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Hi Carmen,

My daughter Grace turned 5 in April the year was to go to kindergarten. At that

time, she was also attending the inclusive pre-program at our school. Her

teachers felt she was not quite ready for all day kindergarten so she attended

inclusive kindgarten in the morning and went back to her ore-k class in the

afternoon. Then after Christmas break of that year, she would attend all day

kindergarten on tuesday and Thursday and keep the regular schedule on the other

days. The following year she went to full kindgarten, all inclusive with a

classroom aide. For her, this worked out fantastic!!!!!! Since she was speech

delayed and socially delayed, easing into it was great.

Just wanted to let you know that this could maybe be an option for your little

girl. It worked for ours. Good luck!

Sharon.

Sent from my iPad

> Hi everyone,

>

> I was wondering if anyone would care to share any more specific experience in

terms of the obstacles you may have faced with the IEP process or with finding

the right placement for your child in the public school setting. My daughter

just turned 5. We live in North Carolina and she will be starting kindergarten

next school year. She has been through the public school early intervention

program and she is currently in an inclusive preK class that the public school

offers.

>

> We just attended her IEP meeting yesterday. Although we did not determine her

kindergarten placement yet. My husband and I asked about our options. I must say

we left the meeting a bit frustrated and discouraged because they only options

that were discussed were the typical mainstream classroom and the self-contained

EC classroom. Her current teacher and the LEA both seemed as thought they were

leaning towards a recommendation for a self-contained classroom for her because

she is still delayed in speech and she also has some cognitive delays as well.

Now my husband and I do not want her to start off in a self-contained classroom.

We do not deny that she has a developmental delay but we do feel she does pretty

well in the mainstream. I feel as though they are labeling her based on her

disability and they are just putting all the kids with delays in a box. I also

know that there are resource classes and aids available but they did not mention

those as an option.

>

> Does anyone here have experience as a special ed teacher? Can anyone tell me

more about our rights with the IEP and placement process? Do we have to accept

the placement that the teacher and the other folks in the meeting recommend or

can we sort of demand that she be mainstreamed? We will probably be having her

placement meeting in April or May. But I am just trying to get prepared by

knowing our rights and our limits. Any advice is appreciated. If you would like

to contacgt me directly please email me at carmenihinds@...

>

> Thanks

> Carmen

>

>

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Hi Carmen,

First thing I always tell anyone who has a child on an IEP is know your rights!

s Law is a great place to start. 

I think you want " Least Restrictive Environment " for your daughter. Here is the

link to wrights law page for

LRE...http://www.wrightslaw.com/info/lre.index.htm 

...And yes you can request for your daughter to have an aide. Just remember when

you request anything... NEVER accept an answer from the school that says.... We

are short staff, we don't have the funds/budget, don't have time, or room. None

of that is your problem. You just smile and say nicely please put that

in written of why your denying my requests. Believe me they won't put it

in writing.   

 

Below is a Q & A that I copied and pasted from s Law website...  Feel free

to contact me if you have anymore questions.

1 . A. What does the federal law require and not require with respect to

inclusion?

ANSWER:

IDEA does not use the term " inclusion. " However, IDEA does require school

districts to place students in the least restrictive environment (LRE). LRE

means that, to the maximum extent appropriate, school districts must educate

students with disabilities in the regular classroom with appropriate aids and

supports, referred to as " supplementary aids and services, " along with their

nondisabled peers in the school they would attend if not disabled, unless a

student's individualized education program (IEP) requires some other

arrangement. This requires an individualized inquiry into the unique educational

needs of each disabled student in determining the possible range of aids and

supports that are needed. Some supplementary aids and services that educators

have used successfully include modifications to the regular class curriculum,

assistance of an itinerant teacher with special education training, special

education training for the regular teacher, use of

computer-assisted devices, provision of notetakers, and use of a resource room,

to mention a few. 

In implementing IDEA's LRE provisions, the regular classroom in the school the

student would attend if not disabled is the first placement option considered

for each disabled student before a more restrictive placement is considered. If

a student with a disability can be educated satisfactorily with appropriate aids

and supports in the regular classroom in the school the student would attend if

not disabled, that placement is the LRE placement for that student. However, if

the placement team determines that a student cannot be educated satisfactorily

in that environment, even with the provision of appropriate aids and supports,

the regular classroom in the school the student would attend if not disabled is

not the LRE placement for that student. Any alternative placement selected for

the student outside of the regular educational environment must maximize

opportunities for the student to interact with nondisabled peers, to the extent

appropriate to the

needs of the student.

IDEA does not require that every student with a disability be placed in the

regular classroom regardless of individual abilities and needs. This recognition

that regular class placement may not be appropriate for every disabled student

is reflected in the requirement that school districts make available a range of

placement options, known as a continuum of alternative placements, to meet the

unique educational needs of students with disabilities. This requirement for the

continuum reinforces the importance of the individualized inquiry, not a " one

size fits all " approach, in determining what placement is the LRE for each

student with a disability. The options on this continuum must include the

alternative placements listed in the definition of special education under

300.17 (instruction in regular classes, special classes, special schools, home

instruction, and instruction in hospitals and institutions).

 

Hellard

President

International Mosaic Down syndrome Association (IMDSA)

P.0. Box 354~ Trenton ~ OH ~ 45067

1-888-MDS-LINK ~ 1- ~ (FAX) 1- 

http://imdsa.org

>________________________________

>

>To: MosaicDS

>Sent: Wednesday, December 7, 2011 7:46 PM

>Subject: Education

>

>

> 

>Hi everyone,

>

>I was wondering if anyone would care to share any more specific experience in

terms of the obstacles you may have faced with the IEP process or with finding

the right placement for your child in the public school setting. My daughter

just turned 5. We live in North Carolina and she will be starting kindergarten

next school year. She has been through the public school early intervention

program and she is currently in an inclusive preK class that the public school

offers.

>

>We just attended her IEP meeting yesterday. Although we did not determine her

kindergarten placement yet. My husband and I asked about our options. I must say

we left the meeting a bit frustrated and discouraged because they only options

that were discussed were the typical mainstream classroom and the self-contained

EC classroom. Her current teacher and the LEA both seemed as thought they were

leaning towards a recommendation for a self-contained classroom for her because

she is still delayed in speech and she also has some cognitive delays as well.

Now my husband and I do not want her to start off in a self-contained classroom.

We do not deny that she has a developmental delay but we do feel she does pretty

well in the mainstream. I feel as though they are labeling her based on her

disability and they are just putting all the kids with delays in a box. I also

know that there are resource classes and aids available but they did not mention

those as an

option.

>

>Does anyone here have experience as a special ed teacher? Can anyone tell me

more about our rights with the IEP and placement process? Do we have to accept

the placement that the teacher and the other folks in the meeting recommend or

can we sort of demand that she be mainstreamed? We will probably be having her

placement meeting in April or May. But I am just trying to get prepared by

knowing our rights and our limits. Any advice is appreciated. If you would like

to contacgt me directly please email me at carmenihinds@...

>

>Thanks

>Carmen

>

>

>

>

>

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Hi Carmen, I live near you in Northeast Georgia. Unfortunately, you are either

mainstreamed or in a self-contained classroom in this area, which I call the

land of no services. I was told that because my son has apraxia (unintelligible

speech) that if he was able to come to public school, he would be placed in a

severely mentally retarded class. Come to find out, my son has aphasia. he is

not mentally retarded at all. His delays stem from improper diagnosis and

treatment for most of his life (being treated like he was dumb from school

personnel, doctors, etc...) He is far from stupid.

As a result of the school failing to provide homebound services as prescribed by

a doctor (and we had legal aid attorneys) and me filing a due process complaint,

we still did not get the legally mandated services. We decided, in this area, it

is best to homeschool. He is doing very well now. The speech therapist is raving

about his improvements in the last three months alone. He is 8 years old,

learning about money, learning to add/subtract single digit numbers, learning to

read, and learning about social studies and various things in science. He is

really doing better than expected.

>

> Hi everyone,

>

> I was wondering if anyone would care to share any more specific experience in

terms of the obstacles you may have faced with the IEP process or with finding

the right placement for your child in the public school setting. My daughter

just turned 5. We live in North Carolina and she will be starting kindergarten

next school year. She has been through the public school early intervention

program and she is currently in an inclusive preK class that the public school

offers.

>

> We just attended her IEP meeting yesterday. Although we did not determine her

kindergarten placement yet. My husband and I asked about our options. I must say

we left the meeting a bit frustrated and discouraged because they only options

that were discussed were the typical mainstream classroom and the self-contained

EC classroom. Her current teacher and the LEA both seemed as thought they were

leaning towards a recommendation for a self-contained classroom for her because

she is still delayed in speech and she also has some cognitive delays as well.

Now my husband and I do not want her to start off in a self-contained classroom.

We do not deny that she has a developmental delay but we do feel she does pretty

well in the mainstream. I feel as though they are labeling her based on her

disability and they are just putting all the kids with delays in a box. I also

know that there are resource classes and aids available but they did not mention

those as an option.

>

> Does anyone here have experience as a special ed teacher? Can anyone tell me

more about our rights with the IEP and placement process? Do we have to accept

the placement that the teacher and the other folks in the meeting recommend or

can we sort of demand that she be mainstreamed? We will probably be having her

placement meeting in April or May. But I am just trying to get prepared by

knowing our rights and our limits. Any advice is appreciated. If you would like

to contacgt me directly please email me at carmenihinds@...

>

> Thanks

> Carmen

>

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In our district in California there are 3 options. 1 is in the a regular

classroom setting, 2 is a Special Day Class (SDC), this class is for mild to

moderate disabilities. And 3 is the County Program, for moderate to severe

disabilities. You can ask for an aide in all three settings. And you could

probably have a combination of these settings. In the SDC class you could

request specific amounts of inclusion in the regular classroom during their

day.

My experience is that they absolutely do pre-profile children with Down

Syndrome, regardless of being Mosaic! And you can absolutely disagree and

get your child in the setting that you feel is best for her. You go girl J!

(mom to Aiden-7 MDS)

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I hope you were not equating mentally retarded with stupid.  These two things

are not at all the same. And as much as people feel we need to educate what MDS

is I feel we need to not equate these two terms.  My daughter is cognitively

delayed, the old term would be mentally retarded which is simply meaning slower

to learn.  She is in no way shape or form stupid.  I understand what you are

saying in that your son did not have the same issues as these other children,

and the placement with them would not have been appropriate,  But these other

children are not " stupid "   They are children with other needs who also need

respect and not to be labled as stupid.

Luanne

Subject: Re: Education

To: MosaicDS

Date: Thursday, December 8, 2011, 10:24 AM

 

Hi Carmen, I live near you in Northeast Georgia. Unfortunately, you are

either mainstreamed or in a self-contained classroom in this area, which I call

the land of no services. I was told that because my son has apraxia

(unintelligible speech) that if he was able to come to public school, he would

be placed in a severely mentally retarded class. Come to find out, my son has

aphasia. he is not mentally retarded at all. His delays stem from improper

diagnosis and treatment for most of his life (being treated like he was dumb

from school personnel, doctors, etc...) He is far from stupid.

As a result of the school failing to provide homebound services as prescribed by

a doctor (and we had legal aid attorneys) and me filing a due process complaint,

we still did not get the legally mandated services. We decided, in this area, it

is best to homeschool. He is doing very well now. The speech therapist is raving

about his improvements in the last three months alone. He is 8 years old,

learning about money, learning to add/subtract single digit numbers, learning to

read, and learning about social studies and various things in science. He is

really doing better than expected.

>

> Hi everyone,

>

> I was wondering if anyone would care to share any more specific experience in

terms of the obstacles you may have faced with the IEP process or with finding

the right placement for your child in the public school setting. My daughter

just turned 5. We live in North Carolina and she will be starting kindergarten

next school year. She has been through the public school early intervention

program and she is currently in an inclusive preK class that the public school

offers.

>

> We just attended her IEP meeting yesterday. Although we did not determine her

kindergarten placement yet. My husband and I asked about our options. I must say

we left the meeting a bit frustrated and discouraged because they only options

that were discussed were the typical mainstream classroom and the self-contained

EC classroom. Her current teacher and the LEA both seemed as thought they were

leaning towards a recommendation for a self-contained classroom for her because

she is still delayed in speech and she also has some cognitive delays as well.

Now my husband and I do not want her to start off in a self-contained classroom.

We do not deny that she has a developmental delay but we do feel she does pretty

well in the mainstream. I feel as though they are labeling her based on her

disability and they are just putting all the kids with delays in a box. I also

know that there are resource classes and aids available but they did not mention

those as an

option.

>

> Does anyone here have experience as a special ed teacher? Can anyone tell me

more about our rights with the IEP and placement process? Do we have to accept

the placement that the teacher and the other folks in the meeting recommend or

can we sort of demand that she be mainstreamed? We will probably be having her

placement meeting in April or May. But I am just trying to get prepared by

knowing our rights and our limits. Any advice is appreciated. If you would like

to contacgt me directly please email me at carmenihinds@...

>

> Thanks

> Carmen

>

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Share on other sites

Thanks for all of the responses to my post. They have been very helpful. I do

understand that the topic of education and children with special needs can be a

very sensitive one.

My daughter is cognitively delayed and she has delays in speech and fine motor

skills. However, she has many strengths and she is very smart in many areas. I

do not have a problem with her being around other children with special needs or

delays in any area. My problem is that I don't like the fact that in many school

districts here in the US it seems as though children are " labeled " and they are

all clumped into the same category if they do have special needs. I think I just

have a lot of issues with the public school education sometimes. I don't like

labels. Although I know that some children require extra assistance and they are

slower to learn. I just feel like because of the " label " many times the

educators and other school personnel assume that they cannot learn or they will

never reach a certain level and become more independent and or more social and

therefore they treat the children based on these ideas and don't really

challenge them to succeed.

I don't know if I like the idea of " self-containment " or seclusion for chldren

with special needs because I believe that children with delays can often reach

milestones quicker when they are exposed to other children who are more

advanced. My daughter is a perfect example. She imitates a lot of things every

day. She often imitates her peers and that is how she learns how to do different

things. I just hate the fact that children get singled out of mainstream just

because they are delayed. And what I am noticing is that if you have Down

Syndrome or Autism they don't seem to care how far along you are they just

automatically save you a slot in the self-contained program.

In a " perfect world " I would love to see all of our children educated in the

same classroom with both a regular ed and special ed teacher in that same

classroom and aides to help those students who need them. I don't know if or how

that would work I don't even know if it's possible. I just think that we put too

many labels on folks and there are too many stereotypes out there. I think that

some of the folks in the public school system need to think more " outside of the

box " But I also know that there is a bigger issue facing us and that is funding

so I really don't know how things will ever change. That's just my two cents.

I just hope that everyone gets the best placement and the best education they

can for their child regardless of what their child's needs may be. I wish us all

luck.

Carmen

>

> Hi everyone,

>

> I was wondering if anyone would care to share any more specific experience in

terms of the obstacles you may have faced with the IEP process or with finding

the right placement for your child in the public school setting. My daughter

just turned 5. We live in North Carolina and she will be starting kindergarten

next school year. She has been through the public school early intervention

program and she is currently in an inclusive preK class that the public school

offers.

>

> We just attended her IEP meeting yesterday. Although we did not determine her

kindergarten placement yet. My husband and I asked about our options. I must say

we left the meeting a bit frustrated and discouraged because they only options

that were discussed were the typical mainstream classroom and the self-contained

EC classroom. Her current teacher and the LEA both seemed as thought they were

leaning towards a recommendation for a self-contained classroom for her because

she is still delayed in speech and she also has some cognitive delays as well.

Now my husband and I do not want her to start off in a self-contained classroom.

We do not deny that she has a developmental delay but we do feel she does pretty

well in the mainstream. I feel as though they are labeling her based on her

disability and they are just putting all the kids with delays in a box. I also

know that there are resource classes and aids available but they did not mention

those as an option.

>

> Does anyone here have experience as a special ed teacher? Can anyone tell me

more about our rights with the IEP and placement process? Do we have to accept

the placement that the teacher and the other folks in the meeting recommend or

can we sort of demand that she be mainstreamed? We will probably be having her

placement meeting in April or May. But I am just trying to get prepared by

knowing our rights and our limits. Any advice is appreciated. If you would like

to contacgt me directly please email me at carmenihinds@...

>

> Thanks

> Carmen

>

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