Re: what does very high strep mean?

[Guest guest]

And some kids have very low titers with many symptoms

- it depends on when they get the test in the course

of the infection. I personally would treat the child

and not the test result, though it is great when the

child is showing symptoms and the test verifies why.

Why did you get the test in the first place? Dr. JM

--- loveavmom wrote:

> My son's strep test just came back. It was 954 with

> ref. range of 0-

> 150. He displays no step symptoms and appears

> healthy as a horse.

> What does that mean? Thanks. Shayne

>

>

[Guest guest]

And some kids have very low titers with many symptoms

- it depends on when they get the test in the course

of the infection. I personally would treat the child

and not the test result, though it is great when the

child is showing symptoms and the test verifies why.

Why did you get the test in the first place? Dr. JM

--- loveavmom wrote:

> My son's strep test just came back. It was 954 with

> ref. range of 0-

> 150. He displays no step symptoms and appears

> healthy as a horse.

> What does that mean? Thanks. Shayne

>

>

[Guest guest]

We just switched DAN! doctors. We had our first appointment with Dr. DeMio in

early May and it was one of the tests that he requested - streptozyme. We will

speak with him on Friday about all of the test results he ordered. The other

tests all looked good except for low serine, slightly low neutrophils and

eosinophils, and slightly high monocytes. The white blood cells are closer to

ref. range than they were 2.5 years ago when we started. Yeast and bacterial

counts are off too.

We are hopeful that Dr. DeMio can resolve the remaining issues. My son is

doing great....sensory and transitional issues are gone, processing delay is

gone. Spoken speech is delayed a year, receptive is fine. LDN does wonders for

social skills. Most people don't know he has autism, they would be shocked if I

told them. He is so beautiful.

---------------------------------

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[Guest guest]

Yes, My daughter's titers were only around 250 ... and yet she has

tourettes that seem to come on just 1 week after a strep

infection...and two weeks after her DPT/HIB booster... Our DAN is

treating her for PANDAS although the titers weren't huge ... She is

being treated in many of the same ways as her twin ASD brother ...

and her Tourettes has significantly gone away. I'd say she is now

just five months later already 80 to 85 percent better. She is no

longer having sleep issues ... and her tics are now only about one

every 10 to 15 minutes rather than every couple of seconds... The

tics themselves are also less pronounced. Her head use to shake so

bad it hurt ... but now it is slight... and doesn't cause her

pain.... Her severe gut issues are much much better and she is even

able to eat some foods without issue now (along with digestive

enzymes...) She has always been otherwise neurotypical ... but she

has soo many of the same issues as my son. She is otherwise healthy

as a bug too. It amazed me though when her food intollerance panel

came back almost as bad as her brother.... because he is so severely

affected by autism... and her heavy metal load was almost as bad...

I guess she is lucky she doesn't have his high testosterone levels or

she probably would have been as affected by autism as he is ... She

has no autistic traits... just tics.

Melinda

>

> > My son's strep test just came back. It was 954 with

> > ref. range of 0-

> > 150. He displays no step symptoms and appears

> > healthy as a horse.

> > What does that mean? Thanks. Shayne

> >

> >

>

[Guest guest]

What is the protocol for treating PANDAS? Our previous doc ran

several tests that all came back negative and so said ds doesn't have

PANDAS, however he always has strep bacteria in his stool samples, and

he is extremely painfully OCD. The only time the OCD backed off is on

a round of Vanco. His OCD went down by like half, he was so great

that month, great sleep and more. But once off the Vanco it all came

right back despite tons of probiotics. Any suggestions on how to

proceed? Is PANDAS primarily treated with antibiotics? Seems like

you'd have to stay on them for a very long time... at least likely in

my son's case!

> >

> > > My son's strep test just came back. It was 954 with

> > > ref. range of 0-

> > > 150. He displays no step symptoms and appears

> > > healthy as a horse.

> > > What does that mean? Thanks. Shayne

> > >

> > >

> >

>

[Guest guest]

There is no consensus recommendation for PANDAS. Some

docs do not like antibiotics, and use IVIG or Plasma

Exchange. Many do use antibiotics, and prefer weekly

bicillin, (IM penicillin) - less intestinal exposure

and killing off the good bacteria in the gut with the

shots for three-six weeks or more depending upon

symptomology. Unless a child has had

penicillin/amoxicillin/augmentin exposure of recent,

or history of penicillin reaction, many prefer using

bicillin.

If under 60 lbs, the dose of Bicillin is 60,000U. the

dose doubles above 60lbs.

If recently or multiple times had taken a penicillin,

a cephalosporin such as duricef or keflex may be used.

If penicillin/cephalosporin allergic, most would use

the high dose regimen of zithromax, which is 12mg/kg

qD for 5 days. Dr. JM

--- wrote:

> What is the protocol for treating PANDAS? Our

> previous doc ran

> several tests that all came back negative and so

> said ds doesn't have

> PANDAS, however he always has strep bacteria in his

> stool samples, and

> he is extremely painfully OCD. The only time the

> OCD backed off is on

> a round of Vanco. His OCD went down by like half,

> he was so great

> that month, great sleep and more. But once off the

> Vanco it all came

> right back despite tons of probiotics. Any

> suggestions on how to

> proceed? Is PANDAS primarily treated with

> antibiotics? Seems like

> you'd have to stay on them for a very long time...

> at least likely in

> my son's case!

>

>

>

>

> > >

> > > > My son's strep test just came back. It was

> 954 with

> > > > ref. range of 0-

> > > > 150. He displays no step symptoms and appears

> > > > healthy as a horse.

> > > > What does that mean? Thanks. Shayne

> > > >

> > > >

> > >

> >

>

>

>

[Guest guest]

, our PANDAS workup was negative, but my son also develops OCD

when he has strep in his gut. An extended course (3 weeks, I think) of

amoxicillin wipes out the OCD - we have had to use the amoxicillin two

different times with him. I think vanco is overkill for strep.

good luck

> > >

> > > > My son's strep test just came back. It was 954 with

> > > > ref. range of 0-

> > > > 150. He displays no step symptoms and appears

> > > > healthy as a horse.

> > > > What does that mean? Thanks. Shayne

> > > >

> > > >

> > >

> >

>

[Guest guest]

It is wonderful your son is doing so well. Would you mind telling all of us what

protocols/

therapies have been helpful in his recovery?

Also, specifically how did LDN help your son socially?

Thanks very much!

Anne

>

> We just switched DAN! doctors. We had our first appointment with Dr. DeMio in

early

May and it was one of the tests that he requested - streptozyme. We will speak

with him

on Friday about all of the test results he ordered. The other tests all looked

good except

for low serine, slightly low neutrophils and eosinophils, and slightly high

monocytes. The

white blood cells are closer to ref. range than they were 2.5 years ago when we

started.

Yeast and bacterial counts are off too.

>

> We are hopeful that Dr. DeMio can resolve the remaining issues. My son is

doing

great....sensory and transitional issues are gone, processing delay is gone.

Spoken speech

is delayed a year, receptive is fine. LDN does wonders for social skills. Most

people don't

know he has autism, they would be shocked if I told them. He is so beautiful.

>

>

>

> ---------------------------------

> Ready for the edge of your seat? Check out tonight's top picks on Yahoo! TV.

>

>