Guest guest Posted March 22, 2007 Report Share Posted March 22, 2007 Dear Aliza, transdermal chelation has never been shown to pull significant amounts of metal. In terms of both cost and effectiveness, Suppositories are a great way to chelate. It's almost as effective as IV, much cheaper and can be done more often. Especially important if you are chelating more than one kid. I would avoid " natural " chelators and the like. They don't really pull metals in any measurable way. With any chelator, always check a urine tox to document how much metals you are pulling. This is essential as the way your child will be fully recovered is, ultimately by removing the cause--- metal! --- Aliza Ratterree wrote: > We tried transdermal DMPS for a few months last > year, but our daughter regressed behaviorally - not > just nuisance behaviors, but full blown OCD, > trichotillomania (sp?), self-injury, aggression, > etc., that we decided to stop. > > Notably, after a month of DMPS, her fecal test > showed the presence of many metals, including > mercury, lead, uranium, cadmium, and tungsten, some > in alarming quantities. > > We are still trying to get the behaviors under > control, it has been an uphill battle. However, I > am considering a different chelation method, and > would like to get some opinions. We are considering > Bentonite clay, or ALA. Any guidance would be > appreciated. What are the drawbacks? Benefits? > Any other, gentler, methods? > > Thanks in advance, > Aliza > > 'Don't be humble. You're not that great.' > --- Golda Meir > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Need Mail bonding? Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users. http://answers.yahoo.com/dir/?link=list & sid=396546091 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2007 Report Share Posted March 22, 2007 I agree with and no longer recommend transdermal chelation; we found many parents had wasted a lot of time with these agents with very little excretion of mercury (there were of course a few exceptions, and no doubt transdermal is the easiest way to go). However, the suppositories particularly for the smaller children are very effective and do not aggravate the gut in terms of pathogen stimulation the way oral dosing does. Though suppositories are invasive, and some kids are far too sensitive and too old for this method to be appropriate, IV's are also invasive but very effective. When IV's are not possible and the child is not appropriate for suppositories, I still think the best way to go is the protocol as outlined in the new version of CSB with oral DMSA, sometimes alternating with DMPS when excretions level out or get low yet child still has symptoms. Parents need to pay close attention to gut health and have all protective preventive gut measures in place when you start chelation for best results. Dr. JM --- Starr wrote: > Dear Aliza, > transdermal chelation has never been shown to pull > significant amounts of metal. In terms of both cost > and effectiveness, Suppositories are a great way to > chelate. It's almost as effective as IV, much > cheaper > and can be done more often. Especially important if > you are chelating more than one kid. > I would avoid " natural " chelators and the like. > They > don't really pull metals in any measurable way. > With > any chelator, always check a urine tox to document > how > much metals you are pulling. This is essential as > the > way your child will be fully recovered is, > ultimately > by removing the cause--- metal! > > > --- Aliza Ratterree > wrote: > > > We tried transdermal DMPS for a few months last > > year, but our daughter regressed behaviorally - > not > > just nuisance behaviors, but full blown OCD, > > trichotillomania (sp?), self-injury, aggression, > > etc., that we decided to stop. > > > > Notably, after a month of DMPS, her fecal test > > showed the presence of many metals, including > > mercury, lead, uranium, cadmium, and tungsten, > some > > in alarming quantities. > > > > We are still trying to get the behaviors under > > control, it has been an uphill battle. However, I > > am considering a different chelation method, and > > would like to get some opinions. We are > considering > > Bentonite clay, or ALA. Any guidance would be > > appreciated. What are the drawbacks? Benefits? > > Any other, gentler, methods? > > > > Thanks in advance, > > Aliza > > > > 'Don't be humble. You're not that great.' > > --- Golda Meir > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > ________________________________________________________________________________\ ____ > Need Mail bonding? > Go to the Yahoo! Mail Q & A for great tips from Yahoo! > Answers users. > http://answers.yahoo.com/dir/?link=list & sid=396546091 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2007 Report Share Posted March 22, 2007 SUPPOSITORIES: Every child is different. Certainly for kids still in diapers it is the easiest, and they don't usually even notice it. (Obviously lubrication must be ample.) For children out of diapers who are very heavy sleepers, parents learn that once the child is asleep the insertion is easy and child does not even awaken. Since the suppository is only given once a day at bedtime usually for three nights running with then 11 days off, this does work for some children. Older higher functioning children can sometimes be given an explanation and tolerate it well or can even be taught to insert it themselves. However, I personally feel if the child does resist, he/she should never be forced. It does attract attention to the anal area and one lower functioning child began to try to put other things in his rectum. This could be very dangerous. It is hard to try to teach them not to do that when we are putting suppositories in, and in cases of children who are getting into puberty, I generally prefer the oral or IV route for chelation so as not to activate the erogenous aspect of anal attention. Our kids may have enough trouble already with boundary issues due to their difficulty understanding nuances, so activation of this area may set them up for allowing sexual abuse if not carefully monitored. A lot to think about! Dr. JM --- Jack Der Hagopian wrote: > At what age do they really start resisting the > suppositiories. I would like to try with my > seven-soon to be eight year old daughter. > > Jack Der Hagopian > esme's dad > > > > Re: Questions about > chelation > > > I agree with and no longer recommend > transdermal > chelation; we found many parents had wasted a lot > of > time with these agents with very little excretion > of > mercury (there were of course a few exceptions, > and no > doubt transdermal is the easiest way to go). > However, > the suppositories particularly for the smaller > children are very effective and do not aggravate > the > gut in terms of pathogen stimulation the way oral > dosing does. Though suppositories are invasive, > and > some kids are far too sensitive and too old for > this > method to be appropriate, IV's are also invasive > but > very effective. When IV's are not possible and the > child is not appropriate for suppositories, I > still > think the best way to go is the protocol as > outlined > in the new version of CSB with oral DMSA, > sometimes > alternating with DMPS when excretions level out or > get > low yet child still has symptoms. Parents need to > pay > close attention to gut health and have all > protective > preventive gut measures in place when you start > chelation for best results. Dr. JM > > --- Starr wrote: > > > Dear Aliza, > > transdermal chelation has never been shown to > pull > > significant amounts of metal. In terms of both > cost > > and effectiveness, Suppositories are a great way > to > > chelate. It's almost as effective as IV, much > > cheaper > > and can be done more often. Especially important > if > > you are chelating more than one kid. > > I would avoid " natural " chelators and the like. > > They > > don't really pull metals in any measurable way. > > With > > any chelator, always check a urine tox to > document > > how > > much metals you are pulling. This is essential > as > > the > > way your child will be fully recovered is, > > ultimately > > by removing the cause--- metal! > > > > > > --- Aliza Ratterree > > wrote: > > > > > We tried transdermal DMPS for a few months > last > > > year, but our daughter regressed behaviorally > - > > not > > > just nuisance behaviors, but full blown OCD, > > > trichotillomania (sp?), self-injury, > aggression, > > > etc., that we decided to stop. > > > > > > Notably, after a month of DMPS, her fecal test > > > showed the presence of many metals, including > > > mercury, lead, uranium, cadmium, and tungsten, > > some > > > in alarming quantities. > > > > > > We are still trying to get the behaviors under > > > control, it has been an uphill battle. > However, I > > > am considering a different chelation method, > and > > > would like to get some opinions. We are > > considering > > > Bentonite clay, or ALA. Any guidance would be > > > appreciated. What are the drawbacks? Benefits? > > > > Any other, gentler, methods? > > > > > > Thanks in advance, > > > Aliza > > > > > > 'Don't be humble. You're not that great.' > > > --- Golda Meir > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > > > > > > > > __________________________________________________________ > > Need Mail bonding? > > Go to the Yahoo! Mail Q & A for great tips from > Yahoo! > > Answers users. > > > > http://answers.yahoo.com/dir/?link=list & sid=396546091 > > > > > > > > [Non-text portions of this message have been > removed] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2007 Report Share Posted March 22, 2007 At what age do they really start resisting the suppositiories. I would like to try with my seven-soon to be eight year old daughter. Jack Der Hagopian esme's dad Re: Questions about chelation I agree with and no longer recommend transdermal chelation; we found many parents had wasted a lot of time with these agents with very little excretion of mercury (there were of course a few exceptions, and no doubt transdermal is the easiest way to go). However, the suppositories particularly for the smaller children are very effective and do not aggravate the gut in terms of pathogen stimulation the way oral dosing does. Though suppositories are invasive, and some kids are far too sensitive and too old for this method to be appropriate, IV's are also invasive but very effective. When IV's are not possible and the child is not appropriate for suppositories, I still think the best way to go is the protocol as outlined in the new version of CSB with oral DMSA, sometimes alternating with DMPS when excretions level out or get low yet child still has symptoms. Parents need to pay close attention to gut health and have all protective preventive gut measures in place when you start chelation for best results. Dr. JM --- Starr wrote: > Dear Aliza, > transdermal chelation has never been shown to pull > significant amounts of metal. In terms of both cost > and effectiveness, Suppositories are a great way to > chelate. It's almost as effective as IV, much > cheaper > and can be done more often. Especially important if > you are chelating more than one kid. > I would avoid " natural " chelators and the like. > They > don't really pull metals in any measurable way. > With > any chelator, always check a urine tox to document > how > much metals you are pulling. This is essential as > the > way your child will be fully recovered is, > ultimately > by removing the cause--- metal! > > > --- Aliza Ratterree > wrote: > > > We tried transdermal DMPS for a few months last > > year, but our daughter regressed behaviorally - > not > > just nuisance behaviors, but full blown OCD, > > trichotillomania (sp?), self-injury, aggression, > > etc., that we decided to stop. > > > > Notably, after a month of DMPS, her fecal test > > showed the presence of many metals, including > > mercury, lead, uranium, cadmium, and tungsten, > some > > in alarming quantities. > > > > We are still trying to get the behaviors under > > control, it has been an uphill battle. However, I > > am considering a different chelation method, and > > would like to get some opinions. We are > considering > > Bentonite clay, or ALA. Any guidance would be > > appreciated. What are the drawbacks? Benefits? > > Any other, gentler, methods? > > > > Thanks in advance, > > Aliza > > > > 'Don't be humble. You're not that great.' > > --- Golda Meir > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > __________________________________________________________ > Need Mail bonding? > Go to the Yahoo! Mail Q & A for great tips from Yahoo! > Answers users. > http://answers.yahoo.com/dir/?link=list & sid=396546091 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 My husband is a child psychiatrist and like Dr. M had reservations about suppositories in the beginning. But he has now come to really favor this treatment. But they are so easy to put in while asleep in our five year old that it is so much better than doing it awake. And their efficacy is so good for a home chelation that they really are a wonderful treatment. Our daughter has had no problems with attention to her anal area, we have been doing suppositories for a couple months, but will watch for this. Maybe to give our experience- I make sure our five year old is very asleep. I give her extra melatonin on chelating nights which helps some in that regard. Kids are very asleep not long after going to bed. I make sure I have the lube on my finger and ready, and the supp in the other hand. I work fast (but gently) and usually the supp in in within a few seconds. Doing it fast seems to avoid wakeup. I also put her in a nightgown on chelating nights, then there is less rustling to get to the bottom which in the past has made her wake up once. I don't think there's any reason you could not put a supp in a child of 8 or older while asleep as long as they are a relatively deep sleeper. Of course in older children I would talk with them about it first and enlist their agreement to having this done while they are asleep. Our two year old is a breeze, though. I put his in awake and he gives out a single yell and has forgotten about it in a couple seconds. He, however tends to poop after each one so I now put in a " sham " suppository first with a little glutathione from a syringe, then wait ten minutes for him to poop. then I put in the chelator and put him to bed. Thanks Dr. M. for your great posts on suppositories. I think that this treatment is so effective and inexpensive for those of us who want so desperately to effective chelate our kids but just don't have the endless resources to do it with IVs. I get frustrated when people discount this method, it really is such a great way to chelate. > > > > > > > We tried transdermal DMPS for a few months > > last > > > > year, but our daughter regressed behaviorally > > - > > > not > > > > just nuisance behaviors, but full blown OCD, > > > > trichotillomania (sp?), self-injury, > > aggression, > > > > etc., that we decided to stop. > > > > > > > > Notably, after a month of DMPS, her fecal test > > > > showed the presence of many metals, including > > > > mercury, lead, uranium, cadmium, and tungsten, > > > some > > > > in alarming quantities. > > > > > > > > We are still trying to get the behaviors under > > > > control, it has been an uphill battle. > > However, I > > > > am considering a different chelation method, > > and > > > > would like to get some opinions. We are > > > considering > > > > Bentonite clay, or ALA. Any guidance would be > > > > appreciated. What are the drawbacks? Benefits? > > > > > > Any other, gentler, methods? > > > > > > > > Thanks in advance, > > > > Aliza > > > > > > > > 'Don't be humble. You're not that great.' > > > > --- Golda Meir > > > > > > > > [Non-text portions of this message have been > > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________ > > > Need Mail bonding? > > > Go to the Yahoo! Mail Q & A for great tips from > > Yahoo! > > > Answers users. > > > > > > > > http://answers.yahoo.com/dir/?link=list & sid=396546091 > > > > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 We recently started the suppository (dmsa) chelation with my son after using td-dmps and td-dmsa with fairly good results. I just mailed in our first urine metals to doctors data yesterday since starting the suppositories and am anxious to get the results and compare them. I found that my son (age 6) would stir in his sleep even though he was in a deep sleep and one night woke enough to mumble " no " so I sat him down and explained to him we were using the suppositories now at bedtime instead of the cream and that it was a medicine, just like other things he has to take, to make him feel better. I didn't like doing it without talking to him about it. My hang-ups I guess, I don't like the whole doing it while he is asleep method anyway, it makes me feel creepy. I would much rather do it when he is awake. Still, he hasn't mumbled at me again or stirred in his sleep so that helps. From: sarahgid To: csb-autism-rx Sent: Friday, March 23, 2007 9:18 AM Subject: Re: Questions about chelation My husband is a child psychiatrist and like Dr. M had reservations about suppositories in the beginning. But he has now come to really favor this treatment. But they are so easy to put in while asleep in our five year old that it is so much better than doing it awake. And their efficacy is so good for a home chelation that they really are a wonderful treatment. Our daughter has had no problems with attention to her anal area, we have been doing suppositories for a couple months, but will watch for this. Maybe to give our experience- I make sure our five year old is very asleep. I give her extra melatonin on chelating nights which helps some in that regard. Kids are very asleep not long after going to bed. I make sure I have the lube on my finger and ready, and the supp in the other hand. I work fast (but gently) and usually the supp in in within a few seconds. Doing it fast seems to avoid wakeup. I also put her in a nightgown on chelating nights, then there is less rustling to get to the bottom which in the past has made her wake up once. I don't think there's any reason you could not put a supp in a child of 8 or older while asleep as long as they are a relatively deep sleeper. Of course in older children I would talk with them about it first and enlist their agreement to having this done while they are asleep. Our two year old is a breeze, though. I put his in awake and he gives out a single yell and has forgotten about it in a couple seconds. He, however tends to poop after each one so I now put in a " sham " suppository first with a little glutathione from a syringe, then wait ten minutes for him to poop. then I put in the chelator and put him to bed. Thanks Dr. M. for your great posts on suppositories. I think that this treatment is so effective and inexpensive for those of us who want so desperately to effective chelate our kids but just don't have the endless resources to do it with IVs. I get frustrated when people discount this method, it really is such a great way to chelate. > > > > > > > We tried transdermal DMPS for a few months > > last > > > > year, but our daughter regressed behaviorally > > - > > > not > > > > just nuisance behaviors, but full blown OCD, > > > > trichotillomania (sp?), self-injury, > > aggression, > > > > etc., that we decided to stop. > > > > > > > > Notably, after a month of DMPS, her fecal test > > > > showed the presence of many metals, including > > > > mercury, lead, uranium, cadmium, and tungsten, > > > some > > > > in alarming quantities. > > > > > > > > We are still trying to get the behaviors under > > > > control, it has been an uphill battle. > > However, I > > > > am considering a different chelation method, > > and > > > > would like to get some opinions. We are > > > considering > > > > Bentonite clay, or ALA. Any guidance would be > > > > appreciated. What are the drawbacks? Benefits? > > > > > > Any other, gentler, methods? > > > > > > > > Thanks in advance, > > > > Aliza > > > > > > > > 'Don't be humble. You're not that great.' > > > > --- Golda Meir > > > > > > > > [Non-text portions of this message have been > > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________ > > > Need Mail bonding? > > > Go to the Yahoo! Mail Q & A for great tips from > > Yahoo! > > > Answers users. > > > > > > > > http://answers.yahoo.com/dir/?link=list & sid=396546091 > > > > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > Many frequently asked questions and answers can be found at <http://forums.autism-rxguidebook.com/default.aspx> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 Dear , Yes, I can relate to that- I felt a little underhanded doing at first and I am sure we all do to some degree. How we worked it out was I would tell her before bed that she was going to get a supp that night. For a about a month she would ask me each bedtime if she was getting poop medicine and it was something we talked about. But now after about 3 months she no longer asks and I don't tell her anymore because she doesn't remember at all. Sometimes by the third night she will feel a little sore and ask-but often the issue never even comes up. Hopefully that will give you some encouragement. We have found that the supps-(unlike the B12 injections) have actually gotten easier with time. Really, they have. --- Gouker wrote: > We recently started the suppository (dmsa) chelation > with my son after using td-dmps and td-dmsa with > fairly good results. I just mailed in our first > urine metals to doctors data yesterday since > starting the suppositories and am anxious to get > the results and compare them. I found that my son > (age 6) would stir in his sleep even though he was > in a deep sleep and one night woke enough to mumble > " no " so I sat him down and explained to him we were > using the suppositories now at bedtime instead of > the cream and that it was a medicine, just like > other things he has to take, to make him feel > better. I didn't like doing it without talking to > him about it. My hang-ups I guess, I don't like the > whole doing it while he is asleep method anyway, it > makes me feel creepy. I would much rather do it > when he is awake. Still, he hasn't mumbled at me > again or stirred in his sleep so that helps. > > > > From: sarahgid > To: csb-autism-rx > Sent: Friday, March 23, 2007 9:18 AM > Subject: Re: Questions about > chelation > > > My husband is a child psychiatrist and like Dr. M > had reservations about suppositories in > the beginning. But he has now come to really > favor this treatment. But they are so easy to > put in while asleep in our five year old that it > is so much better than doing it awake. And > their efficacy is so good for a home chelation > that they really are a wonderful treatment. > Our daughter has had no problems with attention to > her anal area, we have been doing > suppositories for a couple months, but will watch > for this. > Maybe to give our experience- I make sure our five > year old is very asleep. I give her extra > melatonin on chelating nights which helps some in > that regard. Kids are very asleep not > long after going to bed. I make sure I have the > lube on my finger and ready, and the supp > in the other hand. I work fast (but gently) and > usually the supp in in within a few seconds. > Doing it fast seems to avoid wakeup. I also put > her in a nightgown on chelating nights, > then there is less rustling to get to the bottom > which in the past has made her wake up > once. > I don't think there's any reason you could not put > a supp in a child of 8 or older while > asleep as long as they are a relatively deep > sleeper. Of course in older children I would > talk with them about it first and enlist their > agreement to having this done while they are > asleep. > > Our two year old is a breeze, though. I put his > in awake and he gives out a single yell and > has forgotten about it in a couple seconds. He, > however tends to poop after each one so I > now put in a " sham " suppository first with a > little glutathione from a syringe, then wait ten > minutes for him to poop. then I put in the > chelator and put him to bed. > > Thanks Dr. M. for your great posts on > suppositories. I think that this treatment is so > effective and inexpensive for those of us who want > so desperately to effective chelate our > kids but just don't have the endless resources to > do it with IVs. I get frustrated when > people discount this method, it really is such a > great way to chelate. > > > > > > > > > > > > We tried transdermal DMPS for a few > months > > > last > > > > > year, but our daughter regressed > behaviorally > > > - > > > > not > > > > > just nuisance behaviors, but full blown > OCD, > > > > > trichotillomania (sp?), self-injury, > > > aggression, > > > > > etc., that we decided to stop. > > > > > > > > > > Notably, after a month of DMPS, her > fecal test > > > > > showed the presence of many metals, > including > > > > > mercury, lead, uranium, cadmium, and > tungsten, > > > > some > > > > > in alarming quantities. > > > > > > > > > > We are still trying to get the behaviors > under > > > > > control, it has been an uphill battle. > > > However, I > > > > > am considering a different chelation > method, > > > and > > > > > would like to get some opinions. We are > > > > considering > > > > > Bentonite clay, or ALA. Any guidance > would be > > > > > appreciated. What are the drawbacks? > Benefits? > > > > > > > > Any other, gentler, methods? > > > > > > > > > > Thanks in advance, > > > > > Aliza > > > > > > > > > > 'Don't be humble. You're not that > great.' > > > > > --- Golda Meir > > > > > > > > > > [Non-text portions of this message have > been > > > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________ > > > > Need Mail bonding? > > > > Go to the Yahoo! Mail Q & A for great tips > from > > > Yahoo! > > > > Answers users. > > > > > > > > > > > > > http://answers.yahoo.com/dir/?link=list & sid=396546091 > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > Many frequently asked questions and answers can be > found at > <http://forums.autism-rxguidebook.com/default.aspx> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 Hi, can't help but give my input. Although our son was recovered prior to chelation, both Dr. McCandless and Dr. Jepson advised us that his immune system would not get better until chelation. We waited a long time before trying chelation since he was doing so good behaviorally. We tried DMPS year before last year, and it had great negative effects on him. We are into his third round of DMSA suppositories now and he is doing fantastic! Some of his slight residual quirkiness is subsiding. He was still a kid that would take things very literally. Now with just two rounds, this quirkiness is all but gone! We have not done a metal test yet to see what is coming out, but will be soon. I think that from what all the DAN docs are saying that the suppositories are the way to go. We are also using them on our 11 year old ADD son. He takes it all in stride. He is doing better also. The ADD is not nearly as severe now as it was at the first of the school year. > > We tried transdermal DMPS for a few months last year, but our daughter regressed behaviorally - not just nuisance behaviors, but full blown OCD, trichotillomania (sp?), self-injury, aggression, etc., that we decided to stop. > > Notably, after a month of DMPS, her fecal test showed the presence of many metals, including mercury, lead, uranium, cadmium, and tungsten, some in alarming quantities. > > We are still trying to get the behaviors under control, it has been an uphill battle. However, I am considering a different chelation method, and would like to get some opinions. We are considering Bentonite clay, or ALA. Any guidance would be appreciated. What are the drawbacks? Benefits? Any other, gentler, methods? > > Thanks in advance, > Aliza > > 'Don't be humble. You're not that great.' > --- Golda Meir > > Quote Link to comment Share on other sites More sharing options...
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