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My youngest granddaughter, Mackenzie, had surgery on Monday for TCS. Can anyone

share what my daughter and granddaughter may be facing in the future? Mackenzie

is 15 months old and a twin; her twin doesn't appear to be affected. Her

neurosurgeon explained there is another lipoma up higher on her spine but wasn't

tethered, so he completely left it alone.

What can we expect as far as problems in the future; how can we help her now;

what kind of signs and symptoms should we be looking for? We have so little

information that I'm not even certain of what questions I should be asking. Any

information would be greatly appreciated. TIA, Diane

dvstitch@...

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