Re: Hip pain / HSP

[Guest guest]

I think I have some research somewhere on the relationship between

IgAN and HSP, I'll try to locate it. One interesting thing I heard a

few years ago, and it was confirmed in Dr. Glassock's update. There's

a case of identical twins in which one has IgAN and the other has HSP.

Marty

> Flank pain is generally higher up, just below where the ribs end.

It can be

> on the side and go around towards the middle of the back. In my

opinion, hip

> pain wouldn't be in the right place.

>

> Your doctor would know better, but I doubt that your hip pain was

related to

> IgAN or HSP. With HSP, the main symptom is that purple rash, hence

the name.

> People usually get pretty sick with HSP - unlike chronic IgAN, it's

a very

> acute disease.

>

> Pierre

>

> Hip pain

>

>

> > Several months ago I had a debillitating hip pain that was so bad

I

> > could not walk.

> >

> > After some rest (had to take a day off work), some physical

therapy

> > and reducing my tango dancing, it seems to have vanished.

> >

> > In the survey put out by BMC software, available at this egroup

> > sthread they ask about " flank pain " . Is this what they are

referring

> > to?

> >

> > Also - is this evidence that I really have HSP (Henoch-Schoenlein

> > Purpura) without which is causing the iga-nephropathy?

> >

> > One of the things I hate about this disease is the apparent lack

of

> > solid information about what is really causing it.

> >

> > Even if they can not cure it, I would love to be able to say

something

> > like my IGNx gene made be suceptible to a virus called Berger's

Virus

> > which has tricked my immune system into killing my kidneys.

> >

> > Instead I am stuck with " for some unknown reason, possibly

related to

> > my genetics, my immune system seems to be interefering with my

> > kidneys. "

> >

> >