New member

[Guest guest]

Hey everyone.

I am a new member here. I am , 28. I have moderate to severe chronin

pain. Mostly in my legs, hips, thighs and feet. Though now is has gone to

my arms. Been getting back pains as well. And headaches. I don't sleep at

night, 'cause of the pain... I sleep during the day, because of my meds that

I am on. I am 6 different types of meds. I also suffer swelling in my thighs

and legs and ankels. I am on meds for that too. I was just recently put on

a mucsel relaxer. It's helping. It's for my back mainly. I don't get out as

I used to. But when I do, I come in major pain. I only have a few friends

that understands, though they don't have what I have. I miss out on a lot

because of this pain. I used to be really active in my church, but now not

so much becasue of the pain. I can't sit for a long period of time or stand.

If I stand for too long, my feet/toes become numb. I have had this since

2003. I am on SSI and DSHS. I don't work. I wish I did though. I hate it

when someone says, oh you'll be fine someday. OR if you just get out and

about you'll be ok. OR if you lose weight you'll be in less pain.... I hate

those. Mostly comes from family members. They have NO idea the pain I am in.

I also have mild depression. Had since last year. I write poetry. It's a

MAJOR passion and it is also therapy for me as well. Anyway, I am glad that

I am in a group of people who understands what I am going through on a daily

basics. When I am in severe pain, (which lasts up to 4 to 5 days) I am in

bed... I don't think about anything at all... other than the fact, that I am

in pain. I stay away from water.. 'cause it burns my skin. I can't have

anything on my lap. Or nothing touch my skin for that matter. I get stingy

pains as well. I am partielly deaf. My parents have been so supportive

since I have been disabled. So has my sister. I have 2 brothers. One of them

(he is 22) always says, you can do this.. or you know you can work or drive.

I hate it when he says that. Even though I know he means well. I get upset

when he says stuff like that. Because I KNOW I can't work or drive..

(driving part, is I just dont' want to, period) I have a great support

system with my online friends and friends as well. But still, to talk to

someone who actually understands what your going through is nice. Anyway,

hope to hear from all of you soon.

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