Guest guest Posted September 16, 1999 Report Share Posted September 16, 1999 Biddy, You made my day!! I may not "look" young, but my E-mail posts do! Thanks, (age 54!) Biddy Santon wrote: Hi! , I just cannot believe you are a grandmother. I thought, by reading your posts, that you were very young!! Hugs, Biddy -----Original Message----- To: egroups <egroups> Date: Wednesday, September 15, 1999 11:17 PM Subject: Re: Nosey Biddy Peg, My kids are now 29 & 31, thank goodness. They were teenagers in '85 when I was diagnosed. No, I don't think I could keep up with teens now, no way! And thank goodness I don't have to. Being a grandmother is just fine with me. Peggy Alfeld wrote: , You are the same age as I am and I can't imagine trying to keep up with teenagers at this age and I don't have PSC. I have 5 grandchildren instead. Much to my regret I didn't take the time to go to college before I got married and had children. I wish I could make more money than I do even though I make a good salary for a non-college woman. Peg mltill/dwalderich wrote: , I am 54 years old. I live in Manchester, NH. I have two children, both married, who live in Silver Spring, Md. (daughter, son-in-law & 3 year old grandson) and in Tulsa, OK (son, daughter-in-law). I am a marriage and family therapist, and before transplant I was on the faculty of Antioch New England Graduate School in Keene, NH. Now my practice is minimal, but keeping it going requires a lot of time. I love to knit, and I belong to a knitting guild in Derry, NH. During my hospital stays I always bring knitting with me, and I even knit just before the ERCP's (the knitting calms me down). I'm into making socks for family members and friends these days (holiday gifts). I have found that knitting under the influence of benedryl is not productive , however <g>. I was diagnosed in '85 at the age of 39. My son was 17, and my daughter was 15. Misha, my daughter, just mentioned to me that for half of her life I have been dealing with the symptoms of the disease (especially the tiredness), and that she hopes that after transplant, she and I can plan an activity (even just shopping), and I won't fink out in the middle of it. I think I've posted the rest of my story about PSC here before. But if you want to know more about that, just ask. WEBSTER wrote: Hi Nosey Biddy! This is nosey . I am really trying to form pictures in my head of each of you so that I can better remember each story by the "face" that goes with it. If any of you would not be offended by my asking, I would love to hear from and about each of you - how old you are, priorities in your life -raising kids, how many, still working, what kind of job, retired, how long you've had PSC, things like that - just some details to help me remember each of you. Because my son is only 7, I've formed the idea in my head that he will continue to live a normal healthy life for the next ten years. I'm very interested to hear from all of you what you think realistic expectations are. How many of you had symptoms before diagnosis? How many of you found out by accident from bloodwork? How soon did you experience symptoms after diagnosis (if you didn't have them beforehand). Do symptoms usually happen in any kind of order? Itching, then URQ pain, etc? Or is it different with every case? Do children show any symptoms or is it usually diagnosed through bloodwork, with symptoms appearing much later? I know I'm just full of questions, but you know how it goes: "Inquiring minds want to know!" (I think that was from a commercial for The Inquirer.) Thanks, folks! Had Enough! Hello All,It has been over four weeks of itching now and I can't stand it any more. I don't know how some of you cope with this but the itching is driving me crazy. I have been on Questran for a week now and have noticed no change. I have itching where I thought it was impossible to itch, my eyes, my head, everywhere. My research nurse said that she has a number of PSC patients where when they DON'T itch, it's a big deal; that they itch more often than not. I don't think I can handle that. I already have large patches of broken blood vessels from scratching and a number of patches where a rash has developed from scratching. It is now at the point where some of my clothes are irritating me.Maybe I'm overreacting because I had very little sleep last night between scratching and getting up with the baby. I'm just waiting for my GI's office to open this morning to see if I can get in today (unlikely since specialists often require several weeks notice for appointments). I can't get in to see my GP until Friday. I hope I don't go crazy by then. Thanks for listening, Debbie, UC(1988), PSC (1989) eGroups.com home: /group/ www. - Simplifying group communications eGroups.com home: /group/ www. - Simplifying group communications Click Here! eGroups.com home: /group/ www. - Simplifying group communications Click Here! eGroups.com home: /group/ www. - Simplifying group communications Click Here! eGroups.com home: /group/ www. - Simplifying group communications eGroups.com home: /group/ www. - Simplifying group communications eGroups.com home: /group/ www. - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
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