Re: new here - about Evan!

[Guest guest]

It is true that an MRI will always show a Tether, because technically there

is one...........and you won't be able to tell if it is new, old, or how

tight it is. BUT, it is still wise to have Follow-Up MRI's, they still serve

a purpose, such as, if something else new came up. So, if I were you, I

would still insist on the MRI.

Good luck.

Me

Nebraska, USA

mymocha@...

The surgeon said a follow up mri wouldn't be helpful because it would

appear that the cord has re-tethered.

[Guest guest]

Hi Brande and all,

I haven't posted in a while, but this caught my eye. Your saying that an

MRI will always show a tether interests me very much. I hope you would not

mind explaining this further to me since this very subject is the focal

point in our lives right now. Our daughter, Houston, is two and a half and

has had three MRI's since December. She has been diagnosed with

Syringomyelia from T9-L1. Since then we have sent her films to various well

regarded pedi neurosurgeons in hopes of finding out what caused the syrinx

and if we are missing any other pertinent information. 1 of the 4 we sent

to says she absolutely is tethered from a thickened filum even though the

conus ends at L1and we must schedule surgery. The 3 others say they can't

tell that it is thickened but can't say for sure. Obviously, we are not

even considering surgery yet as her symptoms are very mild and her

urodynamic test was fine. Please anyone that might have some thoughts on

this, write back.

Thanks so much, you are all terrific people and I have been comforted by

your sharing.

Re: new here - about Evan!

It is true that an MRI will always show a Tether, because technically

there

is one...........and you won't be able to tell if it is new, old, or how

tight it is. BUT, it is still wise to have Follow-Up MRI's, they still

serve

a purpose, such as, if something else new came up. So, if I were you, I

would still insist on the MRI.

Good luck.

Me

Nebraska, USA

mymocha@...

The surgeon said a follow up mri wouldn't be helpful because it would

appear that the cord has re-tethered.

Not Medical Advice. We Are Not Doctors.

Need help with the list? Email

kathy@...,michelle@..., rick@...

[Guest guest]

Well, I'll try............but if somebody else is able to explain it better,

please Chime in.

It is pretty common to hear that an MRI isn't a conclusive diagnostic Tool

after a Detethering is done, when you are suspecting a Retethering. Reason

being, because it will always look Tethered. Because of the Scar

Tissue........the MRI cannot defernicate (SP?). It will not give you a

conclusive Diagnosis. They will often lean more to the Symptoms or other

Tests to decide if a Retether is the issue. But often, the MRI is still

ordered...........in my opinion, it is still an important thing to do.

I have also heard of a few who had clear MRI's after a Detethering........a

couple of those few, had Symptoms, so they went in and found out they were

actually Tethered. I'm not saying you should jump into Surgery for your

Child though. But generally it is the opposite, the MRI will look Tethered,

because technically it is.

Well, I hope I explained it better.

Me

Nebraska, USA

mymocha@...

Your saying that an

> MRI will always show a tether interests me very much. I hope you would

not

> mind explaining this further to me since this very subject is the focal

> point in our lives right now. Our daughter, Houston, is two and a half

and

> has had three MRI's since December. She has been diagnosed with

> Syringomyelia from T9-L1. Since then we have sent her films to various

well

> regarded pedi neurosurgeons in hopes of finding out what caused the syrinx

> and if we are missing any other pertinent information. 1 of the 4 we sent

> to says she absolutely is tethered from a thickened filum even though the

> conus ends at L1and we must schedule surgery. The 3 others say they can't

> tell that it is thickened but can't say for sure. Obviously, we are not

> even considering surgery yet as her symptoms are very mild and her

> urodynamic test was fine. Please anyone that might have some thoughts on

> this, write back.

[Guest guest]

I had two MRI's, one with contrast, one without. Both were inconclusive as

far as tethered cord, HOWEVER, they both showed the cord lower than normal,

extending down to L4 instead of normal T-11-12/L1 area. A follow-up

Myelogram confirmed the tethering.

Rick

At 10:37 PM 5/12/2004 -0500, wrote:

>Hi Brande and all,

>I haven't posted in a while, but this caught my eye. Your saying that an

>MRI will always show a tether interests me very much. I hope you would not

>mind explaining this further to me since this very subject is the focal

>point in our lives right now. Our daughter, Houston, is two and a half and

>has had three MRI's since December. She has been diagnosed with

>Syringomyelia from T9-L1. Since then we have sent her films to various well

>regarded pedi neurosurgeons in hopes of finding out what caused the syrinx

>and if we are missing any other pertinent information. 1 of the 4 we sent

>to says she absolutely is tethered from a thickened filum even though the

>conus ends at L1and we must schedule surgery. The 3 others say they can't

>tell that it is thickened but can't say for sure. Obviously, we are not

>even considering surgery yet as her symptoms are very mild and her

>urodynamic test was fine. Please anyone that might have some thoughts on

>this, write back.

>Thanks so much, you are all terrific people and I have been comforted by

>your sharing.

>

> Re: new here - about Evan!

>

>

> It is true that an MRI will always show a Tether, because technically

>there

> is one...........and you won't be able to tell if it is new, old, or how

> tight it is. BUT, it is still wise to have Follow-Up MRI's, they still

>serve

> a purpose, such as, if something else new came up. So, if I were you, I

> would still insist on the MRI.

>

> Good luck.

>

> Me

> Nebraska, USA

> mymocha@...

>

> The surgeon said a follow up mri wouldn't be helpful because it would

> appear that the cord has re-tethered.

>

>

>

>

> Not Medical Advice. We Are Not Doctors.

> Need help with the list? Email

>kathy@...,michelle@..., rick@...

>

>

>