RE: Delicate matter?

December 31, 2000

It's Ok. We guys won't peek while you ladies discuss this. We'll go and

watch some American football bowl games on TV or something

Seriously though, I don't think much has been written about this subject

with respect to women. Chronic kidney disease certainly is known to cause

rather undesirable problems in that area for men.

Pierre

Malt wrote:

Hi Friends

Me again? Perhaps you can see why I said I was challenging

to my

Neph......always questions? Now this is a delicate matter,

and particulary

aimed at the ladies with IGAN.....has anyone noticed that sexual

activity

has become painful since diagnosis? I suffer with real bad

flank pain

afterwards, and low abdomen and groin pain......admittedly I have

a urine

dynamic test coming up in January to check bladder function etc.......my

Neph said he has heard of similar complaints before now, but surprise

surprise, it has not been proven medically that IGAN can cause

sexual

activity pain? But he did hint that IGAN can clash with hormone

balances,

which can cause this type of problem. Thoughts anyone?

Has taken me ages to pluck up the courage to post this, but I have

done it

now.

Thanks

December 31, 2000

:

I'd have to say I concur with you -although I didn;t know IgA has some kind

of hormonal involvement.

Although I always thought my pains had to do with the myalgias that was

associated with this disease. I seem to also have the most incredible pains

(just recently) during ovulation affecting my abdoment and flank pain. But

heck I thought it was all a part of being a woman. Tell me more about what

your doc said about this hormonal aspect.

Carolyn

Delicate matter?

> Hi Friends

>

> Me again? Perhaps you can see why I said I was challenging to my

> Neph......always questions? Now this is a delicate matter, and

particulary

> aimed at the ladies with IGAN.....has anyone noticed that sexual activity

> has become painful since diagnosis? I suffer with real bad flank pain

> afterwards, and low abdomen and groin pain......admittedly I have a urine

> dynamic test coming up in January to check bladder function etc.......my

> Neph said he has heard of similar complaints before now, but surprise

> surprise, it has not been proven medically that IGAN can cause sexual

> activity pain? But he did hint that IGAN can clash with hormone balances,

> which can cause this type of problem. Thoughts anyone?

>

> Has taken me ages to pluck up the courage to post this, but I have done it

> now.

>

> Thanks

>

December 31, 2000

Carolyn

Well what can I say, here are two ladies with similar complaints, so maybe

there is something in it. I got a bit peed off with my Neph to begin with

because he tried to dismiss my complaint re: sexual activity as 'honeymoon

bladder' well I am 40 and have been sexually active since age 18, rather a

long honeymoon I replied!!! After pushing him further he admitted that he

has seen several ladies with IGAN who complain of same or similar symptoms.

He was vague in his explanation but did say that he thought that renal

problems can be closely linked to hormonal inbalances which in turn affect

the gynae regions. He said that some ladies had severe bloating during the

run up to the monthly cycle (absolutely in my case), and flank pain is

caused by pressure during activity, which radiates up to the kidney. He

said the best person to help with this would be a urologist, who I am under,

and as I said due to see in 2 weeks. I will let you know how I get on.

In the meantime I am confident in being able to tell you that I have been

seen by a gyneacologist who gave me a clean bill of health, and confirmed

that he felt my problems related to kidney problems......I suffer heamaturia

and apparently kidney blood or protein loss can irritate the nether regions

so to speak. I think I need to research this area much more closely, and

intend to do so, it is bad enough having to live with this condition,