Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 , Will keep you in my prayers, Tawny > Those are two words you really DON'T want to hear in a doctor's > office. Apparently, I have a classic history and current symptoms > of lupus, but my latest bloodwork (a month old, now) just doesn't > support it, and certainly not cerebritis. I saw the bloodwork > earlier this week, and I had to agree...I was telling my husband and > mom that it was really inconclusive. My ANA DID finally test > positive, but at a low titer (1:80), and a speckled pattern, which > is not indicative of lupus. My dsDNA was positive, but well within > the normal range, not high like my test in June. AND, my C3 > complement is high, not low as is normally seen in lupus and > cerebritis. I do plan on discussing this with my neurologist, since > I've been reading that some researchers believe that C3 proteins are > major facilitators in demyelination in MS. He has ordered a new set > of labwork, and is going to have me screened for hereditary > thrombosis, since my dad had a rare disorder which causes excessive > clotting...we had only found that out after he died of a massive > heart attack. I have an EEG, echocardiogram (to rule out blood clots > and check for vasculitis within the heart muscle), and a spinal tap > on Monday. Hopefully that will clear things up. As for now, > everyone is scratching their heads, and wondering what to do with > me, while I'm forced to play referree between my husband and my mom, > since she is down to help, and they can't stand each other. What > fun. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 , Will keep you in my prayers, Tawny > Those are two words you really DON'T want to hear in a doctor's > office. Apparently, I have a classic history and current symptoms > of lupus, but my latest bloodwork (a month old, now) just doesn't > support it, and certainly not cerebritis. I saw the bloodwork > earlier this week, and I had to agree...I was telling my husband and > mom that it was really inconclusive. My ANA DID finally test > positive, but at a low titer (1:80), and a speckled pattern, which > is not indicative of lupus. My dsDNA was positive, but well within > the normal range, not high like my test in June. AND, my C3 > complement is high, not low as is normally seen in lupus and > cerebritis. I do plan on discussing this with my neurologist, since > I've been reading that some researchers believe that C3 proteins are > major facilitators in demyelination in MS. He has ordered a new set > of labwork, and is going to have me screened for hereditary > thrombosis, since my dad had a rare disorder which causes excessive > clotting...we had only found that out after he died of a massive > heart attack. I have an EEG, echocardiogram (to rule out blood clots > and check for vasculitis within the heart muscle), and a spinal tap > on Monday. Hopefully that will clear things up. As for now, > everyone is scratching their heads, and wondering what to do with > me, while I'm forced to play referree between my husband and my mom, > since she is down to help, and they can't stand each other. What > fun. > > Quote Link to comment Share on other sites More sharing options...
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