Welcome new family

[Guest guest]

Hi there,

I am pretty new to this group myself. My daughter has MDS, she is 2 weeks and 1

day old today! My name is Tacia and my daughter's name is Olivia. Sounds like

our daughters are close in age, which is nice because we can both learn about

this together. So far the people in this group have been very welcoming and

supportive.

Welcome to the group! Please let us know more about you and your little girl!

Tacia

juptrgrl@...

[Guest guest]

Congratulations on your new baby girl! And welcome!

 

________________________________

To: MosaicDs <MosaicDS >

Sent: Sun, December 19, 2010 3:57:51 PM

Subject: Welcome new family

 

Hi everyone,

 

Please welcome a new family.  This is what they had to say....

 

hi my name is yvonne iv just give birth to my 10th child my 9th passed

away last year with edward syndrome my other 8 are fine my 10th has mds

she is buitifull

Welcome to the group .  Please tell us a little more about you and your

family.  Our group is very friendly and supportive.  If you have any

questions,

please ask. 

 

Teri Grubb   Mom to Grace (mDs) 2yrs and Emma (mDs) 2yrs

[Guest guest]

Welcome Triciai,

My daughter also spends a lot of time at CHOP, we live in Elverson,

PA Chester County (between 299 and 312 on the turnpike) The best advice I

can give you is wait until he/she is born and then have the testing redone.

He/She may not have MDS, he/she may, has no features of DS but she is

slightly delayed. That being said she is fully included in a " regular " 5th

grade, she does get learning support, but so do others in her class. I know

it is hard, but enjoy the rest of your pregnancy and wait to see what the

outcome is.

It is hard, because when you are preganant you are already planning their

future, where they are going to go to college, type of person they are going

to marry, how many children they may have.... All of these things are still

possible - Do I see going to college? Yes - but not necessarily away

from home. Do I see getting married? Yes, I hope she finds a nice

boy who loves her for the giving, loving person she is. Do I see

having children? Yes, I hope so - she desperately wants to be a mommy (BUT

I told her she MUST be married first)

Darlene - Mom to (14) and (12 tomorrow!)

>

>

> Hi all -

> My name is Triciai and I am currently 24 weeks pregnant with our third

> child and via prenatal testing have found out the baby has mDs. Our first

> son , now 8 has Down Syndrome, our daughter Hannah is 5. We never

> expected this could happen again. We recently had a 2nd amnio and fetal

> blood sampling done. The amnio results showed 2 of 31 cell with t21 and the

> fetal blood sample showed no mosaicism. We were wondering if others have had

> a similar situation?

>

> We live in the Doylestown, PA just north of Philadelphia, and we find

> ourselves fortunate to be so close to CHOP and have been actively involved

> with supporting the Trisomy 21 Center at CHOP that was started 9 years ago.

>

> Tricia

> Mother of (8-DS), Hannah (5) and baby on the way (mDs)

>

> >

>

>

>

--

“Knowing is not enough, we must apply. Willing is not enough, we must do.”

Johann Wolfgang von Goethe

[Guest guest]

Hello everyone,

Please welcome a new family.  Here is what they had to say.......

 

I am the proud mother of a boy with Mosaic Downs syndrome. We live in

Norway, and I long for other families with members with the same

diag.

Friendly regards, Marit

Welcome Marit  :-)  We are a very friendly and supportive group.  Please ask any

questions you may have.  Please tell us a little more about your family.  How

old is your son?  I am the proud mom of twins girls, Grace and Emma who are 2yrs

old.  We live in ville, FL USA. 

 

Teri Grubb  Mom to Grace (mDs) and Emma (mDs) 2 yrs