Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Hi i just saw this post and have to say it sounds like we have some things in common. Im also young (27) and have to walk with a forearm crutch and trying to get to use a cane id gotten. I also have a motor scooter that easter seals gave to me and have to use that when i go out if there will be alot of walking. Like at the zoo a month or so ago- 5 miles of walking? oh heck no lets load up the scooter in the bronco lol, I also have had a very high pain threshold in my life and this pain (i have RSD) kills me and it gets so frustrating. Ive also been tattooed and pierced and that pain seems so nothing compared to this pain i deal with daily. Please know im here to talk to hun and look forward to talking to you in future:) Take care > > " when I've seen a doctor they will ask me " on a scale of 1 to 10, how do > > you feel? " I feel like a moron telling them " depends on the day " , like I > can't make up my mind or something. I really am tired of fighting this, > the > way I have been I mean. I'm afraid to get my hopes up too much though. > It's > been my experience as a male that if I tell a doctor how I REALLY feel, > they either think I'm a wuss, or they think I'm scamming them for pain > pills. Either way I blow a half of a day and a co-pay for a doctor to tell > > me what I already know. " > > Oh I so agree with you. Sometimes I swear it's like they think I love > having constant pain so I can get more drugs from them. I've actually had > to sit for hours, crying in pain, in a dr's office, getting sicker and > sicker because I'm past due on my medication simply because they say they > " don't have time " to sign a piece of paper. That's all I needed. A > signature. But they were " too busy " . I contacted them 4 days prior to that > > to get the thing signed, but they said they couldn't that day. Withdraw > and > wait until they could get around to it was their solution. Then, when they > > finally did sign it, two different people yelled at me for asking because > they were too busy to deal with me and according to them I should have had > > to wait 2 more days and/or sit in their office suffering for at least > another 6-7 hours because they don't sign papers without an appointment or > > 2 days notice (my call 4 days before didn't count, according to them.) The > > pharmacy finally had to chew them out for treating their patient so badly > before anything could get done. Needless to say, I am in the market for a > new doctor. > > I get so frustrated. I feel like I'm being punished by the doctor for > having degenerative disk disease. I never asked for constant unrelenting > pain. I didn't do anything wrong but I'm always having to beg and plead > for > help. It just compounds that feeling of helplessness and humiliation. I > know doctors do their best and can't work 24/7 but it would be nice if > they > were a little more helpful. Even when a drug helps, I can guarantee I will > > have to fight tooth and nail to get it on time, despite the fact that the > doctor knows it is never supposed to be skipped or taken late. > > Before the MRI, the Dr. I had been seeing insisted that it was all in my > head and suggested that I probably just needed stronger psychiatric meds. > They ignored abnormalities on the x-rays and such. When they finally got > the MRI done a year or so later, they were shocked at how bad off I was > and > how much pain I must have been in (I tried to tell them, but...) I have 5 > herniated disks in the cervical/thoracic area (they did not MRI the lower > back so we don't yet know about that) with bone rubbing against bone, > spasms, painful pressure causing my spine to look like an intense game of > jenga. I'm only 34. That's what they're really worried about--it's rare to > > see this in someone my age, especially this severity. I use a cane now a > lot of the time and a wheel chair for times when I'm on my feet for a long > > time otherwise (art museums, etc.) I have breakthrough pain to the point > of > seriously hindering my ability to walk and such most of the time. > > Sorry to rant, I just wanted you to know that it may not just be because > you're male. Girls like me have the same problem. I have a *very* high > pain > threshold (I've been repeatedly tattooed, pierced, and branded, not to > mention that I work with animals and have been bitten by many of the ones > who have been abused and such) but this is ridiculous. I'm at least > comforted to know that it's not just me they pick on. Well, not > comforted--I don't want others to have to deal with it--but well, less > alone. > > > > Quote Link to comment Share on other sites More sharing options...
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