Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 Kerri, It seems for me anyways, the very hot heat of the summers make my pain worse. I do better in the winter on the swelling part, but my RA joints hurt, so winter/sumer you just trade off in my case. Summer makes my flares for the fibro so much worse and winters, like i said, makes my joints hurt. So I am almost always in pain. Mild or severe, its s steady constant. I just pray for the good days and cry during the bad ones! Cortnee K kerri <ksp2242@...> wrote: I was thinking today about how when I was a child, we used to spend hours outside during this time of the year, jumping rope, playing hopscotch, and using the hula-hoop. For a moment I was upset that life couldn't be like that anymore, but then I thought to myself... Do you have any idea how ridiculous we'd all look, skipping rope while holding our aching bones and trying to scoop down to pick up our tossed pebble during a game of hopscotch and not being able to straighten back up without the help of 4 or 5 of our playmates ). It actually brought a smile to my face. Bless all of you out there who are having good days and bad days. Thank you all for your kind words and sharing experiences, its great knowing you aren't alone. I had my second apt with my rheumy yesterday, they've prescribed me Arava... any insight on that drug for those of you who have taken it would be appreciated. Tomorrow I start the first day of the loading dose. The assistant said that all my blood tests for RA came back elevated,,, not sure what that means. She also said there were some other abnormalities not associated with RA that the doctor would speak with me about next visit. Must not be too important if they are waiting a month. I'm very tired today. It's like every minute today has been that cloudy hazy barely there feeling you've got when a ringing phone has woken you up at 3 am. Does anyone else get migraines? mine have been ferocious these last few weeks, I'm taking pills right and left for them, sometimes I feel as if the pain is better for me than the pain-killer cloud that I get with some of those drugs. I hope everyone is enjoying there days and sleeping at night, God bless and take care. kerri sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 Kerri, It seems for me anyways, the very hot heat of the summers make my pain worse. I do better in the winter on the swelling part, but my RA joints hurt, so winter/sumer you just trade off in my case. Summer makes my flares for the fibro so much worse and winters, like i said, makes my joints hurt. So I am almost always in pain. Mild or severe, its s steady constant. I just pray for the good days and cry during the bad ones! Cortnee K kerri <ksp2242@...> wrote: I was thinking today about how when I was a child, we used to spend hours outside during this time of the year, jumping rope, playing hopscotch, and using the hula-hoop. For a moment I was upset that life couldn't be like that anymore, but then I thought to myself... Do you have any idea how ridiculous we'd all look, skipping rope while holding our aching bones and trying to scoop down to pick up our tossed pebble during a game of hopscotch and not being able to straighten back up without the help of 4 or 5 of our playmates ). It actually brought a smile to my face. Bless all of you out there who are having good days and bad days. Thank you all for your kind words and sharing experiences, its great knowing you aren't alone. I had my second apt with my rheumy yesterday, they've prescribed me Arava... any insight on that drug for those of you who have taken it would be appreciated. Tomorrow I start the first day of the loading dose. The assistant said that all my blood tests for RA came back elevated,,, not sure what that means. She also said there were some other abnormalities not associated with RA that the doctor would speak with me about next visit. Must not be too important if they are waiting a month. I'm very tired today. It's like every minute today has been that cloudy hazy barely there feeling you've got when a ringing phone has woken you up at 3 am. Does anyone else get migraines? mine have been ferocious these last few weeks, I'm taking pills right and left for them, sometimes I feel as if the pain is better for me than the pain-killer cloud that I get with some of those drugs. I hope everyone is enjoying there days and sleeping at night, God bless and take care. kerri sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 Hi Kerri Sue, Glad you made your appointment, and good luck with Arava. I have never taken that drug, so don't know much about it. Could any of the meds your taking cause migraines? Make sure you tell your doctor on the next visit, that is very important. You take care of yourself, and keep us posted on how the new med works for you,Tawny > I was thinking today about how when I was a child, we used to spend > hours outside during this time of the year, jumping rope, playing > hopscotch, and using the hula-hoop. For a moment I was upset that > life couldn't be like that anymore, but then I thought to myself... > Do you have any idea how ridiculous we'd all look, skipping rope > while holding our aching bones and trying to scoop down to pick up > our tossed pebble during a game of hopscotch and not being able to > straighten back up without the help of 4 or 5 of our playmates ). > It actually brought a smile to my face. Bless all of you out there > who are having good days and bad days. Thank you all for your kind > words and sharing experiences, its great knowing you aren't alone. > I had my second apt with my rheumy yesterday, they've prescribed me > Arava... any insight on that drug for those of you who have taken it > would be appreciated. Tomorrow I start the first day of the loading > dose. The assistant said that all my blood tests for RA came back > elevated,,, not sure what that means. She also said there were some > other abnormalities not associated with RA that the doctor would > speak with me about next visit. Must not be too important if they are > waiting a month. I'm very tired today. It's like every minute today > has been that cloudy hazy barely there feeling you've got when a > ringing phone has woken you up at 3 am. Does anyone else get > migraines? mine have been ferocious these last few weeks, I'm taking > pills right and left for them, sometimes I feel as if the pain is > better for me than the pain-killer cloud that I get with some of > those drugs. > I hope everyone is enjoying there days and sleeping at night, God > bless and take care. > > kerri sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 Hi Kerri Sue, Glad you made your appointment, and good luck with Arava. I have never taken that drug, so don't know much about it. Could any of the meds your taking cause migraines? Make sure you tell your doctor on the next visit, that is very important. You take care of yourself, and keep us posted on how the new med works for you,Tawny > I was thinking today about how when I was a child, we used to spend > hours outside during this time of the year, jumping rope, playing > hopscotch, and using the hula-hoop. For a moment I was upset that > life couldn't be like that anymore, but then I thought to myself... > Do you have any idea how ridiculous we'd all look, skipping rope > while holding our aching bones and trying to scoop down to pick up > our tossed pebble during a game of hopscotch and not being able to > straighten back up without the help of 4 or 5 of our playmates ). > It actually brought a smile to my face. Bless all of you out there > who are having good days and bad days. Thank you all for your kind > words and sharing experiences, its great knowing you aren't alone. > I had my second apt with my rheumy yesterday, they've prescribed me > Arava... any insight on that drug for those of you who have taken it > would be appreciated. Tomorrow I start the first day of the loading > dose. The assistant said that all my blood tests for RA came back > elevated,,, not sure what that means. She also said there were some > other abnormalities not associated with RA that the doctor would > speak with me about next visit. Must not be too important if they are > waiting a month. I'm very tired today. It's like every minute today > has been that cloudy hazy barely there feeling you've got when a > ringing phone has woken you up at 3 am. Does anyone else get > migraines? mine have been ferocious these last few weeks, I'm taking > pills right and left for them, sometimes I feel as if the pain is > better for me than the pain-killer cloud that I get with some of > those drugs. > I hope everyone is enjoying there days and sleeping at night, God > bless and take care. > > kerri sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 Kerri Sue, I was switched to Arava when methotrexate kept lowering my white blood cell count. Unfortunately, the Arava made it continue to decline. Too bad, because it worked very well to get the pain and inflammation under control. I hope it works well for you without that side effect. Some of the blood tests that might have been run are Rheumatoid Factor, C-Reactive Protein, and Sed Rate. or a, our moderators, will probably direct you to a site that explains these tests. They are very good at educating us. Sue On Friday, August 26, 2005, at 05:37 PM, kerri wrote: > > I had my second apt with my rheumy yesterday, they've prescribed me > Arava... any insight on that drug for those of you who have taken it > would be appreciated. Tomorrow I start the first day of the loading > dose. The assistant said that all my blood tests for RA came back > elevated,,, not sure what that means. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 Kerri Sue, I was switched to Arava when methotrexate kept lowering my white blood cell count. Unfortunately, the Arava made it continue to decline. Too bad, because it worked very well to get the pain and inflammation under control. I hope it works well for you without that side effect. Some of the blood tests that might have been run are Rheumatoid Factor, C-Reactive Protein, and Sed Rate. or a, our moderators, will probably direct you to a site that explains these tests. They are very good at educating us. Sue On Friday, August 26, 2005, at 05:37 PM, kerri wrote: > > I had my second apt with my rheumy yesterday, they've prescribed me > Arava... any insight on that drug for those of you who have taken it > would be appreciated. Tomorrow I start the first day of the loading > dose. The assistant said that all my blood tests for RA came back > elevated,,, not sure what that means. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2009 Report Share Posted May 25, 2009 > > Hi Bee, > > Is jumping rope like rebounding, which you recommend? My legs are not hurting now like they used to, and I thought I could go back to jumping rope. I do body brushing, which I worked up to, gradually increasing. I go up stairs at work, and will in my new home too , as the bedroom is upstairs. +++Hi C. Jumping rope is similar to rebounding, but of course it is a little more jarring to the body than jumping up and down on a trampoline. Jumping rope on a cushioned area, not concrete or hard floors helps, i.e. carpeted areas with underpads. Walking up and down stairs is also excellent. I've live in 3rd floor apartments for 11 years (no elevator), so I get lots of exercise, and it is also " weight bearing " when carrying groceries and other heavy stuff. I've had to do a lot of that since I moved here a year ago. They say weight bearing exercises are good for the bones. The best, Bee > Quote Link to comment Share on other sites More sharing options...
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