reply-To: iga-nephropathyegroups

> > > > >To: <iga-nephropathyegroups>

> > > > >Subject: Re: Our son

> > > > >Date: Mon, 25 Dec 2000 22:17:47 -0800

> > > > >

> > > > >Is this the same that was out late at night and drinking

>beer

> > >a week

> > > > >ago?

> > > > >Might have the beer or whatever else he may have done during

>those

> > >nights

> > > > >triggered something? Were any of his buddies sick with

> > >something/did any of

> > > > >them come down with something? I can't believe how his health

>has

> > >turned

> > > > >around. How long ago was he diagnosed and how long has he had

> > >symptoms

> > > > >before this episode? Has he had anything similar to this

>before?

> > >Are they

> > > > >going in for another kidney biopsy?This disease is more varied

>and

> > > > >mysterious than I thought it was.

> > > > >

> > > > >Carolyn

> > > > >

> > > >

> > > >

>_________________________________________________________________

> > > > Get your FREE download of MSN Explorer at

>http://explorer.msn.com

> > >

> >

> > _________________________________________________________________

> > Get your FREE download of MSN Explorer at http://explorer.msn.com

>

_________________________________________________________________

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Hi Pam.

I'll let Walt reply about the prednisone.

About the ACE inhibitor though, my feeling about these things is that unless

there is a really burning medical need to be on something, it's best not to

start more drugs at the same time than one needs to. Otherwise, when someone

starts on multiple drugs, fish oil etc. all at once, you have no way of

knowing what is doing what, what is helping, and what isn't.

Pierre

Re: Our son

> > > > > >Date: Mon, 25 Dec 2000 22:17:47 -0800

> > > > > >

> > > > > >Is this the same that was out late at night and drinking

> >beer

> > > >a week

> > > > > >ago?

> > > > > >Might have the beer or whatever else he may have done during

> >those

> > > >nights

> > > > > >triggered something? Were any of his buddies sick with

> > > >something/did any of

> > > > > >them come down with something? I can't believe how his health

> >has

> > > >turned

> > > > > >around. How long ago was he diagnosed and how long has he had

> > > >symptoms

> > > > > >before this episode? Has he had anything similar to this

> >before?

> > > >Are they

> > > > > >going in for another kidney biopsy?This disease is more varied

> >and

> > > > > >mysterious than I thought it was.

> > > > > >

> > > > > >Carolyn

> > > > > >

> > > > >

> > > > >

> >_________________________________________________________________

> > > > > Get your FREE download of MSN Explorer at

> >http://explorer.msn.com

> > > >

> > >

> > > _________________________________________________________________

> > > Get your FREE download of MSN Explorer at http://explorer.msn.com

> >

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com

>

>

> eGroups Sponsor

>

>

>

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Walt, thanks for the encouragement. I think is now going through the

angry phrase. For the first month he was in denial until this last

hospitalization. He now realizes he has a serious disease. I know he is

worried because he always asks if he will die from IgA. Of course, I tell

him no. I am taking him to a nutritionist on Tuesday. He now has his foamy

urine back, but no blood.

>

>Reply-To: iga-nephropathyegroups

>To: iga-nephropathyegroups

>Subject: Re: Our son

>Date: Sat, 30 Dec 2000 19:19:14 -0000

>

>Pierre is right.

>

>You have to add these things one at a time -- particularly if you are

>adjusting Blood pressure. If he is taking Blood Pressure medicine at

>the same time, I'm sure they've told him about dizziness. I had it

>for a few days -- just meant that I had to stand still for about 20

>seconds after standing up. I only fell down once -- kind of scary,

>but my co-workers at least knew what was happening.

>

>A month into treatment is coming up in a few days, and I have to say,

>I feel great.

>

>So have him stick with the treatment. I was very tired for a few

>days -- and he should be able to be back with his friends in a couple

>of weeks.

>

>Walt

>

>

> > > > > > > Yes, it's the same . He had his first symptoms one

>month

> > > >ago,

> > > > > >the day

> > > > > > > after Thanksgiving. He had a renal biopsy the Monday

>after

> > > > > >Thanksgiving and

> > > > > > > his creatinine was normal and no renal compromise. This

>episode

> > > > > >started

> > > > > > > with a low-grade fevor a week ago and progressed to this.

> > > >There is

> > > > > >an

> > > > > > > outside chance that if he has some virus, that could

>cause the

> > > > > >kidney

> > > > > > > function to decrease temporarily, but his doctors can't

>find a

> > > > > >disease

> > > > > > > process yet, and they didn't want to take the chance of

> > > >permanent

> > > > > >damage.

> > > > > > > They think, and that's the big word, they can reverse the

>damage

> > > > > >with early

> > > > > > > intervention of steroids. When I ask the doctors about

>beer,

> > > >they

> > > > > >are

> > > > > > > pretty evasive. None have said outright not to drink, but

> > > > > >definitely do not

> > > > > > > smoke.

> > > > > > >

> > > > > > >

> > > > > > > >From: " Northern Lights Academy "

><northernlightsacademy@h...>

> > > > > > > >Reply-To: iga-nephropathyegroups

> > > > > > > >To: <iga-nephropathyegroups>

> > > > > > > >Subject: Re: Our son

> > > > > > > >Date: Mon, 25 Dec 2000 22:17:47 -0800

> > > > > > > >

> > > > > > > >Is this the same that was out late at night and

>drinking

> > > >beer

> > > > > >a week

> > > > > > > >ago?

> > > > > > > >Might have the beer or whatever else he may have done

>during

> > > >those

> > > > > >nights

> > > > > > > >triggered something? Were any of his buddies sick with

> > > > > >something/did any of

> > > > > > > >them come down with something? I can't believe how his

>health

> > > >has

> > > > > >turned

> > > > > > > >around. How long ago was he diagnosed and how long has

>he had

> > > > > >symptoms

> > > > > > > >before this episode? Has he had anything similar to this

> > > >before?

> > > > > >Are they

> > > > > > > >going in for another kidney biopsy?This disease is more

>varied

> > > >and

> > > > > > > >mysterious than I thought it was.

> > > > > > > >

> > > > > > > >Carolyn

> > > > > > > >

> > > > > > >

> > > > > > >

> > > >_________________________________________________________________

> > > > > > > Get your FREE download of MSN Explorer at

> > > >http://explorer.msn.com

> > > > > >

> > > > >

> > > > >

>_________________________________________________________________

> > > > > Get your FREE download of MSN Explorer at

>http://explorer.msn.com

> > > >

> > >

> > > _________________________________________________________________

> > > Get your FREE download of MSN Explorer at http://explorer.msn.com

> > >

> > >

> > > eGroups Sponsor

> > >

> > >

> > >

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Hi Pam,

I'm Sophie, a french girl who has IGAN.

I'm 25, and I learnt I had IGAN when I was 24.

I think I understand your son. A day, he thought everthing was all right,

and the day after, he had to live with a disease that nobody really know. I

think I felt he same : angry, with always the same question : Why me, I'm

only 24? And him, He is only 16 (or maybe 17??).

Don't worry, let him the time to accept, he has to accept. Perhaps it's

better for him to be angry so soon after knowing he was ill. It took me 6

months!! Before, I didn't want to hear a single word about the disease, I

couldn't even think about telling me I had IGAN...

If your son start again to go out , like if he was " invincible " , please

don't think he thinks that. I made the same : it was only to make sure that

I was still able to do the same things that my friends, and I did the double

than them. My parents didn't really understand me untill I explained this to

them. Ther is not a single way to react front of the announcement of the

disease, but that was mine.

If your son needs to speak, please make him write to the group, or if he

prefers, give my adress to him (I'm not so far from his age, perhaps it will

be easier for him).

All that I know, it's that my anger is gone when I " met " the group, when I

realised I was not alone with this disease. sure we can help him to accept

(and it's not a little thing, as we say in french :)

As for the prednisone, I've had my dosis (little and high) : I didn't notice

that my mood was affected (Only a thing : my appetite had really grown!!):

but I had to be carefull with the things I ate (like with salt or sugar). He

has to met a " dietetician " (?!?), like Walt told you.

Tell him that it's easy to leave with such a treatment : I made so great

parties( 3 or 4 days long), on the beach, during the summer : just needed

not to forget to take my grugs on mornings, and having some diet cookies

(made with false sugar, and without salt) : if he really wants to do things,

he can.

regards,

Sophie

> De : " Pamela Zaheri "

> Répondre à : iga-nephropathyegroups

> Date : Sat, 30 Dec 2000 19:55:42 -0600

> À : iga-nephropathyegroups

> Objet : Re: Re: Our son

>

> Walt, thanks for the encouragement. I think is now going through the

> angry phrase. For the first month he was in denial until this last

> hospitalization. He now realizes he has a serious disease. I know he is

> worried because he always asks if he will die from IgA. Of course, I tell

> him no. I am taking him to a nutritionist on Tuesday. He now has his foamy

> urine back, but no blood.

>

>

>>

>> Reply-To: iga-nephropathyegroups

>> To: iga-nephropathyegroups

>> Subject: Re: Our son

>> Date: Sat, 30 Dec 2000 19:19:14 -0000

>>

>> Pierre is right.

>>

>> You have to add these things one at a time -- particularly if you are

>> adjusting Blood pressure. If he is taking Blood Pressure medicine at

>> the same time, I'm sure they've told him about dizziness. I had it

>> for a few days -- just meant that I had to stand still for about 20

>> seconds after standing up. I only fell down once -- kind of scary,

>> but my co-workers at least knew what was happening.

>>

>> A month into treatment is coming up in a few days, and I have to say,

>> I feel great.

>>

>> So have him stick with the treatment. I was very tired for a few

>> days -- and he should be able to be back with his friends in a couple

>> of weeks.

>>

>> Walt

>>

>>

>>>>>>>> Yes, it's the same . He had his first symptoms one

>> month

>>>>> ago,

>>>>>>> the day

>>>>>>>> after Thanksgiving. He had a renal biopsy the Monday

>> after

>>>>>>> Thanksgiving and

>>>>>>>> his creatinine was normal and no renal compromise. This

>> episode

>>>>>>> started

>>>>>>>> with a low-grade fevor a week ago and progressed to this.

>>>>> There is

>>>>>>> an

>>>>>>>> outside chance that if he has some virus, that could

>> cause the

>>>>>>> kidney

>>>>>>>> function to decrease temporarily, but his doctors can't

>> find a

>>>>>>> disease

>>>>>>>> process yet, and they didn't want to take the chance of

>>>>> permanent

>>>>>>> damage.

>>>>>>>> They think, and that's the big word, they can reverse the

>> damage

>>>>>>> with early

>>>>>>>> intervention of steroids. When I ask the doctors about

>> beer,

>>>>> they

>>>>>>> are

>>>>>>>> pretty evasive. None have said outright not to drink, but

>>>>>>> definitely do not

>>>>>>>> smoke.

>>>>>>>>

>>>>>>>>

>>>>>>>>> From: " Northern Lights Academy "

>> <northernlightsacademy@h...>

>>>>>>>>> Reply-To: iga-nephropathyegroups

>>>>>>>>> To: <iga-nephropathyegroups>

>>>>>>>>> Subject: Re: Our son

>>>>>>>>> Date: Mon, 25 Dec 2000 22:17:47 -0800

>>>>>>>>>

>>>>>>>>> Is this the same that was out late at night and

>> drinking

>>>>> beer

>>>>>>> a week

>>>>>>>>> ago?

>>>>>>>>> Might have the beer or whatever else he may have done

>> during

>>>>> those

>>>>>>> nights

>>>>>>>>> triggered something? Were any of his buddies sick with

>>>>>>> something/did any of

>>>>>>>>> them come down with something? I can't believe how his

>> health

>>>>> has

>>>>>>> turned

>>>>>>>>> around. How long ago was he diagnosed and how long has

>> he had

>>>>>>> symptoms

>>>>>>>>> before this episode? Has he had anything similar to this

>>>>> before?

>>>>>>> Are they

>>>>>>>>> going in for another kidney biopsy?This disease is more

>> varied

>>>>> and

>>>>>>>>> mysterious than I thought it was.

>>>>>>>>>

>>>>>>>>> Carolyn

>>>>>>>>>

>>>>>>>>

>>>>>>>>

>>>>> _________________________________________________________________

>>>>>>>> Get your FREE download of MSN Explorer at

>>>>> http://explorer.msn.com

>>>>>>>

>>>>>>

>>>>>>

>> _________________________________________________________________

>>>>>> Get your FREE download of MSN Explorer at

>> http://explorer.msn.com

>>>>>

>>>>

>>>> _________________________________________________________________

>>>> Get your FREE download of MSN Explorer at http://explorer.msn.com

>>>>

>>>>

>>>> eGroups Sponsor

>>>>

>>>>

>>>>

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Pam:

I was just diagnosed in early December 2000. At first it was denial and then

anger. Mainly anger at the doctors for taking 10 years, 2 IVP's, 2

ultrasounds, 1 cystoscopy, 1 bone marrow biopsy, a ton of ua and 24 hr

before finally doing the kidney biopsy which i was demanding inorder to

finally diagnose me with this IgA Nephropathy. I think what has helped eased

my anger is empowering myself and knowing all I can about this disease and

taking some kind of control of it. I got a bottle of those Multistix

dipsticks and check my urine and bp every am and log it in on my diary or

whatever and I also got on the net and tried to get as much info about the

disease. Perhaps for him it might do him some good to meet other teens who

have the same disease and diagnosis to talk about how they deal with a

chronic illness. Perhaps he can organize or become a part of a IgA/kidney

disease walk a thon and donate the proceeds to an organization that

researches this disease. Maybe he could start an online support group

e-mmail list just for teens with this diagnosis or start one at the local

hospital. Anger is good especially if it motivates him to channel it where

he can do something positive about it. Perhaps he can do something about

kidneys for a science fair project or write an essay about what it is like

to be a teen with a chronic kidney disease for English class or submit it to

a kidney disease. newsletter. Don;t let him start feeling sorry for

himself- I started to fall into that depressive funk for a few days after

the diagnosis. It can be dangerous I have found. Right now I am at the point

of saying to myself- I am going to live a normal life despite this

diagnosis. I am not going to let this lead my life completely. I guess I am

starting to see this diagnosis as an evil thing and I am going to beat it in

terms of treating my body well and continuing on with my life.

Anyways I hope this helps. I thought I could add something since I too was

just diagnosed with this recently.

I let you know what stage I am at if anything changes/. I am still at the

information gathering stage.

Carolyn

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Hi Pam, Hi Carolyn

I couldnt have put it better myself.......excellent advice and ideas

Carolyn. It looks as though this group is full of rather determined

battlers doesn't it. I am trying to get my Neph interested in supporting a

group like ours, but I have found that he (and others) suffer from how shall

we say 'professional shyness', even when it could help them in their

studies. Makes me suspicious of what they are afraid of hearing LOL!!!!!

OK once again Happy New Year.

Re: Re: Our son

Pam:

I was just diagnosed in early December 2000. At first it was denial and then

anger. Mainly anger at the doctors for taking 10 years, 2 IVP's, 2

ultrasounds, 1 cystoscopy, 1 bone marrow biopsy, a ton of ua and 24 hr

before finally doing the kidney biopsy which i was demanding inorder to

finally diagnose me with this IgA Nephropathy. I think what has helped eased

my anger is empowering myself and knowing all I can about this disease and

taking some kind of control of it. I got a bottle of those Multistix

dipsticks and check my urine and bp every am and log it in on my diary or

whatever and I also got on the net and tried to get as much info about the

disease. Perhaps for him it might do him some good to meet other teens who

have the same disease and diagnosis to talk about how they deal with a

chronic illness. Perhaps he can organize or become a part of a IgA/kidney

disease walk a thon and donate the proceeds to an organization that

researches this disease. Maybe he could start an online support group

e-mmail list just for teens with this diagnosis or start one at the local

hospital. Anger is good especially if it motivates him to channel it where

he can do something positive about it. Perhaps he can do something about

kidneys for a science fair project or write an essay about what it is like

to be a teen with a chronic kidney disease for English class or submit it to

a kidney disease. newsletter. Don;t let him start feeling sorry for

himself- I started to fall into that depressive funk for a few days after

the diagnosis. It can be dangerous I have found. Right now I am at the point

of saying to myself- I am going to live a normal life despite this

diagnosis. I am not going to let this lead my life completely. I guess I am

starting to see this diagnosis as an evil thing and I am going to beat it in

terms of treating my body well and continuing on with my life.

Anyways I hope this helps. I thought I could add something since I too was

just diagnosed with this recently.

I let you know what stage I am at if anything changes/. I am still at the

information gathering stage.

Carolyn

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Hi, Carolyn. Boy, I'd be angry too if for ten years I knew something was

wrong and no one could find the answer. In some way, it must have given you

some closure to know that you finally had a diagnosis. Being 16, still

really doesn't want to be reminded that he has a disease. I just hope and

pray that his course will be chronic and slow progressing. We are concerned

because of the severe way it presented. When I saw 's urine, the foam

almost looks like dishwasher soap bubbles and they do not disappear for

awhile.

One week before his creatine climbed to almost 2, he had a flu shot. We

wonder whether that could have been the cause of the severe episode he had.

I agree with you not to let this disease own you. You are living with a

chronic disease, not dying with it. Good luck to you. Pam

>

>Reply-To: iga-nephropathyegroups

>To: <iga-nephropathyegroups>

>Subject: Re: Re: Our son

>Date: Sun, 31 Dec 2000 09:57:49 -0800

>

>Pam:

>I was just diagnosed in early December 2000. At first it was denial and

>then

>anger. Mainly anger at the doctors for taking 10 years, 2 IVP's, 2

>ultrasounds, 1 cystoscopy, 1 bone marrow biopsy, a ton of ua and 24 hr

>before finally doing the kidney biopsy which i was demanding inorder to

>finally diagnose me with this IgA Nephropathy. I think what has helped

>eased

>my anger is empowering myself and knowing all I can about this disease and

>taking some kind of control of it. I got a bottle of those Multistix

>dipsticks and check my urine and bp every am and log it in on my diary or

>whatever and I also got on the net and tried to get as much info about the

>disease. Perhaps for him it might do him some good to meet other teens who

>have the same disease and diagnosis to talk about how they deal with a

>chronic illness. Perhaps he can organize or become a part of a IgA/kidney

>disease walk a thon and donate the proceeds to an organization that

>researches this disease. Maybe he could start an online support group

>e-mmail list just for teens with this diagnosis or start one at the local

>hospital. Anger is good especially if it motivates him to channel it where

>he can do something positive about it. Perhaps he can do something about

>kidneys for a science fair project or write an essay about what it is like

>to be a teen with a chronic kidney disease for English class or submit it

>to

>a kidney disease. newsletter. Don;t let him start feeling sorry for

>himself- I started to fall into that depressive funk for a few days after

>the diagnosis. It can be dangerous I have found. Right now I am at the

>point

>of saying to myself- I am going to live a normal life despite this

>diagnosis. I am not going to let this lead my life completely. I guess I am

>starting to see this diagnosis as an evil thing and I am going to beat it

>in

>terms of treating my body well and continuing on with my life.

>Anyways I hope this helps. I thought I could add something since I too was

>just diagnosed with this recently.

>I let you know what stage I am at if anything changes/. I am still at the

>information gathering stage.

>

>Carolyn

>

_________________________________________________________________

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Yes- I understand not wanting to be reminded of the disease- i was at church

today for the first time in over a month and every single person I saw had

to talk about this disease and how I was feeling and in truth I just wanted

to be normal today. Just being present and there with the kids checking into

the pretty decorations etc. I didn't really want to be reminded about it and

wanted to be human and normal again. I go through bouts of denial -where i

do too much . Today we brought an extra child to church with me. It was only

myself and my three kids. I had a 6yrs, 4.5 yr, 4 yrs and 2.5 yrs with me

and this is the norm for me as I was a teacher before children and now

currently homeschooling. But again people asked what a big deal for me to

come to church alone with the three kids plus one more.

I just laughed it off and said i am really feeling fine today. anyways now

that I am home and I am exhausted and I am mad about that because i don't

want to be tired and fatigued after a simple visit to church. I do get angry

when I just can't do as much as I would like and that i have to pace myself

now. It is the lifestyle change that gets me at times. I guess the best part

is the realization of what is really important to me-which is my family and

I get frustrated with all the petty stuff such as housework etc and i'd

rather spend the time with the kids and hubbie. You can let know that

he can still " party " without having to push his body too hard. You can still

have fun without alcohol- I think it is more fun to watch your friends get

drunk and act like fools.

I think you are right about the flu shot - It would make sense that it would

cause a reaction considering they are saying this IgA thing can be systemic

and have an autoimmune like reaction.

Do you believe that I have made the kidneys and the disease out of felt

just so I could understand it better and show it to the kids about what is

happening?

One thing that might make your son feel a little better which may sound nuts

at first is actually visiting little (younger) kids in the hospital with

chronic illnesses and spending time with them. It would give him some

perspective. These little kids really make us teens/adults look like wimps.

They have such a great attitude about everything even when they have spent

most of their short life in the hospital and going through painful

procedures. They always have smiles on their faces.

Carolyn

Re: Re: Our son

> >Date: Sun, 31 Dec 2000 09:57:49 -0800

> >

> >Pam:

> >I was just diagnosed in early December 2000. At first it was denial and

> >then

> >anger. Mainly anger at the doctors for taking 10 years, 2 IVP's, 2

> >ultrasounds, 1 cystoscopy, 1 bone marrow biopsy, a ton of ua and 24 hr

> >before finally doing the kidney biopsy which i was demanding inorder to

> >finally diagnose me with this IgA Nephropathy. I think what has helped

> >eased

> >my anger is empowering myself and knowing all I can about this disease

and

> >taking some kind of control of it. I got a bottle of those Multistix

> >dipsticks and check my urine and bp every am and log it in on my diary or

> >whatever and I also got on the net and tried to get as much info about

the

> >disease. Perhaps for him it might do him some good to meet other teens

who

> >have the same disease and diagnosis to talk about how they deal with a

> >chronic illness. Perhaps he can organize or become a part of a IgA/kidney

> >disease walk a thon and donate the proceeds to an organization that

> >researches this disease. Maybe he could start an online support group

> >e-mmail list just for teens with this diagnosis or start one at the local

> >hospital. Anger is good especially if it motivates him to channel it

where

> >he can do something positive about it. Perhaps he can do something about

> >kidneys for a science fair project or write an essay about what it is

like

> >to be a teen with a chronic kidney disease for English class or submit it

> >to

> >a kidney disease. newsletter. Don;t let him start feeling sorry for

> >himself- I started to fall into that depressive funk for a few days after

> >the diagnosis. It can be dangerous I have found. Right now I am at the

> >point

> >of saying to myself- I am going to live a normal life despite this

> >diagnosis. I am not going to let this lead my life completely. I guess I

am

> >starting to see this diagnosis as an evil thing and I am going to beat it

> >in

> >terms of treating my body well and continuing on with my life.

> >Anyways I hope this helps. I thought I could add something since I too

was

> >just diagnosed with this recently.

> >I let you know what stage I am at if anything changes/. I am still at the

> >information gathering stage.

> >

> >Carolyn

> >

>

> _________________________________________________________________

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>

>

>

>

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